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Expanded All Messages [1067] Posted by happyfamily6, Sorted by Date Source: Mosaic: Messages Across All CureZone Forums & Blogs

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All Messages [1067] Posted by happyfamily6, Sorted by Date   Back To Standard Forum View

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  • Re: Mirena by happyfamily6  54 h   37  Mirena IUD
     
    You have some great suggestions. I’ve also tried some homeopathic remedies that often help (some nights can’t be helped by anything it seems): Calms Forte, Calc. Phos cell salts. Hyland’s also has an Insomnia remedy, but I like the Calms Forte best. Sometimes I take a capsule or two of Glycine by Source Naturals (a calming amino acid). I keep all these things in my nightstand because it’s a common need for me ;) ... ... Keep posting and take care, ... Diana   [End]
     
  • Re: Mirena Horror Story by happyfamily6  7 days   80  Mirena IUD / Child Loss / Birth Cont / 4 / 5
     
    There are no words I can say. I am in tears. I am so sorry. ... ... With love, ... Diana   [End]
     
  • Re: Just Checking In - 4 Years Post and Doing Well by happyfamily6  8 days   70  Mirena IUD / Birth Cont
     
    It was delightful to read your update :) It gives us all hope. ... ... I can relate to being willing to try anything, and buying many things from the helpful health food store that I didn’t need either. ... ... I agree that time seems to be the necessary thing. Also, I noticed steady improvement as well once I could start exercising more heavily. That was a rough transition, as I didn’t start exercising because I had any extra energy or felt well enough to do it, but rather because I was desperately hopeful that it would help me to feel better. I remember coming home after going out on my fir ...   [retrieve this message]
     
  • Re: 5 years post-removal by happyfamily6  24 days   143  Mirena IUD
     
    It’s lovely to hear from you, Nile! What a great report. Gives hope to us all who are struggling. Yes, running has helped me tremendously. I had to give it up during the long, cold winter we just finished here, but I’m slowly trying to rebuild my strength again. I am 4 1/2 years post; maybe my next 6 months will be better too. ... ... Thanks for posting! ... Diana   [End]
     
  • Re: Bruising? by happyfamily6  24 days   145  Mirena IUD
     
    I agree with Cynthia. So many strange and worrisome physical symptoms can happen with this IUD. It helps to have tests done to rule things out, so you can have peace of mind. I’ve worried about so many diseases, it’s ridiculous. I can list over a dozen major diseases I’ve been sure I have. I still wonder on some days. ... ... Take care! ... Diana   [End]
     
  • Re: Feeling out of breath. by happyfamily6  31 days   183  Mirena IUD
     
    Hi Friend :) ... I know you’ve had lab work done over the last few years. Were your iron levels generally high? I know that when I started exercising last year (more than just my regular work around the house) by walking/jogging, I found that my housework made me less exhausted and out of breath. It was like my heart became stronger by really pushing myself, so the daily things weren’t as taxing. During my first year or two post IUD, I spent so much time in bed, doing so little, I think my body became very weak. I don’t know. Maybe heavier exercise would be too hard on you at this point ...   [retrieve this message]
     
  • Re: Mirena removed almost 2 months ago. Advice needed, please by happyfamily6  67 days   612  Mirena IUD / Depression / Anxiety / 4 / 5 / 6
     
    I have no doubt the Mirena can do to someone what it’s done to you (both of you)! My symptoms were a bit different (anxiety was mild but I had most of the symptoms of MS), and my hormones were considered ”fine” by my Dr. I had several hundreds of dollars of lab work done, plus a brain MRI, and it was all normal. I was a mess for many months, almost incapacitated and in bed much of the time for the first year, but I felt definitely better every year. I am 3 1/2 years post-removal and doing much better. Many people less time to recover. ... ... There is a huge array of symptoms that can c ...   [retrieve this message]
     
  • Re: just had mirena removed today by happyfamily6  80 days   440  Mirena IUD / IUD Malfun / Contracept / 4
     
    Good for you! Keep us updated. ... ... :) ... Diana   [End]
     
  • Re: Does no period make a difference? by happyfamily6  81 days   315  Mirena IUD
     
    I think a lot of women in their 40s have been pushed closer or into menopause by the Mirena. It certainly upsets the hormones, so it’s no wonder it’s confusing. Not fun. ... ... Take care! ... Diana   [End]
     
  • Re: Vitamin D "issues" by happyfamily6  87 days   411  Mirena IUD / IUD Malfun
     
    I do have some issues with numbness, but not really connected to that searing pain. In fact, it usually hits me in the evening when I’m in bed or sleeping. It has awakened me before. Last night was fine though, so I’ll take things a day at a time :) ... ... Diana   [End]
     
  • Re: Mirena removal - 15 days by happyfamily6  88 days   433  Mirena IUD / Contracept / IUD Malfun
     
    Good question. I really have no idea. It might be best to use another form of control for a few months to be very sure you don’t conceive right away. The IUD can cause some severe hormonal imbalances. Not a good way to start a pregnancy even if you did want to conceive right away (which you said you don’t, of course). Maybe use condoms for a couple weeks before you try to remove it to be really sure? I’m sure someone else can give you a better answer than this :) ... ... At any rate, I’m glad to hear you are having it out. What issues are you having? ... ... Take care, ... Diana   [End]
     
  • Re: Vitamin D "issues" by happyfamily6  88 days   399  Mirena IUD / IUD Malfun
     
    Interesting link, Cynthia. Sometimes I start increasing my dosage when I’m feeling worse with my symptoms, but sometimes it seems to aggravate things . I can’t always tell. I had my levels checked last summer, at the END of the summer when I had a nice tan after being in the sun frequently. I had also been supplementing with 2,000 IUs a day. I was worried that I was too high, with all that sun exposure as well. My levels were only 35. They were 32 before with no sun and no real supplements. So, with all that work, I only was able to raise them up 3 points. I would be more aggressiv ...   [retrieve this message]
     
  • Re: Hypoglycemia? by happyfamily6  3 mon   426  Mirena IUD / Hypoglycem
     
    No, I’m about 3 1/2 years post-removal now. I’m so glad to be where I am now. I remember how hard that first year was though. And I am one who has had a rough time for a good 3 years, although each year has been better than the previous. Most women don’t take as long to recover fortunately. I would that in general, I am 70% back to normal. Some days are as good as 95%. Most days are 85% or so. Some are 60%. But the worst days are not as bad as they used to be, and they are not as frequent. ... ... :) ... Diana   [End]
     
  • Re: Hypoglycemia? by happyfamily6  3 mon   395  Mirena IUD / Hypoglycem
     
    I’m so sorry - I know where you are. I didn’t have blood sugar issues as much, but I did have some during my first year. I had other neurological problems that were frightening and debilitating. You are on the right path, and you will improve, but it CAN get worse before getting better. It happened often to me. I don’t mean to scare you but to assure you that this is typical. I remember thinking, especially in the first 3 months, that things should be better now that the IUD was gone from my body, and yet I thought I was dying. My husband felt I was dying and was very upset. I hid ...   [retrieve this message]
     
  • Re: Throbbing legs ?? by happyfamily6  3 mon   379  Mirena IUD
     
    A throbbing pain in my upper right calf was one of my first symptoms before the rest of my health fell apart. It was in a fairly small area of my calf. Since removal, it’s been better, but it does come back from time to time (I am over 3 years post-removal). I feared it was a blood clot for a long time. Nothing surprises me anymore with this Mirena stuff. Weird symptoms can come and go and pop for the first time MONTHS after removal. This has been my experience. ... ... I don’t even want to talk about RLS. It was an issue before removal, and has continued to plague me since. I do have e ...   [retrieve this message]
     
  • Re: Does no period make a difference? by happyfamily6  3 mon   529  Mirena IUD
     
    Your symptoms are such classic Mirena symptoms! I also stopped my periods - probably a few months after insertion. I spent about 1 1/2 years without a cycle, although I had frequent spotting during that time (not enough to call a period). ... ... I had about half of your symptoms and many more. My reaction was quite severe. I don’t know if there is a correlation between severity of reaction and presence of cycles. Good question! ... ... Glad you found the forum and have it removed! Keep posting. ... ... :) ... Diana   [End]
     
  • Re: NEW Scary symptom... by happyfamily6  3 mon   371  Mirena IUD
     
    Hugs to you too, Cynthia! I’ll always be here for you. And if I ever fully recover and feel that it’s time to leave this forum, we’ll find another way to keep in touch. But since I’m NOT fully recovered, I still lurk here in the shadows... ;) ... ... Love, ... Diana   [End]
     
  • Re: Remaining symptoms, 2 weeks since removal by happyfamily6  4 mon   548  Mirena IUD / Acupunctur
     
    Congratulations on being on the road to recovery! It is normal to have lingering symptoms after removal. It is also normal to have new ones crop up for the first time, and old ones which get worse. But overall, you will improve. For most of us, it is a 2 steps forward, 1 step back process. I had some months that felt like 2 steps forward, 3 steps back! But overall, there is improvement. I say this only so that you can be ready for anything that comes. Since you’re in your first month of removal, anything could happen, and the coming months might have a lot of variety for you. I ne ...   [retrieve this message]
     
