Having the Mirena caused a massive imbalance in my hormones for me and for many, many women on this forum - no doubt about it. Having it removed is the only way to try to correct this, but the removal is also upsetting to the hormones because that synthetic progestin is removed. If you look up the symptoms of ”hormonal imbalance”, I’m sure you can find everything you’ve listed in your post. Our hormones affect EVERYTHING. So, it’s a matter of patiently waiting for the hormonal swings to even out over time. This is why things can get worse before getting better. Some women hav ...
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I had adult acne my whole life. I was on the pill until I had the IUD placed and had the acne during both of those birth control forms. Strangely enough, even though my health fell apart with the IUD, my skin cleared up for the first time after it was removed. I am about 4 1/2 years post removal and my skin is still perfect. So, I guess anything could happen. I think my body likes being artificial hormone free. Good luck!   [End]
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Wow, you’re symptoms are so, so similar similar to the ones I had. I am much better now at 4 1/2 years post removal, but it took me some time, and I still have some lingering symptoms. I’m glad you have it out. May your recovery go smoothly! Don’t be alarmed if sometimes things get worse, or if symptoms go away and then pop up again, or if something NEW comes up. This is normal. But overall, over time, you should improve. Good luck!, Diana   [End]
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It might be best to expect bad side effects (not trying to be negative, but realistic) and brace yourself, knowing it is part of the healing process and will only lead to improvement in time. At least on this site you can ask about new things that pop up. Every marriage is precious, and it is worth fighting for.   [End]
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I am so sorry! I have read posts on this site over the last 5 years by other husbands saying almost the exact same words!! I have no advice to offer except to say that I do hope she can have it removed somehow and that your marriage will survive. Best wishes.   [End]
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I used to be very active on this site when I found it in 2009. I’ve had the IUD out for about 4 1/2 years and am doing much better. In a nutshell, back in 2009, the Drs. thought I had MS or lupus. I was very close to dying, I felt. I don’t post here as much because I’m just so busy with life again and am feeling better - 75%-90% better most days. I still have some lingering symptoms that come back, especially during cycles and ovulation, and some days/months are better than others. I don’t know if I’ll ever get fully back to normal, but I’m am functioning okay. So! I had the e ...
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Thank you for sharing! Some people bounce back pretty fast, and some do not. I was one who did not. But it’s important to remember that it can be fast and easier for some. I am over 4 years post and much, much better. I wish I could say my hair has grown back, but it hasn’t. It’s not falling out as much but still getting thinner and thinner. Sigh. But I don’t feel like I have MS anymore, which is a huge relief, although I do have lingering symptoms of that which come and go, but are much less severe. Keep healing everyone! Diana   [End]
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Yes, there is hope! You’re on the right path now. But don’t be alarmed if it’s 2 steps forward, 1 step back. I had some crazy new symptoms that popped up AFTER removal when my hormones were in upheaval, and some issues that worsened, and some that went away. But I am 4 years post removal now and doing much better. Every year has brought improvement. Some people bounce back quickly, and some take longer, but having the IUD out is the first step. It can be a roller coaster ride, but hang on and you’ll get through it just fine. Take care! Diana   [End]
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I am just over 4 years post removal. I am still not back to normal but doing much better than I was during my first 3 years post removal. The first 3 years were especially rough. My symptoms were largely neurological, along with fatigue. I still have good and bad months, but I have entire days where I feel pretty normal and can function well. My remaining symptoms are muscle twitching, spacey head feeling, headaches, some dizziness, sleep problems, muscle weakness, shakiness/lack of coordination, random achy/sharp pains. All of these used to be much worse, and I used to have many mor ...
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I’m glad the IUD is out for you and that it’s over :) I bled off and on after the procedure for a few days, but I think that was from the removal, not hormonal. I think I had a regular period about 3 weeks later and have been pretty regular for the last 4 years, although my cycles are very heavy for the first couple days and then taper off sharply. I rarely have a full week of bleeding, which was never normal for me before the IUD. I am 42, so perhaps I’m perimenopausal as well. I do have rough times where my dizziness/spacey head feeling comes back, along with pain in my wrists a ...
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You described your symptoms and story very well! I also have had most (truly almost all) of what you described. My reaction was heavily neurological. Nile gives the best advice, and I can’t really add to her thoughts. I am 4 years post, and still not back to normal, but getting closer. In general every year has been better, but I still have some difficult times (this month for example). Reading your post brings back a lot of memories. My IUD was floating in my uterus, and it was a huge mess to get it out. I hope you can have yours removed very soon. This forum is not hi ...
