Kathy- I am so sorry to hear of your situation. This kind of long term illness with no answers can be very discouraging and frightful.
I myself was sick for about 20 years. It all started with chronic fatigue, hypoglycemia, extreme weakness, dizziness, chronic migraines, candida, fobromyalgia, chronic constipation. Five years later I was put on meds for depression, PTSD and anxiety. This caused a chemically induced bipolar illness with panic attacks and severe social anxiety.
Finally after 14 years of meds I decided to go the natural route and quit all meds and changed my diet. Things improved but I could not heal the chronic fatigue. Last year I had a hair test which showed all minerals were low except 2. I was in the exhaustion stage of stress(adrenal fatigue). I began the Nutritional Balancing program 14 months ago. I also eat a strict Paleo diet which eliminates my food intolerances
to dairy, grains and sugar. I was also recently diagnosed with LYME DISEASE. I am now about 90-95% healed. I manage the lyme and other co-infections with diet, afew herbs and monthly meds.
I don't know if you have lyme but the burning skin and jolt feelings are a distinct possibility. Here is a chart with the many symptoms of lyme and co-infections. Because lyme doesn't travel alone. Lyme really hijacks the immune system and leaves its victim wide open to many other infections. The other crazy part is 2 lyme patients will have totally different symptomology.
I hope you find the cause of your illness so you can find a solution.