I’m getting really fed up with this. I try to ignore it, but this stuff makes me feel terrible. How does one stay strong? This is unfortunately impacting (what should be) some jubilant, energetic years of my life. What’s also worrisome, is the long-term impact of potential carcinogenicity. I tested extremely high for inflammation, some antibodies, and mold toxicity.   [End]
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This is correct. Old post, sorry. My mycotoxin tests were high. Fungus-related injury. Dictyostelium discoideum is spot-on.   [End]
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Sorry you’re dealing with this too. It’s one symptom then the next. Use essential oils, silver gel, for your eyes. Q: Do people not notice all of this crap externally in their sheets, on surfaces? It’s totally messed up. The movement is what causes the ”feather dusting” on your body, whillowwhite. No one talks about it, probably worried about DOP. The stuff in my body is almost less scary than seeing the same tiny movements in my sink. One has to really look at fibers, specks, after you’ve washed. Makes me think I can never eradicate the issue. It’s not just in us; it can ...
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I have a colonoscopy scheduled this week. I have the lot of specimens- fibers, mold, hair worms. Many appear from rear end, amongst everywhere else... Will any of this come to play in colonoscopy, EDG with biopsy? Have had digestive issues since I’ve been sick, in March.   [End]
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I mentioned in another post, but I really suggest getting the C3, C4, C4a tests done to get some credibility. This road will present many battles.   [End]
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I will message you. This is a really bad infection. I’m starting to figure out how serious, and possibly carcinogenic, my illness is. I worry as we have the same localized areas are affected, near ears, sides of face.   [End]
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They can cause serious damage to your eyes. You know how badly they hurt in skin, the eye is real-time. I had a few in my eye, at the beginning. Take care with your face.   [End]
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I suggest eating it after dinner or before bed. That way, you can shower off before heading out the next morning. The fact, that it’s getting through your pores, is great. I made the mistake, of getting on an airplane two hours apres garlic feast. Rank.   [End]
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You’re not delusional. Sometimes, I wish we were. It’d be easier to treat.   [End]
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It’s incredibly hard, but relax. Negative thinking will not get you anywhere. I know this well. Cry, wail. Then, act. I have gone through this, and, unfortunately, am not cured. Mine started late March with the rash, eyes. Q: Do you have hypopigmentation spots, among all the other rashes and lesions? I have gone to Cahill, Yu, and about 12 other doctors. Your stools will be negative. I had about 10-12 different travel diseases tested. Negative. COMMON HISTORY: Exposed to muddy water, fill dirt/sand, mold, from a renovation, excavation. Very sick after water leak from old ...
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This doesn’t answer your question, in full. But I offer some advice, as I’ve taken these: You don’t need the Tinidazole or Ivermectin compounded, if you were somehow pressured to do so. Doctors like their pharmacies, but these are manufactured by Bayer, etc. W.wood, or other supplements that offices push, is available anywhere.   [End]
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Well, at least someone is pulling out a microscope.   [End]
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It’s so strange; this has largely affected my back too. Crawling downward happened first only every 3 weeks, then, everyday. I thought pinworms, but then it nearly crippled me for a few months. It’s incredibly strong and large/long. I broke it up a lot on my back, with oils, medicine, sun. However, if I slack on diet and medicine, I feel it again in there. I again don’t know if it’s parasitic or fungal. Truly, back was the worst pain, along with eye intrusion. I considered a herniated disc, as I used to run. It’s not that. It’s in my tissues.   [End]
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I was on it from prescription, and from Pin-X, for weeks. It certainly helped with GI cleansing, but my illness is disseminated. I think it helped a bit with the stings on body. I’m no longer taking it. I still get several stings a day, mostly on lower limbs. It’s often when I’m putting coconut oil on upper body, these things literally fall and sting. It’s not nerves. I tested fine for that.   [End]
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It’s going to get worse if you don’t treat right away, with vigilance. This is how mine started. It may be toxic mold or parasites. Get on antifungals and antiparasitics asap. Do garlic cloves and oregano oil drops if you can’t get an Rx. Be religious on low carbs. I literally have doctors now saying I have parasites and toxic mold, on the same day. It’s bad. And it hurts. It’s not lupus or other autoimmune stuff, but it will start to look like it in labs.   [End]
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I get these as well. Had them for months. I don’t know yet. They have been negative on almost ten travel-related parasites, regular ova tests. I think you, whillowwhite, rahel, and I, have overlap (at least) in infections. There are plenty of others, but I noticed your messages with most symptoms similar to mine.   [End]
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WW- I’m so glad you’re making progress. Keep posting! Yu doesn’t know much, but he prescribes. I get that. I am currently taking ALB, but it’s not working as well as when I was first prescribed it - in MAY. Now, I’m now really sick. I’m on a consistent dose, and from what I read, I’ll need to be on it for months. Two of the most skeptical doctors prescribed it, on the same day. At least there’s that. Getting more tests done because I have a high toxic infection, with c4a at 9400, complements low, antibody tests higher. I have not been given any oral antibiotics or pure a ...
