Yes, breast milk production is a documented side effect. It’s been a long time since I researched it, but the information is out there. Hang in there!   [End]
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Hello Ladies, I havent been on here since forever, but I wanted to share this with you.(if this has already been shared, apologies for the repost) For those that don’t know me-which is just about all of you, I put up the 2 mirena petitions-one is still active http://www.thepetitionsite.com/2/mirena-awareness-part-ii looks like Erin Brokovich has taken up our cause! Here is her site: http://www.mirenaside-effects.com/ She has a petition on her site and there are stories being posted as well. She’s a great opportunity to really get the word out about how damaging Mirena really is ...
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Hello Ladies, I need to chime in here on that research, since I was the one that compiled those links. The potassium information came from hormone spiral, which is a translated German forum. I was never able to find out where the information came from so I am not sure how accurate or reliable it is. It does make sense,but without knowing the source of the information, please take it with a grain of salt. That being said, I hope all of you keep inspiring each other. You are wonderful, strong women, and you will get through this. Jackie, my heart breaks to see you still suff ...
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It’s called alopecia and it is a listed side effect in the physicians insert (not the one they give you) Tell you gyno maybe she ought to read that bothersome literature :( I had it both with big bald patches and major shedding. There is a hair loss forum that talks a lot about the mirena. Happy to say i had one more spot appear at 4 months post removal, a good bit of shedding last year, but nothing since.   [End]
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I thought i would share this since I don’t see electrolytes mentioned much in this forum. I had posted a few months ago that I had to take a strong dosage of antibiotics and that in the past they had always wiped me out. With that in mind, I pumped myself up with heavy duty probiotics during and well after the treatment. Unfortunately, I still got nailed with the fatigue and lethargy, confusion and mood swings and especially polyuria (peeing way too much). (mind you, I am almost 3 years post, and doing pretty good except for the fatigue). I looked up antibiotics to see what else t ...
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it was actually my FSH level, follicle stimulating hormone. What it basically told my doc was that my body was struggling to push out the eggs. If you get hormone testing done, make sure you know where you are in your cycle when you go. all the levels fluctuate widely depending on what phase you are in. I was exactly the same. Every 21-22 days, and I could have mopped up the blood with a q-tip :(. My skin and hair were really dry, and I had the brain fog as well. I am going on 3 years post in November. It took over 2 years (sorry to say) but now my periods are almost exactly 28 days ...
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I was pushed into ”early menopause”. (per my doc). I am going on year 3 post and I am fine. Regular periods. I havent had the bloodwork done but I imagine it would not show premenopause at this point.   [End]
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no problem Erika, what i have is the response letter they finally sent me about the original petition. in a nutshell, they think that our complaints need to go to the AMA, not the fda. that their position is to oversee the general safety of the device, and it is the AMA’s responsibility to ensure that the side effect information if properly received by the patients. i am on vacation right now, i can send it when i get back. shoot me an email if i forget-i have a busy couple of weeks upcoming!   [End]
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Erika, I appreciate all that you have done to raise awareness about the Mirena. If you want to give up the site, please give me the domain information and i will take it over (or find someone else who is willing..hint, hint ladies). I wish that we could take this to the next level, but all the money we could pull together could not fight the AMA, which the fda told me is where the battle needs to go. Hope you are well, and thank you for all the hard work!   [End]
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pregnancy aside, all your issues sound like gastritis. I am going through it right now. i have the h pylori bacteria and am going to have to take a massive dose of antibiotics. Not good. ask your doc for an upper gi and test for the h pylori antibody.   [End]
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Clare, don’t be too discouraged. I could have written your post, right down to the veins and chemical intolerance. although it took me over 2 years, I am fine now. Whatever it is that happened to us, I dont think it’s permanent. Hang in there and good luck.   [End]
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Antibiotics did me in. I traced back to all the times I got extremely sick (especially the loss of my cognitive function and vision problems) and every time I went to the Doc about them was right after a course of antibiotics. There’s a good chance your intestinal flora is off. Pro and Prebiotics will help it. Get them in a food source as much as possible, and don’t buy the cheap drugstore ones if you are going for the pill version, many times they are dead. Steroids put a strain on your adrenals which are your secondary producer of progesterone. That could have thrown your system ...
