Hello My name Is Rachel, I am 23 years old and I have NF 1 I was born with it, I have headaches from the disease and loss of hearing and a tumor on my spine. I started getting more tumo rs on my body when I became pregnate with my first child I have 5 children of my own and 1 step child. 2 of my kids so far dont have it or any signs of the disease. There is a 50 percent chance that if you have a child that the child would have it. I started getting muscle spasums in my right side of the body, loss of balance. The tumor on my spine is very painful and only perscribed pain meds help. The way I get rid of my tumors on the skin is with the neurologist and they perform surgery. if there is any thing that might help the tumors disapear without surgery please let me know thank you.