Great to hear that you’ve been cured! :) Thank you so much for sharing.   [End]
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WOW, how unprofessional.I hope to be a doctor one day despite my odor condition (going to be a pre-med in college next year) and I can promise I would never be this callous/cruel to ANY of my patients/colleagues despite whatever condition they may be suffering from. As a doctor, it is of utmost importance to be compassionate and understanding. Those jerks you refer to probably only went into their profession for the money. Sadly, this happens a lot more often than it should. . Don’t listen to them! Keep your head up. :)   [End]
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So sorry to hear that. :( Don’t pay attention to those a**ho**s. I’m in school right now, feeling somewhat the same as you (I also smell worse than usual today). Hope you feel better!!!   [End]
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Be as healthy as you can be. Exercise regularly, eat a restricted diet. It’s great to hear you’ve cleaned your diet up a bit. Try going on an elimination diet, cut out all processed foods and foods that are common allergens/hard to digest for a few months (I would take a multivitamin during this time to make sure you don’t become deficient in anything due to a nonvaried diet). Try taking the supplements colostrum and l-glutamine. I’ve heard that they can help heal your gut (don’t expect immediate results with these though). Many people that I’ve heard of who got their odor under control (e ...
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If you are on the ’Body Odor Cure Support Forum’ page with the list of posts, look to the upper part of the page, there is a ’Post New Topic’ button above the list of posts. Hope this helped!   [End]
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Yeah, I know right? There are these two girls in the back of my calc class that keep on making retching noises. I’m going to talk to the teacher to get her to move one of them though so that at least they can’t keep laughing together. People tend to make more of a fuss when they’re with their friends. At least journey2013 only has one semester left until graduation! Sounds pretty exciting. I’m graduating this year too, but I’m only in high school. :)   [End]
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THOSE ARE SOME SERIOUSLY MESSED UP PEOPLE RIGHT THERE. WOW. I hate when that **** happens. On another note, did you see a gastroenterologist yet? I would say this is a pretty important step- getting tested. If you have a lot of gas and diarrhea or constipation, I would ask to get tested for SIBO (small intestinal bacterial overgrowth). A colonoscopy would also be a pretty good idea. Parasites are also a possibility, so see if you can get tested for that (I’m not sure how this works though). If you also have a problem holding back gas (gas seemingly escapes and you can’t do anything to ...
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I would say keep up your diet and try exercising regularly (30 min everyday, 15 when you’re pressed for time as something is always better than nothing). Have you tried glycolax? I heard that works a bit differently than other things meant to stop constipation by cleaning the walls of the intestine as well. For the prolapse, you may have to see a colorectal surgeon to have that fixed. The white growth on your inner cheeks sounds a bit weird. That might be a fungus or something? Thrush/candida? What did your doctor have to say about that? Also, did he give you a reason for why the proctitis ...
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Everybody stumbles. If you mess up once or twice, it’s not really going to matter in the long run as long as you get back on track right afterwards. It’ll get easier and easier as time goes on to stick to your diet. And congrats on staying gluten free for so long. Keep up the good work (and update us on any changes you’ve noticed)! Best of luck. :)   [End]
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Yeah, my social anxiety is through the roof too...Cardio exercise kind of helps calm the negative thoughts when I’m at home though. I’ve also found that when I was going home after practice (when I was on the track team at school) I wasn’t as hurt by people’s reactions to me as I usually am. I agree that diet is usually also a factor in our conditions, but I understand that some of us are emotional eaters. Just try not to eat to feel comfort, try to eat to live. Have you tried cutting out dairy, junk food, processed food, alcohol, caffeine, soy, refined sugar, while adding in probiotics an ...
