Peeling Lips Support Forum, Alternmative Layout, Page 194, EC, Cheilitis Support Forum, Exfoliative Cheilitis, Factitious Cheilitis, Idiopathic Cheilitis:

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Peeling Lips Support Forum

EC, Cheilitis Support Forum, Exfoliative Cheilitis, Factitious Cheilitis, Idiopathic Cheilitis

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4,971,674 page views 27,975 messages 3,892 topics 194 pages

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194

Just looking, and found this. by my lips 163 min 25

I found this, and did not know if any of you may have seen this or not. So its just a link to more treating wounds on lips. Maybe this can help, maybe not. I would not buy this, as i will not let my lips crust, because of work. ... ... http://drwheatgrass.com/conditions/casebook/lips [End]

Daniel Miller

by Healing2021 39 h 108

Yo Dan the man, ... ... Its finally consistently sunny here so I am starting to sit out in the sun as much as I can. ... ... So I was wondering whether you were wearing anything on your lips while sun bathing. Or did you leave them bare? ... ... I have just been using aquaphor while in the sun so I was wondering what you had on yours if anything. ... ... Thanks. [End]

Re: Daniel Miller by danielxmiller 36 h 92

Hey :) I tried to have as little on as possible when going in the sun. I noticed since I left Florida and have been driving all week my lips gave actually started to build up a little bit, and I haven’t been out in the sun very much before my drive either, so don’t know if that is causing it or what. But yeah finally here in California so going to be trying to go out more again, I don’t want them to get bad again that would be awful lol [End]

Re: Daniel Miller by Healing2021 33 h 73

From Florida to Cali. Im jealous. Cali is one of my favorite places in the world. ... ... What city are you in? [End]
- Re: Daniel Miller by danielxmiller 32 h 67
  
  San Diego, it’s so nice here! I was a little homesick earlier today, but that’s normal when moving away from everyone. I really like the area though :) [End]
  - Re: Daniel Miller by Healing2021 23 h 48
    
    Aww San Diego is my city! Enjoy it man. [End]

Aloe Vera Gel Capsules

by elemate 46 h 231

I have been testing many theories and products throughout the past year and have found the answer to my endless cycle of peeling lips. I also go by the username Glen Christian, as I have posted in other similar forums. I ended up with exfolitive cheilitis because I used to bite my lips and over the course a few years left me with damaged lips that seemed incurable. I have been to the Dermatologist, Allergist, Internal Medicine, and Family Doctor. I ended up using many different types of steroids that worked for the first couple of days and then went downhill causing more issues later on. I ... [retrieve this message]

Re: Aloe Vera Gel Capsules by sirpreis 45 h 455

Do you have any before and after pictures? [End]

Re: Aloe Vera Gel Capsules by DepressedLips 44 h 171

That’s interesting because I actually used aloe vera gel straight from the plant, however that shit would dry out hella quick so I had to reapply it like every 10-20 min so it got kind of annoying doing that everyday and I didn’t really notice any improvement so I just stopped using it. ... ... How long did it take you to fully heal? [End]

Re: Aloe Vera Gel Capsules by elemate 43 h 169

It took about a month and a half for my damaged areas to fully heal, which I didn’t mind since my lips stopped peeling gradually throughout the process. The ingredients listed are aloe vera, soy bean oil, glycerin, and gelatin. The other ingredients could have been why I only needed to apply every few hours. I didn’t try the plant yet, but the capsules are awesome, for just five bucks too. I’ve spent thousands already and the solution was a plant gel capsules for five bucks wtf haha oh well. ... [End]

Re: Aloe Vera Gel Capsules by DepressedLips 42 h 152

Yeah it has to be the other ingredients because the aloe vera dried up really quick but it did feel good on my lips though...hmmm lol ... ... What brand did you use? and I don’t know if you live in the us or not but if you do, mind telling me where you purchased them? ... ... I actually went to the store today and while I was there I thought about the aloe vera capsules but I could not find any! They had a whole bunch of weird shit too....I even saw horny goat weed lol lots of it too which is pretty odd. I was like they have horny goat weed but they don’t sell aloe vera gel capsules smh lol [retrieve this message]

Re: Aloe Vera Gel Capsules by elemate 41 h 140

I purchashed mine from the GNC store in las vegas, it’s kinda hard to find at regular stores. I think the pharmaceutical companies are purposely keeping this great product off the shelves, bloody bastards lol. [End]

Re: Aloe Vera Gel Capsules by elemate 41 h 139

Nah I hid from the camera, my EC was so bad that the skin just came off from brushing my teeth without even exfoliating. I’m sharing my experience because I hated it when people posted that they were cured and made one last post then fell off the grid. [End]

Re: Aloe Vera Gel Capsules by DepressedLips 41 h 132

So you would use 5 capsules a day? That seems like a lot lol ... ... How did you know when to switch? Like you said you used it 5 times a day then started using it once a day but how were you able to tell that you didn’t need to apply it so much anymore? [End]

Re: Aloe Vera Gel Capsules by elemate 41 h 141

The fordyce spots formed an unequal line around the wounded area which was my inner lip. My fordyce spots started making some movement for the first time in years towards my inner lip and eventually disappeared. I only decreased my applications once the wound was gone. I applied less gradually so my lips could ween off being constantly moisturised. I used approx. one capsule a day and kept it in a small container like a contact lens case for reuse throughout the day. The small hole I pierced in it didn’t leak that much and kept most of the liquid inside so i can reapply when my lips felt a ... [retrieve this message]

Re: Aloe Vera Gel Capsules by Ibinns 40 h 136

I also tried aloe vera capsules before. All it did for me was to make my buildup come up feeling very stiff and dry. The protocol I am trying now seems to be working for me. ... ... Which is: ... ... 1) Rinse with a saline solution. (I use Walgreen’s thimerosal-free sterile formula) ... 2) Rinse the saline solution off with water. ... 3) Gently pat dry with a towel. ... 4) Allow the area to dry somewhat. ... 5) Apply a thin amount of a 1% hydrocortizone ointment. (I use cortizone-10 maximum strength water resistant formula) ... 6) Apply a thin amount of aquaphor or vaseline over the hydrocortizone ointment to crea ... [retrieve this message]

Re: Aloe Vera Gel Capsules by elemate 34 h 101

You definitely should keep using what works for you. I’ve tried that combination method that you’re currently using. I had no success with aquaphor and/or HC creams. I first applied the aloe vera capsule to raw skin before the body created it’s own barrier, that may be the difference if you applied it to lips with a skin barrier already. Basically I knew if there was a skin barrier, it was eventually going to die and peel off. So I prevented a skin barrier from forming in the first place and let the lips heal under the aloe vera. So I had raw skin for like a week, weird but the new skin th ... [retrieve this message]

Re: Aloe Vera Gel Capsules by Evrythngfine 33 h 85

Ibinns, ... Glad to hear of your success, 19 years is a long time. We are going to conquer this crap! [End]

Re: Aloe Vera Gel Capsules by DepressedLips 40 h 117

I don’t know if you can remember exactly but how long would you say it took before you switched from applying it 5 times a day to once day and so on. [End]
- Re: Aloe Vera Gel Capsules by elemate 34 h 93
  
  After like two weeks, then I weened off the product for three weeks. [End]

Re: Aloe Vera Gel Capsules by sirpreis 40 h 117

So was/is your condition similar to the pictures you can find in the image gallery? [End]

Re: Aloe Vera Gel Capsules by Ibinns 40 h 130

Sirpreis, if you are referring to me then yes. I had really bad EC when I first got it. I even had a strong odor of decay that I could detect coming up from my lips. My lips were just as bad as Daniel Miller’s lips, who is doing much better now, thank goodness. ... ... My lips have gotten much better since when I first got EC but, I still get a lot of buildup. I have my own picture gallery that I put up on this site. I too have a lot of tiny fordyce spots around the edges of my lips. I can even see them inside of my upper lip when I push my upper lip out with my tongue. ... ... Like I said before, h ... [retrieve this message]

Re: Aloe Vera Gel Capsules by sirpreis 40 h 115

Oh, ok. ... ... But I was actually asking elemate :) [End]

Re: Aloe Vera Gel Capsules by elemate 34 h 97

Yup I had exfoliative cheilitis similar to the pictures. At one point when I was using aquaphor, my peeling excelled to peeling twice a day. I used aquaphor for years and I can say that it took the pain and inflammation away, but didn’t slow down my peeling cycle. [End]

Re: Aloe Vera Gel Capsules by longterm 39 h 113

Elemante, ... ... Do you think the aloe vera gel capsules helped because it dried the lips so the raw skin could heal better? Also, I take it the capsules probably have a higher concentration than a tube of gel? How many mg were in the capsules? [End]

Re: Aloe Vera Gel Capsules by elemate 34 h 98

What aloe vera does is prevent a callous like barrier from forming so there is really nothing to peel. I used the 25mg capsules. The skin will heal while the aloe vera provides it’s own barrier. [End]

Re: Aloe Vera Gel Capsules by Evrythngfine 33 h 91

Elemate, I read through the post but may have missed if you commented on this point, did you still avoid contact with lips to water in shower and while drinking liquids? That is the hardest part for me since my hair is quite long. [End]

Re: Aloe Vera Gel Capsules by elemate 32 h 102

I showered as normal and with drinks I did the waterfall technique with water bottles. I drank coffee with a straw and let it cool down 15 min. prior to drinking. I had minimal contact with liquids to my lips during the process. The waterfall technique worked just fine for me, but most my drinks had to come from a bottle to do that. I wasn’t worried about any skin coming off because there was minimal peeling while healing, I was more concerned about keeping the aloe vera on my lips so it wouldn’t dry up and form the barrier that eventually peels. The aloe vera will act as the barrier oppos ... [retrieve this message]

Re: Aloe Vera Gel Capsules by jsl123 27 h 86

First off thank you! For coming and sharing your cure its great that you will stick around for a few days and help answer questions! First off can you take a pic of your lips now cured and also take a pic of the exact product you were useing? Also as I under stand it you peeled your lips so they were raw then continually applied the capsules 5 times a day for a month and a half? During this time when the lips went through the healing stages how many cycles did you go through? Also were you extremely careful not to let them fall off prematurely? Can you send a link were we can buy this prod ... [retrieve this message]

Re: Aloe Vera Gel Capsules by elemate 20 h 96

http://www.drugstore.com/products/prod.asp?pid=41236&aid=337456&aparam=Gnc_Aloe_Vera_Gel&scinit1=Gnc_Aloe_Vera_Gel ... This is the product that I used, I got mine for five bucks at the GNC store at discount, online it’s ten bucks. The link I added to my original post of another person that got cured from aloe vera was a more recent posting from that person, I’ve looked into aloe vera postings since last year. http://curezone.com/forums/search.asp?q=aloe+vera+lips ... My peeling cycle went from my normal 2 day cycle prior to starting, to 1 week cycles (minimal peeling), then no cycles. The damage ... [retrieve this message]

Re: Aloe Vera Gel Capsules by longterm 20 h 69

This is great to hear since I also have a 2-day peeling cycle. Thanks. [End]

Re: Aloe Vera Gel Capsules by jsl123 12 h 41

Are you fully cured? As in back to normal stretchy lips? Can you swim drink beer etc etc? Also did your forcyde spots completely leave?? I have them only on my top lip and mostly at the triangular aera on the centre of my upper lip. Also can you take some detailed pictures of your lips now for us? And a pic of your lips during ec I’m sure you have one! Also is there any scarring or anything like that? Man you must be so happy!!! [End]

Re: Aloe Vera Gel Capsules by lipshitz 4 h 22

Thanks elemate for sharing, being descriptive about your past treatments, and sticking around to answer questions. Of course pictures to prove would be golden, I know I’m not alone in this endless desire, but your treatment is simple and cheap so anyone curious and skeptical shouldn’t be too broken up about the lack of pictures. ... ... You have also quite quickly proved yet again on this forum that the same treatment will not work for everyone (because we have different etiologies). Thanks for sharing your experience with vaseline and steroids. Perhaps you could comment on whether you were pee ... [retrieve this message]

Frequent mouth movements good for healing?

by peel1234 57 h 74

Hi everyone, haven’t posted in a few weeks but I’m still doing that leave alone-moisture grind! ... ... Does anyone find that their lips look less swollen after talking for a while? I always find that after hanging out with friends or talking on the phone with someone, my lips appear smaller after. [End]

Re: Frequent mouth movements good for healing? by death2ec 57 h 69

Couldn’t tell ya brah my lips aren’t swollen. But talking a lot unfortunately seems to irritate my affected area if anything and with too much talking I worry about drying out my buildup. Sucks cause I love to hear myself talk! :p [End]

Re: Frequent mouth movements good for healing? by Evrythngfine 40 h 31

Lol! [End]

How and when do you realise major improvement with the constant moisture...

by goldstander 4 days 176

This method has helped me manage my ec to an extent. ... I don’t get as much build up. My lips look normal. ... I don’t get the white line when I talk and eat. ... However, do tend to get it in the shower sometimes. ... ... But, the question is when do all the symptoms of ec receed ? Also, how do you see improvement ? ... [End]

Re: How and when do you realise major improvement with the constant mois... by Vunk 4 days 150

In EC, there are peeling and inflammation. ... ... So, what would be the signs of improvement? [End]
- Re: How and when do you realise major improvement with the constant mois... by goldstander 4 days 130
  
  My inflammation is honestly nought right now. ... But I guess that’s becouse of the hc. ... However, peeling does still happen. [End]
Re: How and when do you realise major improvement with the constant mois... by longterm 4 days 141

I still get the white line with the moisture method. I guess it depends if you have raw skin on top lip or not since moisture does not seem to help that. [End]

Re: How and when do you realise major improvement with the constant mois... by sirpreis 4 days 135

I wonder if I’m the only one that seems to be getting pretty much the same amount of build up even when moisturizing? Or maybe I’m not moisturizing enough? ... ... I use a relatively small amount of Aquaphor about three times a day, and yesterday started using 1% HC (morning and night) and Fucidine (morning, after lunch, night). Because the lips / the build up are/is pretty much relatively moist all the time, especially during the night, the build up keeps coming off very easily. So applying creams, especially Aquaphor (even after heating it), results in some parts of the build up to come off. ... [retrieve this message]

Re: How and when do you realise major improvement with the constant mois... by goldstander 4 days 130

I mix the aquaphor and a little hc.... What do you think about that ? [End]