  • Re: NEW Scary symptom... by happyfamily6  4 mon   493  Mirena IUD
     
    I haven’t really had the problem with my arms, but definitely with my legs, especially my right. Right now my arms are shaky and hard to control, but this is normal right before my period. It also makes my hands weak - especially my thumbs. It affects everything I do with my hands. ... ... Are you having regular periods? Where are you in your month, if I may ask? ... ... I’m sure you’ll be fine! Hang in there - ... Love, ... Diana   [End]
     
  • Re: My very long Mirena story....but hopefully helpful by happyfamily6  4 mon   585  Mirena IUD
     
    What a great post! Thank you for sharing your story. I am so happy for your recovery! ... ... Diana   [End]
     
  • Re: 3 1/3 years post, 32 weeks pregnant by happyfamily6  4 mon   512  Mirena IUD / Birth Cont / Toxic Mold / 4
     
    I think it’s okay and important that you keep posting, Cynthia, even if you’re still struggling. We care about you, and you’re not the only one with a long recovery. Just do the best you can. It’s so hard to be patient. ... ... It’s been a long winter. Here’s to hoping for better days in the spring for all of us!! ... ... Love, ... Diana   [End]
     
  • Re: 3 1/3 years post, 32 weeks pregnant by happyfamily6  4 mon   508  Mirena IUD / Birth Cont / Toxic Mold / 4
     
    That’s for sure!   [End]
     
  • Re: 3 1/3 years post, 32 weeks pregnant by happyfamily6  4 mon   609  Mirena IUD / Birth Cont / Toxic Mold / 4
     
    Nile and Melanderso, thanks for the update. I wish the best for you ladies in your continued recovery! I always look forward to your posts. I’m hoping Cynthleal will recover soon too since having her post-Mirena baby. It’s amazing how long it can take us to recover. I was 3 years post last November. Still plugging along. ... ... Take care! ... Diana   [End]
     
  • Re: Mirena COMING OUT!! by happyfamily6  4 mon   469  Mirena / Wishful Th
     
    Yea!!! ... ... It took me about 3 weeks to start my first cycle, FYI. There are no rules, and if there were, our bodies wouldn’t necessarily follow them. ... ... :) ... Diana   [End]
     
  • Re: Sorry to vent but I feel horrible. by happyfamily6  4 mon   410  Mirena
     
    Oh, Cynthia. Do you think your hormones are shifting in a big way? Has your baby weaned or in the process of it? I would believe that shifting hormones can do anything. Especially if you’re having panic attacks. We old-timers are ready to be done with this. As I’ve told you before, this fall and winter have been hard on me too. So many symptoms worsening again. ... ... I’m so sorry!!! ... ... Hugs, ... Diana   [End]
     
  • Re: Hailey56, how is your daughter doing? by happyfamily6  4 mon   364  Mirena
     
    I was wondering the same thing Cynthia!   [End]
     
  • Re: Has anyone else experienced these side effects of having the Mirena? by happyfamily6  4 mon   603  Mirena IUD / Weight Los / Arthritis: / 4 / 5 / 6
     
    Strange - I’ve had the knuckle pain with some swelling. Only my left ring finger. It started long before removal and then improved after removal, but recently flared up again. Always that same knuckle. Just one. Weird :)   [End]
     
  • Re: Tips & help needed badly..Horrible Cystic Acne!! Mirena user for 6yr... by happyfamily6  4 mon   1,197  Mirena / Acne / Cyst
     
    Dear Megs, I’m so sorry to see another Mirena victim! Having the IUD removed is generally not a big issue. Acne/chin hair are classic hormone imbalance issues. It’s not surprising that you have both. Please, please get the IUD out ASAP and PLEASE PLEASE never have a new one put in. There are other women here who can add to this advice. I’ve got the flu right now, so I can’t say much more at this point. ... ... Keep posting, ... Take care, ... Diana   [End]
     
  • Re: Has anyone else experienced these side effects of having the Mirena? by happyfamily6  4 mon   840  Mirena IUD / Weight Los / Arthritis: / 4 / 5 / 6
     
    Your symptoms sound very Mirena-related. I did not experience the lumps, but did experience most of the others. Honestly, I would say that just about any strange, new health issue that shows up after having the IUD placed could be related to it. If you’re having more than one strange issue, then it’s even more likely. ... ... If you were someone I’d just met, and I learned you had the IUD and did NOT have any problems with it at all, I would still tell you my story and beg you to have it removed. It’s just not worth the gamble. I think every woman on this forum would agree. ... ... Keep posti ...   [retrieve this message]
     
  • Re: Mirena COMING OUT!! by happyfamily6  4 mon   610  Mirena / Wishful Th
     
    I’m cheering for you! So glad you’re having it out. I wish you the best and look forward to your future postings. ... ... :) ... Diana   [End]
     
  • Re: Here we go again! by happyfamily6  6 mon   561  Mirena
     
    It is so hard to start feeling worse after feeling better. And yet, I could have written your words. I’ve experienced such similar issues with a similar timeline (I’m 3 years post removal now), and I was still a mess at 4 months. I thought I was still dying, and I’m not sure I’d had any real improvement, even for a couple weeks, at that time. ... ... You’re on the right track - just hang there. The good times will come back! ... ... Take care, ... Diana   [End]
     
  • Re: Is this Mirena Coil??? by happyfamily6  6 mon   551  Mirena
     
    It’s so refreshing to hear about a Dr. who acknowledges the damage this device can cause! I am happy that you’ll be getting it out and wish you the best in your recovery. It might take time, but you will improve! ... ... Keep posting! ... ... Take care, ... Diana   [End]
     
  • Re: My Mirena story - lessons learned (experience with having Mirena for... by happyfamily6  6 mon   989  Mirena
     
    Thank you for sharing your story! I appreciate all the detail. I wish you continued success in your recovery :) ... ... Diana   [End]
     
  • Re: 10 days out, feel awful - any advice for naturopath visit? by happyfamily6  6 mon   600  Mirena
     
    I’m sorry I don’t have any specific advice, but I want you to know it will get better! Just grit your teeth and hang on. As your hormones start to rebalance, you’ll have good days (and maybe some bad ones), but it will get better overall. It doesn’t surprise me that you developed new symptoms AFTER removal - it happened to me too. But you’re on the right path now that it’s gone. Even though I would start to feel worse during my periods, I learned to welcome each cycle because I knew it was a chance for my body to rebalance. ... ... Eat well, drink a lot, sleep as well as you can, and just ...   [retrieve this message]
     
  • Re: Food allergy/ intolerance and Mirena by happyfamily6  6 mon   582  Mirena
     
    I didn’t really react to foods with the Mirena, but I did start reacting to metals for the first time in my life. I couldn’t wear earrings especially. It only started to improve once the IUD was out. Now I’m back to normal (3 years post-removal ;). ... ... Take care!   [End]
     
  • Re: 2 months post Mirena removal: chest pains, hip pain, and more. Anyon... by happyfamily6  7 mon   1,762  Mirena / Contracept / Gynecologi
     
    I’m sorry! I know that the doctors will swear until the end that the IUD can’t cause your issues, but trust your body and your instincts. I had my IUD out 3 years ago because I was having a whole range of frightening, bewildering symptoms (heart problems, joint pains, extreme fatigue, and some other neurological issues). AFTER I had it out, I developed problems with my blood vessels (similar to Raynaud’s) which was a brand new symptom, as well as lymph node pain in my armpits, just as you described it. I also had swollen glands in my neck. I also developed severe shakiness in my whol ...   [retrieve this message]
     
  • Re: Had Mirena removed yesterday! by happyfamily6  7 mon   797  Mirena
     
    I’m so glad you’ve had it removed, and that you’ve found this forum! I believe I’ve heard of sinus issues with the IUD, although I didn’t personally deal with it. But honestly, any kind of strange physical symptom associated with removal or occurring during obvious hormonal shifts (ie. period or ovulation) could be attributed to the IUD. The impact it can have on our bodies is huge. I developed some strange issues a month AFTER removal which I’d never had previously, and I realize it was due to the radical shifts in hormones taking place. ... ... How are you doing now? ... ... Keep posting! Tak ...   [retrieve this message]
     
  • Re: My mirena warning by happyfamily6  7 mon   933  Mirena
     
    A well-done, sincere video by a beautiful person! What a fantastic idea. ... ... :) ... Diana   [End]
     
  • Re: Detox Bath for Mirena HELL, Peroxide/Ginger/Epsom Salt by happyfamily6  7 mon   1,979  Mirena
     
    Thank you for that encouraging post! ... ... :) ... Diana   [End]
     
  • Re: Negative! :) by happyfamily6  8 mon   831  Mirena
     
    I’m relieved too :) Enjoy your day!   [End]
     
  • Re: I cant take it anymore!!!!! by happyfamily6  8 mon   1,118  Mirena / IUD Malfun / Contracept
     
    Cynthia, my Dr. said that ANAs can appear and disappear and appear again. A friend of mine with Hashimoto’s (autoimmune thyroiditis) says that hers come and go too. I wouldn’t worry too much about the ANAs coming and going. Just hang in there and remember you’re not alone - that many others take a longer time to recover. I pray that better times are ahead for you. Keep posting, because I often wonder about you and how you’re doing! ... ... :) ... Diana   [End]
     
  • Re: Thyroid tumor! by happyfamily6  8 mon   813  Mirena
     
    Most certainly :)   [End]
     