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I had a lot of nausea issues for a period of time too, and I believe it’s all related to the hormone fluctuations. You were right to have it out, but sometimes recovery is rocky while the body tries to rebalance. Sometimes new symptoms can crop up. It can be a real roller coaster. Just hang in there! There are so many women who can relate to what you’re going through. Keep posting! :) Diana   [End]
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My levels are always around 35, which my Dr. says is fine. That result came after months of taking 2,000 IUs a day and being out in the sun. Yes, I’m anxious to hear how she does with the supplementation. Thanks again! Diana   [End]
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Yippee!!!!!! This is the best news ever. I think I’m going to increase my vitamin D dosage. Do you remember what her levels were? Thanks for the report! Diana   [End]
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Many of the women on this forum (including me) have had severe autoimmune and neurological reactions to the Mirena, along with massive hormonal disruption. I have had mine out for almost 4 years and am still not back to normal. Please consider having it removed just to protect your health! And feel free to spread the word. BTW, many doctors refuse to acknowledge the damage the IUD can do, although there are some who do. My Dr. tried to talk me into keeping it, but my instinct told me something was wrong. My body was not happy with it, even at the beginning when the symptoms were easy ...
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Same old things for me. Not too bad, but I’m in my better part of the month :). I’m having trouble with insomnia again, but I know it will get better at some point. I feel like I’m stuck at a 60-80% recovery (depending on the day) but hoping for better days ahead still.   [End]
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I think about her a lot too, Cynthia.   [End]
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Have you ever tried one of those ovulation kits at the store? I’m not sure how they work, or if imbalanced hormones would skew the results. I used one many years (pre-Mirena) ago because I thought I wasn’t ovulating either, but I guess I was. Just a thought :)   [End]
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I remember you mamaj! You were a regular when I first joined this forum years ago. Great to hear from you again. I hope you are well.   [End]
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My first couple years of recovery were definitely NOT up to par. I was in survival mode, trying to keep it together as best I could. Very hard on my family and children. Doing laundry or making dinner was a major accomplishment. We ate a lot of cold cereal and toast and had not so clean clothes many a day. I’m sorry - I know it’s so hard and frustrating. Diana   [End]
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Could it be a muscle twitching thing? I’ve had muscle twitches just about everywhere I think, and I think I’ve felt them in that area before. I’ve got them quite a bit right now as I get close to my period. Feeling spacey and uncoordinated as well. Are your other symptoms worse right now too?   [End]
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Interesting link. Thanks for posting! It reminds me of what I’ve been studying about cultured foods lately and how they increase the good gut bacteria which help our body make serotonin. Cultured/fermented foods (veggies, kefir, kombucha) might be a good thing to try for people with mood issues. I love this website: culturedfoodlife.com   [End]
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I agree with nomirena: have it taken out before things get any worse. I did have joint pain and tendonitis, and many others have as well. The tendonitis and joint pain (mostly my left ring finger) were 90% improved within a month or so of removal. Please let us know how you do! Diana   [End]
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(I tried to post this response earlier, but it didn’t work maybe. Sorry if this is a duplicate!) I actually felt like I got worse after removal for a couple months. Some symptoms backed off a bit, some continued without change, and some new ones appeared. My whole first year was a nightmare. A quick recovery after just a month is not the norm, in my opinion, even though some women do bounce back like that. Every year has been better for me in general however. Before the Mirena, I had never had any illness other than an occasional cold, a flu during one pregnancy; that’s it. Noth ...
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I actually felt like I got worse after removal for a couple months. Some symptoms backed off a bit, some continued without change, and some new ones appeared. My whole first year was a nightmare. A quick recovery after just a month is not the norm, in my opinion, even though some women do bounce back like that. Every year has been better for me in general however. Before the Mirena, I had never had any illness other than an occasional cold, a flu during one pregnancy; that’s it. Nothing that a week of bed rest wouldn’t cure. To be sick day after day, month after month, is maddening. ...
