what do you guys think about using wax as a barrier? not like burts bees lotion type was, i mean real hardened thick wax, i am considering coating my lips with melted wax and allowing it to create a thick barrier while i sleep.
check out this video:
http://www.youtube.com/watch?v=_Ilgu10leas
as you can see the wax can become almost completely liquid form and sticks/hardens to the persons hand
”paraffin mask for hands especially recommended if you have dry skin”
please voice your opinions [End]
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do u guys have those days whre u wake up and brush your teeth and buildup is so thick and you just say f@&* this and rip off the skin and feel like sh&t after and stay home that whole day and skip whatever plans you had and feel like you just threw away all the progress you made by leaving the buildup intact, gently moisturizing, reducing inflammation and now there are raw red inflamed areas from where u ripped off the skin way too early and yea... today is one of those days [End]
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i just dont understand why it can be harmful or risky to use? whats the problem with vitamin d imitation? there arent any real side effects listed in drug information [End]
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Can someone please tell me which sunscreen lip balm would be better to use, I’ve narrowed it down to 2. (I dont want to use a zinc based one because i the whiteness on the scabs make it look even worse)
Cancer Council spf30 lib balm:
Octyl Methoxycinnamate 80mg/g, 4 Methylbenzylidene camphor 40mg/g, Methocydibenzoylmethane 20mg/g, Hydroxybenzoylmethane
OR
J.R Watking spf 23 lip balm:
Meradimate 5%, Octinoxate 7.5%, Octisalate 5.0%, Oxybenzone 6%
any input appreciated [End]
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i read that as well, and think that largely contributed to my development of ec. I remember when it it first began to develop i was basically in the desert hottest part of the year, and im fair skinned, and i was using a lip balm WITHOUT spf and to top it all off i would lay down and tan (even thought i barely tanned, mostly just burned)
and now im going back, and need to somehow protect my lips... [End]
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does anyone know if it is okay to use regular skin sunscreen on lips?
all the ”lip suncreens” are also lip balms...
i found a decently natural suncreen, but there are ingredients in it that are not in most lip balm suncreens, maybe they intentionally leave them out because they are harmful to lips?
ps. in responce to Jayotg, Shea butter has a very low spf, about 6. I need at least 30
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unfortunately, after the summer is over, I will not be able to remain indoors all day and I will be outside a lot if very hot weather conditions (desert). I have no idea what i am going to do about my lips. zinc seems like the best option but i really dont want to walk around with solid white lips, that will make my ec look even more messed up than it already looks. I dont want to use lip balm with spf because that will be giving up the leave it alone treatment and crusts will come off much easier again. I dont want to put regular sunscreen on my lips because of all the chemicals, I rememb ...
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I’ve been leaving my lips alone for over a month with barely any improvement, so what i’ve started it doing is after i get them completely wet once a day in the shower, and most of it turns white and gooey, i use the blade from my little scissors and very carefully remove the top layer of certain areas of ”crusts” that have already built up decently thick (ie like 4 layers of dead skin) and once it dries the crust is still covering the same area of lip yet much thinner and easier to tolerate aesthetically. I’ve asked the last few doctors/oral pathologists/derms about removing the top layer ...
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I’ve been reading a lot about tretinoin being very helpful in removing or ”unclogging” fordyce spots on the lips.
I have fordyce spots on the upper part of my upper lip where ec is NOT present. While i am currently trying my best to leave them alone I was wondering what people’s thoughts were on applying a small amount of tretinion on my fordyce spots to see if does infact ”unclog” them and possibly allow more flow natural moisture to at least my upper lip
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please read: http://www.ehow.com/facts_6150769_solar-cheilitis.html
when my ec first began i had been way overexposed to uv rays in the sun while using a non spf lip balm, which is like using tanning oil on your lips...
its very similar (or possibly the same as) actinic cheiltis
Symptoms:
Dry lips
Thinned skin of the lips
Scaly patches
Swelling of the lip
Redness and soreness
Ulceration and crusting
Loss of demarcation between the vermilion border of the lip and its adjacent skin
Prominent folds and lip lines
White thickened patches ( ...