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I was diagnosed with drug induced lupus by the rheumatologist. I don’t have lupus now, and what she told me is that it should eventually subside. Don’t go crazy, you have enough to worry about :)   [End]
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http://berlex.bayerhealthcare.com/html/products/pi/Mirena_PI.pdf liver illness or tumor is a contradiction for use of mirena (see link above). sounds like a new doc is in order. Best of luck to you!   [End]
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unless you were on the mini-pill you were most likely on a progesterone/estrogen combination pill. Mirena and the minis are progesterone only. Throws off the whole natural balance of the hormonal cycle. I never had problems with regular oral contraception.   [End]
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I just received a message from my contact at the Coalition Against Bayer. http://www.cbgnetwork.de/4.html They are going to be presenting countermotions at the shareholders meeting on April 29th in Cologne, Germany. There will be people speaking out against Yaz/Yasmin, and they are looking for someone to speak on behalf of the Mirena victims. They will be able to provide entrance cards to anyone who can attend. It’s a little to far of a commute for me :), but if there is anyone closer (or even on the same continent)you would be welcomed by CGB. (probably not by the Bayer Reps, t ...
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a couple of us had pretty severe weight loss. (I think bass was another) I lost exactly 1 pound every week and 1/2 for about a year. I could have eaten an entire buffet by myself and not gained an ounce. I reached a point where my family was pulling my husband aside and telling him to not let me lose any more weight-I looked skeletal. The only guess I have is that I was not absorbing anything I was taking in. I was also unable to hold water. I was in the bathroom every hour. Within 2 weeks of removal I gained around 5 pounds and my bladder was fine. Anxiety, depression, headaches ...
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Made my day to hear you say that Jackie!!!!!!!! :)   [End]
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I had terrible urinary problems with it in. I couldn’t last more than an hour without having to go. Caused me to be dehydrated because I couldn’t keep fluids in me. It’s called polyuria. It was one of the first things to clear up for me after removal.   [End]
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did you drink a LOT of water after your massage? Deep tissue will release lactic acid throughout your body and if you don’t purge it, you will feel badly.   [End]
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Diana, my recovery was very slow as well. I was ”diagnosed” with drug induced lupus and had all the problems you mentioned. Around the 2 year mark was when I started the wellness program, and I am feeling really good now. I get a mild twinge of the vibrations or foggy feelings, but they are gone quickly and really have no impact on my life anymore.   [End]
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CONGRATS K!!!!!! I was just thinking about you, soooo glad to hear you are doing good and the baby is good!!   [End]
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bravo!   [End]
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here is some info i have compiled. the petitions: many many stories here. one is still active, and the other is the one already sent to the fda http://www.thepetitionsite.com/2/mirena-awareness-part-ii/ http://www.thepetitionsite.com/1/mirena-awareness/ this is the latest article from aa ewiles: discusses how the amount of progesterone in the system is actually a good bit higher that bayer claims. (amongst many other things) note, this article was reproduced by an anti-bayer group, but they have no relationship with the author: http://www.cbgnetwork.de/3538.html Erika post ...
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I might have someone who can check it. my nephew is a chemical engineer working for a pharmaceutical company. If you are interested, email me and I will see if he can take a look at it. I would think if he could determine how much hormone and silicone remain in the matrix (not sure if that is doable or not-separating the two), that would tell you whether the device malfunctioned. The buzz with the pharma techs is that the Mirena is very bad news. I would be most interested to see if the silicone gel the hormone is suspended in is the same amount as it was when it was placed. (I have t ...
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Hello Dad, and welcome, I have been around this board for quite a while, and based on what I have experienced/read, in my humble opinion, there is no singular answer to your question(s). Although I would think being young would help with healing, Mirena doesn’t seem to discriminated based on age. How quickly she recovers will be hard to predict, but she had it a relatively short term (vs. the full 5 years) so she may be one of the fortunate ones who recovers quickly. One of my favorite ladies on this board had a saying she always used ”my worst day post Mirena is better than my b ...
