So, I have a twin sister. We currently live several hours apart. I saw her after the new year when my EC was just budding, but had not spread over my whole bottom lip. I was telling her last night about this condition and how annoying it is to deal with, it affects how I eat, shower etc. The pain isn't excruciating but the condition is not benign, feeling of rawness and tenderness takes a mental toll some days.
( I have had it almost 2 months now) :( She says, "oh I didnt know it had a name" Me= WHAT!? Apparently she has had this since her braces 15 years ago. I grilled her pretty hard because I didn't believe her, I never noticed anything wrong. I recall thinking her lips looked chapped occasionally but beyond that I never thought about her lips. Ever! I asked her about drinking water and lips turning white in the shower she says : "I've had it so long I don't ever think about it, so I don't know."
She says cocconut oil works good, and "it gets easier". I asked her about relationships because my BF and I live in different cities and don't see each other as often as we'd like. She says kissing makes things better! I'm floored. Can more people be walking around with this condition than we realize? Could she really have EC? I see her shower and eat all the time. I never noticed white slough or food staining her lips like mine. She sent me a text with pictures and it looks like it could be EC. It does sound like a while between peeling cycles, like she has normal days, the dry skin buildup is white and thin. I think she has a mild form? Maybe?
I guess I wanted t share