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Re: My IC (Interstitial Cystitis) is healing! by bkrope ..... Interstitial Cystitis Forum

Date:   5/4/2004 4:19:58 PM ( 17 years ago ago)
Hits:   35,668

Hi avodaco girl! So happy to find your message today. I've had IC for 2-1/2 years now. I'm really disgusted with the the attidudes of my MDs in general. "There's no cure!!" I don't believe it. I'm sort of on my own diet w/no sugar, white flour, tomatoes (except yellow)and no additives or preservatives . I've managed to build up my immune system quite a bit this year with juicing (carrots, romaine lettuce, celery, an apple, parsley) and now I'm feeling much stronger. However, after all this good stuff, I still can't shake the constant ache in the tush, radiating from the bladder. Still need to sit on ice packs. I've spend my retirement money looking for "the cure," only to find disapointment. I also experience digestion motility problems and IBS. That all set in with the IC - and Vulvodynia.
I'm sending you my email address so that you can give me a better idea of some things I can do to better my IC situation.
I'm on Elmiron now, and my insurance has started a $500 brand name prescription deductible. Elmiron is very expensive so that $500 will be spent on the next script. I'd like to try getting off Elmiron but frightened to do so because the pain I experience before Elmiron was so dibilitating.
Here is my email address:
Thanks for your wonderful message.
Barb Roper

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