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I started with those symptoms. I also thought mice have contributed. I had mice in home I was renovating. I got rid of them quickly, but their droppings remained within walls. Construction exposed those, along with mold. I then had a water leak, with bathroom water running over the contaminated joists onto my kitchen island. I got sick two weeks later. Rodents and droppings are full of nasty diseases. Most any CDC flowchart shows them involved. I still do not know what I have, but I’m in a world of trouble.   [End]
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I too have this. Stings like hell. I’ve dropped my phone, from a sitting position. I also limit driving, as my legs jerk when stung. I have a really strong batch. It may be due to the fact I was given steroids, minimal anti parasitics, and then an immunosuppressive drug. I totally got screwed. I’ve tried the shop with medicines, doctors. If you’re early, Albenza may do the trick. Eat garlic cloves, bone broth. If doctors wait too long, it’s a real nightmare. At least, you’re not alone.   [End]
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Keep carbs, dairy, gluten, moldy foods, low. I can’t speak to ACV anymore, as the fermentation will either help or hurt, based on specific condition. I used to drink ACV straight, drink kombucha, eat yogurt. However, I may have been feeding the beast. Fasting a bit doesn’t hurt, but I am guessing your body is starved of nutrients already. Only do it intermittently, for short periods. Best of luck to all.   [End]
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It’s a spore-forming parasite. Fungus and protozoa.   [End]
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Don’t lose hope. Easier said than done. But here’s a throught: I need you. I have your symptoms. It’s a tragedy. When I heard you have Medicaid, I also understand. This is the parallel tragedy to discuss, when we are well. Get your c4a and c1q IGG levels checked (like from a rheumatologist). That’s your best bet to get minimal help in large hospital systems. Say you have terrible joint and muscle pain, which you do. It’s not lupus. But get those markers, along with complement tests c3 and c4. I would not suggest going on an immunosuppressive drug, until you have many professio ...
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Same issue, with skin-eating something along jawline, neck. Not sure if it’s parasites. There is movement, but I am finding relief with antifungals right now.   [End]
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Any mold exposure? I’ve been dealing with many similar symptoms. Thought parasitic, but could be fungal. Could be both, as parasitic fungus. Throat, anal, could be mold in your sinus and growing in rear. Gross, I know. I thought I was overly clean. I’m 31, so I feel you.   [End]
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Coconut oil on eyelids was safe for me. Suffocate/kill the infection. I had these ”things” on my face, start in my eyes. I try to protect my eyes from the burrowing, but my eyesight is still affected. I thought I could go blind with the trauma. Best was coconut oil and colloidal silver gel.   [End]
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Do not stop at an autoimmune diagnosis. Pursue antifungals, in moderation. The die-off (sporing) of mold is releasing more toxins. I felt electrocuted, as if my entire body were in a short circuit. It lasts for hours. Cahill first diagnosed me with whipworm. But when I told him Ivermectin and Albenza didn’t treat it, he wanted the specimens tested. I have wads of what I thought were worms. They couldn’t identify them. Cleveland Clinic specimen ID said decaying vegetable matter and insects. This is consistent with mold growth. Whatever it is, it is alive and well. But I th ...
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You can take your specimen to outside, independent lab. Quest or LabCorp, do stool ova tests. Getting a specimen review is more difficult.   [End]
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Possibly mold/fungus. I’m looking into this myself.   [End]
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WW, Same! We have to have the same thing. My rear is so bad. It became problematic a week or two ago. The infection actually came to the surface. It looks like worms or fungus, when it ”rears” its head. ;) I was prescribed Albenza again, by the most skeptical of doctors. It’s quite physically apparent, they can’t ignore it. I saw Yu, along with Cahill. I think this may be protozoan parasite/fungus. It’s gone from bad to worse. This is terrible.   [End]
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My history and travel are similar. Albendazole helps. I have vibrating in my rear and thigh right now... My travel disease tests are coming back negative, but c4a and c1q antibody, 9400, and 54. Normal is 0-2800, 0-19, respectively. It took me 7 months to get here. Start looking at those tests.   [End]
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This is how my problem surfaced, with eyes, movement, piercing photosensitivity. Light coming in drapes burned my eyes. It was insanely painful. I’ve had metal in my eye, from hanging a chandelier. This was 40x worse. Opthomologist saw my corneas were sloughing. Thought I had SJS. It wasn’t. Topically, I used colloidal silver gel for some relief. Also, coconut oil helps to suffocate or move them to corners. They hurt more within eyelids, in my experience. Protect your eyes. When they get nasty in there, it’s impossible to see, do anything but cry.   [End]
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Also, even a little reluctant to post on here, but what the hell is this demon darting on my bedsheets? I know I can’t be the only one seeing tiny worm-like things, thrashing around. Are these protozoa? It’s very messed up. I am honestly trying to entertain all possibilities, including mold. But I don’t know mold that moves this rapidly. It’s flickering on the top of my skin as well... it’s like a racing larva currens. I can see the tiny, worm-like imprints.   [End]