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I agree with EVERYTHING Cynthia has said on this thread. She and I have had similar reactions and are both still trying to get well. Like her, I truly thought I was dying when I began to react severely to the IUD. My family thought I was dying. My symptoms were heavily neurological. I was tested right away for MS. I was sure I had either MS, Parkinsons, ALS, or a blend of all of them. Absolutely everything you are experiencing sounds like a typical IUD reaction. When I first found this forum, I started reading old posts and threads especially from women who were having similar kin ...
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Interesting idea!   [End]
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Many of the women here have normal hormone levels when tested, including me (after over 3 years post), and yet my symptoms are very real and hormonally related in some way. I try not to wonder why anymore and just move on with my life. I don’t feel good about doing any kind of hormone supplementation either, even bio-identical or just prog. cream. My cycles are always 26-28 days long too (although the last couple months have been over 30 days long for some reason). Is seems to be common to have just a couple days of heavy bleeding, then tapering off - like a half period and that’s it. ...
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You have some great suggestions. I’ve also tried some homeopathic remedies that often help (some nights can’t be helped by anything it seems): Calms Forte, Calc. Phos cell salts. Hyland’s also has an Insomnia remedy, but I like the Calms Forte best. Sometimes I take a capsule or two of Glycine by Source Naturals (a calming amino acid). I keep all these things in my nightstand because it’s a common need for me ;) Keep posting and take care, Diana   [End]
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There are no words I can say. I am in tears. I am so sorry. With love, Diana   [End]
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It was delightful to read your update :) It gives us all hope. I can relate to being willing to try anything, and buying many things from the helpful health food store that I didn’t need either. I agree that time seems to be the necessary thing. Also, I noticed steady improvement as well once I could start exercising more heavily. That was a rough transition, as I didn’t start exercising because I had any extra energy or felt well enough to do it, but rather because I was desperately hopeful that it would help me to feel better. I remember coming home after going out on my fir ...
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It’s lovely to hear from you, Nile! What a great report. Gives hope to us all who are struggling. Yes, running has helped me tremendously. I had to give it up during the long, cold winter we just finished here, but I’m slowly trying to rebuild my strength again. I am 4 1/2 years post; maybe my next 6 months will be better too. Thanks for posting! Diana   [End]
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I agree with Cynthia. So many strange and worrisome physical symptoms can happen with this IUD. It helps to have tests done to rule things out, so you can have peace of mind. I’ve worried about so many diseases, it’s ridiculous. I can list over a dozen major diseases I’ve been sure I have. I still wonder on some days. Take care! Diana   [End]
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Hi Friend :) I know you’ve had lab work done over the last few years. Were your iron levels generally high? I know that when I started exercising last year (more than just my regular work around the house) by walking/jogging, I found that my housework made me less exhausted and out of breath. It was like my heart became stronger by really pushing myself, so the daily things weren’t as taxing. During my first year or two post IUD, I spent so much time in bed, doing so little, I think my body became very weak. I don’t know. Maybe heavier exercise would be too hard on you at this point ...
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I have no doubt the Mirena can do to someone what it’s done to you (both of you)! My symptoms were a bit different (anxiety was mild but I had most of the symptoms of MS), and my hormones were considered ”fine” by my Dr. I had several hundreds of dollars of lab work done, plus a brain MRI, and it was all normal. I was a mess for many months, almost incapacitated and in bed much of the time for the first year, but I felt definitely better every year. I am 3 1/2 years post-removal and doing much better. Many people less time to recover. There is a huge array of symptoms that can c ...
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Good for you! Keep us updated. :) Diana   [End]
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I think a lot of women in their 40s have been pushed closer or into menopause by the Mirena. It certainly upsets the hormones, so it’s no wonder it’s confusing. Not fun. Take care! Diana   [End]
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I do have some issues with numbness, but not really connected to that searing pain. In fact, it usually hits me in the evening when I’m in bed or sleeping. It has awakened me before. Last night was fine though, so I’ll take things a day at a time :) Diana   [End]
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Good question. I really have no idea. It might be best to use another form of control for a few months to be very sure you don’t conceive right away. The IUD can cause some severe hormonal imbalances. Not a good way to start a pregnancy even if you did want to conceive right away (which you said you don’t, of course). Maybe use condoms for a couple weeks before you try to remove it to be really sure? I’m sure someone else can give you a better answer than this :) At any rate, I’m glad to hear you are having it out. What issues are you having? Take care, Diana   [End]
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Interesting link, Cynthia. Sometimes I start increasing my dosage when I’m feeling worse with my symptoms, but sometimes it seems to aggravate things . I can’t always tell. I had my levels checked last summer, at the END of the summer when I had a nice tan after being in the sun frequently. I had also been supplementing with 2,000 IUs a day. I was worried that I was too high, with all that sun exposure as well. My levels were only 35. They were 32 before with no sun and no real supplements. So, with all that work, I only was able to raise them up 3 points. I would be more aggressiv ...
