I know this is really long but PLEASE read it.
hi, im from the northwest of england and would like to share with you my experience and ask you all for some advice.
about 6 months ago i noticed i had a little 'gap' in my top lip from where i had been biting it ( it wasnt notable to anybody else), so i decided over the summer holidays i would let it heel. Like you have all described, the 'healing' skin would grow and then just peel of, as one piece.
This cycle went on and on and after just a short while though i noticed that the peeling skin had spread to the inner section of my lower and upper lips. I knew i had probably nibbled at both lips but didnt think there was actually anything wrong with them ( apart from the gap i said in my top lip).
I remember i used to just rub off a little bit of the white stuff(obviosly i now know this was the begining of the 'heeling' skin) that was at the side of my mouth, but doing this was no problem and i wasnt conscious of it. I actually think by leaving it to heal the problem got a lot worse.
Now, nearly 6 months later, my lips still havnt healed and im incredibly depressed.
I would say my lips have changed very slightly. instead of the healing skin just peeling of in one piece, it now stays on longer and then 'breaks up' becomes loose and then kind of falls off or i take it off because i know its not going to stay on.
The first time i went to the doctors was about a month after i left my lips to 'heal'. Basically they said theyd never seen anything like it before and to jus keep it moist.
My lips were starting to swell up pretty bad aswel so the doctor gave me antibiotics but they did nothing. My lips were still not getting any better.
Eventually i got an appointment with an oral surgeon. When i went i was hopeful that he was going to say something that would finally sort it out, but at the end i couldve punched him in the face! he said basically thatsome people have skin problems on their scalp, like dandruff, and i just have a skin problem on my lips. He offered no solution and i was devastated.
I know he was concerned with surgery, but it was very disheartening.
Iv been to the dentist and doctors many more times and recently to an oral medicine department. the consultant there described what was happening:
-basically that because of the trauma caused by the biting the lips were producing more and more skin to try and protect themself..........he said he would send me this device that stopped my lips from touching at night when sleeping leave the skin to heal and it should clear up in a couple of weeks. I knew it want going to heal in a few weeks unless i got this mouth device he said.........when it came it was just a mouth guard!! i was really depressed about this.
i realy needed something that stopped my lips from touching at night because what would happen would be the healing skin would stick together then rip off at night time so i was getting nowhere.
About a week ago i managed to make something from joke/crazy/ halloween teeth that does actually keep my lips apart, and so they dont stick together. S o for a week iv been wearing this thing at night and my lips havnt stuck together, but the sluff and healing skin (it does jus look like dead skin as normal) has just built up and kind of did look like it was starting to heal, but on my upper lip the skin has cracked and i think is going to fall off, and off the bottom it looked like a big scab which half of just 'dropped' off today.
So, i have another oral medicine appointment in a months time and so i am definitley going to continue for it to try and heel untill then...............................at the moment im very very depressed, i have to use a straw all the time, i cant talk properly, only eat things with a knife and fork and stuff that can be cut up small, my lips are very swollen and i cant talk properly which is sooooo annoying. at the moment too my lips are really really swollen and i look disgusting. I am dreading going back to college next week, im so self conscious and paranoide and i cant bear to socialise at the moment.
2 months ago, before i went to oral medicine i started to just exfoliate the heaaling skin every day as i decided it was never goin to heal, but this was so difficult, although my lips looked just about normal for a while! i could talk and eat properly but i was forever 'scrubbing' at my lips because it would start to grow bak during the day. Also this layer of salivary stuff that is prbably the start of healing skin sticks to my front teeth which really annoys me. I decided to let them 'heal'again when i saw oral medicine.
So, at the moment i feel very down but i would like to ask some questions:
- is anybodys situation VERY similar to mine?
- what creams/moisturisers are people using? at the moment im just using vaseline and have today bought some E45 cream, do you think this will help?
-does anybody think the only solution is to just 'scrape' the skin off? which i am increasingly thinking
-does anybody else know of any surgery or treatment that sorts it out? i think somehting like they do in plastic surgery to stop skin from regrowing must work, even though the surgeon said there was nothing.
generally can anybody give me any advice?
Okay, thanks for reading this i really appreciate it, im in a really bad place mentally at the moment because of this, i am going to arrange to see a dermotologist soon .......please reply your thoughts on my questions :)