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Does anyone know which would be better to use on the lips? I have 100% medical grade lanolin (marketed for chapped nipples so its safe to be ingested by babies) or vitamin e oil which is known to help promote skin repair but I feel somewhat skeptical about using it.. i dont know. any advice? [End]
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i believe i got this from picking dry lips and overusing blistex. they stay on for about 2 weeks but at that point i am desperately trying tot trim them down and probably trim a little more than i should. I am getting the strip test done for allergies and after meeting with several demotologists/oral pathologists i have decided against the mucosal biopsy as even if something is founded chances are there will not be any suggested treatment.I have heard it was useful in one case though, search lamprene exfoliate cheilitis. someone was prescribed this drug after the results were found in the ...
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I have been leaving it totally alone for about a month now, crusts stay on for a while and turn very yellow then come off and nothing changes. I’m only 17 years old and cannot live with this. For the time being I am going to try and continue to leave the crusts on but trim them often apply vitamin e oil to them. Do you guys think I can still heal while doing this? please give your thoughts. thank you [End]
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there have been 2 things im wondering about. first, myself along with many other people who developed ec also developed fordyce spots, what worries me is that we have more of an issue than must peeling lips and karetin overgrowth. what if the fordyce spots (known to be ”clogged pour-like things in the lips) are preventing our lips from ever producing their own moisturizing fluid needed for regular cell regrowth in the lips. has anyone who did the ”leave it alone” method had fordyce spots and still saw improvement? i get the feeling all those people did not. i could be wrong.
secondly, t ...
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Hi Daniel,
Thanks for the video. I just want to say how amazing it is that you’re doing this. You have the ”classic” case of exfoliative cheilitis and this will prove to myself and everyone that there is a method of healing this. Many people are too scared to do the leave it alone method in fear that after all their effort it may not even work (myself somewhat included). The result you receive will affect many other people’s decisions in whether or not to go all out and leave it absolutely alone. [End]
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I am with you 100% that the natural way is the way to go, however it is extremely difficult for anyone to have to go thought this ”all natural stage” and as much as i want to be cured, given everything that is going on in my life now it is simply unbearable for me to go though this. I was wondering what your say is on using nail scissors to trim the already peeling skin off of the lips? I have minimized the use of lip ointment to twice a day (morning and before bed) so ive pretty much gotten rid of chap stick but i always carry around a small nail scissors and trim off the parts that have ...
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Sounds like u are in a very similar situation as i was, heres what worked for me..
stop using the cortisone, it will not help.
use protopic %0.1 (not .03) THREE times daily for 6 days, then switch to twice daily. I did this for 3 months and now my lips no longer get inflamed and even appear smaller due to inflammation subsiding, i have now lowered to .03 and if a ”inflammation breakout” occurs I am to switch back to 0.1. I still have the regular peeling cycle, skin turning white, dyness etc but no more inflammation
also, this is key, do not use any other lip products throughout th ...
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for me it is the only way to keep my condition manageable, it has gotten rid of the inflammation, peeling cycle still continues but with much less pain and i am able to apply the stuff twice a day and nothing else throughout the day. i do trim with nail scissors 4 times daily though. i tried stopping and condition went back to more dry, painful, peeling cycle however my inflammation seems to be permanently cured. i knwo theres risks of ”long term” use but i have spoken with Dr. Scuibba who is very knowledgeable in this field and he suggests i continue using a small amount for as long as i ...
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I plan on going on a hiking/camping tourf or 2 months and i was wondering if anyone had some suggestions on possibly folding scissors or really small ones or simply any advice on managing ec away from home. i plan on bringing my protpic which i usually use once a day and nothing else through out the day, however i trim them about 4 times a day [End]
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thanks for your response.
i had braces put in a year ago and i really felt like after having my mouth stretched so much the condition worsened, but i guess i have no choice.
one question - why did they put you to sleep? im pretty sure they are just going to give me laughing gas and pain killers/injections. i would rather be put to sleep [End]
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unfortunately i must have all 4 wisdom teeth taken out and they will be giving all sorts of injections to numb, etc. as well as having to stretch opened my mouth to get to the back.