Re: How and when do you realise major improvement with the constant mois... by sirpreis 4 days 133

Not sure. You’re probably somewhat diluting the HC that way. Like MikePylon, I apply the Fucidin first, wait for it to get somewhat dry, then apply the HC, wait again, and finally add a little bit of Aquaphor on top. ... ... Fucidin and HC are pretty thin, so it’s relatively easy to apply them without taking build up off, but Aquaphor isn’t, [End]

Re: How and when do you realise major improvement with the constant mois... by Healing2021 4 days 126

Sirpreis, ... ... The amount of buildup was the same for about 3 months for me while moisturizing. Then one day it just got better, it was weird. It wasnt a gradual thing. One day it peeled and there was just much less buildup. THEN it gradually disappeared completely. ... ... So you shouldnt be discouraged because I went through the same thing. My buildup was the same while moisturizing for a while. [End]

Re: How and when do you realise major improvement with the constant mois... by sirpreis 4 days 120

Did you have ”problems” keeping it on while applying stuff, especially Aquaphor? I guess the general belief (at least that’s what MikePylon said) is that the build up isn’t important, but it doesn’t feel right that I keep taking off 1-2 day old skin while applying creams. Not sure how to be even more gentle. :-) [End]

Re: How and when do you realise major improvement with the constant mois... by death2ec 4 days 110

I really think you shouldn’t worry about the buildup coming off if your truly applying it gently. The buildup staying on as long as possible theory was disproven long ago during the “leave it alone era”. The key is not removing it forcibly with trauma, increasing inflammation. Dead skin never did anything for anyone(except ruin my sex life). [End]

Re: How and when do you realise major improvement with the constant mois... by Vunk 4 days 102

You’ll just appreciate more by after. [End]

Re: How and when do you realise major improvement with the constant mois... by Healing2021 4 days 101

Yeah Sirpreis, ... ... The goal isn’t to necessarily keep the buildup on as long as possible. The goal is just to allow the buildup to exfoliate naturally or without trauma. So if you are being very careful and your buildup is coming off as easily as you are saying, then it probably isn’t causing trauma, so it’s fine. ... ... All you can do is be as careful as possible and try not to cause trauma. [End]

Re: How and when do you realise major improvement with the constant mois... by sirpreis 3 days 87

Yea, I guess that makes sense, thanks. There is only so much I can do. ... ... But it seems weird. While doing this, the build up, especially on those parts where the lips meet, tend to clump together to smaller pieces, so a lot of the area is not covered with build up. I guess I could upload a picture (on the weekend or so). Maybe some people can relate. [End]

Re: How and when do you realise major improvement with the constant mois... by goldstander 4 days 115

Okay thanks. ... + am not actually using fucidin...... Is that a big deal tbh ? [End]

Re: How and when do you realise major improvement with the constant mois... by sirpreis 4 days 119

I don’t know (and who knows for sure?). It might be more of preventive action to minimize the risk of getting a bacterial infection (at least with bacteria that Fucidin can treat). I don’t know, but I’ll probably be using it for just 8-10 days, which seems to be the usual length for treatment with Fucidin (and using it much longer might cause more problems, like resistance, not sure). ... ... Does anyone know how long MikePylon used it? [End]

Re: How and when do you realise major improvement with the constant mois... by Maxime77 3 days 83

im in the same situation as you Sirpreis. I have been moisturizing my upper lip constantly for nearly 4months and it didnot stop the peeling yet...it just made it kind of thinner AND as you said it makes my build up come off easily when im taking shower or eating but i dont think its a good thing.. ... ... its still better than applying nothing but im always wondering if im doing it right....especially im afraid that im still causing trauma when eating, taking shower or laughing so yeah my build up doesnt stop! ... ... Or maybe its because i dont use aquaphor and HC yet....im waiting for a nice pers ... [retrieve this message]

Re: How and when do you realise major improvement with the constant mois... by sirpreis 3 days 77

What are you using now? ... ... Where do you come from? ... ... How do you eat? For over a year now, I’ve been eating without letting food and the fork/spoon touch my lips. If I ate differently, all that build up would probably get removed every time... It sucks to eat that way, but I got used to it. Feels kind of normal now (but I’d really like to bite into an apple...). ... ... Maybe you want to stop using the shower to get water on your lips, but wash your lips more gently using both hands to get water in them and then dip your lips in. I’ve been doing that for a few days now (no water on my lips for ... [retrieve this message]

Re: How and when do you realise major improvement with the constant mois... by Vunk 71 h 75

I’ve started, not a long time ago, to quickly rince the lips in the shower from time to time, not harmful while being careful. I just reduce the temperature and pression. All good. [End]

Re: How and when do you realise major improvement with the constant mois... by Maxime77 53 h 39

Yo Vunk whats up! ... ... Whats your situation at the moment? what cream do you use? ... ... Btw, tu viens d’où en France? [End]

Re: How and when do you realise major improvement with the constant mois... by Vunk 25 h 32

Salut Maxime ... ... Je suis près de Strasbourg, ville aujourd’hui dans la panique après le message d’un jeune posté sur internet préparant une attaque dans un des nombreux lycées de la ville. Sûrement un type qui voulait faire naître un buzz. J’espère qu’il en paiera les conséquences. :) ... ... Bref, actuellement j’utilise APAISAC. Comme dit, je me suis débarrassé de KELYANE’HD qui, à mon goût, laissait trop de résidu sur les lèvres. ... ... Je suis d’ailleurs passé à la pharmacie hier pour trouver un équivalent à PREVEX’HC. ... J’ai demandé un dermocorticoïde utilisable sur les muqueuses et de classe trè ... [retrieve this message]

Re: How and when do you realise major improvement with the constant mois... by Maxime77 54 h 54

Im using Kelyane HD...for lack of a better product! ... ... I live in Australia but im from France, actually i got EC when i came back to france during winter time after 1 year in Australia....i dont know the exact cause but i think its because: ... 1. my lips are a bit sensitive and easily chapped in harsh weather ... 2. i used ”too much” of a commercial chapstick when i came back to france ... 3. when i got the first sign of EC i didnt know what it was so i just took off all the build up...it was of course making it worse. ... ... I eat normally...i mean i put food on my lips, i eat hamburgers, apples wha ... [retrieve this message]

Re: How and when do you realise major improvement with the constant mois... by sirpreis 53 h 50

Just the top lip.. ”lucky” you :-) ... ... I could probably try sending you the Aquaphor. But as it seems to be somewhat ”banned” in Australia, not sure what happens when they open it at customs. They might not let it go through. ... ... About HC, there surely are HC creams in Australia?! Maybe not ”Prevex HC”, but hydrocortisone creams in general. ... ... I really can’t tell a difference with the treatment (including HC) so far. I have no idea if there is less inflammation or less build up. [End]

Re: How and when do you realise major improvement with the constant mois... by Maxime77 29 h 30

Thanks again Evrythng! ... ... Sirpreis, yeah i find it so weird that a mere product like aquaphor would be banned in australia! but dont worry customs cannot check every small parcel so there are very very small probabilities that they would find a small parcel with like one aquaphor inside lol. Even food isnot allowed (cheese and stuff like that) but my family sent it to me from france and nothing happened ;) i guess they are more looking for drugs!! ... ... Well, yeah maybe they have some substitute to HC i will have a look. but anyway if evrythng can send me a sample of HC as well, all good!! ... ... [retrieve this message]

Re: How and when do you realise major improvement with the constant mois... by sirpreis 27 h 27

I can’t tell much of a difference, really. And I don’t have those burning sensations all that often anyway. It’s more of an awkward feeling when talking. ... ... And there is no ”substitute” to HC. HC is the active ingredient in Prevex HC, or HydroGalen (which I am using, might be a german product), or ... They are both products containing 1% hydrocortisone. So I’m sure there are HC creams in Australia as well. I believe sending you Prevex HC would probably be even more problematic, because it’s probably a prescription drug. But I don’t see the point why would have to be exactly Prevex HC anyway. [retrieve this message]

Re: How and when do you realise major improvement with the constant mois... by Vunk 25 h 23

Yes surely some equivalents, just ask your pharmacist. [End]

Re: How and when do you realise major improvement with the constant mois... by Evrythngfine 52 h 55

Maxime77, ... ... I sent you a PM message. I can get you Aquaphor still as promised, just had a horrible week after move. I broke tooth a month ago or so and supposedly the dentist fixed it but on Friday I found out it abcessed. The pain until antibiotics kicked in was intense. I’ve only been sporadically reading forum. I’ll help you, no worries. [End]

Low Vitamin B6 leads to inflammation

/48 1 by longterm 5 days 175

http://www.webmd.com/heart/news/20120619/low-vitamin-b6-linked-to-inflammation ... ... ... Another blood test to get done. ... ... Major sources of vitamin B6 include cereal grains, legumes, pinto beans, carrots, spinach, peas, and potatoes, milk, cheese, eggs, fish, liver, meat. ... ... ”Vitamin B6 (pyridoxine) is required for the synthesis of the neurotransmitters serotonin and norepinephrine and for myelin formation. Pyridoxine deficiency in adults principally affects the peripheral nerves, skin, mucous membranes, and the circulatory (blood cell) system.” [End]

Re: Low Vitamin B6 leads to inflammation2 by Vunk 4 days 121

Hey longterm what do you do in life? [End]

Re: Low Vitamin B6 leads to inflammation3 by Healing2021 4 days 108

lol [End]

Re: Low Vitamin B6 leads to inflammation4 by longterm 4 days 113

I believe Vunk asked you the same question about the specifics of your job, which was left unanswered. [End]

Re: Low Vitamin B6 leads to inflammation5 by Healing2021 4 days 107

Haha Vunk asked me what my job was and I answered him. And what does that have to do with this anyways haha? ... ... I dont think hes asking about your job lol. ... [End]

Re: Low Vitamin B6 leads to inflammation6 by longterm 4 days 102

You wrote that you were planning on starting a law clerk internship in the fall. Later he asked the specifics of the position, but you did not reply. I think you are seeing things for more than they are. [End]

Re: Low Vitamin B6 leads to inflammation7 by Healing2021 4 days 96

Ok and what does that have to do with this? ... ... If he asked me any specifics about me job I must not have seen that. But what does that have to do with this? lol ... [End]
- Re: Low Vitamin B6 leads to inflammation8 by longterm 4 days 101
  
  You are laughing that he asked me the same question he asked. It is contradictory. That is how it relates. [End]
  - Re: Low Vitamin B6 leads to inflammation9 by Healing2021 4 days 100
    
    I was laughing because Im interested to hear the answer as well. [End]
    - Re: Low Vitamin B6 leads to inflammation10 by Healing2021 4 days 97
      
      And I think you are confused about the definition of contradictory. Because it doesnt apply here. [End]
    - Re: Low Vitamin B6 leads to inflammation11 by longterm 4 days 98
      
      Ok. ... ... Why do you care? [End]
      - Re: Low Vitamin B6 leads to inflammation12 by Healing2021 4 days 96
        
        Haha I dont care I was just interested. [End]
        
        Re: Low Vitamin B6 leads to inflammation13 by longterm 4 days 95
        
        same thing if you ask me [End]
        
        Re: Low Vitamin B6 leads to inflammation14 by sirpreis 4 days 89
        
        Relax :-) [End]
        
        Re: Low Vitamin B6 leads to inflammation15 by Healing2021 4 days 98
        
        Haha if you say so Longterm [End]

Re: Low Vitamin B6 leads to inflammation16 by Vunk 4 days 80

I asked Healing and he responded me well. ... ... But you, are you ashamed of your situation? [End]

Re: Low Vitamin B6 leads to inflammation17 by longterm 4 days 75

Boy, you must think people with EC can’t be successful in life. [End]

Re: Low Vitamin B6 leads to inflammation18 by goldstander 4 days 73

I think they’re implying to the fact you do such deep research into the causes of the condition, which would suggest you have a lot of time on your hands lol. ... [End]

Re: Low Vitamin B6 leads to inflammation19 by Healing2021 4 days 72

Lol where did you get that from Vunks comments? ... ... [End]

Re: Low Vitamin B6 leads to inflammation20 by longterm 4 days 76

I do not do significant research. If I did research, it only took me minutes because I rushed it. I either repeat stuff I read before, or I copy an article link I saw while reading the news. Yes, I read the news. Everyone should take time to read the news. ... ... I think everyone on this forum must have too much time on hands to bother to comment on it, then. What a waste this forum is. [End]

Re: Low Vitamin B6 leads to inflammation

/48 21 by Healing2021 4 days 74

Many people on here do have too much time on their hands. Because many put their lives on hold during EC. ... ... Which is why I think Vunk asked you this. You have been posting on here a lot for a very long time, so he was wondering what you do. ... ... It was an innocent question, but your reaction kind of explains it all... [End]

Re: Low Vitamin B6 leads to inflammation22 by longterm 4 days 73

Vunk also asked you the same question so why make fun of it like it is only directed at me. I do not answer insincere questions. [End]

Re: Low Vitamin B6 leads to inflammation23 by Healing2021 4 days 79

Yeah he asked me and I answered... Your just dancing around it. ... ... But the way he asked you was very different. I said that I was starting a new job and he asked me what it was. You posted another one of your random ideas and in response to it he asked you what you do in your life. ... ... I lol’d because of the way he worded it and the context in which he asked you. ... ... I think this entire situation has been pretty self explanatory, you just keep replying with posts that have nothing to do with it lol. Vunk asking me what I do has nothing to do with you answering his question lol. [retrieve this message]

Re: Low Vitamin B6 leads to inflammation24 by longterm 4 days 90

Vunk wrote another post asking you what your job duties are, but you did not respond. In my opinion, I think he should just send you or whoever a PM since it is not related to the forum topic. But he lost his chance to get an answer with his insincere question. [End]

Re: Low Vitamin B6 leads to inflammation25 by Vunk 71 h 80

There is nothing to hide. I don’t ask for confidential informations. It has been a long time that we discuss, so that’s not misplaced at all. ... ... I’m not saying that nobody can succeed while having EC, I love my life and what will follow. Some here also have this state of mind, henceforth. ... ... You’re just dodging the question under a pretext not credible at all. Don’t tell me that you’re so reserved that you don’t want to summarise in one phrase what you do in life. ... ... I would be surprised that you pretend to have success while you have a crappy health insurance, ask your mom for requesting ... [retrieve this message]

Re: Low Vitamin B6 leads to inflammation26 by Healing2021 70 h 58

lol ... [End]