  • Re: CBS article - how sad by happyfamily6  8 mon   673  Mirena
     
    I just saw this too, Nile, and it made me feel sick. My Dr. even recommended the Mirena/rod implant, or at least the pill, for my very young teenage daughter to help control her irregular cycles. I don’t think so. ... ... :) ... Diana   [End]
     
  • Re: Thyroid tumor! by happyfamily6  8 mon   820  Mirena
     
    Except that if any of us have Hashimotos or thyroid issues due to autoimmunity (and this is a big issue with the Mirena reactions), iodine can aggravate our condition. Iodine is important, but I would only supplement with food sources (like kelp). Coconut oil is a good source too, I believe. I know of people who have messed up their health with iodine supplementation. Just something to be aware of when researching options.   [End]
     
  • Re: Thyroid tumor! by happyfamily6  8 mon   957  Mirena
     
    Oh Nile, I’m so anxious for you to get some answers. Definitely my positive thoughts and prayers will go to you. I know you’ll keep us updated. Hang in there. ... ... Love, ... Diana   [End]
     
  • Re: I cant take it anymore!!!!! by happyfamily6  8 mon   1,068  Mirena / IUD Malfun / Contracept
     
    You know Cynthia, even though I’m doing better in general, I’m having an awful month this month. It started with the herb supp I took with wild yam and vitex. I only took it for a couple days, and it’s made me feel all weird. I’m going to steer clear of anything that might affect my hormones specifically. I’m feeling achy, like I’m running a fever, strange chills on my scalp today (for the first time since my first year post), horrible restlessness at night, distorted vision, and very spacey. And this is usually the GOOD time of my cycle, after ovulation and not quite to my period yet ...   [retrieve this message]
     
  • Re: Mirena, autoimmune disease, & side effects by happyfamily6  8 mon   1,353  Mirena / Autoimmune
     
    I’m sorry for what you’re dealing with! Your story sounds much like mine. Very similar symptoms. I also dealt with Raynaud-type issues, as well as erythromelalgia. It severely affected my lifestyle for a 1 1/2 years after removal, and now has gone away. I would spend hours every day with my feet elevated, with a fan blowing on them, to ease the heat flare-ups. Then it would push my feet back into chill mode, and they would turn pale again. My hands were also bothered, but my feet were the worst. My Dr. attributed it to autoimmune illness because I had ANA’s, but nothing specific en ...   [retrieve this message]
     
  • Re: I cant take it anymore!!!!! by happyfamily6  8 mon   1,051  Mirena / IUD Malfun / Contracept
     
    Nile, I’m excited that you’re running! Like you, I notice that I feel worse if I back off. I just run 2-3 miles at a time, 3 times a week, and that seems to be a good balance. My shins bother me if I increase my distance or frequency. ... ... Cynthia, Oh, I feel for you! I was also wondering if you’d weaned yet. If so, that would explain it. If not (and trust me, I encourage long nursing with little ones), then maybe she’s decreasing her frequency or amount of milk. Maybe this is causing your hormones to shift. ... ... Here is something interesting to me: I started taking an herbal suppl ...   [retrieve this message]
     
  • Re: Time for another dr. visit.... by happyfamily6  8 mon   1,038  Mirena / IUD Malfun
     
    Life has been crazy since school started - haven’t been able to get on here to post often, but I keep reading :) ... ... ... ... The restless leg thing has been a huge issue for me since the IUD was removed (3 years this November). There have been times over the last 3 years when it would disappear for up to a couple months, and then come back and plague me daily for a couple months! For the last 6 months or so, it has been off and on throughout the month. I can count on it either starting or stopping when I ovulate or start or stop my period. I can’t find a definite pattern. But when my hormo ...   [retrieve this message]
     
  • Re: mirena and headaches by happyfamily6  8 mon   1,124  Mirena / IUD Malfun / Birth Cont / 4
     
    Headaches and fuzzy brain feeling were a definite Mirena issue for me. Actually, they are a hormonal problem for me. The Mirena didn’t help, and it brought on far more serious problems than the headaches. It can’t do you any good! I suggest you have it out ASAP!!! ... ... Keep us updated, ... Diana   [End]
     
  • Re: Getting periods back to normal? by happyfamily6  9 mon   698  Mirena
     
    Personally, I wouldn’t be worried. I had my first period post removal about a month later. It kind of depends on where you were in your body’s cycle when it was removed (and it can be hard to really know the answer to that). Your hormones have been a mixture of synthetic and natural since having the IUD placed, and now your body needs to adjust. Anything could happen, so I would just relax and take notes on a calendar when you start. Hopefully a pattern will emerge sooner than later so you can predict things. Your body is programmed to regulate its cycles, but the IUD messed with tha ...   [retrieve this message]
     
  • Re: 2 weeks post Mirena Removal by happyfamily6  9 mon   1,568  Mirena / Birth Cont
     
    It’s so hard when you’ve had the IUD out and feel better and then feel bad again. It’s a roller coaster, and it can happen again and again. I don’t mean to be negative, but try not to let it freak you out when you feel better and then slide back. It’s worse for some women than others, but it’s typical. It’s easy to start thinking that maybe it wasn’t the Mirena after all, but it’s not true. It’s just that the Mirena can throw other body systems out of whack, and for some reason our hormones are intricately involved, so we end up on the roller coaster. Like you, I’ve sworn off ALL hor ...   [retrieve this message]
     
  • Re: mirena anxiety it gets better by happyfamily6  9 mon   961  Mirena / Bad Doctor / Pharmaceut / 4
     
    Wow - your story made me cry. It makes me happy to hear how far you’ve come. What sweet children you have to help take care of you! Mine also had to step up and help keep the household running while was in bed much of the day for almost a year, feeling like I was dying. ... ... Thank you for sharing your story - keep feeling better! ... ... :) ... Diana   [End]
     
  • Re: long recovery, "insult" to body, food reactions by happyfamily6  9 mon   1,195  Mirena / Allergies
     
    We could call ourselves ”Super Survivors.” ... ... ;) ... Diana   [End]
     
  • Re: Mirena hair loss after 18 months? by happyfamily6  9 mon   2,022  Mirena / Hair Loss
     
    Sadly, my hair loss has continued post-removal, but I think it’s just my hormone imbalance, caused by the IUD as well as many years of the pill. It’s doesn’t come out quickly in handfuls or anything - just slow, steady shedding. It was doing better for awhile but is starting up again. ... ... I’ve got to get my little ones into bed right now, so I don’t have time to get into my long, sad Mirena story (there are many long, sad Mirena stories here!), but you can click on my user name (and anyone else’s) to read all my past posts. I have quite a few, but you can go to my earlier ones if you’d l ...   [retrieve this message]
     
  • Re: Four and a half months post by happyfamily6  10 mon   763  Mirena
     
    My dizziness is always worse during my period, and I’m almost 3 years post. I don’t know why either, but it’s pretty predictable. In fact, it starts about a day before the period actually starts. While I had the IUD in, and for about a year after removal dizziness and vertigo happened all throughout the month. The vertigo is gone now, but the dizziness creeps back during my period. It comes with a tingling/buzzing feeling in my head often as well. It’s quite lovely. ... ... :) ... Diana   [End]
     
  • Re: Mirena hair loss after 18 months? by happyfamily6  10 mon   1,943  Mirena / Hair Loss
     
    Yes, the Mirena caused me to start shedding hair after about a year of having it in. It’s a pretty universal problem, I would say. Please have the IUD removed! Hair loss has been frustrating for me but not nearly as scary as the other problems I’ve developed from the IUD. ... ... Keep us updated! ... ... :) ... Diana   [End]
     
  • Re: TSH level by happyfamily6  10 mon   564  Mirena
     
    Liz, that’s great to know. I live in central Utah (moved here from San Diego a few years ago), so I definitely should increase my dosage. Especially in the winter, I don’t get out at all. ... ... So - just to make sure I understand you: you take 2,000 daily and then 4,000 a few times a week? I’d love to get my levels up to the 40s too. ... ... I’ve considered using a light box this winter that offers some exposure to UV. Do you know anything about those? ... ... :) ... Diana   [End]
     
  • Re: Hair loss round 2 by happyfamily6  10 mon   681  Mirena
     
    That’s a great link. ... ... I started taking Loestrin when I was 22 and stayed on it until I had the Mirena placed at 36. (Well, I came off the pill when I had my 4 children obviously, but then went back on it because it was the only pill that didn’t make me extremely nauseated.) ... ... I didn’t know it was a high-androgen pill. This must be why my hair doesn’t shed as badly with the special shampoo/hair treatments (Bosley/Nioxin). These are geared for androgen-related hair loss. ... ... I’d begun to wean off the shampoos last month because the shedding was improving. As of this week, I’m losi ...   [retrieve this message]
     
  • Re: hives by happyfamily6  10 mon   1,161  Mirena
     
    Glad to hear that it’s coming out :) That makes my day! ... ... Keep us updated on your RECOVERY - it’s wonderful that you’re on your way to healing. ... ... Diana   [End]
     
  • Re: hives by happyfamily6  10 mon   1,132  Mirena
     
    I’ve wondering about you and your daughter! I’m so happy to hear that she is recovering. Your daughter’s case has been more extreme than others perhaps, but it gives us all validation. If she was healthy before the IUD, and then ended up in her condition, and is improving now, that says something undeniable. ... ... Take care!!! ... Diana   [End]
     
