My adolescent daughter, "Bee", was diagnosed with severe U.C. in February. Apparently, she had been suffering in silence for over a year, rarely complaining of anything more than a slight bellyache.
The first two doctors missed it altogether. One even diagnosed her with bronchitis, and the medications she prescribed worsened Bee's condition. When we continued to call and see the doctor with complaints of diarrhea, fever, and pain, (for over three weeks solid), we finally ignored her advice to "wait and see" yet again and took her to ER. They sent us on to the children's hospital, and all they were able to tell me for hours, while they ran test after test, was that she would most likely need a transfusion.
By this time, the smell coming from my little girl was so frightening at all times...she smelled of decay, and we were quite terrified that we were going to lose her.
Our fears worsened with each hour, as we were admitted into NICU, and visited by several teams of puzzled doctors throughout the next day or so. They even put her on morphine for the pain.
We finally saw a specialist, Dr. S., who diagnosed her with U.C., and began a course of treatment, prescribing steroids, (Prednesone), anti-inflammatories, (Rimulac {sp?} before we left the hospital, and Asacol for an undetermined time period). She received a transfusion, and went through some of the most unpleasant things imaginable during her hospital stay, which was almost three weeks. She was also prescribed a diet of bland, softer foods, high in breads and dairy. (I, myself, am lactose intolerant).
We followed this course religiously, diminishing the steroids when Dr. S told us to, believing she was eating well, although it did seem strange that the doctor recommended NO fiber whatsoever. We exercised, drank gallons of water, and maintained a calm environment. We did everything we knew to do.
Four months later we were back in the hospital. Although the condition was not as dire as the first time, we were noticing symptoms returning, and when we took her to the lab, the bloodwork showed low red blood cells and very high white ones yet again. Her SED rate had once again skyrocketed.
Our stay was only three days this last time, but it was enough time for me to hear whisperings of "colostomy," and other such things that rip a mother's heart out. They once again put her on Rimulac, Prednesone, Asacol, Imuran. Already looking into alternatives, my family doubled our research and tripled our prayers.
I am not a religious person, but I do believe in the power of prayer, now more than ever, since we were running out of all hope and time, (to heal her before they started suggesting the colostomy in earnest), and stumbled onto Sheldon's messages. My mother was actually the one who found him first, and has been communicating with him during this process for the past (almost) month.
(I must pause a moment to mention that Sheldon is such a kind, truly good-hearted gentleman. He answers all of our questions, even the redundant grumblings, with the patience and supportiveness of an angel. In fact, I'm pretty sure he must be one).
Within one week of beginning this Vitamin E Therapy and diet, Bee had formed solid, normal stool. She was experiencing no pain, and no discomfort. Our labs began turning out beautifully.
We are due back at the lab this coming week, and I have all faith that we'll get more good results.
Of course, the doctor will tell me it's the meds, particularly the Imuran. However, he also told me, "the Imuran cannot be expected to take effect for three months." Not to mention, I have been decreasing the prednesone slowly every two weeks. We started at 30mgs this time, and are now at 15mgs. I was also supposed to have increased her dosage of Imuran well before the last labs, but I did not do so, instead keeping her on the lowest dosage.
As I said, the labs were great, and I have not heard word one from the doctor's office in regards to anything looking "unusual."
Week after next, we have an office visit with him, and although I don't look forward to verbally disagreeing with him and his methods, (because I sincerely believe he is trying to be the best doctor he can be, and is just limited by the pharmaceutical-induced ignorance of modern bureaucratic medicine), I AM going to tell him that we want to reduce the meds as quickly and safely as possible.
(I will try to update after our appointment, although the message will be MUCH briefer then, hopefully).
I am posting here mainly to thank Sheldon, but at the same time to provide a testimonial to help others. This treatment is working! Like I told our regular RN once, "It's not as if I'm looking for some rare monkey-butt cure. I'm not one of those." But we were desperately looking for a logical, proven answer, and we found one in this Vit. E treatment and sensible diet.
Granted, this treatment isn't ever going to be as popular as the quick and easy pop-a-pill temp fixes, but it's just a matter of will and desire. We all desired that Bee keep her colon and regain her health. She was NEVER a sickly child before this illness. No colds. No flus. NO ear infections, and never a hint of anything else until the moment there was.