Re: Low Vitamin B6 leads to inflammation27 by longterm 70 h 60

I do not answer insincere questions. Move on. [End]

Re: Low Vitamin B6 leads to inflammation28 by Healing2021 70 h 70

hahaha ... [End]

Re: Moderator29 by longterm 69 h 84

This just shows your maturity level. Good luck with trying to be professional. ... ... I do not know why you keep commenting on my posts when you wrote many times that you would stop. ... ... If there is a moderator, please delete these off topic posts. Not the article I posted, but all the off topic posts afterwards. And please delete off topic posts in the future. Thank you. [End]

Re: Moderator30 by Healing2021 67 h 55

I didnt comment on your post I commented on Vunks post. [End]

Re: Moderator31 by Healing2021 67 h 54

And I already am a professional. ... ... Clearly you arent. So good luck to your sir. [End]

Re: Moderator32 by longterm 67 h 59

No, you are making comments on my posts. You are delusional if you think you act professional. [End]

Re: Moderator33 by Healing2021 67 h 63

Oh, Im sorry is this website my profession? ... ... No. ... ... Then you wouldn’t know nothing about my professional behavior. Clearly its pretty good based on the opportunity I have given myself, especially at my age. ... ... This website is the closest thing you have to a profession, so that only speaks on your lack of professionalism. ... ... All I said was lol in response to VUNK. You’re the one who has made this into a huge ordeal. Yes it was on your topic, but my comment had nothing to do with your topic or your post. ... ... I think you have spent a bit too much time on here... [retrieve this message]

Re: Moderator34 by longterm 66 h 58

You wrote ” You’re the one who has made this into a huge ordeal.” ... ... What was one of the first things I said in response to your post commenting about me? Yes, you keep writing comments about or to me. I wrote that I thought you were seeing more than there was to what Vunk wrote. He first asked me what I did when I wrote a post mentioning that a dermatologist thought I was a doctor because I acted professional and knowledgeable like a doctor. I think you are mistaken since you have made this into a huge ordeal with all these comments. [End]

Re: Moderator35 by Healing2021 65 h 54

Right because I have just been talking to myself. You haven’t been commenting this entire time... ... ... And I pity that doctor you saw haha. I would dread to hear his qualification as a doctor haha. ... ... I’m done talking about this. Vunk got his answer. [End]

Re: Moderator36 by longterm 65 h 52

I no longer comment on your threads, but you still comment on mine. ... ... You wrote, ”I’m done talking about this.” Follow through, then. [End]

Re: Moderator37 by sirpreis 64 h 60

”You hang up!” ... ”No, you hang up!” ... ... ... ... :-D [End]

Re: Moderator38 by Maxime77 54 h 45

haha guys seriously just ignore each other...stop losing your time with those pointless argumentation!!! ... ... EC is the real enemy! [End]

Re: Moderator39 by lipshitz 50 h 48

Unfortunately, moderators are not given the option to sellect all messages in a thread and then deselect the original post, and then hide all. We would have to go through, message by message and hide each comment. I personally don’t have time for that, let alone responding to this thread in great detail. I do have a job which you will have to read through my posts to find out what it is if you are idly curious. So I will limit my hiding of comments to those that people alert me to that are spam/multilevel marketing. ... ... I entreat those of you who feel distracted or annoyed by this thread no ... [retrieve this message]

Re: Moderator40 by longterm 47 h 33

Thank you. I totally agree. EC is the enemy, but some people prefer to spend time acting like enemy instead of help in the cause. [End]

Re: Moderator41 by Ibinns 41 h 40

Maybe a moderator should change the topic of this thread to, ”Low Vitamin B6 leads to debating.” ... ... To add my $.02 to this whole mix; I really don’t think anyone could have a real deficiency of nutrients like vitamin B6 when so many foods today are processed and ”enriched” with vitamins and minerals. Unless the person in question has some type of problem absorbing nutrients correctly or if their body burns through certain nutrients too quickly. ... ... ”I’m a schoolteacher. I teach English composition... in this little town called Adley, Pennsylvania.” ... ... :-P [End]

Re: Moderator42 by longterm 39 h 43

Look it up. Lots of articles on it. Here is just one: ... ... http://www.psychologytoday.com/blog/complementary-medicine/200904/vitamin-b6-deficiency-common-in-us ... ... ... It states that it is common to have a B6 deficiency, but people with malabsorption or thyroid have a worse deficiency. ... ... Some people here have seen improvement while taking multi-B vitamin complex. It could be the B6 helping the most. ... ... ”“If we do not have sufficient B6, we cannot make serotonin or melatonin, the key neurotransmitters for mood and sleep,” he explains. “This means that people who are deficient in vitamin B6 may ... [retrieve this message]

Re: Moderator43 by Vunk 25 h 34

Haha thanks you to have played the trick, that’s not that complicated. You have dedemonized this incredible situation. [End]

Re: Moderator44 by longterm 22 h 30

I do not know why you think factual information is a joke. Many people here are trying to figure out how to cut down inflammation or what could be causing it. Just trying to help, man. I hope this does not scare off others from doing so. [End]

Re: Moderator45 by Vunk 18 h 27

A joke, that is exactly what I’m talking to. I don’t read your copy and paste. In fact you’re the only one who’s running in circles here. The more you try to seek, the more you get lost. ... ... Don’t think your situation is the norm. Be afraid of this? Anyone would have naturally responded. ... You just don’t assume your pitiful situation, that’s all. End of dicussion. [End]

Re: Moderator46 by longterm 17 h 29

People do not usually respond to article posts. It is just a source of information or not treatment to ask questions about. What you are forgetting is there is more than one cause of EC. I am trying to help more than one person or not just myself. ... ... I think your replies to factual posts and some other people’s posts is often abnormal. [End]

Re: Moderator47 by Vunk 16 h 26

No for me EC is equivalent to factitious cheilitis, based on Crocker’s case, officially described as the result of repeated trauma and compulsive rubbing of the lips. ... ... About my posts, first try to take care of your desperate case instead of thinking for other people. If they’re disturbed, they’ll tell it without your negligible assistance. [End]

Re: Moderator48 by lipshitz 4 h 10

I think this is a relevant old thread to the discussion (B6 deficiency is not mentioned, but you’ll see): ... ... http://curezone.org/forums/am.asp?i=1522832 ... ... Non-doctors trying to stake a claim to the name for this condition make me laugh the most. Including myself and ”labial hyperkeratinization.” ... ... Peace, ... C.S. [End]

New Product for lips by Bradbutter 5 days 94

Check this product out worth a shot but its probably just vitamins http://www.luckyvitamin.com/p-31532-kal-ultra-lysine-lips-60-tablets?utm_source=googlebase&utm_medium=fpl&utm_term=KalUltraLysineLips60Tablets&utm_content=84042&utm_campaign=googlebase&site=google_product_listing_ads&gclid=COPx3cfolbcCFQpN4Aodt1QAgA& [End]

As if the whole town knows about my ec

by goldstander 6 days 130

Hahaha! While I’ve been away, my younger brothers have been telling everyone and I mean everyone ( the well connected bastards they are ) about my ec ; as to the reason why I left! ... Blimey, it has taken a lot off my shoulders, + everyones saying my lips have transformed in africa and stuff, so its all good! ... Hopefully healing continious.... [End]

Re: As if the whole town knows about my ec by danielxmiller 6 days 110

Its so much easier when people know. That’s why I make the effort to tell those I will be around about it, do I don’t have to even worry about it :) [End]
- Re: As if the whole town knows about my ec by Evrythngfine 5 days 49
  
  Exactly, it is hard enough to deal with. My friends, family and co-workers are aware so that I don’t have explain my situation [End]

Scarring to be expected?

by death2ec 6 days 132

With the obvious difference in colour and texture of our effected areas, as well as the obvious trauma our lips have gone through. Do you guys expect scarring when we, god willing, do heal? Not that I would mind:p [End]

Re: Scarring to be expected? by goldstander 6 days 119

I doubt it dude. Unless you really dented your lips. [End]

Re: Scarring to be expected? by death2ec 6 days 112

Its funny, one of my buddies took a puck in the mouth last year. Split his lip WAAAYYYY open, right down to the gum, smashed like 6 chiclets. Was NASSSty. I remember thinkin “thank GOD that wasn’t me”.... Man, he’s all healed, lil line for a scar that chicks dig, fake teeth, and I’d trade situations with him in a second haha. [End]

Re: Scarring to be expected? by goldstander 6 days 98

Hahaha, would trade places with a lot of people right now! ... But let’s live our life yo [End]

Re: Scarring to be expected? by Healing2021 5 days 68

I dont think there will be any scarring. Perhaps if someone had it for years and year and years. But for most of us I dont think so. ... ... The inflammation is what causes the redness/shiny look, so once the inflammation is gone, that should just disappear. [End]

Re: Scarring to be expected? by Vunk 5 days 79

Given that there was no cut I think there will be no scar. That being said, my triangular part endured the most trauma from picking so maybe, in this particular case, there will be a bit imprit of the past. The least of my worries. [End]

Re: Scarring to be expected? by Evrythngfine 5 days 56

I don’t expect any scaring either. [End]

Some conclusions

by #171798 7 days 244

Guys!! I’ve been using antibiotic and steroid for 5 months. It didn’t work for me. My upper lip stayed rlly red and infected. ... ... I’ve reached some conclusions ... ... I’ve done what I’ve had to do to beat it like Mike Pylon, but he also talked about meditation ... ... http://curezone.com/forums/fm.asp?i=2035488#i ... ... ... Richard05 has the same theory ... ... http://curezone.com/forums/fm.asp?i=2058842#i ... ... ... Daniel said below ”I also try to go out in sun as often as I can. I know half of you don’t think it matters, but I can assure you it is the only reason my build up has nearly stopped.” ... ... This guy als ... [retrieve this message]

Re: Some conclusions by death2ec 7 days 156

You used an antibiotic for 5 months? [End]

Re: Some conclusions by #171798 7 days 146

death2ec, ... antibiotic ointment [End]

Re: Some conclusions by death2ec 7 days 143

Got that. My concern being developing strains of antibiotic resistant bacteria on your lips over that extended time frame. [End]

Re: Some conclusions by #171798 7 days 135

Yeaah but Mike Pylon did the same for four months [End]

Re: Some conclusions by death2ec 7 days 142

No Mike only used the fucidin a couple weeks. I’m not trying to question your methods just my concern. Did you do this under doctor supervision? [End]

Re: Some conclusions by #171798 7 days 137

Yes!! but antibiotic ointment was once per week ... the steroid was all the time ... ... I’ll leave now.. bye! [End]

Re: Some conclusions by #171798 6 days 101

I’ll give it a try!! I’ll just use the steroid 1 time a day ... I see good results just using aquaphor and meditating in the sun ... but I wanna know if I use steroid in the sun can to speed things up ... I’m going to tell you guys in a couple of months later! bye [End]

Re: Some conclusions by Vunk 6 days 98

Who’s behind this serial number? Why are you hiding yourself? [End]
- Re: Some conclusions by #171798 6 days 97
  
  Funny fact!! I’m anonymous and you too ... I made an account yesterday ... Nickname doesn’t make you appear [End]
  - Re: Some conclusions by Vunk 6 days 101
    
    ... ... FYI, some did already post behind serial number to hide their pseudonym, as strange as it sounds. [End]

Re: Some conclusions by Vunk 7 days 164

Good to believe, in spiritual methods you’ll have to. I hope you’ll find the best chakra to get rid of your cheilitis. [End]

Re: Some conclusions by zetac 6 days 94

speaking of stupidity ... ... ”I hope you’ll find the best chakra to get rid of your cheilitis” ... ... There are dozens of post with numbers ... If you feel better with nickname! zetac ... ... FYI! I’ll delete my account now ... it seems that curezne is not for everyone [End]

Re: Some conclusions by Healing2021 6 days 77

Geez relax [End]
Re: Some conclusions by Evrythngfine 6 days 83

Hi Zetac, ... Don’t be hasty and delete your account. you are Welcome here. Thank you for your contribution! [End]
Re: Some conclusions by Vunk 5 days 67

I know, always hard to look serious when talking about this approach. ... ... I would have tried. [End]

Question about rinsing with saline solution...

by goldstander 7 days 103

Guys after rinsing your lips with saline solution do you rinse with water after ? Or just leave the saline on..... [End]

Re: Question about rinsing with saline solution... by death2ec 7 days 96

I rinse it off with water. Probly best to cup some water in your hands, dip your lips in, then pat dry with a towel [End]

Re: Question about rinsing with saline solution... by goldstander 7 days 74

Yh thanks done. ... And also, when u rinse does the buildup come off.... ... I’ve had no real buildup what so ever. They seem to come off easily when rinsing and applying aquaphor and hc [End]

Re: Question about rinsing with saline solution... by death2ec 7 days 69

Hmmmmmm. If it comes off that easily its probably not an issue at all. The key from what I know isn’t keeping the buildup on as long as possible but not taking it off with force. If it falls off easily don’t sweat it imo [End]

Re: Question about rinsing with saline solution... by DepressedLips 7 days 75

Yeah I rinse off the saline solution with water just like death2ec described and I’ve also had almost no buildup and I say almost because I’m not sure if I’m still getting buildup since everything comes off when I rinse my lips. I usually rinse about 3 times a day, I’ve been doing this for a little over a week and I have seen a little progress. ... ... After I rinsed my lips today and patted them dry (so nothing was on them) I noticed that my inflammation had greatly decreased. They weren’t as red anymore and it seems like my normal lip grooves were returning to my upper lip but no grooves at a ... [retrieve this message]

Re: Question about rinsing with saline solution... by Maxime77 6 days 60

What is Saline Solution exactly doing that would help the lips healing? [End]

Re: Question about rinsing with saline solution... by danielxmiller 6 days 71

you asked me earlier if I use saline solution...I don’t. I don’t really let anything but aquaphor and steroid touch my lips...I let them get wet in shower sometimes, but not that often either. ... ... [End]

Re: Question about rinsing with saline solution... by Maxime77 6 days 53

interesting. thats also probably why you are experiencing big improvements now. If nothing but aquaphor and steroid touch your lips...it limits the trauma a lot. ... ... [End]

