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My Baby Girl: Please Help!

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  • My Baby Girl: Please Help! by  Mama Crow  4 year  1,077  Ask Tony Isaacs
    My baby girl is being sucked into the system.

    She is two months shy of fourth birthday, and was bulldozed by her best friend next door (a rottweiler) four weeks ago because he was too happy to see her.

    I did not see the collision as it happened in the neighbor's front yard ... vision blocked by cars and shrubs ... but, luckily the neighbor witnessed it, and luckily the neighbor is a CPS social worker! Oh, and even more luckier, the next door neighbor and I use the same pedi!!

    (These facts are important to "cover my ass" later against possible suspicious allegations of abuse.)

    I remained calm throughout the initial panic and intense pain, and called her pedi ... thankfully the pedi knows we prefer a conservative approach to medical issues, and knows my baby is not one of her patients that is seen for every single fever and sniffle (in fact, baby girl hadn't been to the doctor since her two year check-up.)

    Anyway, the pedi assured me a blow from a dog is not enough force to break a bone (especially a baby's) and agreed that I should just watch her and wait for her to heal on her own.

    Baby girl laid motionless for five days ... which is RARE ... and, two of those days she was in intense pain. I kept her as comfortable as possible. We all assumed a deep-tissue injury or some other related acute trauma.

    Pedi finally, and reluctantly, surmised an xray was in order on the sixth day of no standing/walking.

    DX: irregularity of proximal femur with possible hairline fracture of hip socket

    Still, as frustrating as it was ... we both decided to wait it out.

    Her pedi saw her on the 9th day of healing, and baby girl was still refusing to attempt to walk.

    So, x-ray in hand, we were sent to an orthopedic specialist for further evaluation ... actually, with the intent to set our minds at ease, and to be told this is normal.

    (Mind you, we pay out of pocket as we have no medical insurance.)

    Ortho didn't even look at original xray ... he wanted his own ... this is the 11th day of healing.

    Yep ... same diagnosis ... irregularity of proximal femur with POSSIBLE hairline fracture of hip socket ... come back in two weeks for a follow-up. $350 for a two hour wait, and less than three minutes of his time.

    Today was the follow-up. More x-rays. Bone appears to be mending at a rapid rate (which is NORMAL for a baby.) Cannot even see the prior POSSIBLE hairline fracture of hip socket anymore.

    BUT he is "deeply concerned" with the continued "irregularity" that has the continued appearance of "ground glass" on her proximal femur.

    And now we are to go get an MRI ... which will have to be scheduled as a surgery because, due to her age, she'll most likely have to be "put under."

    He'll consult with her pedi to determine if she should just be heavily sedated or if an anesthesiologist should be brought on board.

    Everytime I questioned him I was brushed off ... even right down to "what exactly are you looking for or hoping to rule out?"

    He was extremely vague with his responses even when I called him out on his vagueness. He maintained that he just didn't like it at all, and wanted to investigate further.

    So I came home and began my own research.

    Of course, what I found was frightening ... bone cancers and whatnot ... and I shed buckets of body-wracking tears ... but I continued researching.

    What I stumbled upon was the fact that, aside from fibrous dysplasia and/or a possible benign bone cyst (which can cause these so-called ground-glass appearances), rapid bone growth and new bone formation can also present the exact same description of a "ground-glass" appearance!!

    Where bone is formed rather rapidly, such as occurs with the growing child and/or during a fracture repair (both instances fit my baby to a T) the collagen fibrils often assume a very irregular orientation, and spicules of new bones are responsible for the well-known "ground-glass" of the fibrous region.

    Help! My baby is being sucked into the system!

    Why are they doing this? And how can I get out of it?

    What would you do?

    Do you think I can find a way to creatively postpone their additional "testings and treatments" ... while I attempt to treat her here at home?

    By the way, she began tentatively walking this past Sunday ... and every single day she has gotten stronger ... she is stiff in the mornings, but loosens completely up by mid-day.

    She has no pain at all whatsoever anymore ... just a small limp.