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I’m going off to college next year and feeling pretty terrified at the thought. Do you think I should try to take a gap year in the hopes of finding a cure (and taking a break from the hate) or do you think I should just go straight into college because after eight years with this condition it’s unlikely I’m going to get better (at least, not in the span of one year)? What was your college experience like (if you had this condition in college)? Any advice?   [End]
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I am half-caucasian, half-hispanic.   [End]
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Not necessarily true. Some people honestly just can’t smell the odor. This tends to be family members and close friends, probably because they are constantly exposed to the odor and their nose gets accustomed. The MEBO website has some possible explanations I think. But,I agree that sometimes people just lie to your face even though you’ve SEEN them react to you before. :/ There was a youtube vid I saw once by a couple of pranksters that showed that asking about bad smells doesn’t always get the most honest response (but the people being asked here were total strangers). http://www.youtube ...
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Throwing up blood sounds pretty bad! You should go see a doctor as soon as you can if this continues to happen. In the meantime (if it turns out you are generally healthy), I would suggest cleaning up your diet (no processed foods, junk foods, and generally problematic foods such as dairy or gluten). See if your symptoms improve based on your diet (give it a good four-five weeks of clean eating to see any effect). ALSO I would definitely recommend going to a gastroenterologist for testing (colonoscopy, stool, blood tests, SIBO test, tests for parasites). Who knows what they might fi ...
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I had a colonoscopy- they found bulky internal hemorrhoids and inflammation in the sigmoid area of my colon. My doctor has speculated that it’s possible I have a mild case of Crohn’s? And I know that inflammation in the lower part of the colon/rectum can cause gas incontinence. He said he will prescribe mild anti-inflammatory meds, so we’ll see how that goes (I don’t have high hopes simply because I’m pretty sure I have severe dysbiosis and/or candida to go along with the possible IBD just because usually even if people have inflammation there they don’t smell constantly like I do). I woul ...
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Yeah, I want to die but don’t want to kill myself. Just want to sort of stop existing before I have to go to college. . . It would be kind of nice if the world ended or I got a terminal disease or I just got hit by a car or something so my family doesn’t hate me for it. Truly though, I think afewmoreEXP has the right idea. It’s important to get out of this mindset. I’ve found that generally, I’m in a better place mentally when I do cardio exercises at least three times a week (obviously, I haven’t been doing that lately lol). You could give it a try? (It takes around three weeks for me ...
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I know you’re trying to be helpful, so I’m not going to take insult to this. I think most people are reacting to the ’you smelly people’ bit, which can easily be taken the wrong way (delicate issue here, try to be sensitive). It’s a condition that isn’t taken seriously by the medical condition at large and is often scorned by people that don’t suffer from it. The issue is a symptom that can be caused by a large number of illnesses/health problems so sadly there’s no one-size-fits-all cure, though I agree with you that diet is often key!   [End]
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Hi! Very nice to meet you, I love your positive attitude. :)   [End]
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Hey! Sorry, don’t have kik (or a smartphone, sadly), but if you want to talk you can email me/chat with me at marionette202@gmail.com. :)   [End]
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Wow, interesting stuff. I’ll definitely keep this in mind if I get a negative (getting tested for SIBO soonish). Also, what are your thoughts on vivonex plus? I was thinking on going on that instead of antibiotics, but I’ve heard it can lead to/exacerbate candida issues, so that’s got me worried. Thank you so much for sharing your research! :)   [End]
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Did you get tested for SIBO, cdiff, parasites? If not, I suggest you get tested. Also, have you gotten checked for structural issues with your anus? Gas incontinence is just a weak form of fecal incontinence, so it seems that there is something wrong with your anal sphincter (or maybe you have bulky or prolapsed hemorrhoids, anal fissure, rectal prolapse) allowing for the smell to pass through. A combination of one of the issues I listed at the beginning (SIBO etc.) and a structural issue could be the reason why you have constant leaky gas. It might also be structural issues combined with ...