Re: Question about rinsing with saline solution... by Ibinns 5 days 43

Maxime77, ... ... For medical uses, saline is often used to flush wounds and skin abrasions. Normal saline will not burn or sting when applied. So being that this is the case, the saline helps to loosen up the buildup. ... ... ”Home-made” saline can be created with half a teaspoon of table salt into 8 ounces of clean tap water. ... ... I just bought some sterile saline at a local Walgreens from where I work that was thimerosal-free. I had a bad reaction to thimerosal in my patch-test so, I am staying clear of the stuff. Will have to replace all my fillings as well because of that. ... ... Daniel, if I may? I ... [retrieve this message]

What are you guys doing?

by #122346 8 days 117

I was reading the bradbutter suicide thread a few of you mentioned you guys are doing the same thing and it seems to be working. Could someone explain in the the simplest of terms what it is you’re doing? [End]

Re: What are you guys doing? by #122346 7 days 62

C’mon guys, you write novels in every freaking thread here it makes it impossible to follow along what’s going on. All I’m asking for is a couple sentences here. [End]

Re: What are you guys doing? by death2ec 7 days 72

People have been seeing progress with constant moisture. Vaseline, aquaphor, applied throughout the day. Many people have also been using topical steroids, usually hydrocortisone 1%. Just check Mike Pylon’s history and protocal, it will be a good place to start. Also don’t peel your lips. [End]

Guys help ?!

by goldstander 8 days 128

Well, I got a job offer from a local office to work for them for the next 3 months.... Seeing as I have shite to do. ... The jobs got a great pay package and would actually kill of this boredom. ... So I was wondering, should I take it ? Considering I am this close to getting where I want to be with my lips... ... Or should I just stay at home and carry on just thinking about my lips all day lol ... Would getting the job be detrimental to healing? [End]

Re: Guys help ?! by Vunk 8 days 97

If your job needs to traumatize your lips, yes it would be detrimental to healing. What kind of job would it be? I guess you should seize the opportunity. I’m working too, for 2400$ per month. [End]

Re: Guys help ?! by goldstander 8 days 105

Ahaha! Indeed not. ... Its just a typical office job I got through a friend. Basically, all you do is just sit around all day doing jackshit for money. ... Never the less, I do like to go out and look good. So leaving them alones the nightmare... Even though they don’t build up very much tbf. ... ... Yeah ill go for it. ... ... + I’ve been told on an hourly basis and its like 7 pound, around 10 dollars. [End]

Re: Guys help ?! by longterm 8 days 57

So, the H. pylori was not the cause of your EC? [End]

Re: Guys help ?! by Evrythngfine 8 days 64

If you think you’d be tempted to peel lips then maybe you aren’t ready, but I feel sometimes work can be a good distraction. If this is a good opportunity go for it, you don’t want to resent a missed opportunity because of EC, that will just reinforce feeling depressed and negative. [End]

hi :)

by danielxmiller 8 days 261

waaaaaaazzzzzzzzupppppppppp everyone? lol ... ... just enjoying life and wanted to write yall n get u outta that depressed state! :) ... ... If I can get my lips better ANYONE can! ... ... I post a pic I took at Cheesecake factory earlier, lips are feeling awesome today! woo! Moving to California on Monday can’t wait! (yes sorry a little tipsy while writing this so I hope yall don’tmind:) ) ... ... I also am uploading a video from my phone, I cancelled my internet so it’s taking forever, it’s 4 GB haha, feel free to watch it if u like my lips look pretty good, and I am happy. ... ... Here a pic :D ... ... ... ... [retrieve this message]

Re: hi :) by death2ec 8 days 173

Your the man Daniel:) [End]

Re: hi :) by goldstander 8 days 160

You f***ing legend! Have the upmost respect for you dude! ... Literally.... If you can do it, anyone can. ... And also daniel, btw you were using saline solution before right in your regime ? [End]

Re: hi :) by Healing2021 8 days 146

Re: hi :) by Healing2021 8 days 150

They look great Daniel. ... ... Has your peeling completely stopped? ... ... And would you mind sharing the details of your treatment? Such as which steroid you are using, how often you use it, how often you use the Aquaphor. [End]

Re: hi :) by Ibinns 8 days 122

Damn man, congratulations! I don’t know of anyone else who deserves some serious recognition for not just successfully treating yourself, but also for exposing your condition for all the world to see, and comment on. I truly hope that you stay EC free forever. ... ... Congratulations on obtaining a normal life again. [End]

Re: hi :) by Evrythngfine 8 days 116

Congratulations Daniel! Are you still moisturizing with aquaphor? Has the peeling stopped altogether? So happy, if you can do it, we all can! :) ... ... [End]

Re: hi :) by jsl123 8 days 123

Yeah Daniel lips look great!!! Live it up!!!! Can you answer these questions 1 what are you treating your lips with? And how many times do you apply it? 2 has this completely stopped you lips from peeling or do they still flake white dead skin when in contact with water? 3 its obvious that this treatment is hideing symptoms but do you think long term it could cure it? Also for the start of this treatment that your currently on now did you peel the lips or just let them fall off in the shower?? And what was the life cycle during the first few weeks ie peeled every week or two??? 4 howany we ... [retrieve this message]

Re: hi :) by Healing2021 8 days 120

How is it obvious that this treatment is hiding symptoms? ... ... Is it not possible that its making his symptoms better? [End]

Re: hi :) by danielxmiller 7 days 152

Alright guys I will do my best to anser questions. I’m on my phone and won’t have internet until I get to California, and it doesn’t help that I’m drunk and half asleep either lol. ... ... okay so for starters, what I am doing is not covering up my symptoms. It is allowing my body to heal. What the aquaphor does is creates a barrier on the lips so that the lips doesn’t have to create the barrier themselves. This saves a ton of healing time. ... ... I don’t really need to hardly ever put anything on my outer lips anymore. Maybe once a day. The inner lips still give me trouble sometimes, but I find ... [retrieve this message]

Re: hi :) by ECParent 8 days 125

Daniel - if anyone deserves to be healed you do! thats awesome - can you let us know your protcol? and you think the sun really helps! Maybe because of vitamin D? Sun is supposed to help psoriasis ... ... Actually - everyone deserves to be healed! [End]

Re: hi :) by danielxmiller 7 days 119

Thank you that is sweet of you :) see my other post for what I’m doing. ... ... and yes we all deserve it, and that’s what were here to find out. ... ... and yes I believe the sun it vital to healing this condition. For myself at least. :) [End]

Vunk and healing

by jsl123 9 days 106

Ha yes this white line I f***ing hate it!!! Anyways I think you are right maybe it is just flakes saturated in saliva but there’s also a substance of like white puss or gunk mixed with the skin did you guys completely leave this alone also in the begining for the first few weeks??? It normally takes my lips about 30minutes to dry then I apply moisturizer... How long did it take to stop building up??? And I pressume now both you guys have completely stopped the peeling process! I’m planning on quoting my job in 2 months time once I have saved enough money.. so please help us out.. this is v ... [retrieve this message]

Re: Vunk and healing by danielxmiller 8 days 92

I have fun drinking beer with a straw :) [End]

Re: Vunk and healing by Vunk 8 days 84

I also still drink with a straw. No my buildup hasn’t stopped yet and I’m still using a moisturizer. In fact, I wanted to go get a dermocorticoid with HC, but I confess I’m procrastinating. I’ll go next week. ... ... You shouldn’t be forced to quit your job to heal, should be able to conciliate both, like I do. Daniel was working too, I assume many others too. [End]

Re: Vunk and healing by danielxmiller 8 days 61

Yeah and my job was absolutely HORRIBLE for my lips!!!! Talking nonstop 10 hours a day! [End]

Poison lips? Troubling levels of toxic metals found in cosmetics

by LCD 9 days 91 News / Cancer Sup / Toxins / 4 / 5 / 6

Poison lips? Troubling levels of toxic metals found in cosmetics ... ... BERKELEY — ... ... A new analysis of the contents of lipstick and lip gloss may cause you to pause before puckering. ... ... Researchers at UC Berkeley’s School of Public Health tested 32 different lipsticks and lip glosses commonly found in drugstores and department stores. They detected lead, cadmium, chromium, aluminum and five other metals, some of which were found at levels that could raise potential health concerns. Their findings were published online today (Thursday, May 2) in the journal Environmental Health Perspectives. ... ... [retrieve this message]

Re: Poison lips? Troubling levels of toxic metals found in cosmetics by JesichasHope 8 days 63

I use and only recommend women to use organic cosmetics, especially lipstick or gloss. There are several manufacturers out there, most are small companies but they are out there and worth every penny spent on the products. ... ... Yes, it will cost a bit more, but if you look at designer brand lipsticks the organic lipstick is no more. ... ... As for the FDA getting involved, they really allow so much to pass by that truly is making us sick; cosmetics are not going to raise a flag to them. If we want to be well and stay well, it is up to us to do something about it. ... ... Thanks for pointing this out ... [retrieve this message]

Has this ever happened to anyone?

by death2ec 9 days 179

Good god whatta nightmare morning. I hate to continue to bring the mood down around here after bradbutters’ ordeal but I had to share this with the only people who understand what I’m going through. And bradbutters, dude hang in there bro, if nothing else your not alone. We’re gettin closer and closer to figuring this thing out. Have faith. ... So I worked overnight at the hospital last night and a girl I kinda have had a flirtacious thing going with hints that she may want to grab a coffee after work with me. So I invite her and she’s in. My ec is a secret at work. Mine is almost identi ... [retrieve this message]

Re: Has this ever happened to anyone? by Healing2021 9 days 131

Dude your just gonna have to not kiss for now. ... ... As shitty as it is thats the only answer. [End]

Re: Has this ever happened to anyone? by death2ec 9 days 131

I know bro. The shitty thing is I thought I figured it out. Goddamn this f***ing condition [End]

Re: Has this ever happened to anyone? by Vunk 9 days 125

Haha that’s funny. As I said, I avoid any contact with the lips before being cured. It already bothers me when my toothbrush just touches my lips, so I imagine a long kiss...no way. [End]

Re: Has this ever happened to anyone? by Maxime77 9 days 120

Or kiss a girl who doesnt have lipstick! But keep your head up bro’, you still kissed a girl ;) ... ... Maybe next time, you can tell her the truth! i mean, you can tell her that your lips are kinda sensitive and that you are currently treating them so only soft kiss! I have a girlfriend and she knows about my condition, i’ve ”learned” to kiss her anyway...and it didnt worsen my EC... you just need to avoid strong hard kiss and try to compensate with more ”tongue-work” while kissing hahahaha [End]

Re: Has this ever happened to anyone? by Evrythngfine 9 days 118

That sucks. If Im careful kissing tends to be ok, but I worry sometimes maybe it hampers healing. How do you tell your BF no kissing, ever? :( [End]

Re: Has this ever happened to anyone? by longterm 9 days 112

Well, think about woman with EC who need to wear lipstick because their lips are so pale from it. [End]

Re: Has this ever happened to anyone? by Evrythngfine 9 days 113

I don’t wear lipstick, people may mistake my Vaseline for gloss though [End]

Re: Has this ever happened to anyone? by Bradbutter 9 days 102

Yeah man the thing is what relationship you know that people dont kiss especially early on. But good try bro My fear is either my lip skin will end up on her mouth somewhere or that it can be contagious I wouldnt wish this on nobody [End]

Easy Way to Remove Aquaphor?

by DepressedLips 10 days 103

People using aquaphor, how do you take the aquaphor off your lips without taking the build up off? ... ... I rinse my lips with saline solution and then water, which takes off some of the aquaphor along with any buildup that I might have but some of the aquaphor still stays on my lips but I need it all to be off so I can apply the products on my lips or else I would just be putting the products on the aquaphor which isn’t good. ... ... So I end up just using my finger and just taking off the aquaphor like that, but I’m worried that I might be taking off the build up too early. ... ... The other thing is ... [retrieve this message]

Re: Easy Way to Remove Aquaphor? by danielxmiller 9 days 94

I don’t take the aquaphor off... [End]

Re: Easy Way to Remove Aquaphor? by DepressedLips 9 days 81

So you apply your steroid over the aquaphor? [End]

Re: Easy Way to Remove Aquaphor? by goldstander 9 days 61

I usually mix the hc 1% and aquaphor... [End]

Re: Easy Way to Remove Aquaphor? by danielxmiller 8 days 55

it’s not like I pound up the aquaphor on my lips. If my lips feel fine then there really isn’t a reason to put the steroid cream on (in my opinion). Once I feel like they’re ready I put the cream on, but max 2 times a day. But yes on top of the aquaphor, it’s not a big deal really. You just need to keep the lips moist with a constant barrier. The steroid just helps a little bit. (from my experience) [End]

Suicide attempt 2 in hospital

by Bradbutter 10 days 297

Hello My friends. I decided to end my life again 2 nights ago. This time it was with Tylenol PM pills. I took about 35 in one shot. I woke up this morning in the hospital my sister found me unconscious late in the afternoon yesterday. A girl is the reason I tried again. I really like her she likes me but I cant be with her cause of my stupid burning nasty lips. ... ... I get too much white slime when I talk and I cant kiss her and have my skin stick to her lips man she will run in fear. I told the doctors here they sent in a psychiatrist I told that psycho Look buddy Im not depressed cure my l ... [retrieve this message]

Re: Suicide attempt 2 in hospital by goldstander 10 days 220

f***inghell man! Find some faith will ya..... ... Honestly, have you even done anything other than moan?! ... Do what everyones doing atm, seems to be working wonders.... ... And yannoe don’t make ec your excuse for not getting girls. I’ve met the most amazing girls on earth this year, with f***ed up lips.... But I just learnt to overlook it. Your mind can only cure you. Just be positive and be proactive about getting healed.. Not go f***ing nuts every couple of days. ... ... Yannoe, try to make a connection with god, might just help ya.... ... ... Pm me if you ever need to talk about suin... [retrieve this message]

Re: Suicide attempt 2 in hospital by longterm 10 days 190

This is the same girl you said rejected you for your lips, but now she likes you or accepts your lips? ... ... There are things that can be applied to lips to decrease burning feeling. [End]

Re: Suicide attempt 2 in hospital by Healing2021 10 days 201

Don’t want to sound like a dick, but personally, it’s hard for me to take BradButter seriously. Based on his previous posts I wouldn’t at all be surprised if this is just for attention. I find it hard to believe that someone tries to commit suicide and is hospitalized yet the next day makes sure to post it on the Internet. ... ... I could be wrong and if I am then I apologize. And if you did try to commit suicide twice then you absolutely are depressed. Don’t see how you could say otherwise. ... ... And honestly if people are even considering suicide because of this condition I think that person i ... [retrieve this message]