    My baby is healing on her own, and the system wants to make a case out of her.

    I can see it now ... MRI ... well, let's do a biopsy ... come back in two weeks for another xray (or whatever) ... please help.

    She has already had SIX x-rays since this whole ordeal began.

    Advice?

    (Put yourself in my shoes: this is YOUR baby ... what would YOU do? What treatment would YOU begin for her at home?)




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    • Re: My Baby Girl: Please Help!  R by  Tony Isaacs  4 year  909

      I think you are entirely right to be concerned.  Six x-rays and wanting to do still more to a child whose bones and organs are still forming and developing?  To me that is just way too much, given what you have described.

      If it were me, I would give my child loving care and good nutrition, make sure she gets plenty of vitamin D and give her some potassium iodine to help offset the effects of the radiation.  It might also be a good idea to have her take small amounts of oleander (perhaps half a capsule ever other day) for awhile and add a bit of curcumin.

      I think that the product IntraKID (which is a version of IntraMAX made especially for children) is simply wonderful.  To help insure proper bone repair and growth, some extra silica should serve her well.

      This is just my opinion, but the last thing I think she needs is further x-rays and getting into a cycle of managed illness, where one doctor refers you to another and you get tests and x-rays at labs owned wholly or in part by the doctors and then possible medical procedures and medications which may not be necessary, etc., when there is every indication that she is already on the mend.

      All the best,

      Tony

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      • Re: My Baby Girl: Please Help! by  Mama Crow  4 year  881
        Thank you! I've been checking every hour to see if there would be a response!

        I'll look into your recommendations.

        Any thoughts on how to avoid getting further sucked into this quagmire without causing a lot of waves to draw attention to myself?

        Should I just pull some stalling techniques?

        Edited to add:

        Today, while playing outside with her dogs (her beloved German Shepherd and Great Pyrenees) she started RUNNING ... laughing and singing at the top of her lungs.

        The child is definitely on the mend!

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        • Re: My Baby Girl: Please Help! by  Tony Isaacs  4 year  813

          Why hide anything?  I would simply say that she appears to be doing fine and be well on the mend, is now running, laughing and singing, and you have chosen to forego any further medical treatments, Xray radiation on top of what she has already had or anesthesia unless you notice any further signs of products and instead go with good nutrition, healthy lifestyle and mama's intuition and observation.

          All the best,

          Tony

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          • Re: My Baby Girl: Please Help! by  Mama Crow  4 year  855
            You are right, why hide anything?

            On top of all of my stress, I was just worrying about the world we live in nowadays i.e. children being taken outside of parent's decision-making rights, and becoming wards of the State if parent's disagree with their conventional medical protocol.

            (I thought these procedures were going to be forced upon us.)

            I'll follow my gut/heart, and stand my ground.

            Thank you very much for your suggestions and time, Tony.

            Aren't you loving our Texas weather?

            *big smile*

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            • Re: My Baby Girl: Please Help! by  Tony Isaacs  4 year  819

              It is sad to me to see so many children being raised on fast foods, junk foods and processed foods off the grocers shelves that have had the nutrition processed out and additives processed in for taste, texture, color and shelf life - and then they may throw in some synthetic petro-chemical vitamins and crushed rock minerals and call it enriched.  Reminds me of the old commercial that said "Wonder Bread helps build strong bodies twelve ways". My arse!

              Even when one includes plenty of vegetables and fruits, they often come off the grocers shelves with pesticides, low enzymes due to being picked early, artificially ripened and shipped in cold storage cars, and from soil that has been mineral depleted.  Given that and all the toxins we have introduced into the environment, it is little wonder that we see so many developmental problems in children these days, even given the propensity of child psychiatrists and other doctors to over-diagnose and over-prescribe.

              All organs need optimum amount of a very great many vitamins, minerals, trace minerals and other nutrients, including healthy fats, to develop and function properly.  That includes the vital organ known as the brain.