Bee is now healthy, and eating those vegetables up like there's no tomorrow. Whereas she used to live on pizza and fried chicken and breads, (not to mention tons of fruit and juices, which are SUCH a no-no with u.c.), she now says her favorite foods are brocolli, cauliflower, beets, and brussel sprouts....and I don't know about you, fellow posters, but this mom thinks that's such a strange, and yet, awesome thing to hear.
I will update more in the future, so anyone interested will know that this isn't a whim or a temporary thing. I am SURE that it is the right thing to heal this horrible condition. I'm watching it do just that every single day, and we have such a peace of mind about it now.
I promised to post a follow-up to my last message after we got labs back in October. I'm just now getting around to it, because we've been busy moving.
The labs DID, indeed, come back "perfect." The doctor was amazed. I don't think I've ever seen him smile so much...that was, until I told him I wanted to get my daughter off all the meds as soon and safely as possible. He wanted me to up one of the meds, (imuran), for prevention. First, he tried to accredit the Imuran with her wellness, then I reminded him that he told me the Imuran wouldn't even take effect for over 3 months, (we had only been on it a month at that time). He squirmed a bit and muttered something about it reacting differently in each case. The end of our debate went something like this:
Me: "Okay, so explain to me exactly why you think she needs to up ANY meds, instead of just quitting them all asap."
Doctor: "We don't even know whether or not the Imuran is effective at the dosage she's taking it...it's purely homeopathic and might not even be doing anything at this point."
My only comment was, "Exactly."
He was just sitting there unable to argue these perfect labs with me, unwilling to listen or educate himself on the facts of this vitamin E treatment. He, basically, fled the room without telling me how to get her off the meds, so I have been slowly decreasing them by half-dosages since. She should be "clean" by mid-December.
SO FAR, SO GOOD! I'll will try to update again at the end of the treatment, and hopefully, I'll have more positive news again at that time.
Everyone take care, be well, and have happy holidays.
Hello,
I have no doubt that your daughter will soon be off all medication.However,since the medication may be suppressing the real healing,I would remain with the procedure a month or two longer and then stop the enema.If you don't get a negative reaction,the colon is healed and you can try one new food at a time.If there is any negative reaction,continue the procedure.
Since medication should be reduced properly,it should be under a doctors supervision.
In Jan.2003,I received the following E mail from "The Weeks Clinic"docter@weeksmd.com.
"I learn much of what I know from patients but I have never heard of vitamin E enema for UC.When I read your notes about it,I was tickled!I can't wait to recommend it to my patients.
Thanks for passing on such good information!
happy new year!"
Bradford S. Weeks,M.D.
We have had more labs after coming off all meds, and those turned out great, too...everything normal. We have past the 3 month point, and are continuing with the diet for the most part, adding other foods very slowly. So far, we haven't added very many, but it being the holidays, the kiddo has wanted to splurge in small ways. However, the "results" (which is how I describe the effects of different foods on her bowels), are still normal. My daughter looks healthy, and she seems happier than I have ever seen her.
I want people to read this and understand that THIS WORKS. I talked to a man a few weeks ago whose own daughter lost her colon last year. If only I could have talked to them sooner...
Although my daughter is technically "off the treatment," we continue the process for the most part. We are just now tapering down the enemas to every-other day. She still drinks plenty of water and continues with the vegetables and other foods included in the diet, and we try to slowly add foods that aren't completely "new", in the sense that they are similar, or contain the same ingredients as the foods she's been on during this treatment.
I've already heard stories of other people who "tried" this treatment for one day, and then quit, because they couldn't curb their addictions to processed foods long enough to see that it's so effective, and so natural and CHEAP, compared to major surgeries and those ridiculous "cover up" treatments they are now advertising. I understand it's hard to give up pop tarts and cheeseburgers, but I really believe it's got to be harder to give up your colon.
I think it should be major motivation that a 13 year-old child gave herself over to the process and beat the statistics. And she didn't cheat once, although we can only imagine how hard it has to be for a kid that age to hang out with her candy-chomping peers, and have that much will to heal.
We are getting another set of labs, just to keep watch, in the next week or two, (when all this crazy midwest snowstorm junk goes away), and I'll post again. Until then, I just want everyone to know that it's been a pain-free three months for her, and a relatively stress-free time for us. I wish I had better words to paint a picture of how RIGHT this treatment is, but these posts will have to do. I hope many, many more people suffering from u.c. and the like will benefit from Sheldon's advice. Thanks again.