Re: Suicide attempt 2 in hospital by danielxmiller 10 days 192

Your next attempt should be getting sunburnt. Go to the beach and just lay there for a few hours. ... ... Let me know what happens. It might just help you. It helped me. But honestly man it doesn’t seem like you’re even reading the posts on this forum, because we’ve come really far with this...maybe you should try what we’re doing instead. [End]

Re: Suicide attempt 2 in hospital by longterm 10 days 163

You say you are not depressed, but only a severely depressed person would contemplate suicide. Listen to the doctors, and take the meds. There is something in depression meds that can help with the lip healing process (I forgot the technical terms). Recently, someone posted an article with that information. [End]

Re: Suicide attempt 2 in hospital by Evrythngfine 10 days 182

Bradbutter there are people that will love and accept you for who you are. I’m not sure what the rest of the people on this forum choose to do. Some choose not to date, I do have a boyfriend, we do kiss. We been going out before EC. I got the flu one day, after antibiotics, then chapped lips, I actually remember borrowing his old chapstick. Sometimes I wonder maybe I caught a weird bug from it. Some days I have other theories. ... When kissing, I cant be rough or overly agressive. I miss that aspect. Some days we don’t kiss if it hurts or my lips are tender, but sometimes kissing him actu ... [retrieve this message]

Re: Suicide attempt 2 in hospital by DepressedLips 10 days 158

Damn 13 years with this....that’s a long ass time. Bradbutter what exactly are you doing right now (as in your current treatment)? ... You know your lips aren’t just going to magically heal themselves back to normal. You’re going to have to heal them yourself so why don’t you try some of the treatments on here that seem to be working for people? [End]

Re: Suicide attempt 2 in hospital by danielxmiller 10 days 158

That is really awesome :) and I can say that it’s not because you were dating first, as I’ve met a LOT of people even when I had those huge nasty crusts on my lips, and they still liked me! Of course I didn’t kiss them with my lips like that, but they still wanted to date me...so no, this won’t stop you from having a relationship. [End]

Re: Suicide attempt 2 in hospital by Evrythngfine 9 days 164

Thank you. I know, unbelievable but people don’t care about how it looks, he just doesn’t want to hurt or injure me. I dont have hard crusty flakes. I’ve been moisturizing for a few months now, so my build up is not huge and crusty but I do still get buildup without moisturizing. Most people can’t tell I have an issue but it is there. It peels even when I try to leave on the build up. I don’t intentionally peel either but my flakes do fall off sometimes eating, drinking because if the moisture. . Maybe having a boyfriend slows healing, I don’t know. Kissing may not be the wisest thing to ... [retrieve this message]

Re: Suicide attempt 2 in hospital by lipshitz 9 days 157

If you’ve got some extra time at the hospital, take a look at this case study: ... ... http://curezone.com/forums/fm.asp?i=1359492 ... ... The subject shows significant improvement in three months on antidepressants (after testing positive for and then eliminating a resistant staph infection), and the authors cite other studies: ... ... ” There have been two reports ... of exfoliative cheilitis completely ... resolving following treatment with ... diazepam and another resolved ... following treatment with amitryptyline ... and psychotherapy. Taniguchi ... reported successful treatment with ... amitryptyline following unsucce ... [retrieve this message]

Re: Suicide attempt 2 in hospital by Bradbutter 9 days 142

I read all the post thanks for the kind words and the bad words. To answers your questions Ive tried it all from biopsy to creams, ointments,herbal chemical peels everything. I cant even find anything to stop the burning. Its not just about a girl yes its been 13 years I should a had a family and wife by now 13 yrs of seeing the world pass me by I tried antidepressants before they make you happy but its a false perception a false reality Im still not cured [End]

Re: Suicide attempt 2 in hospital by longterm 9 days 125

How long have you tried antidepressants? I know from others that you have to experiment with a few as well as dosages to find the right one. [End]

Re: Suicide attempt 2 in hospital by longterm 9 days 130

I think having increased levels of S1 and S2 (2 types of serotonin receptors) is what helps heal the lips. Antidepressants increase S1 and S2. I am recalling this from memory. I will need to find the exact quote in post, but it think it was the S1 and S2. [End]

Re: Suicide attempt 2 in hospital by my lips 9 days 127

Two failed attempts, and then go on and post that on the internet, GET help dude. ... ... I had a friend like this, and its f***ing PATHETIC ! ... ... [End]

Re: Suicide attempt 2 in hospital by singh94 9 days 125

If you are unable to bear EC, you can manually peel off your lips and live. For this, before going to bed (after brushing) apply a layer of vaseline over your lips. In the morning after brushing your teeth, take a ear cotton bud and peel off the extra skin. It is negligibly painful and my lips look normal throughout the day. ... But i do not know about the long term effects of it. But many people with EC have been doing it and hopefully they are doing well. [End]

Re: Suicide attempt 2 in hospital by sillylips 9 days 125

Wow, killing yourself because of ugly lips is pretty darn stupid. I used to be depressed from my lips, too. But these days I have so many seriously ill family members who are doing their best just to stay alive and healthy that my little lip issue just doesn’t seem that big a deal anymore. I also have a cousin who has the crusting/peeling/blistering thing we have, except it’s all over his entire face and body. Ironically the only place on him that doesn’t crust over is his lips. Our EC kinda pales in comparison. ... ... And if a girl doesn’t like you just for your lips, then she’s shallow and ... [retrieve this message]

Re: Suicide attempt 2 in hospital by Ibinns 8 days 132

You’ve had EC for 13 years? Well, I have had it for soon to be 19 years now my friend. Suffered embarrassments, humiliations, lack of a social life, etc. I was extremely depressed as well. However, I managed to fight it all off naturally. ... ... My lower lip has like 4 scars from all the damn stupid biopsies all those wicked doctors did to me. ... ... This is something I wouldn’t even wish on a worst enemy-if I had one. ... ... At least I am now seeing a doctor who actually found some irregular activity with my spleen. A prior post on this forum did mention a link between the lips and the spleen so, on ... [retrieve this message]

Re: Suicide attempt 2 in hospital by ECParent 8 days 107

Hi Brad - sorry to hear what you are going through. My son and I got into a fight one time when he first had EC because he was missing so much school - and he said if it didnt get better he would probably kill himself - I dont think he was seriout - but it was pretty scary - made me realize how much he was affected by this and I took what he was goimg through a lot more seriously. I’ve tried to get him to go to counseling but he doesnt think it will help, but I think sometimes just having someone else to talk to helps - even if its a stranger. Its funny, the counselor that evaluated him ... [retrieve this message]

This forum has quitened down :O

by goldstander 10 days 91

Everyone busy healing ? [End]

Re: This forum has quitened down :O by Vunk 10 days 81

There are periods more or less active [End]

Re: This forum has quitened down :O by DepressedLips 10 days 58

Everyone’s pretty much trying to heal their lips i’m assuming lol i mean summer is just around the corner so it would be nice if my lips were back to normal by then, I would be hella happy haha [End]

Hydrogen Peroxide for Bacteria Infections

by longterm 11 days 131

I had a nasty infection underneath my skin where there were dissolvable stitches. Nothing really worked to get rid of green puss oozing out the end. I tried liquid iodine, alcohol, anti-bacteria ointment. It was not until I applied hydrogen peroxide that the bacteria infection started to go away. So, it could help lips with bacteria infections. Since you are not supposed to ingest it, I would only apply a thin layer and gently wipe it off with water (or saline solution) after it bubbles from the hydrogen peroxide [End]

Re: Hydrogen Peroxide for Bacteria Infections by death2ec 10 days 94

Have you put it on your lips yet? [End]
- Re: Hydrogen Peroxide for Bacteria Infections by longterm 10 days 80
  
  I do not know if I have a bacteria infection. It could be Candida instead. [End]
  - Re: Hydrogen Peroxide for Bacteria Infections by longterm 10 days 79
    
    I just tried it, but it did not bubble. I do not know if it only bubbles if you have a bacteria infection. If so, it is an easy test to find out. [End]

Re: Hydrogen Peroxide for Bacteria Infections by ryan34 10 days 81

every morning after I brush my teeth I soak a small gauze pad in hydrogen peroxide, leave it between my lips for 2 minutes and then gently use the pad to wipe off any liquidy white buildup. Sometime is bubbles a little and sometimes it doesn’t. ... [End]

What do you guys think

/39 1 by danielxmiller 12 days 384

So I keep getting comments on my site about people, I don’t know if I should use the word ”being upset” or what they are, that I changed my method...anyways I wrote a really long post on my site in the comments section about why, because obviously I didn’t explain it well enough in my 1 year video. ... ... But yeah, just wanted to let you all know things are still going really well, I did get some buildup in my inner lips this week, but I was honestly really crazy this weekend, so I am surprised I even have lips at all right now lol. ... ... If you could take a glance at my new video I took yesterda ... [retrieve this message]

Re: What do you guys think2 by DepressedLips 12 days 271

Daniel I definitely think 120% you made the right choice by switching to the moisture method. Leaving them completely dry definitely isn’t the fastest way to heal this, we don’t even know if it would’ve worked but even if it did it would have taken a couple of years for the lips to fully heal that way(I think). ... ... However, what I don’t necessarily agree with is the steroid that you are using. Your lips definitely look ”pinker” and super moist lol but it doesn’t seem like they have any of the ”normal lip lines” on them so it’s really hard to tell whether your lips are in fact healing or if ... [retrieve this message]

Re: What do you guys think3 by Maxime77 12 days 253

Your lips look good on the video...but you are always moving so its hard to tell actually lol. They are very shiny from the product (is that aquaphor you are using?) but they look normal dude!!! so its amazing because you had the BIGGEST crusts of the forum only like few months ago....i cant believe that you have pretty much no build up at all now...........!!! ... ... Do you apply your moisturizer all day at anytime? and do you have a white line of gunk forming? ... ... But seriously you have a normal life...just with ”shiny lips” i mean between that or live with huge nasty crusts... ... ... I am just ... [retrieve this message]

Re: What do you guys think4 by longterm 12 days 233

He is using a steroid cream. [End]

Re: What do you guys think5 by death2ec 12 days 249

The fact that your lips haven’t been building up is a HUGE breakthrough. I can’t watch the video right now because I’m at an overnight shift at the hospital. But your clearly seeing fantastic results with your current method so definately keep at it. As far as lip lines etc go those should come in time. ... ... And seriously f*** the people who are hating on you. Your one of the leaders, if not THE leader of the movement towards a collaborative community that will one day beat this god-awful curse. If it weren’t for people like you, people would still be getting steroid creams, peeling ... [retrieve this message]

Re: What do you guys think6 by jsl123 12 days 238

Daniel what cream are you useing at moment? Also how have you been coming along with the white line that appears on the inner lips? I always find this starts towards the end of the afternoon!!! I hate it! It would be so awesome if you could take one picture a day of your lips at the same time and then upload them at the end of week so we can see the daily change! In regards to the lines in lips they will never return in my opinion unroll the lips have 100% loss all its inflammation.. anyways keep going one day bro one day!!! [End]

Re: What do you guys think7 by Healing2021 12 days 227

Daniel dont worry about if other people are mad that you changed your method. ... ... It doesnt even make sense that they would be mad about that. Its stupid. You heard about something that makes more sense and is more effective and you switched. And it has proven to be this for you too. So for people to be mad is stupid. ... ... Doesnt even make sense. Haha what do they have to be mad about? Because YOU changed what youre doing to YOUR lips? Haha do they have some sort of ownership over your lips? [End]

Re: What do you guys think8 by JunP 12 days 214

Well I think it’s wonderful if you can live your life as you please! At least with the lips you have now you can go out and meet and talk to people without being annoyed or feeling depressed (I’m just guessing here). ... They LOOK better/more normal than before (when you used to leave them alone), so as long as you apply the moisturizer you can have a pretty normal social life, right? That alone seems like a great achievement to me. ... ... But on the other hand I tend to agree with ’depressedlips’ in that we still don’t know whether the products you’re using actually are repairing your lips. Aren ... [retrieve this message]

Re: What do you guys think9 by Healing2021 12 days 229

I disagree. I think its very clear that this is repairing our lips, and not just ’managing’ the condition. ... ... If our lips just needed a protective barrier over them to stop the peeling, then as soon as people started using these products, their lips would stop peeling right away. But thats not what happens. Their lips continue to build up, until eventually they stop. Which shows clear progress. ... ... If this was just ”covering up/managing” the condition then there would be no progression seen. As soon as somebody started the products, they would see instant results, not progression over time. ... [retrieve this message]

Re: What do you guys think10 by longterm 12 days 197

My lips significantly stop peeling when I used a steroid cream. They also peel much less soon after I start applying Aquaphor. [End]

Re: What do you guys think11 by JunP 12 days 195

Don’t get me wrong, I’m not saying it’s not working! I just think that there is a chance the lips would get back to its pre-Aquaphor (i.e. leave alone period) state once you stopped applying it. I’m preoccupied by the fact that they look exactly like when I apply coconut oil: they look pretty normal but they actually aren’t (especially the absence of lines). But I might be totally wrong. ... ... But I don’t want to be the pessimistic guy bashing hope at every corner, so... (I really am hopeful about the moisturizing thing)! I actually just ordered some jelly from the US to try it out (I’m not ... [retrieve this message]

Re: What do you guys think12 by Evrythngfine 12 days 187

It’s hard to have hope this is working because it is a slow, careful process. Members have shared what their doctors, who actually knew about the condition, told them to do and they have tamed the peeling cycles and gotten rid of EC. It seems that it takes a while to see progress but I believe this is the best method. I was moisture free for a day a couple weekends ago (out fishing) and I think my EC spread a little to the sides. I didn’t freak out too bad because I know I’ll get over this one day, not going to stop living. I have seen progress, grooves came back with in the past month. ... [retrieve this message]

Re: What do you guys think13 by Healing2021 12 days 188

JunP, ... ... If I stopped using Aquaphor right now I also believe my lips would build up again. But not nearly as much as they used to. The entire point of this treatment is to get rid of the inflammation completely. And when we do, THEN the peeling will be gone completely. ... ... So you are right in a sense, but the point is to do this until the inflammation is gone. Which can take a long time. Ask any dermatologist, it doesn’t just apply to EC. if you have such severe inflammation for such an extended period of time, it is hard to get rid of it and can take a long time. ... ... Which is why people in ... [retrieve this message]