I was just wondering if anyone could give there opinion on what to expect given my exfoliative cheilitis condition.
i remember when i had teeth taken out 8 years ago (pre ec) afterward my lip was all numb and puffy, they said this was expected from the needles
thanks [End]
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@KuNFuZed yes protopic compeletely got rid of the inflammation, but the peeling cycle still goes on. I used it 3 times a day for the first 6 days, then twice a day for the following 3 months, now i usually use it once a day. I no longer get inflammation on my lips. i used to be so inflamed people would ask why my lips were purple. also, while using protopic try not to use any other lip products.
@149911 i somewhat agree however the inflammation aspect of the condition is more easily cured than the infamous peeling cycle/skin turning white [End]
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first try 0.1 protopic 3 times daily for 6 days, then switch to twice daily. in the meantime schedule an appointment with an oral surgeon to have a mucosal biopsy, depending on the results you may be interested in considering Lamprene (taken orally) if inflammation does not subside using protopic [End]
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i agree leaving the skin on and letting it come off on its own is the best approach, however what about the whiteness for example after u come out of the shower or brush your teeth and the skin is all white if you dab a towel on it you can take off some of the white buildup while keeping the skin attached to the lip, with seemingly no trauma to the lips, and a thinner layer of unhealthy skin on the lips which still peels per cycle. what do u guys think? [End]
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I’ve been using protopic 0.1% for 6 months now, I understand there are risks in long term use however the stuff has completely healed the inflamation aspect of ec. Although i still have the yellow tinged peeling cycle/skin turning while with water, at least I dont have as much irritation and pain due to inflammation. Also, as long as I’m using protopic twice daily i find i usually done need to apply anything else to my lips throughout the day (this is a HUGE improvement from when i was using chapstick every 15 minutes)
input appreciated [End]
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I was wondering how i should protect my lips from the sun while on the beach (lying in the sun). I feel that regular sun screen wont stay on the lips properly and I want to try and avoid chap sticks.
I am currently using Hydrogen Peroxide 1.5% and Protopic 0.1% and I would also like to know if the sunscreen would interfere with my regimen.
Any help would be appreciated,
Thanks. [End]
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intended for feet. it says to apply on the dry hard parts of the skin.
”Contains 25% urea and other ingredients designed for optimal moisturization and hydration; Contains centipeda cunninghamii, a unique Australian herb clinically proven to have skin nourishing properties. Flexitol Heel Balm Is Also: highly efficacious with visible results seen in as little as 3 days; Non-greasy; Free of SLS and parabens; Enriched with pro-vitamin B5, vitamin E and L-arginine; Enhanced with exfoliating properties.”
I am making sure not to get any on raw skin [End]
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has anyone tried this? im starting it today, applying twice daily only ”buildups” or ”crusts” that form on both my upper and lower lips but not on raw skin since it will thin it [End]
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this is all just from what a user on another forum wrote, just wondering is anyone has tried this...
”My lipps did turn white at times.. They are back to normal still no problem right now. They turned white,peeled ,cracked..Im glad its all over with. I did not step in public unless i had to work..They did not turn white ll the time but it did look like i was ready for christmas.
This worked for me+++++
Ok i had my whole bottom lip peeling tried alot of stuff this had been going on for 6 month i finally ,finally found something that WORKED..
I first cleaned around my bottom lipp ...
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has anyone tried applying skin regenerating serum? i use this stuff for dry skin on my face and it works great, im gonna attempt to put this on lips maybe itll help the ec [End]
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"wax masking" your lips
dovonex
which active ingredients are less harmful?
please help advise me on sun protection
somewhat giving up the "leave it alone" treatment
having wisdom teeth removed