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Jackie/Clare, please don’t give up. I remember being where you are, the sadness and frustration, and maybe even most of all, the isolation. Not having anyone other than your online girls to relate to is such a lonely and frustrating place, and even if you have a good support system, they just can’t understand. I can tell you IT WILL IMPROVE. My anxiety was terrible AND it was at the point you are at now. I feel good now. I am only taking the xanax at night to sleep (and to avoid the withdrawal). There is no more anxiety (amongst many other things), and my anxiety was TERRIBLE. It d ...
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http://www.yourlawyer.com/topics/overview/Mirena-IUD don’t know anything about this firm, but i thought some of you might be interested. looks to be recent.   [End]
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i am over 2 years post and the anxiety/fatigue/lethargy remained the biggest lingering effect. i have been on xanax for years. i am just finishing up a program called ”8 weeks to wellness” i cannot tell you what a difference it has made for me. the anxiety is completely manageable now, and my energy level is way up, even with having a miserable cold for over 4 weeks. i am down to a maintenance dose of the xanax (to prevent withdraw). the program is intense, and is available mainly in the northeast/pa area, but they are taking it national. it involves cardio, personal training, meditatio ...
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yaz is made by bayer, the same company that poisoned us. there are already countless lawsuits against it. i wont even let my husband put bayer pesticides on my lawn. they are an unscrupulous company and i would recommend finding an alternative pill. good luck!   [End]
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you poor thing! yes, you are being too hard on yourself. i cannot imagine going through the mirena hell ON TOP OF lyme, pituatary tumor and mental illness! it sounds like you are trying very hard to heal, and the self-medicating, while it is making things much more difficult, is understandable. what it really sounds like is that you need to find a new primary care doc. i know the difference when i switched was night and day. there is no excuse for a doc to not be taking your problems seriously, and you really need someone to coordinate things for you. when i realized my biggest issue ...
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yes, exactly what you described happened to me. i couldnt go 1 hour without hitting a bathroom. i became severely dehydrated because i couldnt hold water. the condition is called polyuria. it went away almost immediately after removal.   [End]
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http://www.cbgnetwork.de/3538.html I have wanted to post this for awhile. aa ewiles also wrote the previous study on mirena. good reading...   [End]
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no, that doesn’t sound normal. you need to get back to the doc. good luck.   [End]
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I dont take this much now (dont need to), but I will tell you that of the ridiculous number of concoctions and herbs I tried, this was certainly one that was very helpful. Yes, I would recommend it!   [End]
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”TMG is not a drug. It is a natural amino acid that occurs in food and is produced in the body during the metabolism of choline. A substantial amount of the choline in our bodies, though, is channeled through other important metabolic pathways. Major among these is its conversion to biological lecithin (phosphatidyl choline) and the nerve-impulse-transmitting substance acetylcholine. Experiments in which large doses of lecithin or other choline precursors that can deliver acetylcholine to the brain and nervous system were given to human and animal subjects have resulted in greatly increase ...
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TMG (trimethyglycine). It is inexpensive and you can buy it on the internet. I use the Jarrow brand. It was very helpful to me when I was having the brain fog.   [End]
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Yaz is also a bayer product. I wouldnt trust ANYTHING they put out. you might want to find a non hormonal form of birth control?   [End]
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mental clarity, depression, anxiety, mood swings. the drugs out there to treat depression and anxiety particularly are targeted on the neurotransmitters (seratonin, dopamine, gaba, etc) I’m fairly certain there’s a connection, but how to put the dots together is an altogether different story. believe me, i tried!   [End]
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I was about the same as where you are now (without the reflux). I still have the fatigue, insomnia and anxiety. I saw a chiropractor reqularly and it helped tremendously with the back pain. but like I said, I am not in a good place right now, and I would be irresponsible to attribute it to the mirena. the thing you have to keep in mind is that a hormonal imbalance is very delicate, and it can take ages to rebalance. I am also not convinced that this thing did not somehow mess with our neurotransmitters. I will be 2 years post in nov. I know it’s frustrating. the best thing I ca ...
