Expanded All Messages [2102] , Sorted by Date Source: IUD Malfunctions Forum

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Expanded All Messages [2102] , Sorted by Date Source: IUD Malfunctions Forum

Intra-Uterine Contraceptive Device Malfunctions Support Forum, Birth Control, Support

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All Messages [2102] , Sorted by Date Back To Standard Forum View

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Re: Mirena Horror Story by happyfamily6 4 days 68

There are no words I can say. I am in tears. I am so sorry. ... ... With love, ... Diana [End]

Re: Mirena IUD & repeat cervical abnormalities... by pvan32 4 days 184

Hi I am new to this forum so glad to have read this.I am a mother of 2 kids had my IUD inserted 3 yeras ago. It has been ok with the side effects that normally are said until mid last year. I haven’t got periods for over 2 years now. May be some spotting sometimes but that’s it. I have been experiencing bleeding after sex sometimes. It also hurts during sex in some positions. Do I need to be worried the sympyoms that I am having are scaring me. ... ... I have been wanting to get my IUD out for a while now. Last doc I saw she couldnt find the IUD and sent me for a scan. Reports show it was in ... [retrieve this message]

Re: Mirena Horror Story by thebrokenrecordmachine 5 days 75

I am so sorry for your loss. I hate hearing stories like this. This happened to my friend on the Paragard. Nothing good comes out of any BC. I hope you are doing well and please take care of yourself. ... I wish you the best of luck, health and happiness! [End]

Re: Am I the only one?!! by mzflyy22 5 days 43

i have the same thing going on too i thought i was the only one [End]
Re: Mirena Horror Story by CLEW 6 days 78

You poor thing, what an awful lot to go through... I’ve never heard not one good thing about Mirena! And how could they miss the fact you didn’t even need it! ... ... [End]
Re: Mirena Horror Story by sd2345 6 days 91

I’m so sorry for your loss. I can’t imagine the pain you must feel. Someday you will hold her again. [End]

Mirena Horror Story

by #171958 6 days 205 Mirena IUD / Child Loss / Birth Cont / 4 / 5

I wasn’t feeling well and didn’t understand why. I do know that my periods were about 17 days apart and definitely not normal so i went to 3 different doctors for help. The first sent me away because at the time was without insurance and it would have cost too much money to do the testing they needed, mind you, not even offering a pregnancy test. The second couldn’t get me in for 3 weeks. The third doctor i went to sent me to a larger hospital for a couple different ultrasounds. They guessed it was a cyst on my ovary finally bursting. Due to the diagnosis and because my periods were not no ... [retrieve this message]

mirena iud removal advice by msdevious 11 days 223 Mirena IUD / IUD Malfun / Contracept / 4 / 5 / 6

Re: Mirena removed almost 2 months ago. Advice needed, please by Fizzlestick 12 days 104

Hi I wrote a long mail about menstrual problems and recovery from Mirena to another poster. You didn’t say your age, but if you’re over 40, you may have palpitations etc due to peri menopause onset. ... ... The palpitations I had were severe when I had the Mirena removed. I was breathless and my abdomen had swollen, I was depressed, low, anxious and lethargic, brain in a fog with sensitivity to light and migrane feeling. When I had it taken out, I did feel better, but the low mood persisted and lack of energy. My body was sort of in the habit of being inactive and feeling cra**y. ... ... Fish oil s ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by Fizzlestick 12 days 86

I feel very sorry for you. Doctors seem to be pawing around in the dark and that Mirena is causing some women dreadful suffering. I don’t know if you had the dirty smelly light bloody discharge for the time you had the Mirena in, but I had, it was not something I could live with. I also had all the symptoms you had, lying on the couch, thinking I was going nuts, go out for a walk, breathless walking and feeling like a very old woman. Seriously it was terrifying and all the gloomy thoughts. I’m not exactly Pollyanna, but this was ridiculous. I cannot believe ladies are expected to go throug ... [retrieve this message]

Re: My Mirena nightmare... (update: photos) by fluffycakes101 15 days 2,073

i would liketo see the photos please [End]

Re: Am I the only one?!! by proudmama6106 30 days 184

Oh, I do have other symptoms; however I wasn’t sure if they were Mirena related or not. For instance, I have chronic headaches which I thought was because of my eyes, so I went to the eye doctors and got glasses and they haven’t helped. Also, I have problems with my hip, knees, and ankles, anxiety (which I have NEVER had before), major mood swings, false pregnancy symptoms, unable to lose weight, foggy almost disoriented brain and the list goes on...but the brown bleeding has me feeling like it could have expelled thru my cervix and into my adominal wall or something. After having rrad eve ... [retrieve this message]

Re: Am I the only one?!! by cynthleal 30 days 170

Hmmm If I was you after seeing all the horror stories here I would run and get it removed. Mirena can damage your health like you dont imagine, If I was you I would run and get it removed. You are lucky to not have other symptoms Yet. [End]

Re: Am I the only one?!! by cynthleal 30 days 195

Hmmm If I was you after seeing all the horror stories here I would run and get it removed. Mirena can damage your health like you dont imagine, If I was you I would run and get it removed. [End]

Am I the only one?!!

by proudmama6106 30 days 372 Mirena IUD / Birth Cont / Contracept / 4 / 5 / 6

I had the mirena inserted 6 weeks post partum and have had it now for right at 9 months. I bled heavy to spotting for about 6 weeks after insertion. Since then, I have had my regular period every month until about 4 months ago. I started having a normal period which lasted approx. a week and then a week AFTER my period, I bleed this dark brown sometimes black looking blood for about a week. Has anyone else experienced this?? Should I be concerned??!! [End]

Re: Vitamin D "issues" by PocketLady 43 days 223

I had my Mirena removed nearly 18 months ago and have had Candida (yeast) issues ever since. When I had blood tests done my Vitamin D came back very low and I was advised to start supplementing. I did for a few days and initially felt better - my mood in particular. But then all my symptoms started to get worse so I stopped supplementing. It turns out Candida steals all your vitamin d in order to build it’s cell walls. Also can cause many of the issues post-Mirena sufferers seem to have. ... ... Check out my story: ... ... http://curezone.com/forums/fm.asp?i=2053367 [End]

Re: Liver Flush by Kellyc180 57 days 368

After looking it up I am very scared to try it. ... ... I had undiagnosed agonising stomach pain and food poisoning symptoms last summer and has left me on a very ’safe’ diet in order to avoid being in pain like that again. ... ... I don’t think I can handle the physical and emotional stress of a liver flush after the pain I was in last year :-S [End]

Re: Liver Flush by Kellyc180 57 days 358

I shall do some research and give it a go. ... ... Thank you for your advice :) [End]

Liver Flush by White Shark 57 days 414

One thing left to do: ... ... Liver Flush ... ... Liver helps our body flush excdess hormones. All your symptoms point to hormonal imballance. You need to flush your liver at least 6 times (every 2 - 3 weeks.) ... ... White Shark [End]

Re: Any success stories? Recovering from Mirena IUD, depression, anxiety... by Kellyc180 59 days 563

Hi Whiteshark ... ... Thank you for your reply. I am already on a diet given to me by a naturopath, it’s no wheat, dairy, caffeine, alcohol, excess sugar, salt and fat. I am sticking to this along side drinking chamomile tea, fish oil, magnesium and pantothenic acid sups. ... ... The reason why I feel so rubbish is because I am doing everything I am being told to do but still have episodes of debilitating depression and anxietyv- this is so far from my normal self! ... ... I also am starting counselling again and having acupuncture, I will try anything to get over this, it’s horrible and I don’t want to ... [retrieve this message]

Re: Mirena IUD Side Effects by Kellyc180 59 days 587

How long did it take for you to feel normal again? [End]

Re: Any success stories? Recovering from Mirena IUD, depression, anxiety... by White Shark 59 days 602

What is your diet like? ... ... Eliminating from your diet processed sugar, alcohol, vinegar and food additives like preservatives, artificial colors, and making sure food you eat is made from scratch so you really know what you are eating can be of a great help for eliminating symptoms of depression, anxiety and any other mental and emotional imbalance. ... ... Another thing that can help a lot is to cleanse your liver and your bowel. You can read about it on the liver flush forum and bowel cleanse forum. ... ... To locate success stories, click on the ” RN ” and ” BSA ” links at the top of every for ... [retrieve this message]

Any success stories? Recovering from Mirena IUD, depression, anxiety and...

by Kellyc180 59 days 926 Mirena IUD / Anxiety / Depression / 4 / 5 / 6

I have posted another topic on this forum and had lots of responses, thank you very much, I appreciate everyone’s feedback very much. ... ... My anxiety and depression after a mirena removal (2 months ago) has been through the roof. To the point where I feel like I don’t love my partner! When I know deep down I do, and when I feel normal and happy I am so in love with him. ... ... I have never had anxiety or depression before having the Mirena. ... ... I need someone to tell me that they have recovered from the Mirena anxiety and depression, and give me some time frames and advice. Please ... ... I feel like ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by Ganae8 61 days 543