              And yes, I'm loving the weather even if it is a bit soggy.  I actually had to wear jeans and a long sleeve shirt yesterday evening and last night.  I'm sitting here tonight with the windows open and listening to the night critters on my tree shaded lot.  We just love our new place nestled among 28 big oak trees.

              Time to go hit the back2life back machine and read myself to sleep.

              All the best,

              Tony

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    • Re: My Baby Girl: Please Help! by  LuellaMay  4 year  802

      Bless your heart Mama Crow.  I just want to jump in here to give you some moral support.  I cannot imagine what you have gone through emotionally.  I am so very glad your baby girl is doing so much better. 

      Hugs,

      Luella

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      • Re: My Baby Girl: Please Help! by  Mama Crow  4 year  807
        Thank you, kind LuellaMay :)

        It has been a strain emotionally, financially AND psychologically.

        I am ready to get this all behind us, and watch my baby girl flourish!

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        • Re: My Baby Girl: Please Help! by  LuellaMay  4 year  798

          And she will Mama Crow.  Follow Tony's advice.  Thank goodness, the worst is behind you.

          Many hugs,

          Luella

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          • Re: My Baby Girl: Please Help! by  Mama Crow  4 year  900
            I'm re-reading his advice, and taking notes now ... right back'atcha with the hugs :))

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            • Re: My Baby Girl: Please Help! by  SDK  4 year  887
              Hi Mama Crow,

              I have raised two rather good kids. One boy now 27 and a girl of 21 now.

              Boy was pretty much without major injuries, but the girl was a different story. I have once actually proclaimed that: "She will find a way how to kill herself with just about anything. For example, she broke her finger with her backpack going off a school bus. And yes, I was accused of abusing her at the hospital. I can tell you that I really felt like throwing a lot of abuse at them, but things do not work that way in such situations.

              From what you have described, I would leave the things go their own way for a while. As a defense against your specialist doctors, I would grab the document you found regards the child growing and bone break healing x-ray expression and rub their noses in it. Politely, but persistently. They sure will not like it and will have all kinds of comments on an amateur teaching the birds fly. You can then as well tell them that you will seek a second opinion and leave it at that. As a safe guard, you might want to have her checked in lets say a month again, but other than that, I would stay away from them.

              With kind regards, Slavek



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              • Re: My Baby Girl: Please Help! by  SDK  4 year  827
                Hi Mama,

                I forgot to add:

                Do your best to get hold of all the x rays at this time. Since you have no insurance, you have paid for them directly and they are yours. It may save you some future hassle if you need them for comparison and it will make the second opinion story entirely plausible. I would also avoid telling them where you intend to go for that second opinion, as they will probably ask. Be ready for it.

                BTW, congratulations on your checking the information. That's the way to go and do not worry too much :-)

                With kind regards, Slavek.

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                • Re: My Baby Girl: Please Help! by  Mama Crow  4 year  856
                  Guess what? Right here at my desk is a CD given to me from the orthopedic specialist ... I am to take it with me to the MRI appointment they are pre-scheduling for me (haven't heard back from them as to when it is, though.)

                  Anyway, this CD has her recent ortho medical records and her x-ray images on it ... I cannot open it on my computer, but it is in my possession :)

                  Thank you very much for your replies!

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                  • Re: My Baby Girl: Please Help! by  FromOz  4 year  846
                    It seems the people I know who've had RMI recently, they wee all given CD's they cannot open on the home computer. One has taken it to his chiropractor to have a look, guess what, he couldn't open it either. Wonder why? Docs must have ar eason to use system that we, mere patients can't open.

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                  • Re: My Baby Girl: Please Help! by  SDK  4 year  866
                    Hi Mama,

                    Opening the CD is going to be a hassle, but probably not impossible.

                    If needed, I would first try someone with a mackintosh, just in case.

                    Second chance are pirate sites with all kinds of cracked programs. That is probably the best bet.

                    Even if you can't open it, the next doctor, you may use for later check up will be able to do so.

                    With kind regards, Slavek.