  • Re: How long to let Diatomaceous Earth settle before drinking? by happyfamily6  10 mon   1,634  The Truth in Medicin
     
    Thank you for that clear summary! I’ve decided to get my DE out and start up a jug. ... ... :) ... Diana   [End]
     
  • Re: hives by happyfamily6  10 mon   1,287  Mirena
     
    There are many urticarias, and they are related to dysfunction of the immune system. I had exercise urticaria (mild) for a little while last year but it went away after a couple months. I do know, by experience and from what I’ve learned on this forum, that the Mirena can mess with the immune system big time. We’ve all had our health ruined by the Mirena, and allergic reactions are just one of the many issues women have developed. I would suggest you have it out ASAP. Many of us had odd symptoms that came on gradually with the IUD, which we did not link to the IUD at first. For me, t ...   [retrieve this message]
     
  • Re: TSH level by happyfamily6  10 mon   686  Mirena
     
    50 - that’s what I remember being optimal too. Do you supplement with 2,000 IUs every day, year round? I started at 32, and now am at 35, so I have room to increase. I’d stopped at summer since I was getting more sun, but maybe I should keep up on it. I just didn’t want to overdo it. ... ... :) ... Diana   [End]
     
  • Re: Any suggestions please. by happyfamily6  10 mon   707  Mirena
     
    For me, it started one month after removal and lasted for a good year and a half. I was having these flushing episodes daily, sometimes many times a day, accompanied sometimes by nerve pain. They were sometimes unbearable. I could only relieve it by elevating my feet and blowing a fan on them while misting them. I still remember watching my 3 year old daughter playing with her dollhouse and keeping the mommy doll in her bed all day with her feet under a pillow, because that was all she could remember me doing! I was in bed most of the time for a year. It wasn’t just because of the fl ...   [retrieve this message]
     
  • Re: TSH level by happyfamily6  10 mon   584  Mirena
     
    Mirena Diabolicalitis. There, we’ve identified it and named it!   [End]
     
  • Re: Any suggestions please. by happyfamily6  10 mon   762  Mirena
     
    This has happened to me too :) I learned recently that there is an edit feature on each post up at the top. You can edit your message or cut out duplicate info if you want. I think that only a moderator can delete a message. The Edit option doesn’t last forever, but it works for awhile (at least a day) when you’re likely to want to edit. ... ... Take care! ... Diana   [End]
     
  • Re: Anyone else having ligament issues with mirena in? by happyfamily6  10 mon   1,192  Mirena / Birth Cont / Ehlers-Dan / 4 / 5 / 6
     
    Dear Emily, I’m so sorry about your battle! I am 100% sure that the IUD has upset your health. Please have it removed. I didn’t read ONE thing in your post that did NOT sound like an IUD reaction. I had horrible tendonitis issues with the IUD in. They improved almost immediately after removal. Of course, that was just one of my many issues that have needed time to resolve! ... ... Keep posting and hang in there! ... ... :) ... Diana   [End]
     
  • Re: Any suggestions please. by happyfamily6  10 mon   817  Mirena
     
    You’re at a rough stage of recovery, I think. I remember being in my first year and feeling somewhat better than I had around removal of the IUD, but still pretty lousy. It’s so hard for this to drag out when you’re not used to chronic illness. Before the IUD, I’d never had anything worse than bad colds and morning sickness (which was bad, but not anxiety-causing!). There are so many symptoms I’ve had (and some still lingering) that are so bizarre - like the ”hot legs” you mentioned. These are symptoms that don’t seem to be specific enough to give a good diagnosis, that make the Drs. ...   [retrieve this message]
     
  • Re: TSH level by happyfamily6  10 mon   617  Mirena
     
    Hi! Thanks for your kind words and support :) I agree with the trip to Egypt thing. In my case, I don’t want to travel, I just want to do some home improvement and serious landscaping. A new refrigerator, car... Goodness, with 4 kids, it costs enough to keep everyone going anyway. ... ... He didn’t say anything about my nails and hair loss. I did bring them up specifically, but he just didn’t know what to say. He said that if I wanted to throw enough money into it, he could recommend more tests and specialists to see so I could track my remaining symptoms down. So, I guess I’m still on ...   [retrieve this message]
     
  • Re: Hair Loss AFTER Removal??? Please help! by happyfamily6  10 mon   670  Mirena
     
    I’m going there today - Thanks!   [End]
     
  • Re: Hair Loss AFTER Removal??? Please help! by happyfamily6  10 mon   732  Mirena
     
    Hair loss has been a sad issue for me. I’ve used Bosley/Nioxin hair products to help slow the loss, and these work as long as I keep using them. I’ve been weaning off the shampoos a bit lately, and my hair loss increased but then slowed down again. Maybe it’s leveling off at last. I don’t feel like I’m losing as much now, but I don’t feel like I’m growing/replacing any either. I’m using the hair products in hope that it will buy me some time (help me keep some of my hair) until my hormones start behaving themselves. ... ... Godismyrefuge, any particular hair,nails,skin supp you would rec ...   [retrieve this message]
     
  • Re: My Mirena experience by happyfamily6  10 mon   1,289  Mirena / Birth Cont / Gynecologi
     
    My joint pain improved after removal too, especially in my finger joints where I had a couple sore, swollen ones. My joint pain wasn’t terrible - I had more problems with tendonitis in my wrist. But this was 90% better within a month after removal, and it had been going on for a couple years before that while the IUD was in (not even improving with a cortisone shot). It would flare up from time to time in the year AFTER removal, but only for a few days or so. I used a Bone and Joint herbal formula with a lot of anti-inflammatory herbs, and this helped things settle down. I have no iss ...   [retrieve this message]
     
  • Re: TSH level by happyfamily6  10 mon   745  Mirena
     
    To Melanderso (and others who are interested!), ... My TSH has gone up slightly to 1.01. This is what it was when I first started reacting to the IUD in 2009, and then it went down below 1 for awhile. My Dr. says this isn’t a huge increase and that our TSH levels vary during the day anyway, so it doesn’t tell me much. ... ... Take care!   [End]
     
  • update - new labs by happyfamily6  10 mon   985  Mirena
     
    Hello friends, ... I had a ton of bloodwork and labs done recently (the bill hasn’t come yet but it will be huge). Just got the results from my Dr. a few minutes ago. ... ... Everything looks normal. Even my ANA is gone - it says ”None Detected.” My Dr. said it might show up now and then, but for now it’s gone - yahoo! I still don’t feel normal - still have neurological issues - some dizziness, definite shakiness/tremors that are always worse around my cycle, pretty severe restless legs/body especially around period and ovulation, thin hair, brittle ridge in my nails that like to split vertica ...   [retrieve this message]
     
  • Re: Mirena the device from He** by happyfamily6  10 mon   696  Mirena
     
    I completely agree - it sounds like you have adrenal issues. I came to the same conclusion with myself early in my recovery. I started taking Adrenal Tonic by Mountain Mist Botanicals a couple years ago and am still taking a maintenance dose. It helped me more than any other supplement I tried. I very rarely get sick now. I highly recommend it if you want to use adaptogenic herbs. It has a great combination of herbs as well as sources of B and C vitamins, which the adrenals need. ... ... Hang in there! Keep taking care of yourself. You will get better. ... ... :) ... Diana   [End]
     
  • Re: Should I have a Mirena fitted? by happyfamily6  11 mon   692  Mirena
     
    I don’t think anyone here will advise to have the IUD placed. :) ... ... There are many women who seem to do fine with it, at least initially. But it can completely overthrow your health, and it’s just not worth the gamble. I would NEVER, NEVER do it if I could go back in time. ... ... I have sympathy for your bleeding issues. I pray you can find another solution. ... ... If you decide not to do the IUD, and let us know, I guarantee there will many women cheering for you!!! ... ... Best wishes, ... Diana   [End]
     
  • Re: update by happyfamily6  11 mon   550  Mirena
     
    Hi Cynthia, ... I’m glad your Dr. doesn’t think you have lupus! I’m sorry you still don’t have an answer. Keep hanging in there. You might need more time than I have because your hormones are in a different state after having a baby. ... ... I agree that just walking is a great thing for you. Just be sure to start out slow and build up very slowly and gradually as you’re able to. I started in December when it was colder because heat intolerance has been such a struggle for me. I can tell that the heat doesn’t bother me now as much as it used to, even though it’s very hot. I am building up ...   [retrieve this message]
     
  • Re: update by happyfamily6  11 mon   581  Mirena
     
    Hi! I had the Mirena placed October 2007. It was removed November 2009 (after about 2 years in). So my 5 year date would be this fall, I guess. Interesting. ... ... I started running by only going around my block, mostly walking with a bit of jogging. I would come home feeling dizzy and spacey (at least more so than I had before I left). I didn’t feel like it was helping me really, but a voice inside me has been telling me to do this. So I just kept doing it, 2-3 times a week, increasing as I was able to. Sometimes I would go out feeling lousy with my symptoms and come back feeling no b ...   [retrieve this message]
     
