First and foremost to all of my fellow sufferers out there, don't "assume" that you have TMAU just because you smell, and smell constantly. The only way to know for certain is to get tested. I can't emphasize that enough. Get yourself tested! Although my symptoms fit the description of TMAU, I have not been offcially tested. I will be going to an Internal Medicine doctor, and hopefully get a chance to be referred to an Endocrinologist.
I will say this much for this condition, my career and my life in general have been displaced. I have a very uncertain future in this world, as long as I have this condition. The shame, fear, guilt, humiliation, and frustration continues to take its toll. On the up side of things, this condition has taught me humility. It also has taught me that God is not at my beck and call. I am slowly beginning to realize that I need to trust in God, even if He doesn't remove my condition.
I am also slowly beginning to realize that being angry and upset with God is wrong. Life isn't perfect, life isn't fair, but we can choose to control the things we can, and look to God for guidance in the things we can't control. Whenever I see non-malodor sufferers enjoying their lives to the fullest, it makes me happy to know that life does indeed go on, regardless of my condition.
I am slowly but surely beginning to accept my condition for what it is. It's not admitting defeat. It's being realistic in dealing with something that's beyond my control. I may very well go to my grave with malodor. That is a possibility, that I'm willing to deal with one day at a time. Having said all of this, I will continue to do my part in finding answers and hopefully a cure.
This was the best post I ever read, you are strong and I Pray for us all to oneday find a cure but I also to have been thing all of things u just said, if this stuff don't stop than I can't stop living. I have to try to keep on pushing even when this have me crying all day I have to atleast try to go on with my life, I Love this post from everything you said so thank you very much!
You seem to have a great spirit. This disorder is crippling and it is hard to live with, but I guess we don't have a choice. We just have to keep our heads up and keep marching even when things get unbearable. I wish you best and I hope your positive attitude will lead you to a cure. Like the people you see enjoying life with no malodorous issues, we probably can all try to get there too and maybe most of us will, but everything takes time and you just have to place your trust in God. I wish you the best.
yeah..i like your positive thoughts
living like this is so tough, i have my ups and downs but in the end of the day, i should trust God.
i believe that he have a better plans for me.
i wont living like this forever, im sure that one day, i will wake up without this fbo..
life is a matter of choice whether we lived our life to the fullest or being alone and sad all day long..
(im just 15yro and i cant believe that im saying this things.lol)
just stay strong everyone
god bless us all..
I don't think someone chooses to be alone and sad all day long that's just the way it sometimes works out for extreme body odor sufferers. Having said that, we do have a choice to go out and try to live life to the fullest and not be discouraged.
You are 15 but your thinking is mature. Yup, at the end of the day, we thank God for His mercy and grace that help us to endure through that tough day. Trust God that all the bad things around us are not His doings just that we are in an imperfect world. Things will get better when we drawn near to God through prayers and praying with others. May God gives us strength that we need..
hey guys if antibiotics worked for some of you, you should try antibacterial natural remedies such as tea tree oil, oil of oregano, grapefruit seed extract, manuka oil, etc. try researching some natural antibacterial properties I hope they work. I've tried those things with no success but it might work for some of you. Also I've ordered a body deodorant with manuka, lavender and tea tree oil in it, im gonna try it in two weeks or so if it works for me ill recommend it.
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