I'm a 22 year old female and I have been experiencing this problem since I was 19.
I've tried everything I can to stop it; anything you name it, antipersperant/deo-odorant, botox, surgery, diet, chlorophyll tablet/liquid, intestine cleansing... nothing worked!! It seems like nobody cares, even the doctors didn't understand my pain and frustration. My parents think I'm crazy (they smelt nothing) and refuse to help me. I am extremely depressed,isolated and lonely.
After visiting 6 family physicians and 5 dermatologists, I gave up. I'm tired of seeking help from others and I decided to solve the problem by myself. I majored in Molecular Genetics and Biochemistry in my University years and graduated with honor degree(I don't know how i did it. I felt like I wanted to kill myself everytime i sat in a classroom with a bunch of mean and insensitive strangers). In my spare time, I read hundreds of scientific articles relating to odor causing diseases such as bromhidrosis,TMAU, etc, but I don't think that's what we have. We are a special group of people who need a special solution.
Last summer, I worked in a metabolome laboratory. My job was to prepare organic compound samples and run them through analytical instruments such as mass spectrometry and gas spectrometry, to determine their chemical compositions. These are extremely sensitive instruments, they break down compounds into ions and are able to detect every single elements composing the compounds. However, no matter how careful i operated, my results were still off now and then. My prof asked me if i have a condition called TMAU (the Trimethylamine given off by the TMAU patient can be detected by the instruments, and thus affects the final results). I didn't know if i had it or not, so I went to see a clinical genetist who sent my urine sample to the biomedical centre in Montreal to be test for TMAU. The result came back a few weeks later, and i don't have TMAU. Then what is it that affecting the result of my experiment??
I haven't quite figured out that yet, but I'm sure that our bodies omit a special compound that is different from other people (especially when we are nervous or anxious). I will start my graduate study this fall in Analytical Chemistry, and hopefully i will be able to figure out what the compound is and why/how it is produced in the next two years.