  • update by happyfamily6  11 mon   751  Mirena
     
    I just finished a good month and half of feeling quite good! At 2 1/2 years post, it’s been my longest, strongest stretch of time yet. I’ve been running about 15 miles per week (about 3 miles at a time), and it has seemed to help more than anything. I’ve been working up to this level of exercise for the last 5 months, very slowly but surely. I felt 70-90% normal most days. I didn’t feel very bad when my period came in there somewhere during that time. ... ... However, right now I’m ovulating, and I’m being hit with the worst restless leg/body problems ever. Also feeling a bit shakier than ...   [retrieve this message]
     
  • Re: How to contact Hv by happyfamily6  11 mon   1,155  The Truth in Medicin
     
    Running right now... ... ... Thanks much! ... Diana   [End]
     
  • Re: About Hv by happyfamily6  11 mon   1,750  The Truth in Medicin
     
    Hey Marci, ... Now that I’m getting over wanting to cry, I’m trying to do as you said in saving the forum. Will I still be able to access the files from over the years even if it’s deleted on CZ? I’m not very computer savvy. Like you, I was cutting and pasting individual posts that were relevant to me, but then I got lazy. I fear that saving it the way I am is just a way of bookmarking it, which won’t help if the info is gone later. ... ... The only reason I ever came to CZ was for this forum and the Mirena Support. It just stinks, ya know? ... ... Diana   [End]
     
  • Re: Nausea 7 months after removal? by happyfamily6  11 mon   947  Mirena / IUD Malfun
     
    Have you been tested for h.pylori? This can cause gastritis. The breath test is the most accurate. Mastic gum is effective against gastritis, if you want to avoid antibiotics. My daughter (13yo with stomach issues) takes mastic and finds it helps. ... ... I had recurrent strep infections around the time I started reacting to the IUD. I had repeated antibiotics (which I avoid like the plague now), and I wonder if these infections were the final straw for my immune system. Soon after that I started having my neurological symptoms. I use pau d’arco tea now for myself and kids when we have ...   [retrieve this message]
     
  • Re: Its been a while by happyfamily6  11 mon   417  Mirena
     
    I’m sorry you’re still struggling! It’s so hard. How long post-removal are you? How did they determine that your thyroid was ”fast”? Many of us have wacky thyroid issues too. Please let us know your appts. go with the specialists. ... ... Hang in there! ... ... :) ... Diana   [End]
     
  • Re: Change.org petition - sign it and make Bayer start putting REAL side... by happyfamily6  11 mon   825  Mirena / Birth Cont
     
    Me too :)   [End]
     
  • Re: Thyme May Be Better for Acne Than Prescription Creams by happyfamily6  11 mon   827  The Truth in Medicin
     
    Great! I’m going to try it. I’ll try coconut oil first, since I have that on hand. The tea tree doesn’t help their acne much, so we’ll give the thyme a go. ... ... Thanks again ... Diana   [End]
     
  • Re: Thyme May Be Better for Acne Than Prescription Creams by happyfamily6  11 mon   886  The Truth in Medicin
     
    How about thyme essential oil?   [End]
     
  • Re: Ozone Application by happyfamily6  11 mon   448  The Truth in Medicin
     
    Interesting. A clean pillowcase at night would probably help too then. I have 2 teens, so this is good to know. ... ... :) ... Diana   [End]
     
  • Re: Mirena has destroyed my body.... I want ME back by happyfamily6  11 mon   1,593  Mirena / Hyperthyro / Birth Cont
     
    My heart just kind of aches when I check this forum and see a new name with a post! I’m so sorry! Your story sounds classic. We all have a bewildering array of symptoms, usually not all of the time all at the same time, and some that come and go, and some that appear for the first time later in our recovery. Bizarre and frustrating. I second every word spoken by Godismyrefuge. This forum has been my sanity. I read heavily and daily for 3 months before I first started posted. I would laugh with disbelief and cry. ... ... You’re on the road to recovery, and don’t be freaked out if you s ...   [retrieve this message]
     
  • Re: If you spent more time helping people than attacking others...... by happyfamily6  11 mon   544  The Truth in Medicin
     
    Nicely put LongNhi :)   [End]
     
  • Re: for happyfamily by happyfamily6  11 mon   451  Mirena
     
    Oh, thank you for saying that! Your words have made my day. I feel the same way about so many others on this forum. We all need each other. Sisters look out for each other. God bless you too :) ... ... Love, ... Diana   [End]
     
  • Re: positive ANA again after 2 years. by happyfamily6  11 mon   918  Mirena
     
    I’m so sorry, Cynthia. I wish I knew more about the blood results. I am curious about some of them that you mentioned and am going to research a bit. Yes, your ANA is high, which is signaling autoimmune, but I can’t remember exactly what it all means. I guess you’re playing the waiting game again until you can talk to your rheum. Only now you’re scared because you have a little more info about your blood results. A little knowledge can be a dangerous thing. But you’ll get through this. If it’s lupus, I know several people with lupus who all lead pretty normal lives once they get on ...   [retrieve this message]
     
  • Yes, that does help! Thanks :) N/M by happyfamily6  11 mon   230  The Truth in Medicin
     
  • Re: Environmental effects on insomnia by happyfamily6  11 mon   246  The Truth in Medicin
     
    James, by any chance, do you have a you-tube video showing how to do this? What the parts look like, etc. Don’t get me wrong - your explanation is quite clear. But sometimes a picture is worth 1000 words for us visual learners ;)   [End]
     
  • Re: positive ANA again after 2 years. by happyfamily6  11 mon   1,043  Mirena
     
    My ANA was positive in Nov. 2009 and 2010. My Dr. didn’t have me tested last Nov., but I’m going to have some more work done soon, mostly to check my thyroid. I’m not sure I’ll have the ANA checked again because it’s probably still positive, and the test was part of a whole arthritis panel that was very expensive. Maybe I should though. Still deciding. ... ... What a pain to have to wait! ANAs are just autoimmune antibodies. Probably created because we had a foreign object in us. So, has your titer changed at all? Is there a pattern mentioned for the ANA? Was there anything else abnor ...   [retrieve this message]
     
  • Great info - thanks so very much! N/M by happyfamily6  12 mon   267  The Truth in Medicin
     
  • loss of taste by happyfamily6  12 mon   307  The Truth in Medicin
     
    Hi James, ... My mother has some strange things going on with her. Here’s some background info that may or may not be relevant: ... ... Several months ago, she stopped taking Dilantin (for hormone-related seizures that she doesn’t have anymore since she in menopause) but had been on it for a 2 decades up to that point. ... ... She recently had a hysterectomy. ... ... She has been under a huge amount of stress since retirement last summer, move to a new state, and building a new home (which has been fraught with problems). ... ... Starting a couple years ago, she began having some numbness/tingling in parts ...   [retrieve this message]
     
  • Re: Hate this by happyfamily6  12 mon   460  Mirena
     
    We all understand, sweetie :)   [End]
     
  • Re: Bumpy nails Mirena side effect? by happyfamily6  12 mon   2,251  Mirena
     
    I still wonder, Cynthia, if your nursing is holding your recovery back a bit, just because of the hormone levels. That said, I encourage the nursing (I nursed all of my children for a long time), but maybe just realize that your timetable for recovery is taking longer because of that. And when you do finally wean, you might see some changes. I don’t know. I only say that because I can tell that my hormones are still doing strange things. ... ... So yes, I feel like I’m improving, although the remaining symptoms still plague me and can be miserable (some muscle weakness, tremors, twitching ...   [retrieve this message]
     
  • Re: Hate this by happyfamily6  12 mon   563  Mirena
     
    I know - it’s so hard. Sliding back after feeling better is emotionally and mentally defeating. Not too fun physically either. And it seems to happen to just about everybody. Even after the IUD is gone. It has a way of spawning fears and anxiety like nothing else. For some reason, when I’m struggling after a period of feeling better, I get stuck thinking that I’ll never go back to feeling better again - that I’ll just keep going downhill until I die early. But good days do come back, although it’s hard not knowing how long it will take. ... ... Hang in there!!!! ... ... Love, ... Diana   [retrieve this message]
     
  • Re: Bumpy nails Mirena side effect? by happyfamily6  12 mon   2,326  Mirena
     
    Thank you!!!!! Same to you :)   [End]
     
  • Re: OB thinks is's autoimmue, not hormones by happyfamily6  12 mon   991  Mirena / Autoimmune / Lupus
     
    I’m excited that you’re having all these tests, Cynthia! I pray they will bring you an answer or peace of mind. I’m saving up to go in and have some more labs done too. ... ... :) ... Diana   [End]
     
  • Re: Bumpy nails Mirena side effect? by happyfamily6  12 mon   2,301  Mirena
     
    My nails are somewhat better. Now I just have vertical ridges that like to split. They aren’t distorted anymore. ... ... I am doing better lately. I after a difficult fall and winter (about 6 bad months in a row), I have had 2 better months. I wonder if it’s because I’m out in the sun more. I’ve increased my exercise level too (jogging, bike-riding), and this seems to help. I am not symptom free though. I still struggle with general shakiness and tremors. My hands especially are still shaky, and I can see the ”fluttering” in my fingers when I use them. I have a strange weakness in my h ...   [retrieve this message]
     
