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Re: Help.. Possibly Dying - ME/CFS/FM/MCS & Liver pain
Sypher7 Views: 6,078
Published: 10 years ago
This is a reply to # 2,065,622

Re: Help.. Possibly Dying - ME/CFS/FM/MCS & Liver pain

Thanks for that, appreciate. The only thing I haven't tried from that above list is Valcyte/Famvir. I have some here from my Dr but have been paranoid to try it due to my usual reactions from drugs.

Zinc I can only take at a certain dose or I get bad symptoms, and not 50 or even 25 a day. 12.5 is about max.

I already take 10-12g of ascorbate a day and it's one of the main reasons I'm (just) still alive.

Took Lysine for years, didnt help, about 4g a day. Selenium I can take, havent lately.

LDN I severely didn't tolerate, it made me dreadfully ill even breaking open a 0.5mg capsule and taking 1/4.

I can barely tolerate FOOD anymore period. Im sugar/gluten/dairy free, but i can also no longer tolerate barely ANY fat and no protein foods. I have to live on special amino acid drinks to get any at all. I can take a bit of lentil, but NO animal proteins. They shut my system down - liver and brain go haywire and i can barely move for 6-8 hours after eating them, followed by 24+ hours of horrendous pain. I have to live on rice and veggies.

Thanks still, I am battling harder than most people as it's not just CFS/ME etc for me, its a whole system massive strange liver/digestive problem that pretty much no one can work out. Still fighting for my life through every moment of every day.

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