Thank you d.In three years of posting,I received a great many positive replies by E mail.Having TAKEN the procedure and not posting their positive experience they have been directly responsible for unnecessary suffering and expense.Only a very few people had the decency to post.My posting alone carries very little confirming weight.
Oh, you know how it is, Sheldon. Most people can never find the time to help change the little things that would enable us to have better lives in this world: like boycotting McDonald's, disposing of litter properly, not bringing flus and colds to the workplace, and, of course, POSTING ABOUT THIS TREATMENT WHEN THEY TRY IT.
Thank goodness, I have a big mouth, and lots of time to review, critique, complain, or praise as the case may be. But I'd POST even if I didn't have all that time.
This treatment saved our family SO much pain, expense, stress, and b.s. It's logical, it's effective, and it's successful. And if I come upon anyone else with ulcerative colitis, who is willing to do the treatment properly, I will make sure they post, too. It's OUR job to change medical standards in this nation, because the medical industry sure as heck isn't going to do it. Not as long as they are having a sordid affair with the pharmaceutical industry, and that means never.
The people in charge of releasing "Rimulac" to the general public as a way of "controlling the pain of ulcerative colits and Crohn's" should burn in Hades. As if concealing pain is the same as healing! It's a lazy world we live in.
Hello, Carrots are on the procedure diet list.If you do the procedure correctly,you should see a positive result within a week and continued improvement until the CURE.Leave the vegetable juicing until later.Please keep us posted.sheldon
For better results,use a capsule containing d-alpha tocopherol mixed with other natural tocopherols.
Go to http://www.curezone.com
On the opening page,in upper right small Curezone Google search window,type vitamin E enema.Posting issue 64 will give you the procedure information.
The basic diet has worked for many people.However,there can be diet differences in food tolerances between some people.Let your colon be your guide.Don't let your taste preferences for certain foods be your guide.The diet is the cornerstone of the procedure.Any wrong food or liquid will irritate the colon and delay healing.As stated in the procedure,the insoluble fiber of vegetables should be eaten at every meal.If you you do the procedure correctly,there should be a positive result within a week and then steady improvement to a CURE.
Once you get a basic diet that works for a time you can add one new food and wait for your colon's judgment.The length of time before the CURE will depend on the condition of your colon and how well you keep to the basic procedure.Please keep me informed.Additional information on the opening page at Curezone Support Forms(TOP). Find form "vitamin E enema" #114.On the page you will also find the posting Issue 64 BSA by sheldon 5 years.
I have been following the diet and using the enemas for four days now. Is it normal for symptoms to become worse before getting better? I am optimistic this approach will work for me....but am concerned for the moment that my symptoms are worse today.
Please list ALL the foods and drinks in your daily diet.Also the information on your vitamin E label.From passed experiences,there should be no regression if the procedure is done correctly.On the 5th day,your enema bulb should contain the contents of 5 capsules with a total of
4000 IU of d-alpha-tocopherols plus d-beta,d-gamma and d-delta mixed with 1.5 tablespoons of distilled water.Continue each enema with this amount of vitamin E.One wrong diet item can irritate the colon wall and delay healing.Thank you for sharing your experience.
I looked over your diet and compared with what I was eating, and there's only two things I can see that's different. I wasn't using distilled water. Unfortunately, distilled water makes me gag so I was using tap water (which I love). I was steaming my vegetables rather than preparing them in water in the oven. Would these two variances make a difference?
I have only a mild case of uc. First diagnosed 30 years ago when I was 15. Until a few years ago I was in remission for 20 years. Now I have a constant flare and just started taking sulfasalazine. The disease is getting worse as I age.
But, to answer your question, I eat scrambled eggs, LOTS of steamed veges (upper portion of asparagus, carrots, potatoes, squash (all peeled), spinach, etc. I peel all the veges you said to peel and I steam them all - none are raw. I'm also eating barley and brown rice and low fat yogurt.
Please let me know what you think and thanks for your help! I am looking forward to relief!
Your diet is excellent.Steaming is the best way to cook your vegetables.Drink the water in the upper steam basket it has many vitamins and minerals.If you have been drinking from the same water source
for the previous years and no irritating chemicals have been added since,I doubt your water is an irritation source.The enemas,however, should be made with distilled water.Are you orally taking the multi-vitamin and mineral capsule along with 500 mg of vitamin C and 400 IU vitamin E daily?The effectiveness of the vitamin E is greatly increased when used together with vitamin C and E and I have since read selenium.Please send the description on your vitamin E label.You should be at the 4000 IU
enema level.Thank you for your post.