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                    • Re: My Baby Girl: Please Help! by  SDK  4 year  873
                      Hi,

                      I just looked up what the medical image discs may be all about.

                      These files are designed to use industrial data transfers from assorted imaging machines usually in unix. Their format is suitable for further computer manipulations and computerized medical evaluations. It is not a conspiracy "for a change" :-)

                      I would expect that even doctor's offices have to go through a dedicated server to open these discs and view the files on PCs, all passworded etc. It is going to be somewhat similar to CNC operated machinery.

                      With kind regards, Slavek

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    • Email I Sent to Pediatrician  RR by  Mama Crow  4 year  979
      Dear Dr. Adams:

      I really hope this important message reaches you, and you will take the time to read it.

      The ortho is "deeply concerned" with the continued "irregularity" of Nani's proximal femur (that also has the continued appearance of "ground glass") and now we are to go get an MRI.

      I was told he would want to consult with you to determine if she should just be heavily sedated prior to the procedure, or if an anesthesiologist should be brought on board to put her under.

      Nani has already undergone six x-rays in four short weeks ... repeated radiation on a child whose bones and organs are still forming and developing ... and I am not comfortable with continuing this aggressive cycle of diagnostic imagery.

      I feel we should wait to see how Nani continues to progress on her own. Her recovery has been remarkable, and there is no more pain whatsoever. She is laughing and playing, and even running (with only the slightest limp.)

      I have the utmost respect for the medical field, and aside from a panicked start as I adjusted to having a newborn again, I have never abused the services. I am not the mother who runs to you for every fever or sniffle, and have always leaned toward a holistic approach to healing. My children's immune systems are strong, and they seldom get "sick."

      I rarely contact you, but when I do you can be assured it is because my gut tells me that extra reinforcements, beyond chicken soup and Mama, may be needed.

      Well, my gut tells me Nani is fine, and will be fine.

      The ortho would not specifically answer my questions as to why he wanted to investigate this further, and "vague" does not go over well with me so I came home and began my own research.

      What I found on the surface was, indeed, disturbing (osteosarcoma, fibrous dysplasia, various types of bone cysts, etc) and I can understand his wanting to adhere to protocol ... especially since the more serious diseases are often found accidentally while treating an initial, separate trauma.

      I compared her x-rays with osteosarcoma images, and found nothing that is remotely similar (with my untrained, but critical, eye.) Besides, she really doesn't fit the standard profile of this rare disease anyway.

      And, in the event that "this irregularity" is a mild case of fibrous dysplasia, most likely her healthy body will correct the issue on its own (if allowed) and it will be outgrown.

      But I highly doubt it is FD because there is no continued bone pain (and the bone pain she did have was an acute symptom resulting from injury); there is no unexplained difficulty walking; there is no unusual skin pigmentation; there is no bowing or shepherd's crook; etc ... so, once again, she doesn't fit the standard profile.

      Further research taught me that, in the event "this irregularity" is indeed a benign (UBC) bone cyst, then most likely it will be absorbed by her own healthy cell growth as the bones slowly ossify.

      Still ... my gut is telling me that the ortho is probably wanting to rule out fibrous dysplasia and/or possible bone cyst with this MRI order ... maybe even possibly wanting to pinpoint where to draw a biopsy just to be safe ... given his repeated usage of the terms "ground glass" and "irregularity."

      So I delved deeper into my research and also discovered something else very interesting.

      Not to insult your intelligence (or his) at all, but to try to show my own capability of having just a little myself, I discovered that rapid bone growth and new bone formation can also present the exact same description of a "ground-glass" appearance.

      Where bone is formed rather rapidly, such as what occurs with a growing child and/or during a fracture repair, the collagen fibrils often assume a very irregular orientation, and the spicules of new bones are often responsible for the well-known "ground-glass" appearance of the fibrous region.

      Nani is a growing child and is also repairing a possible fracture ... so, in her case, a "ground-glass irregularity" would not necessarily be so abnormal afterall.

      No need for invasive procedures.

      At least right now.