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No, I’m about 3 1/2 years post-removal now. I’m so glad to be where I am now. I remember how hard that first year was though. And I am one who has had a rough time for a good 3 years, although each year has been better than the previous. Most women don’t take as long to recover fortunately. I would that in general, I am 70% back to normal. Some days are as good as 95%. Most days are 85% or so. Some are 60%. But the worst days are not as bad as they used to be, and they are not as frequent. :) Diana   [End]
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I’m so sorry - I know where you are. I didn’t have blood sugar issues as much, but I did have some during my first year. I had other neurological problems that were frightening and debilitating. You are on the right path, and you will improve, but it CAN get worse before getting better. It happened often to me. I don’t mean to scare you but to assure you that this is typical. I remember thinking, especially in the first 3 months, that things should be better now that the IUD was gone from my body, and yet I thought I was dying. My husband felt I was dying and was very upset. I hid ...
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A throbbing pain in my upper right calf was one of my first symptoms before the rest of my health fell apart. It was in a fairly small area of my calf. Since removal, it’s been better, but it does come back from time to time (I am over 3 years post-removal). I feared it was a blood clot for a long time. Nothing surprises me anymore with this Mirena stuff. Weird symptoms can come and go and pop for the first time MONTHS after removal. This has been my experience. I don’t even want to talk about RLS. It was an issue before removal, and has continued to plague me since. I do have e ...
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Your symptoms are such classic Mirena symptoms! I also stopped my periods - probably a few months after insertion. I spent about 1 1/2 years without a cycle, although I had frequent spotting during that time (not enough to call a period). I had about half of your symptoms and many more. My reaction was quite severe. I don’t know if there is a correlation between severity of reaction and presence of cycles. Good question! Glad you found the forum and have it removed! Keep posting. :) Diana   [End]
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Hugs to you too, Cynthia! I’ll always be here for you. And if I ever fully recover and feel that it’s time to leave this forum, we’ll find another way to keep in touch. But since I’m NOT fully recovered, I still lurk here in the shadows... ;) Love, Diana   [End]
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Congratulations on being on the road to recovery! It is normal to have lingering symptoms after removal. It is also normal to have new ones crop up for the first time, and old ones which get worse. But overall, you will improve. For most of us, it is a 2 steps forward, 1 step back process. I had some months that felt like 2 steps forward, 3 steps back! But overall, there is improvement. I say this only so that you can be ready for anything that comes. Since you’re in your first month of removal, anything could happen, and the coming months might have a lot of variety for you. I ne ...
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I haven’t really had the problem with my arms, but definitely with my legs, especially my right. Right now my arms are shaky and hard to control, but this is normal right before my period. It also makes my hands weak - especially my thumbs. It affects everything I do with my hands. Are you having regular periods? Where are you in your month, if I may ask? I’m sure you’ll be fine! Hang in there - Love, Diana   [End]
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What a great post! Thank you for sharing your story. I am so happy for your recovery! Diana   [End]
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I think it’s okay and important that you keep posting, Cynthia, even if you’re still struggling. We care about you, and you’re not the only one with a long recovery. Just do the best you can. It’s so hard to be patient. It’s been a long winter. Here’s to hoping for better days in the spring for all of us!! Love, Diana   [End]
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That’s for sure!   [End]
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Nile and Melanderso, thanks for the update. I wish the best for you ladies in your continued recovery! I always look forward to your posts. I’m hoping Cynthleal will recover soon too since having her post-Mirena baby. It’s amazing how long it can take us to recover. I was 3 years post last November. Still plugging along. Take care! Diana   [End]
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Yea!!! It took me about 3 weeks to start my first cycle, FYI. There are no rules, and if there were, our bodies wouldn’t necessarily follow them. :) Diana   [End]
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Oh, Cynthia. Do you think your hormones are shifting in a big way? Has your baby weaned or in the process of it? I would believe that shifting hormones can do anything. Especially if you’re having panic attacks. We old-timers are ready to be done with this. As I’ve told you before, this fall and winter have been hard on me too. So many symptoms worsening again. I’m so sorry!!! Hugs, Diana   [End]
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I was wondering the same thing Cynthia!   [End]
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Strange - I’ve had the knuckle pain with some swelling. Only my left ring finger. It started long before removal and then improved after removal, but recently flared up again. Always that same knuckle. Just one. Weird :)   [End]
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Dear Megs, I’m so sorry to see another Mirena victim! Having the IUD removed is generally not a big issue. Acne/chin hair are classic hormone imbalance issues. It’s not surprising that you have both. Please, please get the IUD out ASAP and PLEASE PLEASE never have a new one put in. There are other women here who can add to this advice. I’ve got the flu right now, so I can’t say much more at this point. Keep posting, Take care, Diana   [End]
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Your symptoms sound very Mirena-related. I did not experience the lumps, but did experience most of the others. Honestly, I would say that just about any strange, new health issue that shows up after having the IUD placed could be related to it. If you’re having more than one strange issue, then it’s even more likely. If you were someone I’d just met, and I learned you had the IUD and did NOT have any problems with it at all, I would still tell you my story and beg you to have it removed. It’s just not worth the gamble. I think every woman on this forum would agree. Keep posti ...