  • Re: Bumpy nails Mirena side effect? by happyfamily6  12 mon   2,665  Mirena
     
    Cynthia, yes my nails are rather a mess now since I became ill. I didn’t notice anything during my first 2 years while I had the IUD in and was not reacting to it. ... ... Tell me more about your nails - the bumps you see. ... ... I have vertical ridges that have formed on my nails that split easily. I have to keep my nails pretty short. Last year I had a horizontal ”ditch” (Beau’s lines) in my nails that gave them a distorted appearance for most of the year. That is better now, and I think it was related to a week of severe fever that I’d had (no other symptoms - no sign of infection). The ...   [retrieve this message]
     
  • Re: Abnormal Pap Smear by happyfamily6  12 mon   1,232  Mirena
     
    Wow - this is good info for every woman to have. ... ... Great to see you on this forum again Hv! ... ... Diana ...   [End]
     
  • Re: OB thinks is's autoimmue, not hormones by happyfamily6  12 mon   1,080  Mirena / Autoimmune / Lupus
     
    I’m thinking maybe I should redo those tests too. ... ... And I’m not I agree either with the idea that having periods means your hormones are balanced. I’m sure it’s true on a base level, but I think hormones are far more complicated than that. ... ... :) ... Diana   [End]
     
  • Re: either preg while on mirena or it fell out by happyfamily6  12 mon   661  Mirena
     
    Just please, please, please don’t have another Mirena placed in the future :) ... ... ... Take care! ... Diana   [End]
     
  • Thank you :) N/M by happyfamily6  12 mon   359  The Truth in Medicin
     
  • Great! Thanks James N/M by happyfamily6  12 mon   713  The Truth in Medicin
     
  • Re: Ovarian Cysts?? by happyfamily6  12 mon   520  Mirena
     
    Melanderso, did you have your CRP and sed rate tested in your blood work? Since these are indicators of inflammation in the body, and you have so much inflammation, I was just wondering. My results were normal even though I don’t feel normal. ... ... :) ... Diana   [End]
     
  • mastic gum/resins/kidney issues - quick question by happyfamily6  12 mon   882  The Truth in Medicin
     
    Hi James, ... My daughter with the frequent nausea and GI problems has found that the mastic gum you suggested helps. It hasn’t stopped it, but cuts it down considerably. She took mastic 2-3 times/day for a couple months and then stopped, since resins are hard on kidneys. ... ... However, her symptoms have crept back. So she is taking mastic once per day and finds it helps enough. I would call this a maintenance dose, I guess. ... ... Will this still be hard on her kidneys - one capsule per day? She is 12 (about 115 lb). Can she continue this indefinitely or until her issues resolve? ... ... Than ...   [retrieve this message]
     
  • Re: It's out, still suffering by happyfamily6  12 mon   835  Mirena
     
    I have frequently had symptoms of blood sugar problems - classic symptoms, but my levels are always normal. This is the curse! I have clear symptoms of thyroid problems, but my levels are normal (although my TSH is at the very bottom of the normal range). It’s amazing how normal we can be when we’re feeling anything but normal. ... ... I wish you luck in talking to your doctor! I’m curious to see how it goes. ... ... Keep taking care of yourself. It’s true that dealing with these IUD reactions brings a level of uncertainty in our lives. For a couple years, I couldn’t make any commitments b ...   [retrieve this message]
     
  • Re: Another Mirena victim by happyfamily6  12 mon   808  Mirena
     
    Welcome to the forum! It’s always eerie to read someone else’s experience when it’s so similar to mine. I can say that my skin was somewhat better at about 6 months post. By 1 1/2 years post, it was awesome. I’ve had adult acne my whole life, and it is clear for the first time ever now that I’m off of the pill and the IUD. Sadly, I have many other neurological issues and problems that have resulted (I’ve been tested for the same things you mentioned), but my skin is great! My hair doesn’t fall out as much as it used to, but that only improved after using the Bosley Revive products on ...   [retrieve this message]
     
  • Re: It's out, still suffering   R by happyfamily6  12 mon   940  Mirena
     
    I’m so sorry about your experience. We’ve all had horrible reactions, and there are so many women on this forum who can identify with your fear and suffering. There are some women who have had almost instant reactions, like yours. It took me a couple years to start reacting. I’m so glad you’ve had it out! That is the first step to recovery, and you are on the right path. It can only get better, but it can be a roller coaster ride. I’ve often felt that it was 2 steps forward, 1 step back for me. ... ... It is normal to still feel symptoms, even though it’s out. This can be frightening, ...   [retrieve this message]
     
  • Re: Hveragerthi!!! anti-fungal eye wash by happyfamily6  12 mon   450  The Truth in Medicin
     
    I found the thread I was thinking about that talks about eye infections: ... ... http://curezone.com/forums/am.asp?i=1703744   [End]
     
  • Re: Hveragerthi!!! anti-fungal eye wash by happyfamily6  12 mon   366  The Truth in Medicin
     
    I can only speak for myself, but James has given me so much free advice that’s helped me, I think he deserves any buck he makes. There’s a wealth of information on this forum, free for the reading. I think he has to have a life (and make a living) beyond spending hours giving free advice. ... ... Just my thoughts :)   [End]
     
  • Re: Hveragerthi!!! anti-fungal eye wash by happyfamily6  12 mon   370  The Truth in Medicin
     
    It seems to me that I’ve heard it suggested to wash the eye with cooled pau d’arco tea that’s been boiled for 20 minutes previously. I’ve never tried it. Maybe search on this forum under eye infection or pink eye and see if some advice is there. It might work for fungi too (?). ... ... Diana ... ...   [End]
     
  • Re: Are you guys symptom free when u have "Good Day"? by happyfamily6  13 mon   560  Mirena
     
    I don’t think I’ve ever had a totally symptom free day. I’ve had days (not in a long time sadly) when my head hasn’t been as dizzy, buzzing, or foggy, with no pains, aches, or malaise. But there is usually still something there still that’s not right: some shakiness, muscle weakness maybe. But on my best days, even these have been slight enough that I don’t notice them. Some days I have energy and stamina, but the muscle tremors and whole-body shakiness are worse. Some days I feel achy like I have the flu. Some days I have sharp, needle pains in my toes or am exhausted. I never hav ...   [retrieve this message]
     
  • Re: Anyone have this symptom? by happyfamily6  13 mon   689  Mirena
     
    I have had pain in that navel area before, but it didn’t last quite as long as it has for you. But I have a pain that comes and goes in my liver area that sometimes radiates to my ovary. Sometimes I feel it in my right kidney area in my back. It’s always the same pain, and sometimes I can feel it in all 3 places simultaneously. Sometimes it’s more of an ache, sometimes a burning. I’ve had it since removal in Nov. 2009. My Dr. can’t figure out what it is, but last time suggested that it might be endometriosis. I’ve noticed that it often coincides with my cycle, or the week before. S ...   [retrieve this message]
     
  • Air Hunger by happyfamily6  13 mon   698  Mirena
     
    I’m researching this problem. I found this site: ... ... http://airhunger.co.uk/ ... ... It has some info and forum comments that were helpful. I’m going to increase my magnesium dosage. ... ... :) ... Diana   [End]
     
  • Great to hear from you - thanks! N/M by happyfamily6  13 mon   473  The Truth in Medicin
     
  • Re: Mirena is not always bad by happyfamily6  13 mon   572  Mirena
     
    Well put ladies!   [End]
     
  • Re: So frustrated...... by happyfamily6  13 mon   689  Mirena / IUD Malfun
     
    Hi Kristi, ... How is your air hunger symptom doing? After explaining that my breathing problem is different (and it was at first), now I have to eat my words and say that I’m having the classic problem you describe. I just can’t get a full, satisfying breath in. I do the deep breathing, the huffing, and get a bit dizzy, but still feel like I’m not getting enough air. I haven’t had this for a long time. Strangely enough, the ”forgetting to breathe” is not quite as bad, although it happens a few times during the night, but the air hunger, has taken it’s place. I’m not sleeping. I have a ...   [retrieve this message]
     
  • Re: OMG,thank God I got it out tonight. by happyfamily6  13 mon   580  Mirena
     
    I have a big smile on my face! I’m so happy for you :) Please keep us updated on your recovery. Good for you!!! ... ... :) ... Diana   [End]
     
  • Re: So frustrated...... by happyfamily6  13 mon   680  Mirena / IUD Malfun
     
    Sure, here’s the link. It’s about one inch below this post of mine (on my screen). I haven’t read it in detail - just skimmed it. I’ll try to find the post by the woman whose Dr. told her she was allergic to her own progesterone. ... ... :) ... Diana ... ... http://curezone.com/forums/fm.asp?i=1928748#i   [End]
     
  • Re: So frustrated...... by happyfamily6  13 mon   716  Mirena / IUD Malfun
     
    Yes Kristi, I think we’ve both been at this long enough :) Thank you for your prayers and caring. It really means a lot to me. Caring is so powerful. ... ... I’ll be getting on FB soon! ... ... I very rarely have the air hunger as you describe it, but I have had it before, although it was not with the Mirena. Maybe during pregnancy, I think. I know how it feels. In fact, my teenage kids (a boy and a girl) have had it before, so I’m wondering if it’s just a puberty/hormone thing (?) ... ... My air problem lately and usually is with the forgetting to breathe just as I’m falling asleep. I breathe ...   [retrieve this message]
     