      Therefore, I humbly request that you please support me in my decision to postpone immediate and further procedures, and allow me to wait and see how my child progresses with careful observation, continued good nutrition, and Mama's old-fashioned intuition.

      I promise to call you if I notice anything that sends my red flags back up.

      Thank you so much for your time, and I pray I haven't offended you.

      Brooke Crow

      P.S. I have the ortho's CD with her images and records if you would like them ... I'd like to schedule a follow-up appointment with you next week to discuss this, and to monitor Nani's well-being with her primary physician since birth.

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    • Re: My Baby Girl: Please Help! by  cattrina  4 year  744
      hi my name is cattrina hopper and i have a 4 month old daughter her daddy my bf was whating her will i was at school we live together by the why he was jocking aroung face slapping her and she was fack kiking back just kidden around she started to cry and he though he hit her to hard so he picked her up and tryed to culm her she did at first then started crying again he got scared and though he was squezzing to hard so he let go he tried to ketch her as she fell but he only slowed her down she hill her head of her round about and hit the floor he pick her up and tryed to calm her after she was calm he checked her oven and took her in immidetly hopping she was ok luckly the hospital is in town he called for a ride meanwhile bawling his grandpa took him in we got there and they did xrays and ct scan then we were transfored to st.jonhsthey did xrays again and another ct scan and then all assudent jacob got blamed for doing it on perpose even though he did NOT they took him to jail and said he shouldnt of ben playing with her eny way



      so now americans can play with there kids when did this law happen
      so we cant have accident well then americas screwed what next there gonna say we caant get sick


      DCFS has TOOO much power

      BEWARER they will twist all your words so read what the wright and scan it so u have ur own copy i didnt and well now there trying to say i said he beats me when i no we he does not and i know damn well that i didnt saa that

      also st.john hospital is a joke they bsaid the found fracktures in her legs and arm the havent told me where exacly there at or showed me i asked them to and they wont they say that this chouldnt of bin an accident they dont know that and it WAS also i cant have my door closed they say they have made rood comment and yelled at me and my faimly for nothing told isabella her daddy doesnt love her and they told me that i should go home im wondering if these fracture are real THEy WONT SHOW ME THEM and she not in pain at alll shes happy eccept when she misses daddy i asked for them to do a brittle bones test and they saiud its to rare so there not gonna hello to them rare doent mean its inpossiblde it can happen if she does we need to know dont u think


      they wont let here see her daddy theve gonna way over board they tested my brothg not her mine for fracture saying jacob beat them JOCON DOES NNOOTT BEAT ENYONE

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      • Re: My Baby Girl: Please Help!  RRR by  LuellaMay  4 year  998

        Cattrina,

        Bless your heart, I am going to make this post as kind and compassionate as possible, but as I read your description of the events leading to your daughter's injuries, I am going to state that something is terribly wrong and I am extremely concerned.  First of all, were you there to witness these events or are you taking your boyfriend's word for it?  I know that it is very difficult to accept that someone you love may be abusing your child behind your back, but it happens every day without the mother having a clue.  When the abuse comes to the surface, this becomes a crisis for the mother because not only does she have to deal with the injured child, but also with the betrayal inflicted by the one they love.  One cannot believe that our partner would inflict such harm behind our back.  The reaction is immediate disbelief, then as one comes to realize what has happened, betrayal, anger, grief, confusion, all types of emotions surface.  And this is what you are going through now.  Please realize that it is up to you to protect your daughter from anyone that harms her.  She is only a mere four months old.