Re: What do you guys think14 by JunP 11 days 149

Yes Healing2021, I see your point and I think it is a clever observation. I am just a little bit scared to apply something which I know my lips will become dependent on... I’ll wait a few more months to see if my lips get any better in their left-alone state it has been in for a few months now (my candida-free diet is doing wonders!). ... ... I know what you’re gonna say: leaving them alone doesn’t work. You might have a point (I try to question everything even my strongest beliefs). But isn’t it also true that Daniel’s lips DID improve substantially while on his leave alone ’treatment’? [End]

Re: What do you guys think15 by Vunk 11 days 152

I see, you’re still not ready to get rid of EC and prefer to have dry flakes on dry and cracked lips, let inflammation in a dry place, and smile like a fool. ... ... It’s not a question of improvement, but about the speed of improvement. You choose between the faster way, or the slower one. [End]

Re: What do you guys think16 by Healing2021 11 days 132

I disagree, I don’t think that your lips could ever fully heal under those conditions (keeping them completely dry). I think it causes way too much trauma. [End]

Re: What do you guys think17 by Vunk 11 days 147

In fact when I wrote this post I wasn’t even thinking about the real leaving alone method any more, but the simple comparison between moisturizer or not. In this sense, given that EC isn’t a ’chronic’ skin condition, I think it will heal anyway, without inflicting further trauma, of course. ... ... That being said, keeping the lips completely dry is counterproductive. [End]

Re: What do you guys think18 by Healing2021 11 days 143

You a big movie fan or something Vunk? Your icon seems to change often and it’s always a picture of an actor haha [End]

Re: What do you guys think19 by Vunk 10 days 109

haha you’ve seen right Healing, I’m rather a contemporary movie fan, I’m not going to bring up some movies from 1940s. ... This picture is taken from the next movie of N.Winding Refn, Only God Forgives. I like this cold atmosphere, which I appreciate in modern South Korean movies, the combination with American actors should be faithfully transposed. [End]

Re: What do you guys think20 by Healing2021 10 days 102

Yeah Drive was great. ... ... But I think the new one is in Bangkok not Korea. Should be a good one though. [End]

Re: What do you guys think

/39 21 by Healing2021 10 days 104

Goslings most recent one, Place Beyond the Pines was pretty good too. [End]

Re: What do you guys think22 by Vunk 10 days 102

Yeah I was just making the connection with recent movies like ’I saw the devil’ or ’The chaser’, cold and fine. ’Only God Forgives’ seems to evolve in the same way, besides the asian context. ... I really appreciated ’Drive’, opinions are divided on this film, for me it’s a success. ... I haven’t seen The Place Beyond the Pines’ yet. I must see Mud too, from Jeff Nichols! BTW, I really loved his penultimate movie ’Take Shelter’, good and original one on apocalypse. [End]

Re: What do you guys think23 by Healing2021 10 days 99

Take Shelter was maybe the best movie of the year (the year it came out) in my opinion. ... ... Filmed in Ohio! [End]

Re: What do you guys think24 by Vunk 9 days 81

I completely agree! ... ... A real surprise. ’Drive’ was great but ’Take Shelter’ really impressed me, a brillant story well mastered by M.Shannon. I loved the final scene, beautiful picture. ... ... Undeniably, one of my favorites. [End]

Re: What do you guys think25 by Healing2021 12 days 193

Longterm I don’t think you even have EC. I think you have some sort of cheilitis but your condition looks nothing like EC. ... ... Plus I know you have not used a steroid or Aquaphor long enough to eliminate the inflammation completely. So of course your lips will go back to building up when you stop. The entire point of the treatment is to completely eliminate the inflammation. ... ... So what you keep saying really doesn’t apply... [End]

Re: What do you guys think26 by danielxmiller 12 days 201

Thank you guys :) I’m just gonna keep on truckin, not much else to do. I am no longer embarrassed to go outside or meet new people, which is really awesome. I still tell those that I meet and plan on hanging out with about my condition though, that way the understand when I tell them I don’t want to kiss them or why I still drink with a straw, haha. ... ... But yeah man mainly these inner lips are causing me the most trouble. Not necessarily buildup wise, just like tenderness, like it still kind of hurt when they touch each other. Especially if there isn’t anything on them. (which I might add w ... [retrieve this message]

Re: What do you guys think27 by Healing2021 12 days 173

Dan, ... ... My inner lips were the last to stop building up. Up until a few weeks ago I still got a tiny whitish buildup on my inner lip where the affected skin met the healthy skin. ... ... So it doesnt surprise me that its still giving you some problems. [End]

Re: What do you guys think28 by DepressedLips 12 days 184

Healing didn’t your dermatologist advise you to leave your lips alone now? Don’t you think that maybe you should try it? I mean you didn’t listen to her last year about putting the vaseline on your lips so don’t you think that it might be a good idea to listen to her now? ... ... And if your lips start building up a lot you can always come back to the aquaphor right? [End]

Re: What do you guys think29 by Healing2021 12 days 170

This dermatologist wasnt right. She was the one who recommended me to the psoriasis specialist because she thought it was psoriasis. The only reason I went back to her was to talk about how to get rid of the remaining inflammation, not to ask her anything about EC itself. Because she is an inflammatory specialist. ... ... But no Im not ready to stop what Im doing. It has worked thus far and I am still seeing progress. I would be crazy to stop. [End]

Re: What do you guys think30 by longterm 12 days 172

I thought the definition of EC was peeling lips that turn white when wet along the white line on vermillion border. Plus, I have the classic raw triangular area on upper lip. [End]

Re: What do you guys think31 by Healing2021 12 days 169

I think what separates exfoliative cheilitis from other cheilitis conditions such as actinic cheilitis is the crusting. [End]

Re: What do you guys think32 by lipshitz 11 days 177

I think it would be helpful for those using steroids to record a few things -- how long they had the condition of peeling lips, how severe their case was on a scale of 1-10, and how long they took steroids before stopping. It could be that derms prescribe this so often for the acute, non-severe cases they receive and it clears up. They would have no reason to expect us to need to take steroids past the skin-thinning threshold. ... ... I think it’s incorrect to assume that those who claimed their condition was worsened by steroids were force peeling during that time. I will try to look through t ... [retrieve this message]

Re: What do you guys think33 by jsl123 11 days 169

The thing I don’t get is why wouldnt we attack inflammation from strong oral drugs on a long term.. with constant moisturization.. if were trying to heal the skin? Wouldn’t this be more affective and aggresive? The inflammation is causeing the swelling yes we know that.. it may be causeing the peeling were still not 100% sure if this is the root to causeing the constant shedding.. but what I’m interested in is what is causeing the white line and white gunk on the inner lips espeacially when wakeing up??? Is this a response from the mmune system or what is it? My doctor has given me tubes h ... [retrieve this message]

Re: What do you guys think34 by lipshitz 11 days 166

Of course, it could also be the case that the people who reported a worsening condition following steroids had a chronic secondary infection come about because their immune system wasn’t fighting it. I think long-term steroid users are quite susceptible to infection -- and I’m glad that Healing2021 you are taking care of yours and I’m sure you’ll test and monitor after stopping that treatment in case something else pops up. ... ... Peace, ... C.S. [End]

Re: What do you guys think35 by Vunk 11 days 174

You’re in love with your white line, aren’t you. Are you waiting for some of us to share your questioning? For me, it’s still flakes soaked in saliva. ... ... The affection is precisely localized, local dermocorticoids are more advized than strong oral anti-inflammatories, besides on the long term, side effects are far from being the same. [End]

Re: What do you guys think36 by Healing2021 11 days 147

Haha I know JSL all you talk about is the white line. I thought we figured that out long ago... ... ... And I know everyone likes to say we dont really KNOW anything about this condition, and I have said that plenty in the past. But at this point I KNOW that the inflammation is the root cause for me. Because I have personally watched the inflammation go down as the peeling has gone down. ... ... So whether you want to believe me or not is obviously up to you. But at this point I think its pretty clear that inflammation is the root cause. If its not I would love to hear what you think is. Inflammatio ... [retrieve this message]

Re: What do you guys think37 by death2ec 11 days 178

You don’t think its possible that people many people manually peeled their lips while on steroids and that is a big reason they developed the reputation for worsening the condition? I think its entirely possible this is the case, particularly when you look back at the history of this forum and see a parrallel with petroleum products. There are many older posters who would have flatly told you that vaseline is terrible for the condition and only makes it worse. Which at this point I think we can with reasonable certainty say is untrue. ... ... It would appear that the dermatologists who bes ... [retrieve this message]

Re: What do you guys think38 by Healing2021 11 days 150

Death2Ec, ... ... I completely agree. I remember that I once said that steroids made my condition worse. I used to preach this. But I used to constantly peel my lips while I was using the steroid. ... ... People do the same thing with Vaseline. I remember people used to say not to use Vaseline because it made their condition worse. But it was just because they were peeling. [End]

Re: What do you guys think39 by lipshitz 11 days 154

I’m referring to the people who said it healed/cured their condition, only to have it return worse. If you thought your condition was healed, you’d have to be pretty neurotic to still be peeling at that time (no offense to anyone in present company). ... ... I’m not against experimenting with this treatment and I most definitely hope it is the road to the cure, but it would be edifying to receive a report from someone who discontinues the treatment after a long period of time, and compare those results with people who discontinued after a short time, and also compare the different strengths of ... [retrieve this message]

Lived life for two days!!!!!

by goldstander 13 days 182

Okay guys. So am really starting to get optimistic. ... So I’ve left somalia and I’ve been in dubai for the past 3 days. ... First thing I did, go on a little shopping trip. ... Got myself some aquaphor, hc 1%, saline solution. Could have gotten anti-fungal cream but decided not to. ... So I’ve been on this regime for three days now. I got complimented by girls on the streets for how good I was looking. Even got one in bed lool. ... Been eating anything and everything I wanted without a probelem. And also, there seems to be no buildup or minimal buildup. ... Not sure if this is a cure, but if it manages my ... [retrieve this message]

Re: Lived life for two days!!!!! by Vunk 13 days 137

Good Good. What do you mean by managing? You seem to have minimal buildup, in 2 days that’s pretty normal. I also eat and everything without a problem. What did you do before starting this method? Btw, when did your ec start? Thanks [End]

Re: Lived life for two days!!!!! by goldstander 11 days 53

Before starting this method, I’d been trying the sun method. Pretty much would stay out in the sun for hours. That really helped. Also, been constantly moisturising for a month now. ... ... Now, I’ve started this method, my lips have had no great buildup for like 5 days now. I eat the messiest food I can find, and my lips don’t get really yucky and white. I can talk as much as I want. I can smile. Thing is though swelling/inflammation is still high. That’s what I meant by I can manage... I can live with this at this level. But I probably think I should be healed by the end of the summer ready f ... [retrieve this message]

Re: Lived life for two days!!!!! by Evrythngfine 13 days 107

Great to hear you are in the road to recovery! [End]

Currently on week 3 of photo therapy

by jsl123 13 days 158

Also added in this week novasone really going to attack inflammation hard dor 2-3 months see if I can get on top... The only thing is my dermatologist is puzzled as to why the crust is so thick and hard.. he doesn’t think inflammation would case the skin on the lips to react like this... Also for the crust to be yellowish/gold colour doesn’t add up to be a cause of inflammation anyways see what happens lips have decreased n inflammation in the last couple of days still suffereing from that white film on the inner lips were the normal mucosa meets the ec affected lips will keep posted.. in ... [retrieve this message]

Re: Currently on week 3 of photo therapy by Healing2021 13 days 111

Dude just try what is helping everyone else and quit dancing around it. And yes we know using Vaseline and Steroids is nothing new. But I have explained a million times how this treatment differs from those in the past. ... ... I suggest you try it. If you don’t I think you will regret it. [End]

Pics + Question about Excision/Biopsy?

by Maxime77 13 days 295

Hey Guys here are two pics of my lips. ... ... The first one was taken 4 months ago. At that time i wasnt applying anything on my upper lip and as you can see the build up is in triangular area (picture taken just after shower). ... ... http://i41.tinypic.com/2n20jlu.jpg ... ... The second picture is from today. Im applying ”Kelyane H.D.” (moisturizer) since more or less 4 month and as you can see on the upper lip it makes the build up less noticeable but the EC area didnt improve in size or inflammation. Moreover you can notive that the skin on the border of the EC area became kind of ”whitish”...does ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by jsl123 13 days 196

Man your top lip is so swollon! Or are your lips always this big??? It’s wouldbbe nice if some of these cure claims had as good picture quality as this picture... You would think they would wanna show off there lips!!!! Well I would anyways!! Do you get ec just in the triangular area?? Mine started similar to this but then just vanished for 6 months then came back over all my lips top and bottom??? Isn’t it bizzare how most of us have this triangular part on the top wtffff is this condition/ disease!!!! [End]

Re: Pics + Question about Excision/Biopsy? by jsl123 13 days 196

Also that white line of soft film your getting on the inside of your inner lips is what everybody gets its so annoying its the one thing I can not seem to get under control.. iv tried licking... Wiping it off.. drinking water.. drinking all kinds of drinks.. leaving it alone... Biteing it.. putting creams over it everything nothing helps when I wake up in the morning most of the white build up stuff forms on this part so frustrateing! [End]

Re: Pics + Question about Excision/Biopsy? by my lips 13 days 199

This must be one of the hardest things for me too. As when you talk at work, and the line forms, it starts to stick, and its just a very unpleasant feeling. [End]

Re: Pics + Question about Excision/Biopsy? by Maxime77 13 days 189

HAHAHA no my lips arenot swollen at all dude! But my lips are pretty big + the picture is high quality from very close and i opened slightly my mouth...thats why they look enormous lool. ... ... Yeah most of my EC is in triangular area. I also have small EC on the corners of my lower lip but its not noticeable. My EC started on my triangular area 1.5year ago but didnt spread to the lower lip hopefully. ... ... And for the white line, i wasnt talking about the white gunk but if you look carefully at my upper lip, on the edge on my EC area you would notice that the lip has a whitish color....i have th ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by jsl123 13 days 183

Wow 1.5 years and only in the triangular aera your soooo lucky!!!!!!! That must be frustrateing but what do your derms say you have??? Also its defs the same crust as us I wonder why it doesn’t spread for you and just stays in that aera I noticed also you have some whitte forzcyde spots begining to appear on the top lip! Let us know yeah I have had 4 biopsies lol.all on my bottom lip I pressume they would have to culture your top lip were the ec affected aera is.. [End]