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I’m cheering for you! So glad you’re having it out. I wish you the best and look forward to your future postings. :) Diana   [End]
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It is so hard to start feeling worse after feeling better. And yet, I could have written your words. I’ve experienced such similar issues with a similar timeline (I’m 3 years post removal now), and I was still a mess at 4 months. I thought I was still dying, and I’m not sure I’d had any real improvement, even for a couple weeks, at that time. You’re on the right track - just hang there. The good times will come back! Take care, Diana   [End]
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It’s so refreshing to hear about a Dr. who acknowledges the damage this device can cause! I am happy that you’ll be getting it out and wish you the best in your recovery. It might take time, but you will improve! Keep posting! Take care, Diana   [End]
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Thank you for sharing your story! I appreciate all the detail. I wish you continued success in your recovery :) Diana   [End]
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I’m sorry I don’t have any specific advice, but I want you to know it will get better! Just grit your teeth and hang on. As your hormones start to rebalance, you’ll have good days (and maybe some bad ones), but it will get better overall. It doesn’t surprise me that you developed new symptoms AFTER removal - it happened to me too. But you’re on the right path now that it’s gone. Even though I would start to feel worse during my periods, I learned to welcome each cycle because I knew it was a chance for my body to rebalance. Eat well, drink a lot, sleep as well as you can, and just ...
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I didn’t really react to foods with the Mirena, but I did start reacting to metals for the first time in my life. I couldn’t wear earrings especially. It only started to improve once the IUD was out. Now I’m back to normal (3 years post-removal ;). Take care!   [End]
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I’m sorry! I know that the doctors will swear until the end that the IUD can’t cause your issues, but trust your body and your instincts. I had my IUD out 3 years ago because I was having a whole range of frightening, bewildering symptoms (heart problems, joint pains, extreme fatigue, and some other neurological issues). AFTER I had it out, I developed problems with my blood vessels (similar to Raynaud’s) which was a brand new symptom, as well as lymph node pain in my armpits, just as you described it. I also had swollen glands in my neck. I also developed severe shakiness in my whol ...
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I’m so glad you’ve had it removed, and that you’ve found this forum! I believe I’ve heard of sinus issues with the IUD, although I didn’t personally deal with it. But honestly, any kind of strange physical symptom associated with removal or occurring during obvious hormonal shifts (ie. period or ovulation) could be attributed to the IUD. The impact it can have on our bodies is huge. I developed some strange issues a month AFTER removal which I’d never had previously, and I realize it was due to the radical shifts in hormones taking place. How are you doing now? Keep posting! Tak ...
