First, I must say you are in the beginning stages of this. I wish I had noticed what was happening back then which was probably 2 years ago. Then I got bit by a tick and all hell broke loose 3 months later. I was covered in lesions from head to toe and felt like I was dying. I couldn't sleep for days & when I would fall asleep I would wake up with a zapping sensation like I was being electricuted. My husband dragged me to the hospital and was admitted for 3 days. The useless doctors gave me IV doxycycline and vancomycin in which I immediately "felt better".
I was prescribed steroids to take at home and I regret taking them. My breakouts were so severe, itchy, oozing. I was bedridden.
A friend recommended I see a lyme literate doc. I already knew I had morgellons and the lyme doc diagnosed me with lyme and bartonella. Lab tests confirmed this along with mycoplasma and chlamydia pneumonia.
She immediately put me on doxycycline, ceftin and diflucan. I also used ivermectin and fenbendazole from a feed supply store. The ivermection immediately dried up my lesions but I was still itching constantly. I was always against meds but I was so desperate that I was willing to do anything and I did.
Protocol after lyme doc visit:
-invermectin 4 days on, 3 days off
-no gluten, Sugar
of any kind
-only organic meats and veggies
-lemon in water all day long
Showered with sulfur soap and slathered my body in pure unrefined organic coconut oil
borax and dr. bronners peppermint soap
During this time I was also bathing in borax but couldn't stand the itching and also the fibers that I was pulling out of my skin. They were blue and red and very long. I stopped the borax baths.
Four weeks after lyme doc appt I started treatment with rifampin for bartonella. This was done slowly increasing every four weeks. This drug was no joke. I had massive herxs consisting of anxiety, muscle aches, burning feet. The itching was still there but bearable. At this point the lesions were gone but was sill itching. I am now left with scars from where these lesions were. Slowly fading over time.
8 weeks- follow up with lyme doc. She stopped the doxy because it was May & I love the sun. The sun made my skin feel better & I would see blue fibers all over after laying out in the sun. In place of doxy, she gave me biaxin. This was my life saver. It goes after lyme & bart. After 2 days of biaxin all itching, crawling and stinging stopped!!
The only time I get a little itch is if I have Sugar
so I learned quickly and stopped.
Current day protocol:
-Use sulfur soap and coconut oil daily
-Laundry is still the same
-biaxin, ceftin, minocycline and rifampin
-ivermectin during new & full moons
-no gluten or sugar
-cats claw tincture- this caused herxing
I have to go slow with the above 6 herbs and sometimes stop and start over because it causes headaches and right eye pain. Bart loves the eyes. I started with 1 drop each 15 minutes apart from the other. Also start one then add the other a few days later to see which one causes what.
I have gone back to work and am living normal again. I sometimes drink beer but absolutely no red wine. Red wine causing itching again and immediate headache.
Get the book Healing Lyme by Stephen Buhner 2nd edition. He has a section on morgellons. The above herbs are what he recommends.
-Nac 1500mg daily to support liver and good for chlamydia pneum
-milk thistle for liver
-b complex vit
-lysine 1000mg daily
I firmly believe that last tick bite sent me over the edge. Whatever it gave me caused the lesions.
The fibers are almost non existent. Still a few. They are blue and super tiny. I will continue with everything until they are gone.
Also, I have had chronic fatigue for years. Still do. I can sleep constantly.
I don't know if this is contagious. My husband has no symptoms. My child tested positive for lyme, bart, myco, and also chlamydia pnem.
I either had this for a long time and passed it to her thru child birth or it could be from a bite she received about the same time as me.
I still don't know what pathogen this is from.
Go on curezone search and type in cotton balls with legs. I passed massive amounts of these when on the anti-parasitic. When you look closely it almost looks like the black specs that come from the body. You will see what I mean what you view the pics. Also lymephotos.com has the same pics. I also did the salt/c protocol before the lesions broke out and thats when the specs started. I honestly regret doing it.
I also used a rife machine but that didn't help either. I did find that it stopped my itching when I used the fungus setting.
So you see, I have done everything. I still have no answers. I hate the fact that I am on drugs but I am so scared to stop them. I know I will always continue with the above herbs and supps.
Remember, always go slow with adding anything. This is not a race, its a marathon.
Are you in the states? I am and our healthcare system sucks. The lyme doc is not covered by insurance of course.
I will always be here if you have other questions. I feel like I didn't give you any good advise. If someone told me to take drugs a year ago I would have told them to piss off. But here I am...
I do believe that you are in the early stages and it would have progressed to the horror stories you read online, including my horror story. I have pics that would make anyone cry.
Also there is a morgellons documentary being made. Its due to come out 2018. I am curious how they portray it.
I hope you overcome whatever is afflicting us.