I am noticing these tiny white spots on my lips, both upper and lower... and am worried they are going to become permanent. Do others have these too? I know I didnt have them before I had this condition.
I'm starting to feel pretty down about this condition and the lack of medical knowledge out there. I think it's tied to our diet, but what I can't figure out is why people that eat fast food all day/ are severely obese/ people who surf and are in the sun all the time/ people who are anorexic and missing nutrients - their lips are perfectly fine.
I hate it that I can't kiss normally. I can't go down on someone. I can't eat a sandwich without tearing it into sections. I can't get my lips wet in the shower. I just want to be normal.
Ok, just wanted to get that out.
Peace and love to you all who are enduring this
-J