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Re: Metabolic disorder called Trimethylaminuria
 

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please help me Views: 23,626
Published: 18 years ago
 
This is a reply to # 600,585

Re: Metabolic disorder called Trimethylaminuria


hello to everyone who has posted on this thread, i am a 19 year old male and i also suffer from this problem, it began almost a year ago now and it has also ruined my life more than you can imagine,i can relate to all of your stories and it gives me some hope to finally know i am not the only one who has this, at 1st my friends would say things like its smells like ass, or im smelling something wierd, and this would only happen when i was smoking marijuana with my buddies, and luckily never at school, i found it to be so wierd cause i am the most heigenic person i know, at this sametime i began to get depressed and stop going to school, everyone would wonder why i never went and would constantly ask me what was going on, stuff started to go downhill from there as my Depression got worse, i was a B honour student but i never graduated school cuz i never went, i still partied alot and life wasnt so bad, still had lots of friends and my beautiful girlfriend of 2 years, but eventually broke up with her because i felt i was no longer good enough for her, a couple months later the smell started to get worse although me nor my family could smell it, i dont even know what i smell like to this day, anyway i told my doc. and he also told me it was in my head, and could be related to anxiety and told me i should see a shrink. I also have been diagnose with IBS, meanwhile i stopped going out for the most part but i still dont know if i stink when i go to clubs and dont smoke because no one will tell me. I asked one of my close friends and he said i dont smell but i think hes just being nice cause i hear my friends make comments to me like "your attracting flies." so i now pretty much live in doors despite goals i have as do u people, my parents dont understand the extent of my problem but it is killing my soul and pride because i used to be a happy, popular kid. i have now started going to a shrink and he is also an MD, he says he has delt with kids that have had this problem before me and it has something to do with smoking or smoking (marijuana), i am also on anti depressents/anxiety drugs which haven't helped yet if this problem is anxiety related, i have also thought about suicide but would never try because i want to live so bad. the numerous times where i have to sit close to people (on buses/movies) are extremely embarassing and are driving me crazy, im fed up with being talked about behind my back by the people i still do see, and constantly nagged by the ones i used to be close with because i never come out anymore, i am sorry this message is so long i just had to get this off my chest, i have tried everything aswell, i bathe twice a day, use deoderizing soaps, body washes, calogne baking soda and deoderizing detergents in the laundry nothing works, however im very glad to find this post if you guys have any success with cleansing or anything else please post back..thanks and i pray this sickening problem gets resolved for all of us..p.s. i have also started getting a dull ache in my right side but the doc. cant find anything, what could this be related to?
 

 
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