The end of June 2013 will mark my 2 year anniversary of having the Mirena(Devil) removed. I don’t come on here very often but I like to check in and share my experiences with others who are suffering at the hands of this stupid device. I would love to say I’m 100% but sadly I still suffer from bad days but luckily now it is usually before or during my period. As I read peoples posts month after month, I swear it sounds like I could have written them, yours included. I too suffered from horrible debilitating anxiety/panic attacks and at first I thought I was dying because I never had them p ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by SB1108 61 days 430

”My belief is that there Iisalways an answer for ill health and that masking it does NOTHING.” ... ... You are so right! I completely agree!!! [End]

Re: Mirena removed almost 2 months ago. Advice needed, please by Kellyc180 61 days 444

Hi ... ... Thank you everyone for your input, there are lots of thing on here I am going to try - fingers crossed. ... ... I really hope it doesn’t take too long to recover as I have been ill for such a long time and the fact that I have no answers makes my anxiety and depression 100 times worse! ... ... I am starting to feel like maybe I don’t love my boyfriend and I think the reason behind this is that I have nothing else to blame my depression and anxiety on since having it removed! I really am always trying to find an answer and cure because I feel so unlike myself. ... ... I am scared I am going to break ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by SB1108 61 days 477

Nile - I definitely wish the ladies in the Mirena forum would give this a shot because the side effect of the Mirena and the Paragard are so similar and I know this has helped me substantially (notice I didn’t say ”cured”). But I just wish that someone with the Mirena side effects would be the guinea pig and give it a chance. Especially everyone that talks about their anxiety... because that was one of my main complaints. [End]

Re: Mirena removed almost 2 months ago. Advice needed, please by SB1108 61 days 437

I hope you find acupuncture more useful than I found it. I went for about six sessions but I did not notice any improvements. ... ... I started detoxing about a year ago. I started feeling better at about the 8 month mark. Months 1-6 were absolutely terrible. I felt much worse from the amount of detox that the supplements caused me. In full disclosure... I’m not 100% better but I went from bedridden to almost normal.. Id say about 70% normal. So thats impressive, I think! ... ... Do you take the B vitamins in their active form? Methylcobalamin, Methyltetrahydrofolate, and Pyridoxal-5-phosphate? [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by nile 62 days 510

SB1108, I find Dr Myhill article interesting - especially the part where they talk about symptoms while detoxing. I can identify with most of these symptoms (although I’ve been feeling better lately, but I still have blah days). Often I would feel like I had the flu, without the sore throat and fever. Maybe the symptoms I’ve been feeling are from my body detoxing itself! Although I wonder how long a body needs to detox Mirena. It’s been a long time for me. ... ... ... ... The following reported symptoms, also gathered from various PWCs trying this simplified treatment approach, are those that ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by Kellyc180 62 days 482

Thank you for your reply and all that information, I really appreciate it. ... ... I am taking e supplements you suggested already and have been for 3 weeks now, I have seen some good results definitely, the hot flashes, sweats, heat intolerance, have gone and the panic attacks are getting a little bit better. ... ... I am seeing a therapist on Tuesday to talk about so e issues that seem to arise when I feel depressed around ovulation and during period, in hope that the depression won’t be as bad if I can’t dwell on issues. ... ... The panic attacks now only happen when I wake up from a bad dream, and th ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by SB1108 63 days 574

I never had Mirena, but I had the copper IUD/paragard. I personally think the side effects of the two are almost identical. ... http://www.mothering.com/community/t/916122/copper-iud-and-side-effects ... ... I developed every symptom you listed, except for sensitivity to heat. I had sensitivity to cold. ... ... I’ve been trying to detox the copper from the IUD with a various assortment of supplements but I’ve realized that the protocol that I am using to detox the copper is very similar to the protocol they recommend to unblock the Methylation cycle. The methylation cycle is important for detoxificati ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by thebrokenrecordmachine 63 days 504

Hi Kelly, ... ... Yes I like that idea of giving each other updates. I think it will be beneficial/therapeutic. It seems like we are one day apart in terms of having our Mirena removed,m ine was on Jan 24th. ... I have only had one cycle so far I think I am due to have one sometime in the begining of April. I have PCOS so my cycles can be erratic. But I did notice before my period that I had major anxiety and hot flashes. ... I have read that usually the anxiety is worsened around ovulation and period time, lucky for us lol! ... But I have charted down my cycle so far, I think I recently ovulated bu ... [retrieve this message]

Re: 9 Weeks post Mirena Removal and Sever Panic Attacks by thebrokenrecordmachine 63 days 346

Hi Cynthia, ... Thanks for your insight. Because I had the IUD for almost the full 5 years, I have a feeling it will take me longer to recover. There are some moments through out the day, where I think ”Wow I feel normal”. And Night time rolls around and its maddening. ... I called Bayer yesterday and reported my symptoms. ... Apparently nervousness was reported in 1% of those on Mirena so it is listed as a side effect. ... Who I blame for giving me this awful thing, is my former OBGYN who is male. He said that ”Mirena is what they use for BC.” Wish someone would have explained the side effects. ... Bec ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by Kellyc180 63 days 1,381

Thank you for your message, I am glad you are finally feeling better. ... ... I had the Mirena when I was 17 and had no problems at all! I had it put in at 23 and its has ruined me. The depression and anxiety is unbearable at times. ... ... I am hoping some counselling will help me relax and make my recovery a bit more bearable as I wake up every morning thinking about it, that continued through to bed-time. Even forcing myself to go to work doesn’t distract my mind enough. ... ... When I have an episode I feel like I am going mental as it is so out of my control. How did you deal with your symptoms? ... ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by happyfamily6 64 days 594

I have no doubt the Mirena can do to someone what it’s done to you (both of you)! My symptoms were a bit different (anxiety was mild but I had most of the symptoms of MS), and my hormones were considered ”fine” by my Dr. I had several hundreds of dollars of lab work done, plus a brain MRI, and it was all normal. I was a mess for many months, almost incapacitated and in bed much of the time for the first year, but I felt definitely better every year. I am 3 1/2 years post-removal and doing much better. Many people less time to recover. ... ... There is a huge array of symptoms that can c ... [retrieve this message]

Re: 9 Weeks post Mirena Removal and Sever Panic Attacks by cynthleal 64 days 346

I’m sorry to hear your story. I’ve been there and to be honest, it took me quite a long time to see improvement but everyone is different. I know of others that took them a few weeks, months and others like me that for some reason had taken us longer. I wish I could help you more. I also took and did so many things to try to improve this but it seems like only time can repair the damage that this evil thing has caused on our bodies. Not sure if you are interested in this but I’m trying acupuncture an it seems to be helping a little bit with the anxiety. ... ... I hope you get better soon ... Cy ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by Kellyc180 64 days 736

Thank you for your reply. ... ... it is a very difficult thing to go through, and I hope it starts to clear up for the both of us. I think it would be a good idea to keep in touch to give each other progress reports and support to get through it. ... ... Have you noticed a cycle with your symptoms and ovulation, and during/before your period? ... ... I have found that doing a diary of my symptoms has helped me establish a pattern between hormone fluctuations and my anxiety/depression. ... ... I agree with you, keeping busy seems to be the best method, however sometimes the depression and anxiety overwhelms me ... [retrieve this message]

Re: Mirena removed almost 2 months ago. Advice needed, please by thebrokenrecordmachine 64 days 688

Hi Kelly, ... Everything you explained above is what I am currently going thru. I am 2 months post removal and yes the mirena does consume,my mind as well. It is hard for it not too. ... We go thru periods of feeling normal to feeling panicky/anxiety ridden(that is what happens to me anyways). ... From my research so far,the levongestrel is the same hormone found in the Norplant Implant(which was recalled and taken off the shelves in the US mid 90’s and again in 2001 under the name,Jadelle: Women were complaining of anxiety and also,it ruptured their reproductive organs). ... I also read online, ... [retrieve this message]

Mirena removed almost 2 months ago. Advice needed, please

by Kellyc180 64 days 1,182 Mirena IUD / Depression / Anxiety / 4 / 5 / 6

I will try to make this as short as possible, I really need some positive or at least accurate advice with regards to the Mirena and hormones. ... ... I have had a laparoscopy for endometriosis 3 times, each time it was treated. the most recent laparoscopy was on 25th August 2012, it was then that I had the Mirena inserted. ... ... Summer 2012 I was getting random dizzy spells that doctors couldn’t give me answers for, this caused stress as I was off work for 3 months with dizziness, fuzzy head, fatigue and worry. At this time I was on Microgynon 30. I then had laparoscopy and Mirena was fitted, as ... [retrieve this message]

9 Weeks post Mirena Removal and Severe Panic Attacks

by thebrokenrecordmachine 64 days 472 Mirena IUD / Anxiety / Women’s Fo / 4 / 5 / 6