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Wow, I love this. So true. :)   [End]
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Hi affliction! I’ve felt this frustration before, but know that there is always hope. I’ve met people that don’t mind the smell and genuinely want to hang out with me, so there ARE people out there kind enough to look past our issues and love us for who we are. And about finding love: there’s someone for everyone out there, just because it hasn’t happened yet doesn’t mean it won’t happen. I wish you the best of luck in life and hope you get everything out of it that you seek. Keep your chin up affliction!   [End]
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Hi! Where is the smell coming from? What are all of your symptoms? Thing is, some people have FBO coming from their skin (and/or urine, saliva etc) and some people have the odor coming from their rectal area (which could be because of a problem with leaky gas- you don’t feel it passing most of the time and when you do you can’t stop it from passing- AND/OR a structural issue- such as rectal prolapse, anal fissure, and perhaps even hemorrhoids). And about the family not smelling you thing- it happens to me too! Though my parents and sister swear they don’t smell a thing, strangers have ...
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Hello! I agree with corncob- you probably should have a bit of protein in your diet. I’d say that you can probably add in a little bit of baked chicken or fish (unless you’ve found that these give you problems). If you really don’t want to risk it for the first 30 days, maybe eat a bit of vegetable protein on the weekend. After the 30 days though, you really should add in some more nutritious foods, one at a time to see what is giving you symptoms. I personally don’t think you should keep the diet this restrictive for more than 30 days as it could take a toll on your health. That being sai ...
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:OOO Hope you’re okay! And don’t beat yourself up about the binge. Important thing is to get back on the diet. Sorry to hear about the accident. :( And as always: Best of luck!!   [End]
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Digestive enzymes are enzymes our stomach, small intestine, and pancreas make to digest food. Some people report decreased amounts of gas after using them/less pain/better bowel movements. However, not everyone gets results from them. I’m using some by klaire lab called vitazymes complete. It has a large range of enzymes (some like Beano don’t, so consider getting something more comprehensive). I ordered them online. http://www.whole9life.com/2012/09/digestive-enzymes-101/ this is a good link for general info about what digestive enzymes are etc. Good luck! :)   [End]
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Sometimes I feel that way too. But you gotta live for the good moments. What do you enjoy doing? Make sure you make time to do those things. Spend more time with friends or family that don’t notice/don’t care about your condition. Also, try your best to blank out your mind as soon as you get home- don’t dwell on what happened that day and try to forget about your FBO when you’re alone at home. *virtual hug*. Hope you feel better!   [End]
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Disclaimer: These are guidelines that I stick by, but food that are good or bad for you do differ from person to person. I’d say you can probably eat baked chicken and fish low on fat(like tilapia). Try to avoid processed foods and sugar in general. For vegetables, AVOID beans, cabbage, broccoli,cauliflower, try eating small amounts of lettuce and cooked veggies like steamed carrots and sauteed spinach. For fruits, bananas and apples can give you gas, try berries instead or papaya. I also eat mushrooms and quinoa. You could give those a try? Taking a strong digestive enzymes with your meal ...
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Hey mary88! Wow, really interesting post. My heart aches from reading this :( I have to say, I don’t think I have anything to tell you that you don’t already know, and since you are certain you have candida, you should resume the diet you had when you got rid of it the first time. Remember: If you got rid of it once, you can certainly do it again! Stick to diet and exercise, girl, just be sure and adopt it as a permanent change rather than a temporary one. BEST OF LUCK, MARY!!! :)   [End]
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My parents don’t believe I smell- for some reason they seem immune to it even though I’ve suffered for this condition for seven years (maybe they’ve grown desensitized to the smell)? I just confronted my dad about it after he said again it was just something I was making up. (strange how he picked today to say this as just today when I was walking home a total stranger yelled that I smelled like shit). Anyway, he says he won’t believe me until I get someone to write a letter saying I smell bad. I’ve been considering asking a teacher of mine if they smell me. How bad of an idea do you guys ...
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Yeah, you’ll find someone out there for you! Some people on this site have FBO and are married with kids etc. Don’t mean to sound soppy here, but true love is unconditional. I know you feel down right now, and I won’t deny that FBO can make things harder to get a relationship started, but if the person truly cares about you, they will love you FBO and all. To give you some hope: I’m not in a relationship, but I know of two people who have had crushes on me in the past two years. And I say this as an ugly, socially awkward 17-year-old. You WILL find someone who doesn’t care about your F ...