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Agree. Slowly bring up prescription meds. I have felt as if I would sincerely not make it through to the next morning, many times. I couldn’t take the full, but minimal, dose of Albenza prescribed. Reaction was intense. I may be hyper-infected. I was given steroids multiple times, then an immunosuppressive drug. Terrible negligence. Just terrible.   [End]
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I have been deeply affected by the terrorizing pain and movement. I believe I experienced anaphylaxis. Mast, tryptase, levels show constant reaction. It’s shocking, literally. You may want to get those checked out. Blood resulted a C4a ~9400, today. Range is below ~2400. I was negative for Lyme, twice. This test indicates something toxic going on. I have been detoxing for months, so I can’t tell if my body is any better, numerically. Anyways, it’s yet another spot in this growing constellation.   [End]
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We’re in this, together. You are not alone.   [End]
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I haven’t scoured all the internet, but I have not seen anyone come back with a positive stool result.   [End]
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I’m hypopigmented as well. ”Insect and decaying vegetable matter” resulted.   [End]
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Visited Cleveland Clinic as well. Total ineptitude. They have a lab; doctors only present results. Insects in skin are ”normal”. An outside doctor said CC wrote off another patient with similar symptoms. Don’t go there, guys.   [End]
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A doctor, unfortunately.   [End]
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Thank you. How is one to sleep, while preventing this sh*t from entering your eyes? It’s the worst piercing when it spreads to ocular area, eyelids. I couldn’t speak through eye pain. Placed medical tape on face to prevent the movement. Sounds delusional, I know. I’ve used the shop in OTCs, but will follow your suggestions, in combination. This is 80% more difficult because it’s on face.   [End]
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In my face. Started in my face, as an excoriation. Now I have cavitated white spots, lines imprinted, on cheeks. Some say the original red cut could be hookworm skin entry. Cross-infection is common. My symptoms line up with everything, unfortunately. My specimens line up with nothing labs recognize. Have you had any success?   [End]
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Touche. These are almost all of my specimens. My specimen results were, ”insect parts and decaying vegetable matter”. Somehow, doctor is OK with insects and decaying vegetable matter in my skin. But this is not normal. I get those green ones, too. I hadn’t seen anyone else post about them, so I hesitated. I didn’t place them in specimen jar. Most unnatural ”secretions” are rare, neon red and blue. I have had some fluorescent dots of blue on my soles. Generally, my soles have tons of these things. It’s wild. How are things now?   [End]
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Rahel, Any other tests done? Any indications? What symptoms are you suffering? I presume similar, posted in thread, if you’re replying. Did you travel, have contaminated soil, water, mold, exposure? I had all, so can’t pin down the onset, yet. Update: Saw your post history, I am going to read. I wish this were more organized.   [End]
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WW, How are you? I’m evermore symptomatic. Bloodwork, (antibody, others), is increasingly looking autoimmune. I am racing against the clock, before I succomb to treating symptoms, for life. Traveling the country to find help. I am so tired. I’m 31. A doctor did express genuine concern. Concern was that we may not have the technology to figure this out, at this time. This is the most honest acknowledgement of limitations. You, I, and thousands of others, must genuinely fight - for the only path, for real research.   [End]
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1) don’t know any source 2) foreign ALB is not as strong as Glaxo Smith Kline ALB 3) pony up, if you are to find it 4) don’t list sources publicly, as we don’t want them shut down 5) message me, if you source   [End]
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Smart dust, you around? Got so sick that I couldn’t muster the energy to reply. I read your messages four months ago. I have the same puncture holes, but in back. My hair is long, but I believe some migrated to rear of head. They only approached head about a month ago, (six months in). I, too, thought parasitic wasps, flystrike, or leishmaniasis. I suffer stings from hell and cavitated ulcer-like spot(s). Was tested for many travel-related diseases (blood), but not leishmaniasis. However, I had been on antiparasitics for 6 weeks when I tested, negatively. One has a single shot ...
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I am with you; it’s crippling. This infection/disease is more prevalent in tissues than in GI tract. May be flystrike. Do you have occasional vibrations, stings? Attacked my spine, neck, knees, among other joints/tissues. Let us know if you find any relief. I found Albenza most helpful. Doctor refused to refill a minimal prescription.   [End]
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Willowhite: ///// PREFACE ///// First and foremost, I want to assure you, this is not in your head. I say this, figuratively. The journey is hard to keep short, but I have been suffering with this for over three months. I can’t cover all info in one shot. Frankly, this ailment takes life out of me. I hope it’s not permanent and that we can get some answers soon. I’m working on it. On this, if doctors would like to see me or inquire, I’m responsive. I have traveled to Chicago, Cleveland, and New York, thus far. ///// NOT ALONE ///// There are many paining, in the ...
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