Hello, ... I had my Mirena in for just over 4 years.In October of 2012, I started to get Anxiety Attacks. I didnt know where this was coming from, I tried the Gluten Free Diet, Vitamin B12, smoking(even though Im not a smoker) anything to get rid of this chronic nervousness. I did some research and came to find that Mirena, has to be the culprit. ... The Drs dont believe you. I have heart palpitations. ... Anyays, I got it removed jan 24th 2013 and im still dealing with this panic. Yesterday I was up at 11:30pm then again at 337am. I cant calm myself down and I feel like Im going to die. It is sca ... [retrieve this message]

Re: Vitamin D "issues" by hailey56 76 days 366

Wow this was very interesting. Thank you all so much for sharing. My daughter continues to struggle a year and a half post mirena removal. Her main symptoms continue to be life altering, she still suffers from extreme fatigue, brain fog, neuropathy pain and numbness and burning sensations in legs, arms, hands and feet, migraines, vision problems, sleep difficulty and anxiety. I am sure I am forgetting some others! Well I remembered her Doctor saying her vitamin d was low months ago but he never told her to take supplements or anything or told us the number. She does take multivitamins an ... [retrieve this message]

Re: just had mirena removed today by happyfamily6 77 days 431

Good for you! Keep us updated. ... ... :) ... Diana [End]
Re: just had mirena removed today by cynthleal 78 days 449

I’m glad to hear everything went well and that you are feeling better. [End]

Re: just had mirena removed today by yvonne31 78 days 457

Hey so just wanted to update. I had the Mirena removed fri 3/1 today is 3/5 i actually went down a pants size!!! I am down 3 lbs. I noticed when i wash my hair nothing is coming out. I also have not had a headache. I must say i did feel so lost buying femine products and can’t believe what they have today! So many diff choices. lol. I feel like a new women. My Doctor did give me a hard time about the weight gain and basically said i need to stop being lazy. So i just changed the subject and said we wanted to have another baby. Its a sick healthcare world out there. I swear she wasn’t going ... [retrieve this message]

Re: just had mirena removed today by luvmykidz 80 days 516

Thanks! Good luck to you. I have 100+ pounds to lose. [End]

Re: 2 months post Mirena, still itching all over by Djsimpsonblog 82 days 446

PM Momma630, what have you done for the itching and have you been diagnosed with CU, like me? It’s an auto immune disease(I know triggered by Mirena) in which I am allergic to my own sweat/yeast they believe. I get hot, then start itching. It’s awful and I’m still dealing with it. I don’t know what to do. My worst itching is during ovulation...do you see a trend with yours? [End]

Re: Vitamin D "issues" by Djsimpsonblog 82 days 399

I took the 50,000 units pill once a week for 8 weeks and loved it. You can back and read all my posts, but I haven’t felt as good since I got off the vitamins D prescription. I take 2000 units a day now off and on. I feel better the days I take it. We are so low on vitamin D because of Mirena, that we NEED an extra D supplement and because we are so low, I think it would take a lot to make us sick. [End]

Re: just had mirena removed today by yvonne31 83 days 548

I’m so happy for you that you had it removed. I go tomorrow to get it removed. I recently have had health problems. G1 Problems. I’ve also gained a lot of weight in 3 yrs. I went from 150lbs to 200lbs. I look preganant. I’ve tried every diet out there. Nothing worked. I do blame it on the mirena. I recently did a whole body cleanse and it did get rid of my bloating. Now, i’m doing a parasite cleanse and wouldn’t believe the stuff that is inside of you. I’m hoping that this is the start to my weightloss. Espcially once it comes out tom. I wish you the best of luck and better health. [End]

just had mirena removed today

by luvmykidz 83 days 1,054 Mirena IUD / IUD Malfun / Contracept / 4

I had my mirena placed August 2008, 12 weeks after my first child. I have had health problems my whole life and had terrible reactions to other birth control before conceiving my daughter. I was so happy to get the mirena, since pills and the ring were no longer options. However, I have had illness after illness, spent a majority of the last four years on antibiotics, steroids, and all kinds of other meds for various and sundry things, all weird, but explainable. However, my husband and I decided to have it removed after gaining 50 lbs. in the last few weeks, yes weeks!!! And yes, 50- f ... [retrieve this message]

Re: My Mirena Hell....and what I'm doing by sawsem 83 days 1,040

I just wanted to briefly share that I believe I have been suffering from seizures due to the mirena Iud. I had my first Iud inserted in Dec 2007. I accidentally pulled that out about dec 2009 and had a new one inserted in jan 2010. I had a grand mal seizure in my sleep in March 2010. I started have what I refer to as episodes of confusion throughout the year and 2011. I was put on seizure meds in September 2011 due to the episodes. This seemed to stop everything but then I had a grand mal dec 2011 and a few more grand mals as well as breakthrough episodes. I went off the meds 6/28 because ... [retrieve this message]

Re: Seizure and Mirena IUD by sawsem 83 days 410

I just had 2 more grand mal seizures on 2/20 and got my first period since having the IUD removed on 2/22. I decided to start taking Keppra because I just can’t handle having these seizures. [End]

Re: Seizure and Mirena IUD by sawsem 83 days 372

I just had 2 grand mals on 2/20 and just got my first period since being off the Mirena on 2/22. I decided to start on a seizure medication for now because I just can’t take having grand mal seizrues. [End]

Re: Vitamin D "issues" by happyfamily6 84 days 402

I do have some issues with numbness, but not really connected to that searing pain. In fact, it usually hits me in the evening when I’m in bed or sleeping. It has awakened me before. Last night was fine though, so I’ll take things a day at a time :) ... ... Diana [End]

Re: Vitamin D "issues" by cynthleal 85 days 395

OH you know I for got to mention that I just had my yearly physical and I asked the Dr to re-check my ANA and again it’s negative, but with the specialist keeps coming back positive. I dont know why or what in the world is going on. Both of the labs are known to be good labs. Last year my Vit-D was 68.3 and at that time I was taking beween 6000-8000 IU’s, and now that I’m only taking 4000 I’m @ 43.0. [End]

Re: Vitamin D "issues" by cynthleal 85 days 376

Omg Diana, I do get that pain but only on my big toe only and I noticed that it gets worse when I walk or I’m on my feet for a while. They also feel numb but I can still feel the pain. ... ... Do your toes feel numb too? [End]

Re: Mirena removal - 15 days by happyfamily6 85 days 431

Good question. I really have no idea. It might be best to use another form of control for a few months to be very sure you don’t conceive right away. The IUD can cause some severe hormonal imbalances. Not a good way to start a pregnancy even if you did want to conceive right away (which you said you don’t, of course). Maybe use condoms for a couple weeks before you try to remove it to be really sure? I’m sure someone else can give you a better answer than this :) ... ... At any rate, I’m glad to hear you are having it out. What issues are you having? ... ... Take care, ... Diana [End]

Re: Vitamin D "issues" by happyfamily6 85 days 389

Interesting link, Cynthia. Sometimes I start increasing my dosage when I’m feeling worse with my symptoms, but sometimes it seems to aggravate things . I can’t always tell. I had my levels checked last summer, at the END of the summer when I had a nice tan after being in the sun frequently. I had also been supplementing with 2,000 IUs a day. I was worried that I was too high, with all that sun exposure as well. My levels were only 35. They were 32 before with no sun and no real supplements. So, with all that work, I only was able to raise them up 3 points. I would be more aggressiv ... [retrieve this message]

Re: Mirena removal - 15 days by vbp90 85 days 416

I know this is a bit off subject, but Im having issues since Ive gotten IUD in 2010 after my first born. Im 22 now, and ready to get it out, I read on here women take them out on their own. But in some cases women get pregnant when they take their mirena out. I want to take mine out {try to take it out on my own} But I do not want to get preggers immediately Does anyone know how long you should wait after having sex before taking out your IUD?? [End]

Re: Vitamin D "issues" by cynthleal 87 days 470

I hope it works now. ... ... http://articles.mercola.com/sites/articles/archive/2008/06/28/if-you-choose-to-take-oral-vitamin-d-how-much-should-you-take.aspx [End]

Re: Vitamin D "issues" by cynthleal 87 days 421

Not sure if you were taking the Vit D3 but for what I heard is the best. I use Carlson and i started taking 6000 iu 3 years ago. Now that my level is @optimal I take 2000 or 4000 somedays depending if i been around sick people. The Article below may help you a little bit with info about Vict D3. ... ... I’m glad to hear that you’re doing so much better. ... ... ... http://articles.mercola.com/sites/articles/archive/2008/06/28/if-you-choose-to-take-oral-vitamin-d-how-much-should-you-take.as [End]

Re: Vitamin D "issues" by nile 87 days 437

Low Vit D levels seem to be a common theme for us. I had low levels, and am taking 2000 in the morning and 2000 in the evening. I have almost gotten my levels to optimal. Will probably have it checked again in a few months. I just ran across this article the other day, which is concerning, that the levels on the bottle aren’t always accurate. Maybe you could try switching brands for a few months and see if it helps? ... ... http://www.usatoday.com/story/news/nation/2013/02/11/vitamin-d-supplement-labeling/1909603/ [End]