  • Re: So frustrated...... by happyfamily6  13 mon   829  Mirena / IUD Malfun
     
    I noticed you hadn’t posted in awhile, and I was actually wondering about you recently. I’m sorry you’re struggling again! I’m sure you’ve read my recent ”complaining” posts since I’m relasping again. I’ve been in a 5 month crash, I feel. I haven’t had a good month in a long time. Hang in there! ... ... Love, ... Diana   [End]
     
  • Re: 2 unrelated questions (vagus nerve and Adrenal Tonic) by happyfamily6  13 mon   560  The Truth in Medicin
     
    I’m reading through posts on James’s MMB message board, and I found the answer to my question about the Adrenal tonic formula. ... ... :) ... Diana   [End]
     
  • Re: been looking for answers by happyfamily6  13 mon   518  Mirena
     
    I can’t tell you how many times I’ve been with someone like that, feeling like I was going to pass out or explode - sometimes struggling to even focus on their face - but hiding it all the time! It happened yesterday in fact. ... ... :) ... Diana   [End]
     
  • Re: been looking for answers by happyfamily6  13 mon   521  Mirena
     
    You’re a sweetheart :) Thank you, and it does help to be reminded that I’m not alone. I pray that you will start to recover soon too! ... ... Love, ... Diana   [End]
     
  • Re: hormone test after prog. cream by happyfamily6  13 mon   397  Mirena
     
    My GP said I could have my hormones tested (I asked him about it), and he said I could, but he didn’t have much faith in the accuracy of the results. He said they’re constantly fluctuating, and what’s normal for one might be off for another. So, I’ve put off having them tested, although I sometimes get desperate and consider it again! I just know that at 2 1/2 years post, I’m still adjusting. My cycles vary quite a bit in length and ”style.” But I’m afraid to use anything synthetic or even bio-identical to supplement. ... ... :) ... Diana   [End]
     
  • Re: Looking for a good introductory book to herbal medicine.. by happyfamily6  13 mon   453  The Truth in Medicin
     
    On the main page of his website, James has some recommendations: ... ... http://www.mountainmistbotanicals.com/ ... ...   [End]
     
  • Re: been looking for answers by happyfamily6  13 mon   548  Mirena
     
    What bugs me is that I’ve started up with these symptoms again after not having them for a year. But something is brewing with my hormones, because all of my symptoms are off the charts this month. Last night I was up until almost 3am with the whole ”forgetting to breathe” thing. It’s been happening quite a bit this month. I am easily chilled and overheated. Anxiety is bothering me, which is never been much of a problem. It’s like my autonomic system is going haywire. I also have tremors, twitching, and a tight headache. It’s hard to focus. ... ... Just needed to vent a bit there. I’ ...   [retrieve this message]
     
  • Re: One year anniversary by happyfamily6  13 mon   448  Mirena
     
    One year! That’s a wonderful milestone, and I’m delighted that you’re doing so well. ... ... :) ... Diana   [End]
     
  • Re: my IUD story by happyfamily6  13 mon   407  Mirena
     
    Thank you for posting your story! We are all benefited by each others’ experiences. I’m so sorry for what you’ve been through. It sounds like you still have the IUD (?) - if so, please have it removed ASAP. GI problems and pain are classic issues for Mirena victims. ... ... Please keep us updated! Wishing you better days ahead... ... ... :) ... Diana   [End]
     
  • Re: My 2 yr Mirena Nightmare!! by happyfamily6  13 mon   504  Mirena
     
    I ditto your comments 100%! ... ... I would add to your 2 reasons for crying when we found this forum: #3 We knew we weren’t alone. ... ... Take care, ... Diana   [End]
     
  • Re: been looking for answers by happyfamily6  13 mon   646  Mirena
     
    May I ask what you mean by flu-like? I have had episodes of bad malaise where I feel achy, sometimes chilled, and feverish. Often I run a low fever during these episodes. I generally don’t have any other symptoms that would suggest a virus. I usually don’t have a big appetite, but I’m not nauseated either. I had this problem before the IUD was removed as well as after. It comes and goes for me still. Not sure why. ... ... Is that how you would describe it? ... ... :) ... Diana   [End]
     
  • Re: How can I contact James? by happyfamily6  13 mon   432  The Truth in Medicin
     
    I might be wrong, but it sure seems to me that James still posts here, as often as anywhere else, but he is busy and it can take awhile. I think I just read a response down below on the page which he wrote 10 hours ago.   [End]
     
  • 2 unrelated questions (vagus nerve and Adrenal Tonic) by happyfamily6  13 mon   567  The Truth in Medicin
     
    Hi James, ... Is stimulation of the vagus nerve ever NOT a good idea? Can it exacerbate any conditions? ... ... I believe you once posted about your reasons for altering your AT formula, but I can’t find it with search feature. I have some of your old bulk powder formula (which I recently ordered) as well as some of your new capsules. Why the new ingredients in the capsules, and why did you drop any of the old (like the Siberian ginseng, if I remember correctly)? ... ... Thanks! ... Diana   [End]
     
  • Re: dreams and symptoms by happyfamily6  14 mon   486  Mirena
     
    Thanks for your support, Melanderso! I did some research and found that increased progesterone levels often cause intense, vivid dreaming. I wonder if prog. increases before starting a period. I started my period yesterday (finally) and did NOT have the intense dreams all night long last night. It was nice. But I did have trouble with very restless legs, which I haven’t had for awhile. Also, today I don’t have the headache/nausea that I had last week. I feel better now that I’ve started my period, which is backwards. Strange. ... ... :) ... Diana   [End]
     
  • dreams and symptoms by happyfamily6  14 mon   717  Mirena
     
    Okay, I’ve been having a rough time for the last 5 ... months, but the last month has been really bad, which is why I haven’t posted much. I’m hoping that some sunlight will help once it’s warm enough to go outside again. I’m inside the house all winter unless I’m shoveling snow. ... ... I’m almost 2 1/2 years post now. Way too long to not be back to normal, I feel. But I am stronger and functioning much better. I just want to be all the way better. ... ... I’m due to start my period - in fact I’m 4 days late - which has only happened 2 other times during the last 6 months. I was never late durin ...   [retrieve this message]
     
  • Re: hair thining,has anybody else had this? by happyfamily6  14 mon   289  Mirena
     
    I’m going to look into it. Thank you :)   [End]
     
  • Re: Or Excess Copper? by happyfamily6  14 mon   1,066  The Truth in Medicin
     
    ”Line upon line” for everything! ... ... :) ... Diana   [End]
     
  • Re: Or Excess Copper? by happyfamily6  14 mon   1,106  The Truth in Medicin
     
    Thanks for another link about copper! That’s the focus of my study right now. ... ... My issues are largely neurological: some dizziness, spacey head feeling, shakiness/tremors, erythromelalgia/flushing disorder, mild anxiety, trouble sleeping, pressure in my head, which tweaks my vision somehow, sensitivity to loud sounds and lights, hair loss, and some others, but those are the main ones. I do have autoimmune antibodies, but all of my other tests, including MRI to rule out MS, are normal. My issues stem from a reaction to the Mirena, and I’m about 70% recovered, but hoping for even bette ...   [retrieve this message]
     
  • Re: Or Excess Copper? by happyfamily6  14 mon   1,167  The Truth in Medicin
     
    I was just reading on the Mirena forum where someone posted this article: ... ... http://drlwilson.com/articles/copper_toxicity_syndrome.htm ... ... ... I’m in the middle of reading it and trying to figure out if it’s accurate, true, etc. It’s not very scholarly, and not very well edited. But the main idea might be right. Any thoughts, anyone? ... ... I’m starting to wonder if this is related to my problems. The very next post I read, after the link, was yours on this forum, so it makes me wonder even more. ... ... :) ... Diana   [End]
     
  • Re: hair thining,has anybody else had this? by happyfamily6  14 mon   327  Mirena
     
    I’m interested in your product! I use the Bosely products which do the same thing, but they are pricey. Do you have a scalp treatment or just the shampoo/cond? Do you have to buy them through a salon? ... ... Thanks, ... Diana   [End]
     
  • Re: webanswers.com by happyfamily6  14 mon   435  The Truth in Medicin
     
    Maybe this is why I would try to look at your answer to a question, and then it would say that the question was unanswered (even though the previous screen had said there was an answer.) ... ...   [End]
     
  • Re: Praying for a miracle! by happyfamily6  14 mon   367  Mirena
     
    I’ve decided that immediate healings, which can and do happen, are ”faith-strengthening” experiences. When we don’t have the immediate healing we pray for, and we have to continue to struggle and trust in God, then we are having a ”faith-perfecting” experience. God gives us the type of experience we need the most to help us become like Him. Suffering helps us develop empathy for the suffering of others, patience, and the ability to hope when there is no reason to hope. His eyes are always on us. I know for a fact that if I had recovered quickly, I wouldn’t have embarked on my quest to ...   [retrieve this message]
     
  • Re: Mirena has made an impact on my life by happyfamily6  14 mon   351  Mirena
     
    Welcome to the forum! I’m glad you’re having it out, and I hope you recover quickly. ... ... Please keep us updated on how you’re doing! ... ... :) ... Diana   [End]
     
  • Re: Twitching in my chest. Anyone else had this? by happyfamily6  14 mon   3,262  Mirena
     
