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Re: lying and full of misconception
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Published: 20 years ago
This is a reply to # 49,083

Re: lying and full of misconception

With all due respect to the Webmaster that answered this email with such verve, I must say I agree with the person that wrote this email. I found your site while doing my daily web search for any new info on Lupus. I have seen sites like yours before, and I must say I think they are of no help either. If diet and herbs worked for you I think thats great, If I of course believe you. However, if you really found the miracle cure to an incurable disease, you would be on the cover of every major medical digest and newspaper around the country as we speak. I see nothing wrong with trying everything you can, that is what i do with my daughter who has severe lupus, lupus nephritis, fibromyalgia, and antiphospholipid antibody syndrome. But to advertise that you have a cure to a disease that has no known cure, is wrong and misleading. Having hope is one thing, giving people false hope is something all together different. I work closely with the doctors at the lupus research institute as well as the top doctors in lupus at Schneiders childrens hospital and North SHore University hospital in NY. I can assure all who read this that there is no known cure for this horrible disease. Giving out your information on what you say worked for you is fine, it is a free country, but to sell it as the be all and end all cure is wrong and just leads people in the wrong direction. I wish you luck in your continued health as i hope you wish my daughter luck on conquering her lupus, she is only thirteen years old. But please, dont tell people diet and herbs alone can cure something that has been around for centuries. DO the people who read this site really think you have found the golden ring, and the rest of the lupus world is ignorant to it? Think about people. Take everything you read about Lupus with a grain of salt, ad some common sense. Diet may help, but it is no cure. Thank you for allowing me to post this message.

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