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You could try strengthening pelvic floor muscles? I’ve heard kegel exercises can help, but it can take months to see a change.   [End]
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HAPPY BELATED BIRTHDAY BhsiahRD and mary88! Don’t let some idiots ruin a special moment for you. Keep your chin up, girl. :)   [End]
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My FBO started when I was 10 (17 now). I had a decent diet when compared to other people’s, not much junk food, but I can’t say I was extremely healthy either. I took a lot of antibiotics around when my problems began though, so I think in my case that might have been the main cause.   [End]
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This might be really weird coming from a complete stranger, but I love you guys, this community, and zoogirl020’s enthusiasm. Totally infectious. :D I’ve been on a health streak for two and a half months now (regular exercise and cleaned up my diet a lot), but I can see I haven’t taken it far enough. I will try to wean myself off gluten now, however hard that may be lol and try to incorporate more supplements/digestive enzymes into my daily routine. THANK YOU! :)   [End]
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I can smell myself a fair amount of the time, but I don’t think I smell me as strongly as other people can smell me. Also, I mostly notice it when I’m in a room for a while and then I leave for a minute or two. When I reenter the room, I get a pretty good idea of how badly I smell.   [End]
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YES. I have terrible social anxiety- I sometimes even have trouble talking to my closest friends. Even posting this anonymous online message gets me anxious. It fluctuates though, some days are better than others. I’m currently a senior in high school and I feel like I can’t breathe on my really bad, panicky days and I go to the bathroom to cry because in my school the bathrooms usually smell like shit anyway so nobody comments. I really had to get that out there- thanks for the opportunity to vent. Stay strong, fellow sufferers! :)   [End]
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Yeah, happened to me once, my friend said my hair smelled nice after she hugged me- she sounded really surprised though (she probably thought I had a hygiene problem instead of a medical condition). It’s really nice to hear, even though I know it’s not true.   [End]
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(Also try cutting out sugar, fatty foods, and not eating too much fructose! Might make a difference with the volume of gas you have.)   [End]
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A very important first step is to go see a doctor and get tested. Even though we share similar symptoms, the cause could be entirely different, so my advice might not be very helpful. When I went to a gastroenterologist, I didn’t get any answers from my tests- everything seemed to be working fine. HOWEVER this might not be the case for you- perhaps there is a clear problem that needs fixing. It’s best for you to get your stool examined, blood tests done, and have a colonoscopy. You could have a number of things. Perhaps parasites, dysbiosis, SIBO, candida overgrowth to name some possible c ...
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Duuuude. I know FBO is hella tough to deal with, but drugs have a tendency to make things worse in the long run. Do you exercise regularly? Whenever I get stressed out/overly anxious because of a particularly bad day, I just come home and do tons of cardio. I usually feel a bit better after that. Also, try taking things one day at a time. Over the past 7 years I’ve had this illness I’ve become more an more skilled at having a selective memory, lol. As soon as I get home I try to blank my mind out and just focus on the task of hand instead of thinking about what happened that day. It’s impo ...
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I would recommend going to see a gastroenterologist. Some people have bad experiences with doctors dismissing their problems, but it can be really useful to get tested (maybe a colonoscopy and endoscopy, some blood work, checking for parasites, etc. just to make sure everything is functioning as it should be). Also, you mention diet changes, but how long is it that you’ve stuck to your diet? Some people say it can take anywhere from a couple of weeks to a year to see any real difference in the odor after dietary changes. A good number of people have seen some success with paleo diet and FO ...
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I know this is 26 days too late, but I wish I could teleport wherever you are just to give you a hug!   [End]
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I’m more of a lurker and tend not to take part in these conversations/discussions, but you’re definitely right. I’ll try to be more active! :)   [End]
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