I can totally relate to everything u all are saying. The quality of life with this DX is horrendous. I wouldn't wish it on anyone. It literally causes everything in your body to eventually break down. For instance, I'm 25, yet my bones are worse than an 85 year olds due to malabsorption, GI issues, metals, hormonal issues, etc. I weigh less than my 8 year old sister. I can't work, go to school, have relationships.... it has ruined me. My whole life revolves around (useless) appts, supplements, restrictive diet, low energy, prepping food, and researching.
It's a cruel way to live. If my dog had this, I would lovingly put him to sleep to end his suffering. Why are animals allowed to be euthanized, but humans must suffer through incurable, debilitating, isolating, confusing, happiness-depleting illnesses? Cruel, cruel, cruel.