I can feel your pain. I also was given steroids and I see long worms come out. There are lots of folks with disease terrible as yours and even in worse condition.
Thankfully you have your Mom to help and you can afford to stay home and heal. I read of people who became poor and end up homeless in the shelter with very little means of fighting their disease.
For a whole year I tried to hold on to my job while being terrible sick. Many times I was headed for work when I knew I should turn the car around and head for the ER. I was working 8 hrs and spend 8 hrs nursing my body. My boss had the good sense to lay me off before I killed myself.
Realize sometimes others see you better than you see yourself. You ask for help multiple times. Have you tried any of the advice and did any of the advice help any?
I hate to say it but this is the hardest thing you will ever have to do in life... battle dastardly parasites and wrestle your body and your life back inch by inch.
These parasites create strong neurotoxins, so ones judgement and emotions can be flawed. So we have to make allowance for the fact that we may not always be thinking or rational.