Been sick a long time, and doctors aren't able to help.

Date:   5/28/2005 2:24:02 PM ( 19 y ago)

I knew something was wrong with me, but nobody else did.  I am 36 years old now; when I was younger I was in seemingly perfect health.  When I was 18 years old, I had to get perscription eyeglasses.  I became near sighted.  Even though all the eye doctors I saw said this is just a natural part of aging; I knew something was wrong. 

Four years later I noticed small bumps on my scalp.  People mistook this for the beginning stages of balding, however the hair no longer exsisted only where the small bumps were.  The doctors I saw ran fungal and bacterial tests on my scalp.  Every test came back negative, so according to the doctors nothing is wrong with me.  As the years go by, more small bumps appear on my scalp (for every bump I loose more hair).  Sometimes the bumps bleed and sometimes the skin on the scalp flakes off and is white similar to dandruff.  I see more doctors; I finally find one who gives me a diagnosis.  I am told that I have folliculitis.  Okay great, I say!  Now that you know what is wrong with me, how do we cure it?  Oh, I'm sorry sir; there is no cure for folliculitis.  Once again I am told that these things just happen (but why does it seem to just happen to me)   It was at this point that I noticed that certain foods seemed to make my folliculitis worst.  I asked the doctor about this, and was promptly told that food has no effect whatsoever on my condition.  I knew that was a lie, because if the medical community has no cure for folliculitis, than how can they tell me with certainty that certain foods have no effect on it.  Once again I knew something was wrong with me, but I didn't know what to do.  For the next several years I just live with my condition.  I wear baseball hats all the time, and I hardly socialize for fear of having to take the baseball hat off.

About three years ago, the doctors now tell me my thyroid hormones are imbalanced; hyperactive thyroid they tell me.  Surgery or taking radiation pills are my only option.  It is crystal clear to me that something is wrong with me and these doctors don't know what it is; I wasn't about to have surgery on my thyroid and be dependent on pills for the rest of my life. 

A few months later I noticed my skin in a few small spots lost its color or pigmentation.  As time went on the spots became more and more.  The spots are visable on my face, neck, and shoulders.  The doctors tell me this is called vitiligo, and once again they don't know what causes it and they don't have a cure .

If this wasn't bad enough, my teeth began to hurt so bad I thought I had cavities.  I could actually see a crater being formed in my back tooth.  It hurt like hell when I ate on that side of my mouth.  I go to the dentist expecting him to tell me it is a cavity and he will pull the tooth out.  No!  He tells me it is not a cavity, and he has no idea what is causing the crater to form in my tooth.  In other words, he doesn't know what the problem is and he can't help me. 

It is unfortunate but clear to me that whatever I got, will kill me if I don't kill it first.  At this point I made the decision to stop wasting my time with Medical Doctors.  If I ever get in a car accident then maybe, but for the cause of a health related problem...no way!  I now decided to take responsiblity for my own health.  Since the M.D.'s aren't going to help me; I must help myself.

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