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Re: What can we as a group do collectively? re: I think I know where we can go!
 
girl6 Views: 23,477
Published: 17 years ago
 
This is a reply to # 600,604

Re: What can we as a group do collectively? re: I think I know where we can go!


Hi,
I am a 28 year old female who has been experiencing this problem since I was 17 years old. It has devasted my life. I have looked for answers everywhere. I came across a doctor in Pennsylvania who does research on the fish odor syndrome at the Monell Chemical Senses Center in Philadelphia. although the odor I experince is more of a fecal Body Odor he tested me for fish odor syndrome the results were negative. I do believe if a group of us all came together maybe some specialist would take an intrest and began some testing. I do feel this would be a good place to start. Please get back with me on this. Lets try to organize this and make it happen.
girl6
 

 
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