Re: Vitamin D "issues" by nomirena 87 days 463

My vitamin D level was round 25 when I had it checked post Mirena just over two years ago. I took 2000 a day and got it up to 32. I went up to about 5000 a day and got my level up to 42. As I understand, 50 is optimum. My Dr sent me for a bone scan after my first test and I was very close to osteopenia in the femor neck...spelling ? It took an adjustment for me to go from 2000 to 5000, I can’t imagine taking 100k without tapering on to it. I will also have to take it the rest of my life. My Dr says to go out in the sun for fifteen minutes a day, the dermatologist says not too. Who ... [retrieve this message]

Re: Vitamin D "issues" by illysmanx 87 days 518

I use 5,000 iu/day without an issue, with a little magnesium. ... ... When your blood levels of vitamin D3 won’t change, some CoQ10 or Ubiquinol will help the intestines absorb it- it’s a little-known cofactor. ... ... Also, always take your D3 together with a meal with some sort of fats. If your stomach goes runny when ingesting fats, you need a little niacin with your meals (less than 100 mgs, non-deposit tablets). [End]

Vitamin D "issues"

by ProudMomma 87 days 809 Mirena IUD / IUD Malfun

Hey everyone. I just wanted to post an update for everyone. ... ... Let me begin by saying that I am almost 2 1/2 years post Mirena, and I am doing far better than I once was. I’m not at 100%....I may never be....but I am much better. I can only pray that I continue to improve. ... ... Here’s my latest experience. I had about four months where I was feeling great, and then, in October, I had a relapse of some sort that lasted about 10 days. It wasn’t as bad as those crashes that you have in that first year to year and a half, but it was still scary. Had a hard time thinking, my hands wouldn’t ... [retrieve this message]

Re: Seizure and Mirena IUD by chirontherainbowbridge 3 mon 584

I am past the need for birth control, but this one sounds especially horrific. Please do post again, further on, and update with your condition, for those who are younger. ... ... ... In keep wondering why we don’t practise, globally I mean, something sane--like birth control using the intuitive faculties. These have been so denied, deplored and dismissed for way too long. But I think a change is coming. If people get off drugs and fluoride, the poisons in food,and start to really be able to function, great potential from within will start coming ’online’ again. Birth control then, according to o ... [retrieve this message]

Re: Seizure and Mirena IUD by cynthleal 3 mon 500

Wow, do you have any other symptoms? [End]

Seizure and Mirena IUD

by sawsem 3 mon 638 Mirena IUD / Epilepsy/S / Women’s Fo / 4 / 5 / 6

I had my IUD inserted in December of 07. After accidentally pulling it out in December of 09 I had one reinserted in January 2010. I had my first seizure in March ’10 while sleeping. After that I had a series of ”blackouts” basically i would start talking about things unrelated to the conversation I was having. I ended up on seizure meds (Lamictal) in September of 2011. Things seemed to be getting better but then I started having grand mals. I had 1 December 2011 and then some more in May 2012 and finally 1 in June 2012. I stopped taking the seizure medication. The grand mals went ... [retrieve this message]

Re: Mirena and Lupus by nile 3 mon 621

Hi, you may want to private message her, since the thread is 32 months old. But even though the doctors will say Mirena is not the issue, she should INSIST on getting it removed. So many women have had issues with it, it would make sense to remove that variable that is most likely the cause. I’m sure by now you’ve looked around enough to realize all the issues women have been having with it. If you want feedback from a larger group of women, I would suggest joining the Facebook group ”BAN Mirena IUD” or ”Women with Mirena IUD Side Effects Support Group”. There are a LOT of women on th ... [retrieve this message]

Re: Mirena and Lupus by fairsjk 3 mon 509

Hi Jane123 just wanting to know your experience with the Mirena. My wife is a lupus sufferer and has had 4 flares since the implant in October. Could be a coincidence but wanting to make sure. She is in hospital now. ... [End]

Re: 2 months post Mirena, still itching all over by Djsimpsonblog 3 mon 514

I am almost 4 months post Mirena now and been through hell trying to figure out why I am itching. To give everyone an update: I’ve been to a dermatologist, allergist, gynecologist, and general doctor trying to figure this out. All my blood work including,, hormones and antibodies (to check for lupus) have all came out normal and on paper, I am extremely healthy. The only thing low is my vitamin D levels. I can tell you being on a vitamin D supplement DOES help! I hear all Mirena users post removal are vitamin D deficient! Thanks Mirena! ... ... However, I was finally diagnosed today. I have an ... [retrieve this message]

Re: Mirena removal - 15 days by nomirena 3 mon 626

It seems like most people feel a little relief and then the crash comes around 4-7 days. I had just about the same symptoms as you after removal. It took a few months but with each cycle I had relief. I chose not to add any more hormones into the mix. ... ... Hope you are feeling better ! [End]

Mirena removal - 15 days

by mirenafightr 4 mon 1,195 Mirena IUD / Contracept / IUD Malfun

I got mirena 5 years ago as of last August. I just had my first child, I was married, and my doctor suggested mirena. All I was told was it’s great! No daily routine to remember, low dosages of horomones, no weight gain, no other issues thanks to the low doses of horomones. I can’t really recall when my issues started.... I took up smoking not long after giving birth-I said due to stress of being a young mom. I gained weight significantly-I’m hypothyroid and I’d had a baby recently. I had issues sleeping-normal stress, or maybe too much cafeine. I had mood swings/anxiety/irritibity-again s ... [retrieve this message]

Re: mirena and hair loss???? help by nile 4 mon 2,013

Hi Jlittlestorm, ... I happened to notice your post, but since it is an older one, you might get more responses making a new post. Also, there are a couple Facebook pages that have a lot of traffic. ”BAN Mirena IUD” and ”Women with Mirena Side Effects Support Group” are two private ones that are my faves. I’m sure you’ve searched around and noticed that MANY women have the same issue you did with Mirena. I am thankful that this was a side effect I didn’t have (had many others). I just saw a post by someone on BAN Mirena IUD on FB that stated the following: ... ”I am not posting this to se ... [retrieve this message]

Re: mirena and hair loss???? help by jlittlestorm 4 mon 1,999

I haved experienced horrible side effects from the Mirena IUD. I am angry with myself that it took so long to figure out that it was this little 2 inch piece of plastic that was ruining my life. As far as hair loss, I have lost probably 2/3 of my hair. It is extremly noticable and very embarassing. I try everything to hide it without damaging it even more. As soon as I realized it was the mirena causing me the slew of problems I was dealing with. I had it removed within days. My hair loss has slowed down somewhat but my Dr. told me it would take 3 to 4 weeks for it to be out of my system. ... [retrieve this message]

Re: 2 months post Mirena, still itching all over by Momma630 4 mon 615

I had the mirena put in in August of 2009 after my son was born. I had it in for 4 years. With the last year I started getting the worst problems. I started itching in January 2012 and the cramps they started getting worse with my periods, than with my ovulation cycles and than it was almost everyday. It was out around August or September 2012 and though most of the symptoms are gone, I can’t stop itching. ... ... I will never recomened this to anyone. [End]

Re: 2 months post Mirena, still itching all over by Momma630 4 mon 545

I had the Mirena in 4 years. With the last year it seemed more painful than ever. The cramps were so unbareable. At first if was just with my period than with my period and ovulation cycle than it became almost everyday. The itching started around January 2012 and hasn’t been as bad since I no longer have it in but some days are worse than ever. I have to use my Sandy foot scrub at least once a week all over my body and lotion myself everday. It helps but doesn’t stop it. Zertec is the only allergy medication that stops the itching. I know longer know what to do. Doctors say that none of t ... [retrieve this message]

Re: Has anyone else experienced these side effects of having the Mirena? by happyfamily6 4 mon 600

Strange - I’ve had the knuckle pain with some swelling. Only my left ring finger. It started long before removal and then improved after removal, but recently flared up again. Always that same knuckle. Just one. Weird :) [End]

Re: Has anyone else experienced these side effects of having the Mirena? by ravensinger 4 mon 632

I can’t say I’ve had the lumps. However, the seemingly random joint pain yes! ... ... I had my mirena for 5 years, and upon removal I suddenly had right hip and knee pain, as well as left knuckle pain in ONE knuckle. It’s lasted months. ... ... The most distressing symptom i’ve had is constant right sided chest/back pain. Count yourself severely lucky. I’ve had the chest pain for the 4 months since removal with no relief in sight. It seems to feel like a type of musculoskeletal joint issue, except in the ribs. Before anyone asks, it’s not costochondritis. I’ve been through the gamete of tests, with ... [retrieve this message]