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A well-done, sincere video by a beautiful person! What a fantastic idea. :) Diana   [End]
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Thank you for that encouraging post! :) Diana   [End]
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I’m relieved too :) Enjoy your day!   [End]
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Cynthia, my Dr. said that ANAs can appear and disappear and appear again. A friend of mine with Hashimoto’s (autoimmune thyroiditis) says that hers come and go too. I wouldn’t worry too much about the ANAs coming and going. Just hang in there and remember you’re not alone - that many others take a longer time to recover. I pray that better times are ahead for you. Keep posting, because I often wonder about you and how you’re doing! :) Diana   [End]
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Most certainly :)   [End]
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I just saw this too, Nile, and it made me feel sick. My Dr. even recommended the Mirena/rod implant, or at least the pill, for my very young teenage daughter to help control her irregular cycles. I don’t think so. :) Diana   [End]
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Except that if any of us have Hashimotos or thyroid issues due to autoimmunity (and this is a big issue with the Mirena reactions), iodine can aggravate our condition. Iodine is important, but I would only supplement with food sources (like kelp). Coconut oil is a good source too, I believe. I know of people who have messed up their health with iodine supplementation. Just something to be aware of when researching options.   [End]
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Oh Nile, I’m so anxious for you to get some answers. Definitely my positive thoughts and prayers will go to you. I know you’ll keep us updated. Hang in there. Love, Diana   [End]
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You know Cynthia, even though I’m doing better in general, I’m having an awful month this month. It started with the herb supp I took with wild yam and vitex. I only took it for a couple days, and it’s made me feel all weird. I’m going to steer clear of anything that might affect my hormones specifically. I’m feeling achy, like I’m running a fever, strange chills on my scalp today (for the first time since my first year post), horrible restlessness at night, distorted vision, and very spacey. And this is usually the GOOD time of my cycle, after ovulation and not quite to my period yet ...
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I’m sorry for what you’re dealing with! Your story sounds much like mine. Very similar symptoms. I also dealt with Raynaud-type issues, as well as erythromelalgia. It severely affected my lifestyle for a 1 1/2 years after removal, and now has gone away. I would spend hours every day with my feet elevated, with a fan blowing on them, to ease the heat flare-ups. Then it would push my feet back into chill mode, and they would turn pale again. My hands were also bothered, but my feet were the worst. My Dr. attributed it to autoimmune illness because I had ANA’s, but nothing specific en ...
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Nile, I’m excited that you’re running! Like you, I notice that I feel worse if I back off. I just run 2-3 miles at a time, 3 times a week, and that seems to be a good balance. My shins bother me if I increase my distance or frequency. Cynthia, Oh, I feel for you! I was also wondering if you’d weaned yet. If so, that would explain it. If not (and trust me, I encourage long nursing with little ones), then maybe she’s decreasing her frequency or amount of milk. Maybe this is causing your hormones to shift. Here is something interesting to me: I started taking an herbal suppl ...
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Life has been crazy since school started - haven’t been able to get on here to post often, but I keep reading :) The restless leg thing has been a huge issue for me since the IUD was removed (3 years this November). There have been times over the last 3 years when it would disappear for up to a couple months, and then come back and plague me daily for a couple months! For the last 6 months or so, it has been off and on throughout the month. I can count on it either starting or stopping when I ovulate or start or stop my period. I can’t find a definite pattern. But when my hormo ...
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Headaches and fuzzy brain feeling were a definite Mirena issue for me. Actually, they are a hormonal problem for me. The Mirena didn’t help, and it brought on far more serious problems than the headaches. It can’t do you any good! I suggest you have it out ASAP!!! Keep us updated, Diana   [End]
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Personally, I wouldn’t be worried. I had my first period post removal about a month later. It kind of depends on where you were in your body’s cycle when it was removed (and it can be hard to really know the answer to that). Your hormones have been a mixture of synthetic and natural since having the IUD placed, and now your body needs to adjust. Anything could happen, so I would just relax and take notes on a calendar when you start. Hopefully a pattern will emerge sooner than later so you can predict things. Your body is programmed to regulate its cycles, but the IUD messed with tha ...
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It’s so hard when you’ve had the IUD out and feel better and then feel bad again. It’s a roller coaster, and it can happen again and again. I don’t mean to be negative, but try not to let it freak you out when you feel better and then slide back. It’s worse for some women than others, but it’s typical. It’s easy to start thinking that maybe it wasn’t the Mirena after all, but it’s not true. It’s just that the Mirena can throw other body systems out of whack, and for some reason our hormones are intricately involved, so we end up on the roller coaster. Like you, I’ve sworn off ALL hor ...
