There's so much conflicting info, it's clear you can't trust anything blindly. But who has the time to do the research to go beyond the current knowledge?
My personal complaint is that after 4 years of spending money and reading what I can, I'm no further ahead. Everyone out there claims to be Helping Mankind. For a price, of course. And we're willing to try it, simply because it MIGHT work.
I've noticed that many people on this site are trying the same approaches which I and others have tried in the past.
Maybe we need to establish a research data base on this disease ourselves in order to eliminate a lot of time, trouble and expense for newcomers.
A site could be set up listing the various treatments for people where they could describe the effects each has had, including the success of it on a scale of 1-10. I guess you'd also need a scale showing how diligent you were in following the treatments, the diet you're on, and so forth.
It could be set up like the sites where people report good/bad experiences on consumer products, with a summary # of stars showing the average opinion of the treatments.
Any other ideas?