I am using distilled water for the enemas. I'm using d-Alpha Vit E and the bottle says it's a natural source with no preservatives or artificial color added. I'm up to 4000 IU.
I've been taking the vitamin E orally as well as a multi vit/min capsule but I haven't been taking extra C. I will add additional vitamin C as well as selenium. My symptoms are much, much better now that I'm back on the sulfasalazine (of course my goal is to be symptom free without the meds).
I'm getting tired of the diet but will definitely stick with it. Heck, I just lost 6 pounds in a week from the diet (woo hoo!).
I'll let you know how I fare after adding the C and selenium.
Brown rice has insoluble fiber.White rice does not.Insoluble fiber is necessary to provide a
beneficial environment in the large colon for friendly bacteria.Brown rice is best because it has more insoluble fiber than oats.Oats have a larger percentage of soluble fiber.Stay with the basic diet until you get a positive result from which you can judge other foods one at a time by stool form and number of bowel movements.Since the colon is in a very irritated condition, one wrong food can further irritate the colon wall and delay the vitamin E healing effect.Be sure to eat a variety of fresh vegetables at every meal.
I was diagnosed with Crohn's Diseas/Ulcerative colitis 6 years ago, and have since with a miracle i guess lived an active lifestyle. I do get the occassional flare up here and there and have my diet restrictions, but was wandering if this diet will work for my condition also.
It is just where the intestinal tract attaches to the ascending colon and am wandering if the insertion through the back passage will reach that far into the bowel.
Your help will be greatly appreciated.
People like yourself makes this world we live in a better place.
PS: I started hunting around immediately for a vitamin E that matches the one you are taking but cant seem to find a "mixed" one.
Will this one do the trick?
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Vitamin E 500iu - 200 Caps
Thompsons
Enter Qty.
Of all the Vitamin E's, the most biologically active is the natural d-alpha tocopherol, with from 35% to 67% more International Units of the vitamin, weight for weight, than the cheaper synthetic substitutes.
Thompson's Vitamin E capsules are all not only entirely natural d-alpha tocopherols but also mixed tocopherol complex. This means that, in addition to the required amount of d-alpha tocopherol to provide the IU rating, you get a bonus of 27% of the d-beta, d-gamma and d-delta tocopherols as they occur in nature.
INGREDIENTS:
Vitamins
d-alpha-tocopherol (Natural Vit E 407IU) 273mg
Mixded tocopherols concentrate 250mg
Equiv. d-alpha-tocopherols (Vit E 93IU) 65mg
Minerals
Selenomethionine (Selenium 26mcg) 64.5mcg
DOSE:
Adults: Take one capsule daily with food or as professionally prescribed.
Always read the label. Use only as directed. If symptoms persist see your doctor/healthcare professional.
Thompsons is a "mixed" capsule and an excellent choice.On this page ,there is also a posting titled "Research paper showing a relationship between Crohns disease and vitamin E R/N" The vitamin E enema is effective for the entire lenght of your colon.
The diet is healthy and the enema procedure has had no negative side effects reported in 5 years of posting.Will they be beneficial? Only your colon, with the correct procedure,can give you the correct answer.The best assurance of using an all natural vitamin E is to have the 100% natural wording on the bottle. Type 100% natural vitamin E in the google search window for sources.Updated enema and diet information at
Go to http://www.curezone.com
On the opening page,in upper right small Curezone Google search window,type vitamin E enema.Posting issue 64 will give you the procedure information.
The basic diet has worked for many people.However,there can be diet differences in food tolerances between some people.Let your colon be your guide.Don't let your taste preferences for certain foods be your guide.The diet is the cornerstone of the procedure.Any wrong food or liquid will irritate the colon and delay healing.As stated in the procedure,the insoluble fiber of vegetables should be eaten at every meal.If you you do the procedure correctly,there should be a positive result within a week and then steady improvement to a CURE.
Once you get a basic diet that works for a time you can add one new food and wait for your colon's judgment.The length of time before the CURE will depend on the condition of your colon and how well you keep to the basic procedure.Please keep me informed.Additional information on the opening page at Curezone Support Forms(TOP). Find form "vitamin E enema" #114.On the page you will also find the posting Issue 64 BSA by sheldon 5 years.
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Issue 64: Ulcerative Colitis Cure - Vitamin E Enema & Diet 