        Okay, let's go through the steps of the story, one-by-one, as you described them.

        why he was jocking aroung face slapping her and she was fack kiking back just kidden around she started to cry

        Why was this man joking around slapping a four month old?  The child was kicking back for protection.  Then she started to cry.  This is a big clue.  Obviously, the baby was not happy with this situation.  A baby has no means to protect themselves, no defenses.  Slapping is no form of play, not even for a child, much less a baby. 

        and he though he hit her to hard so he picked her up and tryed to culm her she did at first then started crying again he got scared and though he was squezzing to hard so he let go he tried to ketch her as she fell but he only slowed her down she hill her head of her round about and hit the floor he pick her up and tryed to calm her after she was calm he checked her oven and took her in immidetly hopping she was ok luckly the hospital is in town

        Let's look at the above paragraph step-by-step.  He thought he hit her too hard?  If someone is merely playing with a baby, why would there be concern that said baby was hit too hard?  Why was he scared that he was squeezing her too hard?  And then he let go?  And then she fell and hit her head?  Cattrina, something is very wrong here.  Your four month old baby was undergoing violent abuse.  Please look at this picture objectively.  It looks like he became exasperated with this baby for some reason.  Maybe she was crying and wouldn't stop?  From where I stand it looks like the slapping was out of anger and one thing led to another and became out of control.  Then he became either scared or sorry as to what he was doing and what ensued were attempts to calm the baby while becoming more frustrated and/or more frightened, inflicting more damage in the interim.  This is the normal profile and steps taken in abusing a baby.  Is it possible that this baby was forcibly "shaken" during this process?  This was not playing Cattrina, I would venture to say that this was anger.  I would also venture to say that this is not the first time it has happened behind your back, this is just the first time he was caught, the first time the baby got visibly hurt.  From the fractures that you describe, it is possible that it is not the first time the baby got hurt.  I also want to point out that forcibly shaking a baby can impair their spinal cord.

        From what I have read of your account, the doctors made the right decision and this man belongs in jail.  Cattrina.......  What if he would have killed your baby?  Then what?

        so now americans can play with there kids when did this law happen

        Cattrina, this was not playing.  This was violence.  When a baby is playing, they are happy, laughing, they are not crying.  Even if I should be playing with a baby and that baby should not be in a good mood, or maybe not feeling well and starts to cry, I immediately stop playing and do not force the issue.  Forcing the issue in such a case is abuse. 

        so we cant have accident well then americas screwed

        Cattrina, this was no accident.  The only way that this was an accident is that his slapping in attempting to stop the baby from irritating him got out hand.  One thing led to another and the baby either ended up getting dropped or fell, injuring her head.  Cattrina, this is the way babies die.  Please see that this is most serious.

        also st.john hospital is a joke they bsaid the found fracktures in her legs and arm the havent told me where exacly there at or showed me i asked them to and they wont they say that this chouldnt of bin an accident they dont know that and it WAS

        The above sentence is most serious.  Your four month old baby has been undergoing violence when you have not been at home.  What type of accident or what type of playing would cause these injuries?  Cattrina, listen to the doctors, they are on your side and are doing what is right.  Please protect your baby.  She is helpless, innocent, and in no way deserves what she has been going through.  My gut feeling is, should you get back with this man, he will end up killing her.

        The pattern of an abuser is that they will deny what they have done, lie quite convincingly, knowing that because of your love and trust for them, you will believe them and side with them when, in actuality, it is the injured child that you should be siding with, your child.  Your anger should not be aimed at the doctors and the system in this case, it should be aimed at your boyfriend which you should break contact with immediately. 

        I don't know why they won't let you see the test results showing the fractures, but I sense there is more to this story that I do not know. 

        I am sorry if my reply upsets you, but from your side of the story I see huge red flags.  Stop and look at this whole scenario objectively.  This, even in a playing fashion, is no way to treat a four month old baby.  I am going to implore you to get this man out of your life before a tragedy occurs.

        My Best,

        Luella

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      • Re: My Baby Girl: Please Help! by  Tony Isaacs  4 year  721

        Cattrina,

        Swetheart, we have all heard horror stories about the abuses and overzealousness of Child Protective Services, but what you wrote was simply horrifying: Face slapping a four month old?  Dropping her instead of sitting her down?  Signs of previous fractures?

        We have all also heard that love can be blind, and I believe that such blindness is causing you to overlook what is happening to your precious baby.  I pray that you listen to Luella, because what you have described just does not add up to a mere series of accidents.

        All the best,

        Tony

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