Re: Pics + Question about Excision/Biopsy? by Maxime77 13 days 183

Yeah my Forcyde spots appeared at the same time as my EC, I mean that they developed over the first 6months that i had EC. Since, they didnt really multiply or anything. for me forcyde spots are closely related to EC...but why??! ... ... Well ive never been to a derm for that. maybe i should. but in the first weeks that i noticed i had EC i found this forum and everyone is saying that derms dont really have a clue and a cure for that so i didnt want to waste my money lol. but yeah after 1.5 year its still here...So may be i will consult a derm soon. ... ... But Im asking you about biopsy because you ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by death2ec 13 days 148

Dude your lips are legit almost identical to mine, right down to the shape in the triangular area. [End]

Re: Pics + Question about Excision/Biopsy? by Maxime77 12 days 142

Do you have EC only in triangular area as well? ... ... How do you treat it at the moment? ... ... Ive been moisturizing for the last 4 months but it didnt stop the peeling.....I wonder if its because the cream i use doesnt work anymore. thats why i wanna try aquaphor + an anti inflammatory... [End]

Re: Pics + Question about Excision/Biopsy? by death2ec 12 days 142

Ya bro, its mostly the triangular area just like you, and its really quite remarkable how much mine looks like yours. I do have VERY slight buildup on the vermillion of the lower lip but its pretty negligible. I also have very full lips like you, many people with ec seem too...... ... ... As for my treatment I use prevex hc twice a day and the prevex otc as an emoliant at all other times. I’ve been doing this for over a month now, and being completely objective it hasn’t change much, besides the buildup POSSIBLY being slower. I’m going to be doing this treatment over a long haul however, ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by Maxime77 12 days 144

Yeah as you describe it, we have the same lips lol. How long have you had EC and what caused it? I also have a slight buildup on the corners of my lower lip but its not noticeable. ... ... whats difference between prevex hc and otc? i think prevex hc is like hydrocortisone and prevex otc is a moisturizer?! You said that it didnt change much but did the prevex hc helped reduce inflammation? and did prevex otc reduce the thickness of the buildup? ... ... Because, in my case, after 4 months of using ”kelyane” the only change is just that the builup doesnt grow as thick as when i was applying nothing (y ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by death2ec 12 days 143

Yes, the prevex hc is a 1% hydrocortisone cream. And the prevex otc is a petroleum based barrier cream, similar to vaseline or aquaphor but with more emphasis on the barrier properties by design(it contains microcrystalline wax, which makes it drier and generally stickier). Its almost as though the prevex otc dries into an extra layer of skin almost. Many people who tried it haven’t liked it but I trust my derm’s advice to use it(same derm as Mike Pylon). ... ... I would say that my inflamed area does look a bit better, as far as colour goes since doing this treatment. And I have had a simi ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by death2ec 12 days 145

Also I’ve had ec since October, and my best hypothesis is biting/ trauma for cause, but who knows? [End]

Re: Pics + Question about Excision/Biopsy? by Maxime77 12 days 132

do you plan to use HC 1% longterm? i’ve read a few times on the forum that longterm use of HC was possibly bad...is that right? im not sure though because healing and few others are using it for a long period already and they didnt talk about side effects. ... ... As for the prevex OTC, well its good that it works like a natural barrier...does it stay on for long? does the lips feel moisturized with it? ... ... Anyway i still have a normal life, i just feel uncomfortable when talking from time to time but its just personal because people dont notice...they may just notice that i have full lips kind ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by jsl123 12 days 133

99% of us have that triangular part that’s why o know we all have some condition.. its other a infection/disease or its a immune response which is built into our bodies I.e inflammatory response of the lips.. its been turned on we just need to turn it off! Once one person finds the proper cure we will all be cured.. or at least 50% of us imo if it were different then yes maybe we all have seperate causes and cures but I’m 90% sure we have the same condition!!! The problem I have is a lot have tried steroids for long term I don’t see how just adding in Vaseline or aquaphor is going to cure ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by death2ec 12 days 132

Ya my derm told me to use the hydrocortisone cream for as long as it took and would be fine to use for ”months”. I think if your generally in good health using a steroid for months at a time really shouldn’t be an issue. The risks are pretty minimal and my derm assured me of that, and it would seem most doctors would agree. ... As for the prevex otc, your lips feel drier than aquaphor or vaseline but more covered almost. Its hard to explain. It does dry but the barrier is still there. It feels much different than vaseline but I have grown to be used to it. The best way to describe i ... [retrieve this message]

Re: Pics + Question about Excision/Biopsy? by Maxime77 12 days 128

ok good, i will do the combo HC+aquaphor. ... ... Also, do you apply the product only on your upper lip? [End]

Re: Pics + Question about Excision/Biopsy? by death2ec 12 days 132

No I definately use it on both lips. Even though the lower lip is generally pretty minimally effected [End]

Re: Pics + Question about Excision/Biopsy? by Maxime77 11 days 97

OK, I use my cream only on the EC area of my upper lip at the moment. I think that i developed EC due to the overuse of a commercial lipstick so yeah im a bit reticent to apply cream on the non-affected area. I know it sounds stupid because i think that the cream im using now would not cause any harm. But thats also for esthetic reason...i have full lips and the use of a shiny cream all day would disturb me a bit. But im kind of ”accepting” and learning to live with EC more and more everyday so maybe i will stop to care about that one day and start using cream on my lower lip as well... ... ... [retrieve this message]

Last resort

by #169057 14 days 174

Vermillion removed surgically. Collagen injections to make them plump again. Bobs your uncle. [End]

Re: Last resort by Maxime77 13 days 124

Did you do some research to know if its medically possible? It looks like a painful and hazardous operation... [End]

Re: Last resort by #169057 13 days 126

Google lip reduction their actually common. [End]

Re: Last resort by Healing2021 13 days 93

Awful idea [End]

Re: Last resort by #169057 13 days 89

Why? ... ... [End]

Re: Last resort by Healing2021 13 days 84

Because you are risking making it MUCH worse. ... ... We believe that this is an inflammatory skin condition that was triggered by some sort of trauma to our lips, such as biting. So I think that surgery will just make the condition much worse. [End]

Re: Last resort by Evrythngfine 13 days 85

I don’t think this surgery worked for someone on the forum, it was years back but I think I read that the posters lips still peeled even after the surgery. I would exhaust every option, Chinese medicine, acupuncture, auryveda, faith healers before I’d let a doctor cut off part of my lips. I wouldn’t do it. There is no guarantee it would work. [End]

Just really want to vent. Feeling depressed and so sick of all these pro...

by brandnewlife 15 days 462 Anxiety / Candida Su / Peeling Li / 4

I’m just so over everything so I wanted to let it out somehow. ... ... One of the problems I have is social anxiety. What annoys me the most is my heart beating so fast and feeling shaky/trembly. I feel so uncomfortable when I get anxiety, it’s like my motor skills aren’t smooth and working properly like they should be, I can’t think straight and I feel so abnormal. ... ... I also have these other issues; I have a candida overgrowth, I have exfoliative cheilitis (where my lips peel continuously) and skin problems, which might be caused by candida, like keratosis pilaris (red spots that are mainly on ... [retrieve this message]

Re: Just really want to vent. Feeling depressed and so sick of all these... by nyckid10 15 days 342

I know it sucks how alone you can feel. I am currently dealing with severe adrenal issues and it takes on the same face as anxiety disorders but it’s really much more physical then mental or emotional. Something is wrong with your body, especially considering you have candida. You will be amazed at how much of the anxiety goes away once the body including the adrenal glands are replenished. I sent you a direct message. [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by red424 15 days 319

I had bad problems with social anxiety as a kid. It basically went away by going to so many parties and pushing my anxiety that I eventually really did stop caring. ... ... Meeting people turned very easy after a while. ... ... It could also be physical. Candida and other things cause weird shit to happen to your body. The diet route etc really is the only way to get rid of this. I adapted to the diet and I could honestly stay on it for years if I had to. I really don’t crave sugar or shitty food anymore. ... ... Right now my symptoms are all flaring from a little high of a chelation dose and I’m reall ... [retrieve this message]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brandnewlife 15 days 253

That sounds amazing, I don’t think mine could go away like that though. I’ve felt like my anxiety was getting better by going out more, then one day I go out and have a massive amount of anxiety and I can’t understand why. ... ... I do think the diet is important but I don’t feel like that and the antifungals have been working all that well for me lately. I haven’t been getting much die-off or signs that it’s working. So I’ve given up the diet a few days ago, I guess I need to decide if what I should do next is see a Naturopath, get help with the diet, get my adrenals/thyroid/liver checked, o ... [retrieve this message]

Re: Just really want to vent. Feeling depressed and so sick of all these... by red424 14 days 237

Yeah. First I’d deal with your health issues. I used to go out three to four days a week in college (More actually). But my health got so bad I rarely go out now. I’m positive when I’m back to normal I’m going to be going out a ton... And this time much healthier. ... ... ... Get stevia & xylitol. Both are herbs that are very sweet and don’t feed it. I haven’t tried Xylitol but its supposed to be antifungal. Stevia saved my ass. Also learn how to make kombucha and kefir. I drink a lot and they taste good. Kombucha is the one commercially processed drink I can drink without getting any side effe ... [retrieve this message]

Re: Just really want to vent. Feeling depressed and so sick of all these... by jameskep37 14 days 200

Don’t bother with xylitol. Its also an anti-bacterial and will effect the adherence of your good bacteria. Xylitol caused gut aggravations for me and my wife. Wife has no gut issues and it upset her gut. ... [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brandnewlife 10 days 96

Thanks, I won’t try it. [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brandnewlife 10 days 97

Thanks for the tips. I’ll start the diet again soon and try to do better with it. [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brahma 14 days 212

Hi...I am new to this forum. I have been suffering from EC for 5 years. Currently i am on a peeling cycle of 7 days (different parts of lips peel differently). I too had the symptoms of depressions and a whitish layer is forming inside my mouth. Am i suffering from candida? ... ... My dermatologist prescribed me the following things as of now: ... 1) Antioxidant and riboflavin supplements ... 2) Liquid paraffin as a moisturizer ... ... Am i following the right way? please suggest ... ... Thanks ... [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brandnewlife 10 days 114

I dunno if you have candida, there’s heaps of symptoms and it can be hard to know if you have it or not. This website tells you the symptoms and information on candida: http://www.thecandidadiet.com/candidasymptoms.htm ... I’d have a look at the symptoms and if you have a lot of them and think you might have candida, you could give the diet a go and see how you feel. ... ... A few symptoms I have are bloating, skin problems, mucous in my throat and inability to focus. [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by liproblems 15 days 263

I too do suffer from EC caused by Candida Overgrowth... Have you already started do treat/do something about your Candida? [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brandnewlife 15 days 236

Yeah I’ve tried the diet for ages, trying to eat foods that are only on the allowed list and really trying to limit sugar. I’ve taken antifungals and probiotics. It’s worked well before but lately I just feel like it’s not working well enough, I find it so hard to find anything good to eat that doesn’t have any sugar, I think I eat too much, I haven’t really paid attention to carbs. I haven’t been on the diet for the last few days, I’m just eating food with little amount of sugar and taking probiotics. [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by alv 10 days 92

Please check :This is what I posted at chelation forum. ... ... http://www.personalconsultcart.com/webdocs/Items/Details25.cfm ... ... ... Please check inside if you activated bartonella that is one of the most common infections that gets activate. ... ... There are many infections that will be activated.Bartonella , neurolyme , babesia , ricketsia , parasites etc.You need to treat them in order .Start with parasite first and liver flushes.But be careful as you want to chelate but you will get worst if you have any of the tick borne illneses in your system. ... ... As you use ALA you are activating infections ... [retrieve this message]

Re: Just really want to vent. Feeling depressed and so sick of all these... by stilljillofark 15 days 278

Boy can I relate!!! :-) ... ... And yes,...this sucks on ICE! :-) ... ... Alone, poor, sick, scared, mad,....all rolled up into one most days! ... ... Here’s the BEST news tho---candida albicans SIMPLY HATES baking soda,.....so I dish it up,...ALL DAY EVERY DAY! ... ... My quality of life has gone from a 2/10 in two years,...back up to a 7.5! :-) ... ... I am praying for you! ... ... Jilly [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by bukopandan 14 days 216

hey i can really relate to you. i thnk the anxiety and shaky hands cn be a thyroid problem. i hve hyperthyroidsm and the anxiety, trembly hands i used to suffer is alleviating coz i take medications for thyroid.i also suffer from what you stated above the candida might be the culprit. and no please dnt take alcohol [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brandnewlife 10 days 100

I haven’t seen about my thyroid before. I might have to look into that.. and I won’t be taking alcohol, I don’t want that to help me. :) [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by Johny Apple Bomb 14 days 204

Eating a carrot a day will reduce candida and bacteria in the lower intestine. This will decrease endotoxins, correcting hormonal problems. Takes about a month. ... ... http://www.functionalps.com/blog/2011/09/12/master-list-ray-peat-phd-interviews/ ... ... Carrots are a root vegetable that have chemicals in them that work as an antibiotic. ... ... when you’re in a world of nut jobs a normal individual will not do well socially. [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by Bloatedmostoftime 14 days 202

I hear you & feel your pain. I think I have systemic candida or chronic, parasites. 4 yrs ago, I realized my chest looked weird, I have rotatory scoliois from losing weight when I was already thin so my one rib cage sticks out making my breasts looks strange. And I lost them with the weight I lost restricting my diet too much. ... ... My lower back is hurting right now due to constipation of which I have badly for long time. My hair recently starting breaking/falling out, I may have alopecia. My job is a big drama place. I had a procedure done on my skin & waiting for scars to fade, no sex for ... [retrieve this message]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brandnewlife 10 days 90

That sounds like a lot to deal with :( I can imagine how hard that must be. So have you been on the candida diet before? If you have how did that go? I get bloated all the time too. I know what you mean I don’t wanna spend any more money but I need help still, I need to figure out what I’m gonna do next :/ I hope your colonoscopy goes well. [End]

Re: Just really want to vent. Feeling depressed and so sick of all these... by ericbakker 14 days 227

The thing I love about forums is that it gives one the ability to open up. You’d be surprised how many folks have social anxiety, or suffer from depression - and don’t want to talk about it. These conditions have a major impact on your stress axis (adrenals, pituitary, etc) which in turn affect your entire body - your skin, your immune system, your digestive system, and help to cause that fast heart beat. ... ... I had OCD in my younger years (obsessive compulsive disorder) along with anxiety disorder as well, and then went on to develop hyperthyroidism and adrenal fatigue. I still have ”shades ... [retrieve this message]