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Wow - your story made me cry. It makes me happy to hear how far you’ve come. What sweet children you have to help take care of you! Mine also had to step up and help keep the household running while was in bed much of the day for almost a year, feeling like I was dying. Thank you for sharing your story - keep feeling better! :) Diana   [End]
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We could call ourselves ”Super Survivors.” ;) Diana   [End]
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Sadly, my hair loss has continued post-removal, but I think it’s just my hormone imbalance, caused by the IUD as well as many years of the pill. It’s doesn’t come out quickly in handfuls or anything - just slow, steady shedding. It was doing better for awhile but is starting up again. I’ve got to get my little ones into bed right now, so I don’t have time to get into my long, sad Mirena story (there are many long, sad Mirena stories here!), but you can click on my user name (and anyone else’s) to read all my past posts. I have quite a few, but you can go to my earlier ones if you’d l ...
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My dizziness is always worse during my period, and I’m almost 3 years post. I don’t know why either, but it’s pretty predictable. In fact, it starts about a day before the period actually starts. While I had the IUD in, and for about a year after removal dizziness and vertigo happened all throughout the month. The vertigo is gone now, but the dizziness creeps back during my period. It comes with a tingling/buzzing feeling in my head often as well. It’s quite lovely. :) Diana   [End]
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Yes, the Mirena caused me to start shedding hair after about a year of having it in. It’s a pretty universal problem, I would say. Please have the IUD removed! Hair loss has been frustrating for me but not nearly as scary as the other problems I’ve developed from the IUD. Keep us updated! :) Diana   [End]
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Liz, that’s great to know. I live in central Utah (moved here from San Diego a few years ago), so I definitely should increase my dosage. Especially in the winter, I don’t get out at all. So - just to make sure I understand you: you take 2,000 daily and then 4,000 a few times a week? I’d love to get my levels up to the 40s too. I’ve considered using a light box this winter that offers some exposure to UV. Do you know anything about those? :) Diana   [End]
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That’s a great link. I started taking Loestrin when I was 22 and stayed on it until I had the Mirena placed at 36. (Well, I came off the pill when I had my 4 children obviously, but then went back on it because it was the only pill that didn’t make me extremely nauseated.) I didn’t know it was a high-androgen pill. This must be why my hair doesn’t shed as badly with the special shampoo/hair treatments (Bosley/Nioxin). These are geared for androgen-related hair loss. I’d begun to wean off the shampoos last month because the shedding was improving. As of this week, I’m losi ...
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Glad to hear that it’s coming out :) That makes my day! Keep us updated on your RECOVERY - it’s wonderful that you’re on your way to healing. Diana   [End]
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I’ve wondering about you and your daughter! I’m so happy to hear that she is recovering. Your daughter’s case has been more extreme than others perhaps, but it gives us all validation. If she was healthy before the IUD, and then ended up in her condition, and is improving now, that says something undeniable. Take care!!! Diana   [End]
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Thank you for that clear summary! I’ve decided to get my DE out and start up a jug. :) Diana   [End]
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There are many urticarias, and they are related to dysfunction of the immune system. I had exercise urticaria (mild) for a little while last year but it went away after a couple months. I do know, by experience and from what I’ve learned on this forum, that the Mirena can mess with the immune system big time. We’ve all had our health ruined by the Mirena, and allergic reactions are just one of the many issues women have developed. I would suggest you have it out ASAP. Many of us had odd symptoms that came on gradually with the IUD, which we did not link to the IUD at first. For me, t ...
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50 - that’s what I remember being optimal too. Do you supplement with 2,000 IUs every day, year round? I started at 32, and now am at 35, so I have room to increase. I’d stopped at summer since I was getting more sun, but maybe I should keep up on it. I just didn’t want to overdo it. :) Diana   [End]
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For me, it started one month after removal and lasted for a good year and a half. I was having these flushing episodes daily, sometimes many times a day, accompanied sometimes by nerve pain. They were sometimes unbearable. I could only relieve it by elevating my feet and blowing a fan on them while misting them. I still remember watching my 3 year old daughter playing with her dollhouse and keeping the mommy doll in her bed all day with her feet under a pillow, because that was all she could remember me doing! I was in bed most of the time for a year. It wasn’t just because of the fl ...
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Mirena Diabolicalitis. There, we’ve identified it and named it!   [End]
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This has happened to me too :) I learned recently that there is an edit feature on each post up at the top. You can edit your message or cut out duplicate info if you want. I think that only a moderator can delete a message. The Edit option doesn’t last forever, but it works for awhile (at least a day) when you’re likely to want to edit. Take care! Diana   [End]
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