Mirena iud lawsuit by Dest 1992 4 mon 294 IUD Malfunctions / Help Me / Law

So ive had an iud in for about 6 months now. I started having pains a month after I got it in. so I finally had ultrasound done and come to fund out that it had embedded itself into my cervix. It was a btch to get out and it was the worst pain ever. She had to numb my vag just so she could yank it out. If she couldnt get it that way I would have gad to take me to the OR.. My question is, can i get a lawsuit out of this? [End]

Re: Has anyone else experienced these side effects of having the Mirena? by happyfamily6 4 mon 832

Your symptoms sound very Mirena-related. I did not experience the lumps, but did experience most of the others. Honestly, I would say that just about any strange, new health issue that shows up after having the IUD placed could be related to it. If you’re having more than one strange issue, then it’s even more likely. ... ... If you were someone I’d just met, and I learned you had the IUD and did NOT have any problems with it at all, I would still tell you my story and beg you to have it removed. It’s just not worth the gamble. I think every woman on this forum would agree. ... ... Keep posti ... [retrieve this message]

Has anyone else experienced these side effects of having the Mirena?

by minimog 4 mon 1,482 Mirena IUD / Weight Los / Arthritis: / 4 / 5 / 6

I got Mirena put in sometime in April 2012. I have had no problems with it that I knew of until November. Unfortunate for me it happened on Thanksgiving day. I woke up with bad joint pain in my left knee and my right elbow. I thought it was how I slept so I ignored it. Well days went by and the pain did not go away; in fact, a new symptom came up. ... ... I noticed a lump on my left shin. It was skin colored and felt like a bruise. I called the doctor and made an appointment. During this time, more lumps started appearing on my left leg and even some on my right leg. The doctor thought it was ... [retrieve this message]

Re: 2 months post Mirena, still itching all over by Djsimpsonblog 5 mon 747

Well, I am almost 3 months post Mirena and waiting on my second period next week hopefully. My symptoms have been much better after my first period post removal. However, they are still there, just less faint. Matter of fact better to the point of my husband noticing I hadn’t complained about itching or being up all night. ... ... Well it must be time for my period because I am beginning to itching pretty heavily again. I am trying not to freak out, but now the dizziness has come back, so now I am a little worried. I don’t want another attack that leads me to another hospital visit. Will keep y ... [retrieve this message]

Re: Anyone tried Sam-e, St.John's Wort or Panicyl? by Mary Anne S. 5 mon 683

I am still using panicyl and having great success with it for my anxiety and depression problems. Great stuff. [End]

Re: Mirena isn't the only IUD that sickens your body. The Paragard has t... by SB1108 6 mon 627

OutofWhack - I am so sorry to hear all the problems you have gone through with the copper IUD. I too had the Paragard in 2008 and have spent a very long time trying to recover from its adverse effects. You can view my post history for more information on what I’ve done. Definitely take a look at these messages that I previously posted on curezone: ... ... http://curezone.com/forums/am.asp?i=1964884 ... http://curezone.com/forums/am.asp?i=1560510 ... ... More than anything I encourage you to join our yahoo group where we discuss our protocols for detoxing copper: ... ... http://health.groups.yahoo.com/grou ... [retrieve this message]

Mirena isn't the only IUD that sickens your body. The Paragard has the s...

by Outofwhack 6 mon 919 Mirena IUD / Contracept / IUD Malfun / 4 / 5 / 6

I got the Copper IUD after my fifth child in June 2010 and I have not been the same health wise. I just had it removed on Nov 19 2012. I feel like crap. The entire time that I had the IUD I had extremely heavy bleeding for 6 out of the 8 days that I would get my menstruation. On top of that I would get severe headaches that lasted from the time that I would start my menstruation until 5 days into having it. Even if I had any sugar outside of sugar naturally in foods, I would get a massive headache with nausea. Then I had severe hair loss, fatigue, bloating, constipation, dizziness, leg cra ... [retrieve this message]

Re: 2 months post Mirena, still itching all over by steph19812006 6 mon 844

Hi I am curious if you have been tested for progesterone allergy? I was diagnosed last year with being allergic to my own progesterone Caused by MIRENA.http://www.facebook.com/livingwithAutoimmuneProgesteroneDermatitis [End]

Re: 2 months post Mirena, still itching all over by Djsimpsonblog 6 mon 770

The Epsom salt baths seem to work, but all allergy medicines and cortisone creams don’t. Only aloe lotions works to help lock in moisture because there is no alcohol to dry out my skin. When did the itching start and has it gone away? ... ... How long did you have the Mirena in? I seem to think that our symptoms are worse the longer we had it in. I had mine in for about 2 years. [End]

Re: 2 months post Mirena, still itching all over by Djsimpsonblog 6 mon 806

Thanks for the replies. I definitely think its hormonal, hands down. I have tried all allergy medicines and all kinds of creams from the dermatologist and nothing seems to help. I have now been put on a prescription Vitamin D supplement that seems to be helping and now trying the Epsom salt baths at night before bed. These two things are the only things that help...oh and aloe lotion after the baths and showers. Of all the lotions I’ve tried, it helps the best because there is no alcohol in it. ... ... I also just had my first period since removal, which seems to have take the intensity of the ... [retrieve this message]

Re: 2 months post Mirena, still itching all over by Warrebe 6 mon 820

I’ve had mine removed for about 6 weeks now. I do not have the itching all over or all the time. But every now and then I get the prickly, tingly, itchy feeling in the very middle of my back. Right on my skin. Almost just like an allergy skin prick test. Lasts a few seconds- minute. If it lasted longer than that, I’d try Benadryl maybe at night time. Then put some cortisone cream on wherever it itches. ... ... Try doing a detox bath to help push the toxins out of your system. Followed by a Benadryl and some cortisone cream. Just make sure not to use an anti histamine and an anti histamine crea ... [retrieve this message]

Re: 2 months post Mirena, still itching all over by karita 6 mon 903

Have you tried any seasonal allergy medication? It has helped me over the last few years and does not make you as sleepy as Benadryl. I do believe it’s the hormones trying to even themselves out. I know after I had my last baby I itched for a couple weeks straight. It was definitely hormonal. I hope it goes away soon. ... [End]

2 months post Mirena, still itching all over

by Djsimpsonblog 6 mon 1,179 Mirena IUD / Eczema/Exc / Gynecologi / 4 / 5 / 6

I wanted to share my Mirena story and see if anyone else has or had the same issues, especially with the itching. ... ... I had the Mirena placed in November 2010 after the birth of my first child. I experienced some anxiety by December 2010 and dizziness spells by August 2011. However the horrible itching all over my body started in May 2012. I went to allergists and dermatologists and no one could help me. After lots of thought, I discussed it with my husband and he suggested it might be the Mirena, so at my wits end...I had it removed September 2012. It’s been removed for 2 months now and I ... [retrieve this message]

Re: My update--lesions found by mom22girlz 6 mon 631

I also had lesions found. Non-MS. I had my first MRI a couple of years ago where they found 6 lesions. I had another one 6 months later, and then another one at a year. They had not increased. Well, duh, Mirena was removed 3 years ago. [End]

Re: My update--lesions found by cindylou37 7 mon 811

Hi Proudmomma, ... ... I am almost two years post removal also. My neourologist has done many MRI’s on me since all my systoms started and they suspected MS also. My MRI’s showed multiple lesions on the brain but they could not tell me for sure if it is MS or not. They are not consistant with where MS patients typically are. However they have not ruled it out. I have been having MRI every year to see if more appear. They have not since having the Mirena removed. I have a total of 11 and im 39. Honestly most of my symtoms have gotten better now and I have stoped going to doctors about the ones I ... [retrieve this message]

Re: My update--lesions found by JasonMChicago 7 mon 838

Consider finding an ”LLMD” Lyme Literate Medical Doctor to see if Lyme may be a culprit. ... ... Please note Lyme tests are not accurate. You need to see a LLMD. [End]

Re: Mirena IUD & repeat cervical abnormalities... by Edge1982 7 mon 6,437

So my gf had a mirena IUD put in in may of this year. Before she had to paps done and all came back normal. After 2 weeks having it in we resumed sexua| activity. She would bleed evetytime and after a few weeks it got worse. Her gyno said it was normal for someone that never had kids. So we let it go for a little while. Kept getting worse so she went back in again and they did a pelvic scan and saw what they called an ”angry bump”. She had it biopsied in 5 areas. 2 weeks later results came back as full blown cancer. She saw a oncologist and he told her the same and had to have a pa ... [retrieve this message]

My update--lesions found

by ProudMomma 7 mon 1,090 Mirena / Multiple S / IUD Malfun

Hey all--Here is a link to my update from my MRI results. I just put it in my blog. I would love to hear from anyone who had lesions found on their brain after having their Mirena. They found six on mine (I am 36). They can’t confirm or rule out MS at this time, but by what I am reading online, it is only ”normal” to have 1 lesion per decade of your age...that would only be three for me. I’m double that, and so now I’m worried. ... ... Here are my results, and I would love to hear from anyone who DID have lesions found on their MRI, and what has happened with you so far. ... ... http://www.myli ... [retrieve this message]

