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- Psuedo Tumor Cerebri - Are There ANY Cures?????
by Rebecca
11 year
7,803
1
PseudoTumor
I have searched your site and I can not find any information on a cure or any material relating to Psuedo Tumor Cerebri (PTC).
I was wondering if there is any information you could give me about cures for PTC
.
Also, I would greatly appreciate a NEW forum with this topic, so myself and other suffers of this disease may come and share
information, and learn more from Dr. Schulze about this disease and its cure.
Most of the doctors do not know what causes this disease, have trouble diagnosing it, and the only solutions they have are
very harmful medications like diamox, lasix(sp?) and others in these families. Besides medicines they also like to put in shunts to
help reduce the intercranial pressure, this is not an option for me, I do NOT want something mechanical in my body. So, not
wanting to take the medication or have a shunt, the only option left has been to have several spinal taps, which are painful and end
up only giving temporary help along with a low pressure headache.
Anyway, sorry to ramble, just wanted to give some back ground and reasons why this request is important to me and many other
sufferers of this disease.
All the help and information will be GREATLY APPRECIATED!!!!!
THANK YOU FOR YOUR TIME AND HELP!!!!!


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