    When I start to twitch (it happens some months and not others) it’s usually in my leg muscles (a particular place in my thigh and my upper calf) or my mid-chest area right at the bottom of my sternum, slightly to the right, kind of in the muscle above my lower rib cage. Almost near my diaphragm. It feels really strange, and has been really bad during some months (happening all night long for instance). ... ... On you, does it affect the heart beat/rate itself? Do you think it’s actually the heart muscle, or a muscle near it? ... ... Earlier in my recovery (in my first 2 years), the twitching was ...   [retrieve this message]
     
  • Thanks friends! by happyfamily6  14 mon   613  The Truth in Medicin
     
    Thank you everyone for the suggestions! I’ve passed them on to my friend. Hanna, I knew there had to be a link like that - just couldn’t find it. ... ... I hope she gets on the probiotics. It’s hard to see her health being ruined like this. She hates to do it too, but it’s hard to be sick with a bacterial infection at the doctor’s office and say ”no” to the inevitable Rx. ... ... Diana   [End]
     
  • Re: Thyroid Testing-PLease post your TSH results by happyfamily6  14 mon   1,477  Mirena
     
    My TSH was .8 and .7, as I recall, but I haven’t had it checked for 1 1/2 years. I’m thinking of checking it again. I’m developing fine tremors in my hands, and it’s really bothering me. ... ... My last couple months have been really bad, I admit. But I was also starting my cycles later than normal, and they were lasting longer, which was very weird. I just finished my period, and it was more normal (normal for post-Mirena that is). This month seems to be starting out a bit better. ... ... Those old fears of ”maybe I have an undiagnosed neurological disease” have been cropping up again! ... ... ...   [retrieve this message]
     
  • increasing breastmilk supply by happyfamily6  14 mon   623  The Truth in Medicin
     
    A friend of mine with a 2 month old baby is struggling with a dwindling milk supply. The mother has had antibiotics regularly over the last 4-5 months for respiratory infections and then (mostly recently) a UTI and mastitis. She just had an allergic reaction to the most recent antibiotic, and I’m worried about her. Are the Adrenal Tonic herbs safe for a nursing mother? I think she needs to rebuild her immune system. Are the Big 3 (pau d’arco, andographis, and chaparral) okay with nursing? Any suggestions to increase milk supply? ... ... I’ve been searching past posts for answers and will ...   [retrieve this message]
     
  • Thank you James!!!! n/m by happyfamily6  14 mon   439  The Truth in Medicin
     
  • Re: Detox suggestions by happyfamily6  15 mon   542  Mirena
     
    Sorry to take so long getting back to you. Our family has been visited by a flu bug for the last few weeks. ... ... Here are the alcohol-free bitters I use: ... http://www.vitacost.com/Flora-Floradix-Gallexier-Herbal-Bitters ... ... You can also buy grape bitters, swedish bitters, and chinese bitters. ... ... I’m not sure how it works exactly, but they are recommended for better liver function and improved digestion. ... ... Here’s a site with some info: ... ... http://evenstaronline.com/articles/bitters.html ... ... It confirms what I’ve read generally about them. ... ... :) ... Diana   [retrieve this message]
     
  • Re: Detox suggestions by happyfamily6  15 mon   564  Mirena
     
    You can always just use digestive bitters before meals. Not as fancy as the other protocol, but it’s a gentle way to detox. Start with one meal a day and slowly work up to three, drinking lots of water to flush out toxins as they’re released by the liver. Since the liver breaks down excess hormones, it’s also a gentle way to regain hormone balance. Most bitters are alcoholic (Grape bitters are popular), but you only need 1/4 of a dropper -just enough to taste them, which stimulates the vagus nerve. I use non-alcoholic bitters for personal reasons. (This is not my brilliant idea, but ...   [retrieve this message]
     
  • psoriatic arthritis by happyfamily6  15 mon   563  The Truth in Medicin
     
    A friend of mine (female, late 30s) was just diagnosed with this. She has swelling in her fingers and mild skin psoriasis in a couple areas which is helped by steroid cream. Her real complaint is the psoric arthritis. Her labs are pretty normal except for elevated ESR. ... ... Her Dr. put her on prednisone, which she has finished, and now has her on methotrexate. I’ve told her my view of treating autoimmune illness this way and gave her some links to your articles and products on MMB. She has decided not to continue with high doses of NSAIDS (which she’s had on top of the other drugs) sinc ...   [retrieve this message]
     
  • Re: webanswers.com by happyfamily6  15 mon   627  The Truth in Medicin
     
    Sorry if I asked my questions too blatantly :)   [End]
     
  • Re: webanswers.com by happyfamily6  15 mon   657  The Truth in Medicin
     
    That’s just what I wanted to know! ... ... Thanks, ... Diana   [End]
     
  • Re: Losing my mind! by happyfamily6  15 mon   340  Mirena
     
    Shira shira, I recorded my symptoms too. For 2 whole years! It’s a great idea. I bought a cheap calendar, dedicated only to my hormonal issues, and recorded ovulation, cycles, symptoms, and good/bad days. I was obsessive about it. For a whole year, I rated each day on a scale of 1-10. Most of my days were 4s or 5s. I occasionally referred back to them to see if certain issues were happening at certain times. It was also just therapeutic to write it down. I guess it’s a good sign that I haven’t recorded anything, except for when I start my period for about 6 months now. I naturall ...   [retrieve this message]
     
  • Re: Losing my mind! by happyfamily6  15 mon   392  Mirena
     
    Hang in there Ashley! 4 month crashes are pretty normal. They can happen any time, but I remember when I first joined this forum (2009) that there was a lot of talk about the 4 month crash. A crash is just when your symptoms, whatever they were, surge back with a vengeance after you’ve been feeling better. For some, it’s anxiety and panic, for others it can be neurological or physical pain. There seems to be no end to the variety LOL! ... ... I have definitely had crash months where it seemed to last the whole month until I had another cycle. I don’t mean to be discouraging, and it might ...   [retrieve this message]
     
  • webanswers.com /37 by happyfamily6  15 mon   772  The Truth in Medicin
     
    I’ve been poking around on the site. Your link goes to a general page, but is there a more specific link that would take us to your ”page” or a place where you post specifically? I’m not very experienced with forums (CZ was my first and only so far), but it seems like anyone can post a question about anything and anyone can answer it. Is there a recommended way to navigate the site? ... ... Probably a dumb question. ... ... Thanks! ... Diana   [End]
     
  • Re: Update - narrowed it down to dairy by happyfamily6  15 mon   5,864  The Truth in Medicin
     
    And James (Hveragerthi) has a great prebiotic product even though he didn’t suggest it: ... ... http://www.mountainmistbotanicals.com/formulas/flora.htm ... ... Diana   [End]
     
  • Re: exercise! by happyfamily6  15 mon   832  Mirena / IUD Malfun
     
    I too am glad to know I’m not alone with the speech thing. Everyone says it’s because I have 4 kids and am so busy, but it really wasn’t an issue for me until I started my general reaction to the IUD. ... ... I also felt too exhausted to exercise for a long time. I was pushed into it unwillingly when we moved to a new home last summer. The house we were moving into needed to be scoured (I’m a clean freak), and I only had a couple days to do it. I pushed myself beyond my limits considerably. I had no choice. I felt awful by the end of each day. But, to my honest surprise, it didn’t kill ...   [retrieve this message]
     
  • Re: 4 months post !!! by happyfamily6  15 mon   606  Mirena
     
    Ooh, I want to read that article! ... ... My Dr. recommended fish oil for dry eyes, which is a good idea for us anyway. I know that my dry eye problem has improved tremendously over the last couple years since removal. I always struggled with dry eyes anyway while on the pill, but it worsened with the IUD. I was trying different brands of soft lenses meant to work with dry eyes (while on the IUD) but it didn’t help. Also I used an eye drop called Soothe XP by Baush and Lomb with mineral oil. It seemed to help better than other drops. I use it only once a month or so on average now, whic ...   [retrieve this message]
     
  • Re: My update on the pseudo turnor cerebri by happyfamily6  15 mon   857  Mirena / IUD Malfun
     
    You know, just thinking about meeting people on this forum at a group gathering makes me get teary! What empathy and understanding we would share immediately. ... ... I would say that the main problems I still have consistently are a shakiness in my hands (like a tremor I see when I’m reaching for something - not a resting tremor); a feeling of lack of coordination sometimes when I’m moving around quickly; a feeling of pressure in my head that’s sensitive to certain lighting and that makes my vision feel ”tweaked” somehow, though not exactly blurry; brain fog (but better than it used to be); s ...   [retrieve this message]
     
  • Re: My update on the pseudo turnor cerebri by happyfamily6  15 mon   909  Mirena / IUD Malfun
     
    I’ve been wondering about your PTC quest, and it’s great to have that info. I really appreciate your attitude in your post (you’ve always had an inspiring attitude!). I’ve had a rough week with this period, especially after it ended 3 days ago. Since it stopped, I’ve had a resurgence of symptoms I haven’t really had for 9 months: partial numbness in my right arm and leg, severe leg/body restlessness at night, heart palps, tingling in my forearms and brain, some twitching, very spacey head (carbonated brain ;). I guess this is a setback, but truly I’d had a very long time of feeling go ...   [retrieve this message]
     
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