Three biggest cons against birth control pills and IUD by Me235 7 mon 602 Birth Control / Contracept / IUD Malfun

The birth control pill, the birth control patch, the IUD and similar birth control products work in three ways: ... ... 1. They can prevent the release of an egg from the ovary (ovulation). However, while using such products, women can and do experience breakthrough ovulation, meaning that an egg is released from the ovary and is available to be fertilized by the sperm. ... ... 2. They also cause the cervical mucus to thicken, making it difficult for the sperm to reach the egg. However, it is still possible for the sperm to break through the mucus and fertilize the egg. ... ... 3. They also change the l ... [retrieve this message]

Re: mirena and headaches by Venliak 8 mon 965

Some head ache may lead to several diseases.So do not neglect in case of head ache. Courchevel Ski School ... [End]
Re: Copper and Mirena Similarities by SB1108 8 mon 1,173

I guess I’m not the first person that has thought this... ... ... http://curezone.com/forums/am.asp?i=1560510 [End]

Re: I cant take it anymore!!!!! by happyfamily6 8 mon 1,116

Cynthia, my Dr. said that ANAs can appear and disappear and appear again. A friend of mine with Hashimoto’s (autoimmune thyroiditis) says that hers come and go too. I wouldn’t worry too much about the ANAs coming and going. Just hang in there and remember you’re not alone - that many others take a longer time to recover. I pray that better times are ahead for you. Keep posting, because I often wonder about you and how you’re doing! ... ... :) ... Diana [End]

Re: I cant take it anymore!!!!! by cynthleal 8 mon 1,255

Wow Diana I cant believe that this is taking so much of our lives. Thank you for making me feel that I’m not alone, because thats exactly how I feel after so long and not seeing the end or much progress. ... I also was having some Ok weeks but this month it’s been so hard to the point that some times I fear that I may get back to were I was 3 years ago. Interesting that like you I started getting symptoms that I didn’t have since months ago.,why I don’t know but it’s so stressful to live with the fear of never having my life back. ... ... Diana If I’m not wrong I think you mentioned befor ... [retrieve this message]

Re: I cant take it anymore!!!!! by happyfamily6 8 mon 1,064

You know Cynthia, even though I’m doing better in general, I’m having an awful month this month. It started with the herb supp I took with wild yam and vitex. I only took it for a couple days, and it’s made me feel all weird. I’m going to steer clear of anything that might affect my hormones specifically. I’m feeling achy, like I’m running a fever, strange chills on my scalp today (for the first time since my first year post), horrible restlessness at night, distorted vision, and very spacey. And this is usually the GOOD time of my cycle, after ovulation and not quite to my period yet ... [retrieve this message]

Re: I cant take it anymore!!!!! by cynthleal 8 mon 969

Thank you Diana and Nile. I have not weaned yet. I’m nursing her full time and I eat pretty healthy plus I take very good supplements. My cycle is much closer to normal. I did had some Ok days but it’s been like two weeks that I feel like it’s getting pretty bad again. I’m so discouraged. ... ... I’m happy for for you that are doing much better, I wish I could say the same thing. I’m so impressed to hear that you guys are running, that’s awesome. I dont know if i will ever be able to do that again but if i can walk without feeling weak or dizzy all the time that will be a blessing. ... ... Thank y ... [retrieve this message]

Re: Celia’s Search for those “Safe” Contraceptives: Pills, IUD or Tubal ... by adamson77 8 mon 992

thanks I posted it to my fb page. it’s true one little pill can lead any woman down the wrong road. the bc pill even used properly can make a woman choose to fix everything by getting a hysterectomy. the www.hersfoundation.com has shown me a lot. ... ... i can’t figure out why the birth control pill takers have lawyer commercials and we don’t. [End]

Re: I cant take it anymore!!!!! by adamson77 8 mon 958

it was kind of sad to read that but you will get better. i tried a few things to see what would make me feel better. i know one symptoms leads to all of them and you feel like you at rock bottom again. you have to remember what makes you feel better. exercise made me feel great i also tried wild yam root capsules also vitex. i just can’t trust gyn right now and i don’t have one. i know it’s been over 7 or 8 years since i had the mirena but for some reason i’m mad about it all over again. mirena has screwed up my life and i can’t get pregnant. i’m highly upset. i finally met the love of my ... [retrieve this message]

Re: I cant take it anymore!!!!! by happyfamily6 8 mon 1,049

Nile, I’m excited that you’re running! Like you, I notice that I feel worse if I back off. I just run 2-3 miles at a time, 3 times a week, and that seems to be a good balance. My shins bother me if I increase my distance or frequency. ... ... Cynthia, Oh, I feel for you! I was also wondering if you’d weaned yet. If so, that would explain it. If not (and trust me, I encourage long nursing with little ones), then maybe she’s decreasing her frequency or amount of milk. Maybe this is causing your hormones to shift. ... ... Here is something interesting to me: I started taking an herbal suppl ... [retrieve this message]

Re: I cant take it anymore!!!!! by nile 8 mon 1,214

So sorry to hear you’re not feeling better at this point. 3 years seems like such a long time. I was feeling the same way at 3 years, heck even a couple months ago (I’m 4 1/2 yrs). Have you weaned yet? I was FB’ing with Karita and she pointed out that breastfeeding suppresses both estrogen and progesterone. And I ran across an article that bfeeding is actually harder on your body than pregnancy! I’ve been cutting back on it with my little one, hoping to wean slowly. I’m worried about any sudden changes to my body. I added an extra vitamin D and fish oil, and have been more consiste ... [retrieve this message]

I cant take it anymore!!!!!

by cynthleal 8 mon 1,516 Mirena / IUD Malfun / Contracept

I will be 3 years post removal by the end of this month and my symptoms seem to start coming back. I dont know what to do any more, I want to cry but I don’t want to cry any more. This is driving me insane I feel like I will die soon or I will end up in a mental hospital. Sorry for this negative post but i feel lonely and just want it to express my feelings to someone that might understand me. I feel so lonely and lost. [End]

Re: Time for another dr. visit.... by AJ22 8 mon 1,063

nomirena and Diana, thankyou so very much for your responses its good to know I am not alone with these unusal feelings that I have complained about for nearly a year now. The burning, tingling and numb legs and arms get very distressing at times and make it very hard to concentrate. I am unable to work out a pattern, like Diana it can be away for a while and then be there constantly for days on end. I am due for my thyroid bloods again soon as I am getting closer to an over active thyroid leading to autoimmune, I have no doubt that these fluctuating hormones are the cause just getting peo ... [retrieve this message]

Re: Mirena IUD Side Effects by Aussie-Net 8 mon 3,550

I started a help page,feel free to have a look ... ... ... http://www.squidoo.com/Mirena-Side-Effects ... [End]

Re: Time for another dr. visit.... by happyfamily6 8 mon 1,033

Life has been crazy since school started - haven’t been able to get on here to post often, but I keep reading :) ... ... ... ... The restless leg thing has been a huge issue for me since the IUD was removed (3 years this November). There have been times over the last 3 years when it would disappear for up to a couple months, and then come back and plague me daily for a couple months! For the last 6 months or so, it has been off and on throughout the month. I can count on it either starting or stopping when I ovulate or start or stop my period. I can’t find a definite pattern. But when my hormo ... [retrieve this message]

Re: mirena and headaches by happyfamily6 8 mon 1,118

Headaches and fuzzy brain feeling were a definite Mirena issue for me. Actually, they are a hormonal problem for me. The Mirena didn’t help, and it brought on far more serious problems than the headaches. It can’t do you any good! I suggest you have it out ASAP!!! ... ... Keep us updated, ... Diana [End]

Re: Time for another dr. visit.... by nomirena 8 mon 996

The restless legs was diagnosed when I was pregnant. I did not ever take anything for it but other people on this forum have taken natural remedies and it has helped. I take the following everyday; 1 whole food multi vitamin, magnesium, Omega 3, Vitamin D and B6. I did a lot of experimenting with herbs and other vitamins, this was the best mix for me. The other thing that helped me immensely was acupuncture. I have had about five treatments overall and it brought my life back to me. ... ... If it is any help, I started to feel better about nine months post. I had terrible brain fog but i ... [retrieve this message]

Re: Time for another dr. visit.... by AJ22 8 mon 994

Hi nomirena, thankyou for your response, my mirena coil has been out for 9 months now, I did suffer with this before the mirena was removed then went down the ms path, as well as my legs I also get it on my arms and a band around my tummy under my boobs (strange but thats where it always is) I read somewhere that restless legs can also affect arms and torso as well as legs, I am not expecting my nerve conduction test to show anything either, were you diagnosed by a doctor for your restless legs or is it something you had to work out yourself (like we all do) just wondering what supplements ... [retrieve this message]

Re: Celia’s Search for those “Safe” Contraceptives: Pills, IUD or Tubal ... by nile 8 mon 1,053