Re: Just really want to vent. Feeling depressed and so sick of all these... by brandnewlife 10 days 99

Thanks! That was helpful, I’ll keep those things in mind and work on relaxing more. I won’t give up, I wanna get better and I know I’ll be able to overcome it. Thanks for your help :) [End]

Re: Just really want to vent. Feeling depressed... don't be, for candida... by beesting 4 days 59

Dear PM brandnewlife, ... ... I have been working with a mild solution, 6 percent Magnesium Chloride for more then 4 years. A simple search on the subject of MgCl uses for bodily consumption/uses are located on many websites. In regards to how i have been using MgCl, on myself, just search curezone website with 2 key words:besting, candida, and you will find several letters on the subject. There you will find a solution’s makeup. Wipe your face with this solution morning and night. And let it dry on your skin. The candida can not live in this solution’s presence. If you want to attack the candi ... [retrieve this message]

Suggestions on steroid please! by jle1987 16 days 71

Hey guys, I’m currently going the antifungal route. Got a prescription for fluconazole 150mg for 3 days that I just finished, Nystatin ointment for the lips and Nystatin suspension for swishing in the mouth and swallowing. Looks like the Nystatin ointment is kicking ass so far, been doing it aboooout 5 days now? Minimal build up, and I mean minimal, compared to all the thick crusting that I had before. Oh and Nystatin and Fluconazole target Candida Albicans primarily. Anyways, it looks like I still have some slight inflammation and was wondering what brand of hydrocortisone I should use an ... [retrieve this message]

How to upload picture?

by Maxime77 16 days 104

Hey guys, Ive done it before but I dont find it anymore -_- how to upload a picture on a post? ... cheers! ... ... ... [End]

Re: How to upload picture? by danielxmiller 15 days 101

Quick and easy way: ... ... tinypic.com and upload photo ... ... copy the Direct Link for Layouts link ... ... Paste in here (it’ll show up as a URL) and it will automatically convert it to a picture after you press post) [End]

Re: How to upload picture? by Maxime77 15 days 88

Cheers Bro’ i will upload some pics asap ;) ... ... Btw how are your lips? On the last pic they looked AWESOME... [End]

Re: How to upload picture? by danielxmiller 15 days 85

No problem :) ... ... And they’re still doing really well. The inside has built up a white line once or twice this week...but I got pretty drunk the other night at a club so I wasn’t paying too much attention to them. lol. They are doing fine today though :) [End]

lac-hydrin 12%

by pdesmondb 16 days 132

Hi. I was just waiting for summer break to do the moisturize method but had an appointment since it was my first time with my new healthcare. So I went to a doctor today and she told me to try lac-hydrin 12% lotion on my lips. She also said use vaseline and take multivitamins everyday. What’s weird is when I was describing my condition, she was looking on the computer and said ”I think you have exfoliative cheilitis” and showed me some pictures. I was surprised since no doctor ever said that, but she didn’t know anything about it, she was just searching around the internet. ... ... Anyway, doe ... [retrieve this message]

Re: lac-hydrin 12% by death2ec 16 days 105

Doctors don’t exactly have the best reputation around here but I still believe we should follow their instructions. If your doctor told you to try it, then yes I think 100% try it. You’ll never know if it will help you if you never try it. [End]

Re: lac-hydrin 12% by Bradbutter 16 days 100

Dude I never heard of a doctor looking on the internet as shes diagnosing you. Thats like a dentist going online to see how to drill a cavity I would see someone else but try the meds who knows [End]

Re: lac-hydrin 12% by lipshitz 16 days 95

I personally wouldn’t use this cream, but am not against experimenting with some form of lactic acid at some point. I will try other collagen-supporting compounds first. ... ... See my comment on this thread for more of my thoughts: ... ... http://curezone.com/forums/fm.asp?i=2048916#i ... ... Peace, ... C.S. [End]

Re: lac-hydrin 12% by Morgst3r 9 days 40

I have also used lac hydronic it helps kill them it takes time since they have built up in my system I use silver oint or providine oint on hand and elbows wear long sleeves and watch the magic happen. Started wearing rayon and polyester shirts to keep off of torso. The lotion works by stuffing layer by layer but the first time you try it you can tell they don’t like it . ... ... Try this put lachydrin on hands rub in good get in car drive and put hand out window you can feel them leaving your skin. Have to cate your own entertainment with these things. Lol [End]

What is this in my mouth?

by CC00 17 days 316 Candida Support / Brain Fog / Peeling Li

I get this white layer of stuff on the cheeks in the inside of my mouth daily. It’s also inside my mouth below my lips... I am picking at it everyday - for years. it’s ugly and annoying. What is it? ... ... http://curezone.com/ig/i.asp?i=64759 ... ... PS: My lips are also always dry and peeling. And another thing: when I wake up in the morning, I spit out yellowish saliva that doesn’t taste great. Any ideas? ... [End]

Re: What is this in my mouth? by jsl123 16 days 232

Yeah I use to get that stuff on the inside of my cheeks I also get it everynow and then still what I do is never bite it just gently rub your tounge on it 2 or 3 times a day don’t nibble at it with your teeth!!!! And pour cold water directly on the inside of the cheecks were the damage has been done.. I use to get it bad exactly like yours!!! Before I got ec!! Maybe there’s a connection I think also healing was saying he gets similar o this [End]

Re: What is this in my mouth? by Vunk 16 days 202

Never had that. Only dental marks. [End]

Re: What is this in my mouth? by sillylips 16 days 192

I’ve had that. The inside of my cheeks and all around my gums would all be blistered and peel off every day for about 5 years. Then I went to a dentist who told me I was likely allergic to my toothpaste. I switched around (took a couple years) until I finally found a toothpaste that worked for me. Turns out I was allergic to some of the common added flavors in toothpaste. I use a non-flavored toothpaste now, and no longer peel in my mouth. [End]

Re: What is this in my mouth? by CC00 14 days 103

PM sillylips - interesting. What toothpaste do you use now? [End]
- Re: What is this in my mouth? by sillylips 9 days 66
  
  I use Squigle Tooth Builder ... http://www.dermstore.com/product_Tooth+Builder_19359.htm [End]

Re: What is this in my mouth? by ecgoaway 16 days 162

I had something like this, not exactly as you have. ... Saline solution or baking soda can help. ... I use baking soda. [End]
Re: What is this in my mouth? by sargvy 16 days 139

Its because your dead skin is broken down by enzymes in saliva. [End]
Re: What is this in my mouth? by stilljillofark 15 days 128

Does it look like this? ... ... https://www.facebook.com/pages/Dr-Tullio-Simoncini-Cancer-Is-A-Fungus-Bicarbonate-Of-Soda-Treatment/108529202546829 [End]

Epicream

/35 1 by jsl123 17 days 240

I would reccomend to try this with constant moisturizing some people havehad good response and I also think many of the older people on this forum use it long term. This cream was much talked about for a while about 3 or 4 years ago its non-steroid based but works just as good if not better! It’s on my list for things to try! I will probs try a 3 or 4 month trial on this cream! Hope everybody is good! [End]

Re: Epicream2 by death2ec 17 days 211

How did that UV therapy thing go jsl? [End]

Re: Epicream3 by Healing2021 17 days 201

How is it bettet than a steroid? Better for decreasing inflammation? I doubt that it is as good as, or better than a steroid when it comes to decreasing inflammation. ... ... Also I don’t know much about Epicream but I don’t think that most creams are ideal for this treatment. I think that ointments that provide a barrier on your lips are most effective. Creams usually moisturize and absorb into the skin but don’t provide that protective barrier. ... ... JSL I don’t know why you don’t just try what seems to be helping a lot of us. You seem to want to keep trying to tweak it. ... ... And weren’t you try ... [retrieve this message]

Re: Epicream4 by Bradbutter 17 days 170

I tried epiceram years ago all it did was give me more fordoyce spots [End]

Re: Epicream5 by danielxmiller 17 days 174

I’m with Healing...why don’t you just try what several of us are having success with? My advice: get some steroid cream, aquaphor, and get to the tanning bed every other day if the weather isn’t sufficient. I notice when I don’t go out for a few days the inner lips get a very faint white line, when I go out in the sun the next day they are amazing. ... ... That’s my advice. [End]

Re: Epicream6 by jsl123 17 days 176

Steroids and constant moisturizeing It’s nothing new... If you look at previous post years back lots of people tried it. In saying that maybe the right anti innflamatory and moisturize night work in the long term? Maybe if you do it long term year or something you might get lucky and it heals.. its attacking inflammation but is that the root cause of ec who knows.. nobody knows everytging here is just suggestions and thoughts... Anyways keep us posted Dan good luck! And I’m happy to see you lips are great hope your getting out there and liveing!!! In regards to epicream I just suggested ... [retrieve this message]

Re: Epicream7 by jsl123 17 days 171

And I’m currently trying iv therapy and constant moisturiseing... Next step is stem cell clinic but its cost 11 thousand and that’s even if they accept to try the procedure.. then I will probs go long term on a anti inflammatory yewww [End]

Re: Epicream8 by DepressedLips 17 days 167

Or you can try the one method that actually cured someone (Mike Pylon’s Method) [End]

Re: Epicream9 by Healing2021 17 days 178

Yeah people keeps saying ”This is nothing new”, ”Everyone has tried this in the past.” ... ... We know that using a steroid is nothing new. But keeping your lips constantly moist and allowing them to only exfoliate naturally as well as using a steroid is new. In the past everybody has just used steroids and peeled their lips when they built up. I don’t get why some people aren’t understanding that concept. ... ... The idea that the inflammation is perpetuation by the trauma of peeling the crusts and buildup is new. And makes more sense than anything else I have heard. ... ... If you don’t want to try i ... [retrieve this message]

Re: Epicream10 by Healing2021 17 days 164

And at this point we are pretty positive that inflammation is the root. I think we have been pretty positive about that for some time. ... [End]

Re: Epicream11 by death2ec 16 days 156

Healing makes a great case and I agree you should do this jsl. Another person who appears to have seen fantastic results with this treatment is mike355. Plus many derms seem to be on board, both I saw suggested this exact treatment. [End]

Re: Epicream12 by Vunk 16 days 152

I think inflammation and cellular memory have both their importance. Of course, both are related. [End]

Re: Epicream13 by death2ec 16 days 143

Agreed. The cell memory has gone haywire as a result of the inflammation. Even if the inflammation completely goes away there’s still the cell memory issues, that aren’t just going to instantly dissapear. I think it was Mike Pylon’s first derm who said the cell memory issue should subside over time in a “moist sterile environment”. [End]

Re: Epicream14 by longterm 16 days 150

Some people with faster peeling cycles do not need to manually peel their lips. The dead skin just flips up or off naturally. Many people have also tried steroids with moisturizers in past posts. It is common for people to use moisturizers with other treatments. Again, some people like me do not need to manually peel lips since it naturally exfoliates. [End]

Re: Epicream15 by Vunk 16 days 146

Yeah I remember singh94 who was using a steroid and claiming he was cured by after. On his pics, those who were and still are attentive about this point could easily see that he was peeling their lips. Of course, once he stopped the treatment, flakes came back. ... ... I maintain there are many less people than we think who were doing this method properly. ... ... You don’t want us to believe that your flakes just naturally exfoliate without doing anything, just like that. [End]

Re: Epicream16 by longterm 16 days 145

Yes, they do. [End]

Re: Epicream17 by Vunk 16 days 142

No doubt. ... ... Could you share a picture of your lips at their current state? [End]

Re: Epicream18 by longterm 16 days 142

When I apply moisturizer (Aquaphor works best for me), my lips peel even less. In fact, they almost look healed. [End]

Re: Epicream19 by Vunk 16 days 143

So have you got a picture? [End]

Re: Epicream20 by longterm 16 days 137

A picture of what? I think people who manually pick their lips have lip picking habit. [End]

Re: Epicream

/35 21 by Vunk 16 days 143

of your lips and their affection [End]

Re: Epicream22 by longterm 16 days 142

It is already in the image gallery. [End]

Re: Epicream23 by Vunk 16 days 152

Great, can you share me the link if you don’t mind [End]

Re: Epicream24 by longterm 16 days 173

http://curezone.com/upload/_O_P_Forums/Peeling_Lips/lip1.jpg ... ... ... The photo is small size since I cropped my lips on my face. [End]

Re: Epicream25 by Vunk 16 days 138

Don’t you have any device to take a correct and recent one? This one is as old as this forum, besides its quality. [End]

Re: Epicream26 by longterm 16 days 139

It is better than nothing. ... ... No matter which treatment I try, my lips go revert to how they look in the photo. [End]

Re: Epicream27 by Healing2021 16 days 138

I don’t think you have what most of us have. ... ... It could be EC but a different type or it could just be a completely different condition that has somewhat similar symptoms. But it’s clear that you condition is MUCH different than the quintessential EC that most one here have. [End]

Re: Epicream28 by longterm 16 days 143

Maybe so, but some here have lips like mine. I do not get all that crusting if I do the leave alone method. [End]
- Re: Epicream29 by Healing2021 16 days 124
  
  Yours looks more like actinic cheilitis [End]
  - Re: Epicream30 by longterm 16 days 123
    
    It does, doesn’t it? I tell dermatologists that, but they say no. I guess they are looking for precancerous growths, which are not visible. [End]

Re: Epicream31 by Vunk 16 days 128

They look like mine when I did the leaving alone method and mechanically peeled them every once in a while. I also already saw this kind of texture in lips of a friend of mine. BTW, it’s very common to see this incurved shape in someone who bits his lips. [End]

Re: Epicream32 by longterm 15 days 123

I do not bite my lips unless I do it in my sleep. Did your friend’s lips also peel because what is curved in peels off my lips. [End]

Re: Epicream33 by Healing2021 17 days 160

That would be a waste of 11 grand [End]

Re: Epicream34 by death2ec 16 days 155

What is this procedure they want you to pay 11 grand for? Have they described what exactly they plan on doing? Have you been for a consultation? I honestly didn’t realize stem cell clinics were actually doing procedures on humans yet, please elaborate. Thanks buddy. [End]

Re: Epicream35 by lipshitz 17 days 160

My notes on Epiceram (aka epicream here): ... ... http://peelinglips.wikispaces.com/Success+Stories#x-Epiceram [End]

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