I agree ... as I read the posts I feel everyone's pain it is embarrassing and humiliating to stink ... and we are doing everything we can ... it is not like having diabetes or cancer or any other affliction where people feel sorry for you ... people avoid us ... they do not want to be around bad smelling people and we all are so desperate we are begging for help ... well it sounds like whining. Let's get MAD and demand someone help us with this problem.

People like Bill Gates or Oprah Winfrey with their billions what? they have never had contact with someone with this problem? Take some of your money and give it to research it'd make a good show Oprah ... although I don't think you'd get many people who'd want to go on as guests ...

We are the last remaining discriminated against group ... we do not qualify for disability at least not in California one doesn't ... it is difficult getting certain jobs due to our problem. A problem we have no control over.

It is bullcrap with our resources no treatment that works has been found! It probably is all about money ... the companies do not think there is enough of a market ... $$$