Dude, appreciate what you’re trying to do, but all of us here already found out the hard way about IUD’s and artificial birth control, so instead of adding insult to injury, can you find a site where everyone is saying how much they love their IUDs and post there? Thanks [End]

Celia’s Search for those “Safe” Contraceptives: Pills, IUD or Tubal Liga...

by goodsamaritan55 8 mon 1,072 IUD Malfunctions / Birth Cont / Mirena

* All names had been changed to protect the identities of the people involved. * This is a true story of a young woman in search of happiness in a free country with all the choices legal and affordable for her “reproductive health”. Celia is a highly intelligent woman, educated in the top schools and has the money to afford all the plethora of contraceptive choices the 21st century has to offer. ... ... Celia was a married, happy doting mother of 2 children and she decided it was time to take a break from pregnancy. She sought out her choices and began with oral contraceptive pills… ... ... http://w ... [retrieve this message]

Re: Time for another dr. visit.... by Melanderso 8 mon 974

I had a nerve conduction test for my legs, which was negative. The left foot/ankle periodically goes numb. I also had a chest X-ray for problems with lung capacity, but it didn’t show anything. The pulmonary function test said I’m only at 70%. The allergist’s breathing test guesses my lung age at 69. ... My leg pain has been much better since I got out of the moldy classroom, but my lungs haven’t improved yet. I can’t tell what is Mirena itself and what was caused after Mirena mutilated my immune system. ... Please, ladies, post your test results when you get them. Thanks! [End]

Re: Time for another dr. visit.... by nomirena 8 mon 966

I forgot to mention that I had an EKG also, found nothing. [End]

Re: Time for another dr. visit.... by nomirena 8 mon 948

Hi Aj22, ... ... For me, when it is time to go to bed, my legs feel like they want to run a marathon. I can’t get comfortable and have to keep moving them around. Nothing seems to help. ... ... I had it horribly when I was pregnant and then after I had Mirena removed so I know it is related to hormones. It had been better over the past few months but the legs went crazy last night. I was off my supplements for a couple of weeks as I was out of town for a death in my family. It could be that or stress that brought back the symptoms. ... ... I would think about getting the Mirena out. My initial probl ... [retrieve this message]

Re: Time for another dr. visit.... by AJ22 8 mon 1,092

Hi nomirena, Can I please ask you about your restless legs, I have had really burning, tingling, numb legs for nearly a year now and also cramps at the back of my calves, as usual no explained answers, I have had my mirena coil out now for 9 months, the other day I decided to look up restless leg syndrome and it sounds a lot like me, I also read that there is usually an underlying problem and one of them is thyroid disease which I am having problems with also at the moment I am heading towards the autoimmune ”graves” more bloods shortly,I have an appoinment in a few weeks for a nerve condu ... [retrieve this message]

Re: Time for another dr. visit.... by nomirena 8 mon 1,055

Hi ProudMomma, ... ... I still have the air hunger thing as well. I saw my GP for it and she thought it was allergies. I did have a chest x ray too. After really paying attention to it, I think it might be food related. It only last hours for me though. ... ... I have restless legs tonight, it has been a while for that one ! ... [End]

Re: Time for another dr. visit.... by nile 8 mon 1,510

Sorry to hear that’s still bugging you. I mentioned it to my dr a couple weeks ago, and he seemed to think it was normal. Then again, he thought all my symptoms were normal, which we all know is a crock. ... ... Back when I first got Mirena out and was at my worst, I had to use my kid’s inhaler (Xopenex) a couple times and that seemed to help. It hasn’t been bad enough for me to do that lately, just an annoyance, but is that anything you’d be able to try? ... ... Let us know how the xray goes, curious to hear if they find anything... ... ... -nile [End]

Time for another dr. visit....

by ProudMomma 9 mon 1,824 Mirena / IUD Malfun

After this holiday weekend, I am going to set up an appointment with my GP to let him know that I want to have my lungs X-Rayed. I’m so over this stupid air hunger. I am two years post in only three days, and that is one symptom that is just not getting any better. I’m so sick of huffing in big gasps of air just to feel like I’m getting a good breath. I’m going on day six of struggling with my breathing, and--after it lasting that long--it starts messing with my head. I start thinking about the connection between Levonorgestrel and pulmonary embolisms, and it makes me worried that I may ha ... [retrieve this message]

Re: mirena and headaches by cynthleal 9 mon 1,297

I will say that yes it’s mirena. It doesn’t surprise me that your Dr denies that mirena is the culprit. Save your self more pain, stress and money and get the thing out before it gets worse. [End]

mirena and headaches

by pinkmermiad 9 mon 1,329 Mirena / IUD Malfun / Birth Cont / 4

I got the Mirena IUD on 8/2/12 and began having weird headaches about a week later. I feel like I am in a fog and can’t concentrate. These headache are daily, lasting 6 hours or more, and no over the counter meds offer any relief. I called my OB, she said it is not likely the IUD (even though I read that I should call my provider if I have persistant headaches?!) So I made an appointment with my general DR.She gave me an antibiotic and said if I still have headaches in a week to give her a call. (antibiotics for sphenoid sinus infection possibly?) Gave her a call and had a CT scan - looks ... [retrieve this message]

Re: Women on Hormonal Birth Control Lose Out in Attractiveness to Normal... by nerd999 9 mon 1,063

I find that not surprising, after all, birth control is - from a purely biological perspective - a method which diminishes the most natural function of females and thus their attractiveness to men ... might sound very basic, but that’s it. [End]

Women on Hormonal Birth Control Lose Out in Attractiveness to Normal Wom...

by goodsamaritan55 9 mon 1,548 Birth Control / IUD Malfun / Mirena / 4

Women on Hormonal Birth Control (Pills, Patch, IUD, Shots) Lose Out in Attractiveness ... ... Just stating the obvious scientific study and observable facts. Men, raise your hand if you are attracted to pregnant women, to woo them, to pursue them, to ask them out on dates, to court them. Obviously not. Somebody else has already knocked her up, right? (Her body thinks that it is already pregnant. She may be taking other pharmaceutical drugs on a regular basis as well… she is on that paradigm, right?) Men might then be more attracted to a young lady… a ... [Image Embedded Here] [retrieve this message]

Re: PMS struggle by Melanderso 9 mon 883

On the back pain, did you have have an X-rays or anything? I had both MRI and X-ray in 2009/2010 for wretched low back pain. It said I had degeneration and stenosis. But really, that ”diagnoisis” did nothing to help because the surgeon just referred me to pain management. ... ... Well, I hate pain management--so I went to PT instead. That didn’t help either (and I was sure it would, since it helped so much after my upper back surgery 10 years ago). Anyway, that’s how I ended up in belly dance class. It still took a year of strenghting (I am a slow learner, apparently) but my low back has ... [retrieve this message]

Re: PMS struggle by Godismyrefuge 9 mon 831

Sorry friend. I don’t get on here as often as I used to. I know EXACTLY how you feel! I have had that happen to me my last SEVERAL periods. I get so angry at EVERY little thing, and then, I get angry for getting angry. I also feel VERY unfocused and disconnected....like everything is floating around me. I just tell myself how far I’ve come and I cling to the hope that one day, I will be 100 % healthy again. I’m not really going to do ANYTHING else (take pills, get poked or prodded) except drink tons of water and stay active and try to get enough sleep. I am almost certain that my I ... [retrieve this message]

Re: PMS struggle by ProudMomma 9 mon 705

Nobody has any thoughts on this? ... [End]

PMS struggle

by ProudMomma 9 mon 1,036 Mirena / IUD Malfun

Hey ladies, ... ... Well, my two year post removal anniversary is next month. As much as I have greatly improved, I still have some issues that continue to smack me around. For me, my vision loss never returned, I have lower back pain, I have days where I still have the ”air hunger” and have to huff in big gasps of air, etc. ... ... If those three thing never improve, I can live like that. It’s not fun, but it isn’t debilitating like my previous symptoms were. However, I am still having a terrible time during my PMS weeks on some months, and I am really trying to figure out how to improve it. F ... [retrieve this message]

Re: Copper and Mirena Similarities by SB1108 10 mon 1,511

I actually received my results back early and I was extremely excited to see that I had an elevated copper level! So my body is actually eliminating the copper now instead of holding on to it! Soooo happy - the five months of chelation is paying off!! ... ... I am chelating by taking Vitamin C, Vitamin B6, Zinc and several others. I am about to switch my approach to be more holistic through ”Nutritional Balancing” - So I will be taking more supplements soon. Thats why I just did another hair analysis. ... ... I have felt some better physically but I have not felt better mentally. My anxiety is u ... [retrieve this message]

Re: Copper and Mirena Similarities by nile 10 mon 1,551

Please, please, pretty please post back your results! :) Have you felt any better with the chelating and balancing? What is your method for balancing? Is it through you diet? I’ve tried so many different things - given up alcohol, caffeine, diet pop (which I loved) and most artificial sweeteners, any food/product containing silicone, tried gluten free for a short time. The caffeine and alcohol have been the only things I’ve given up where I’ve noticed improvement. But if there’s some other diet out there that can help, I’d give it a go. ... ... Hope to hear back, and thanks for posting h ... [retrieve this message]

