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Re: This disease is wearing me down... Tired of it...
shea78 Views: 1,513
Published: 8 years ago
This is a reply to # 2,067,906

Re: This disease is wearing me down... Tired of it...

I have always looked at this forum and searched online for "cures" and other people's experience but I never posted anyting because unless Im gonna complain I didnt have much to ask or say about it .. so I never posted pictures or anything else .. my EC has been going on for about 11-ish years (though at the time I thought it was just severe chapped lips) - my lips never got as bad as some pictures Ive seen .. I never had the build up where it turns yellow and its big and crusty .. mine has always been it just almost "hardens" a layer of skin and then when I got in the shower I could peel it off. This hapepend about every 3 days but was very noticable and Ive always had people make comments about me needing chapstick etc, not understanding that chap stick wasnt going to help me out really ... when I started taking the vitamins (as I posted under "healing really well" was when i decided to post and see if others would know why this was working for me ... so I apologize for being one of the ones that didnt post pics ... it was just something that I never saw getting better and who knows .. maybe this "getting better" thing is temporary for me. currently Im trying to figure out if its the EPO thats helping my lips, which i think that it is, but Ill have to report again in a few days when Ive been off of it for a little longer.

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