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Thanks for asking! I will be 2 years post at the end of Nov. I am doing ”okay” but I am pretty sure most of what I am feeling now is probably more from stress, and not taking care of myself as well as I should. Now that all 3 kiddo are in school full time it’s time to get some exercise. I’m thinking pilates.   [End]
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otherwise known as vitex. worth a shot, I really dont know if it helped me or not b/c I was trying soooo many things at the same time. I know I sound like propaganda for the truth in medicine, but there are some good discussions on it there.   [End]
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from what I can tell, none of it (blood vs saliva) is accurate. go to the truth in medicine forum and look it up.   [End]
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and these... http://newsblaze.com/story/20100914122854zzzz.nb/topstory.html http://www.msnbc.msn.com/id/38980515/   [End]
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http://www.cbgnetwork.de/3513.html   [End]
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I looked up allesse and it is exactly the same hormone (levonorgestrel) as Mirena. the difference is the added estrogen. I would really recommmend against that, and just give it some time. Everyone is different in the length of time it takes to get a period back. good luck.   [End]
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your obgyn is not very bright. Mirena is documented to cause cysts and it is used with caution in diabetics. back pain and headaches are very common, and by the time I got it out I couldn’t be outside even on the foggiest day without sunglasses, and I couldn’t drive at night at all. go to the mirena website and look up ”safety with Mirena”, its all there (except liver problems). Go to ”the truth in medicine forum” if you have questions about how hormones affect your liver and how you can clear them. God, these doc’s really tick me off. I havent posted on here for a long time, but ...
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Hello Ladies, I wanted to chime in here and give you some encouragement. I’m not on this board much anymore, although I follow your posts, and I feel your pain. I am 20 month post, and feeling almost back to normal. I still have the edginess (taking low doses of xanax to alleviated it, work well) and insomnia (had this prior to mirena). I am still not the ”get up and go” motivated person I was prior, but I am moving again and working. (and also 7 years older, which may be slowing me down) I found over the summer being able to sleep in has done WONDERS for me, possibly because my adr ...
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I would avoid Yaz if you are going on hormonal b/c. It is also made by Bayer (who make Mirena) and there are many issues with it as well.   [End]
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Just a thought-I heard somewhere that you should not use the ovulation cramp to determine whether to abstain b/c once you feel it your egg has already dropped. Not sure if this is accurate info, but you might want to look into it. Good luck! I am a HUGE fan of vasectomies :)   [End]
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18 months post and I could use a q-tip for a tampon (ridiculously light periods). Totally irregular too, but I am 42 and my gp thinks i am in menopause. Before Mirena I was like clockwork with a very respectable flow. So no, never got back to normal. :(   [End]
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please dont be scared. look up 4 month crash on this site. It is one of the most common and the worst. It was horrid for me as well. My GP told me that this would be the time when our hormones would start trying to rebalance themselves, and it was logical it happened right around now. Hang in there!   [End]
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I was told by my rheumatologist that it was likely the mirena caused ”drug induced lupus”. (based on my bloodwork) Unfortunately i didnt see her until 4 month post removal, so the results weren’t conclusive.   [End]
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Yes-I think the mirena weakened our systems enough to make us much more susceptible to the yeast overgrowth (candida). I traced back through my many medical records during the time I had mirena, and every time I was put on antibiotics (but once, when I started an enzyme regime) i was back in the docs office within a week, VERY sick.   [End]
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Make sure you get a good pro/prebiotic after the antibiotics. The antibiotics are going to kill of most of your good flora and the bad stuff can take over and make you feel terrible.   [End]
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It’s normal, Happened to me and it happens to a lot of us. Dont panic! Some of it sounds like allergies (our adrenals are weaker so you may be more suceptible). also look at your supplements-see if you started or stopped anything around the time of the flair up. Hang in there!   [End]
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