Re: Copper and Mirena Similarities by SB1108 10 mon 1,464

I wouldn’t waste your money (or blood) on the copper/zinc serum testing. You HAVE TO get the hair analysis. ARL Labs is one of the few that does not wash the hair prior to testing, which is imperative for accurate results. Serum testing only shows the amounts in your blood... not what is stored in your tissue. ... ... I’ve had one hair analysis which showed low (or hidden) copper overload. I just sent off for my second hair analysis after trying to chelate/balance out the copper for about 5 months. I am hoping that it will show that I am eliminating copper now. Should get the results back i ... [retrieve this message]

Re: Copper and Mirena Similarities by nile 10 mon 1,570

I spent a good few hours last night reading thru all the stories, and OMG, they are the same as ours!! It gives me hope that maybe it’s not the silicone after all (boy, I’d love to go back to my silicone-containing beauty products). Seems most women got back to normal fairly quickly after removing their copper IUD. A few on there took more time, like me and some others here. (I’ve had mine out over 4 years ago). I think I’ll see if my Dr will let me test my copper and zinc levels next time I go in. I’m due in a couple months to get my TSH levels checked again. ... ... The site by Dr. Wi ... [retrieve this message]

Copper and Mirena Similarities

by SB1108 10 mon 2,405 Mirena / IUD Malfun

I got a copper IUD in December of 2008 because I could not tolerate hormonal birth control (I had tried multiple pills and even the NuvaRing over a 10 year time period). I researched it pretty thoroughly before I had it placed and never found anything related to the symptoms I experienced (until recently). After six months of having the IUD, I began to develop an alcohol intolerance. I also developed acne like I had never seen before. It was more like boils under my skin rather than typical acne. I became extremely tired and began having severe depression/anxiety (especially during PMS). A ... [retrieve this message]

Re: Facebook page if you are interested by ProudMomma 11 mon 791

Get a Facebook page and then search for the page called ”Ban Mirena IUD” ... ... Hope to see you there! ... [End]
Re: What to do after Mirena? by keelerlakemama 11 mon 1,223

Thank you for the website. I will definitely take it into consideration. [End]

Re: What to do after Mirena? by Nimbus.Dreamer 11 mon 1,226

Here’s a site that might get you looking in the right direction and asking your doctor some new questions. ... ... http://familydoctor.org/familydoctor/en/prevention-wellness/sex-birth-control/birth-control/progestin-only-contraceptives.html ... ... I hope you find what you’re looking for. :) [End]

Re: What to do after Mirena? by keelerlakemama 11 mon 1,365

Thanks!! That is definitely something I will be looking into. I react to certain metals in jewelery though, so am a little nervous about the copper. Keep the ideas coming though please. ... [End]

Re: What to do after Mirena? by Melanderso 11 mon 1,499

The copper IUD doesn’t have hormones and lasts for 10 years. It wouldn’t regulate the cycle, but it IS supposed to make you bleed more heavily. It’s horrible that women don’t have safe, effective choices. We have been on condoms for 3 years because I’ll never take hormones again. Good luck!!! [End]

Re: Mirena IUD & repeat cervical abnormalities... by lacey05g 11 mon 8,657

I Had the Mirena for about 4 years. I had some side effects but nothing bad. I then had a bad pap, my first bad pap EVER, and had to have a colposcopy which is a biopsy of the affected spots of the cervix. The results came back that I had high and middle-grade pre-cancerous cells. I then had to have a cold-knife conization of the cervix and had my doctor remove the Mirena. He tried to convince me that mirena could not have caused it and wanted me to keep it. I still don’t understand why because it’s my decision and my body. After having it removed I had to had a pap every 3 months for a ye ... [retrieve this message]

What to do after Mirena?

by keelerlakemama 11 mon 1,847 Birth Control / IUD Malfun / Mirena / 4

I need some advice. I am 33 years old and have been married for 13 years. We have two beautiful boys and do not plan on having any more as I have a hard time getting pregnant and am extremely uncomfortable during pregnancy because of scoliosis. I have had a Mirena IUD for over 4 years. I have always had irregular periods and the doctors told me that doubt I ovulate more than a couple times a year which is why I started on Mirena to keep my uterus cleaned out to ward off pre-cancerous cells. In the last year I have noticed extreme vaginal dryness and irritation and monthly migraines ri ... [retrieve this message]

Re: Facebook page if you are interested by mek27 11 mon 863

Hello, ... ... I would really like to be added to the Facebook page. What can I do to make it happen? ... ... Thanks in advance for your help! ... ... Best, ... mek27 [End]

Re: Nausea 7 months after removal? by happyfamily6 11 mon 942

Have you been tested for h.pylori? This can cause gastritis. The breath test is the most accurate. Mastic gum is effective against gastritis, if you want to avoid antibiotics. My daughter (13yo with stomach issues) takes mastic and finds it helps. ... ... I had recurrent strep infections around the time I started reacting to the IUD. I had repeated antibiotics (which I avoid like the plague now), and I wonder if these infections were the final straw for my immune system. Soon after that I started having my neurological symptoms. I use pau d’arco tea now for myself and kids when we have ... [retrieve this message]

Nausea 7 months after removal?

by lupusinvictus 11 mon 1,104 Mirena / IUD Malfun

I have seen so many posts by people who are about to have the IUD removed or have recently had it removed. I’d like to hear more about some of you who have had it removed for a while. ... ... I had my IUD inserted Sept 2012, three months post partum. I experienced acne, mood swings, depression, and decreased sex drive. I also bled the entire time. I didn’t think much of it because this is how I have reacted to other birth controls in the past. ... ... I decided to have it removed in mid-December 2012 because I didn’t like the mood swings. ... ... I experienced a severe mood crash a few days later - like ... [retrieve this message]

Question regarding back pain by ProudMomma 12 mon 691 Mirena / IUD Malfun

Has anyone who has dealt with consistent lower back pain since their Mirena ever gone to have a back X-ray done? I feel like I am THIS close. My lower back hurts almost all the time....and some days, I can’t bend forward at ALL. ... ... I’m starting to wonder if something would show up on an X-Ray. There was a post on a website back in 2002 that I saw where a woman had terrible back pain and they found out that her lumbar was punctured during insertion. I also just heard from a woman this week who has been diagnosed with a degenerative joint disease that the doctors can’t explain (her back ... [retrieve this message]

Re: Lower back pain by Melanderso 12 mon 1,469

My lower back pain started 2 1/2 years after insertion, and it was led me to have the back X-ray that showed the IUD had perforated. . .(although no doctor actually noticed the X-ray--I had to look at it myself months later to find out.) The low back pain continued pretty much all the time for a year and a half after that. I still have it, but it is much beter now that I do dance class every week. Don’t laugh--it’s belly dancing class. It was the only thing that helped the back pain--and I tried a bunch of things! I have to drag myself there but it’s worth it. My back MRI did show degener ... [retrieve this message]

Lower back pain

by ProudMomma 12 mon 1,543 Mirena / IUD Malfun

I wold love to hear how many of you have lower back pain since the Mirena. It was actually one of my very first symptoms after insertion....debilitating lower back pain. ... ... After it was removed..and even to now....it is not AS bad, but I still deal with some level of lower back pain every day. Some days, it’s not terrible, but sometimes, I can’t even bend forward, and it is awful. I seriously wonder if it caused some sort of Osteoporosis or deterioration or something. It really angers me because I feel like, if this is how much my back is going to hurt now at age 35, what on Earth am I go ... [retrieve this message]

New entry. Love to you all! by ProudMomma 12 mon 557 Mirena / IUD Malfun

Just in case you were wondering... :-) ... ... Blessings! ... ... http://mylifeaftermirena.blogspot.com/2012/04/how-i-met-dr-j.html?showComment=1335986756003#c5269156995753266036 [End]

Re: So frustrated...... by cynthleal 13 mon 677

Hi Diana, I see that you are still struggling. I just posted a pic of my last lab results which show that my hormone levels very low at a postmenopausal person. Have you checked your hormones before? Im curious to see if you have the same problem. I haven’t started taking anything because I’m breastfeeding and I’m scared to take anything that may affect the baby or my milk supply. ... ... sleepy Diana :) ... [End]

Re: So frustrated...... by happyfamily6 13 mon 687

Hi Kristi, ... How is your air hunger symptom doing? After explaining that my breathing problem is different (and it was at first), now I have to eat my words and say that I’m having the classic problem you describe. I just can’t get a full, satisfying breath in. I do the deep breathing, the huffing, and get a bit dizzy, but still feel like I’m not getting enough air. I haven’t had this for a long time. Strangely enough, the ”forgetting to breathe” is not quite as bad, although it happens a few times during the night, but the air hunger, has taken it’s place. I’m not sleeping. I have a ... [retrieve this message]

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