I have recently read a couple of books by Dr. Claire Weekes on what she calls ”Nervous Illness”. The books were published some time ago; but the information is solid and timeless. They have helped me a great deal. I still struggle, but I do feel like I am improving. I just wanted to throw this info out there for anyone interested. You can search Amazon for her name and all of her books are available there. I read a lot of the reviews and that is what led me to purchase the books. People credit her books with saving their lives, so I figured I’d give it a try. I hope someone out there find ...
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Thanks so much everyone. I am thinking alot of this is due to continuous tension. Not sleeping really takes it’s toll. I am working on trying to relax and finding some way to get enough sleep. I have read some great books by Dr. Claire Weekes about anxiety; and the methods in the books really have helped (though I am still working on it). I am wishing everyone wellness...=) We will get through this.   [End]
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This is so frustrating. I did not have the twitching muscles w/numbness and tingling previously. Now my left bicep and both thighs keep twitching intermittently. It’s starting to freak me out. I am still not sleeping well; so maybe this is an effect of extreme exhaustion. Any ideas/suggestions? Has anyone else developed new symptoms 4 months post?   [End]
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ellibaby, I am so sorry for all that you have gone through. You are so not alone. You sound like you have a very positive attitude/outlook,(I am not always good at this)and I think that is a major help in getting through this. I will be sending you healthy healing thoughts. =)   [End]
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Thank you for the encouragement; I need it today. I just went to the bathroom and found that I am spotting. I wasn’t expecting my flow until Monday; but from what I have read it is common for periods to still be unpredictable at this point. It is very frustrating. This bout of PMS or whatever it is has been way worse than any previously. Maybe it is the infamous ”4 month crash”, but that is what I have been saying for a month and a half now. I keep saying maybe this is the worst of it and it will be uphill from here (hopefully I can start believing that soon). Reading old posts has been he ...
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I know; I know, this is a question asked a million times, and I know there is no real answer. I am just feeling really crappy again. I had read about the 1st crash and then the 4 month crash, but I feel like I have been crashing since about 2 1/2 months, with only a few good days here and there. This is really hard. I am about 4 days from my 4th real period post removal, so I am pretty sure I am just in hormonal hell right now. UGH...I have been crying over nothing, super sensitive and have had weird cramps since Wed. Before Mirena I would only have PMS for maybe a couple of days before my ...
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I came across this post and thought you all might find it interesting; I will copy it below... Subject: An interesting study! - ”Mirena: the other side of the story” Username: nile contact nile Date: 11/11/2008 11:11:37 AM ( 10 mon ago ) I saw a reference to this study, but had a hard time finding the text. Wonder if Bayer is out there deleting references to it or something. Hopefully more of these studies will be done so that the truth can come out! Note where he says the dosage in the bloodstream is like taking 2 minipills daily. Mirena: the other side of the story ...
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I have just made an appointment to have a phone consult with a Naturopathic MD in my area. He is then going to recommend appropriate testing and a follow up visit to discuss the results. I am hoping he can point me in the right direction to restore my health/balance. I have read some older posts regarding naturopaths. Has anyone had recent experience; any advice? Thanks...   [End]
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Thanks for the tips. I have been thinking about asking my doc for a sleep aid. Last time I asked she suggested benadryl, but it makes me all twitchy and kinda hyped up, same with tylenol or advil pm. I am super sensitive to meds. =( I have taken Ativan on occasion, but I feel like there are effects the next day (increased anxiety, heart palps). Maybe I am imagining it and it’s just the Mirena effects I don’t know. I do know that I NEED some sleep. Thanks again ladies.   [End]
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Anyone have ideas on curing insomnia. What has worked for you? I fall asleep initially (because I am exhausted) but wake up after only a couple of hours, get back to sleep only to wake about every hour the whole night. It’s not as bad as when I had it in the beginning; I am not waking in a panic or freaking out, just waking continuously. It is so frustrating. I feel like, if I was able to get some decent sleep on a consistent basis I might actually get over all of this. UGH...any help/ideas would be soooo appreciated. Thanks ladies. =)   [End]
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I just wanted to wish everyone well and hope that we all enjoy ourselves to the best of our abilities. Try to smile, enjoy your families, and not take anything too seriously. This WILL go away...We WILL all be better. =) Much love ladies...   [End]
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Yay Nile...I am so happy for you. It’s awesome that the anxiety is gone. I had those heart feelings in the beginning of both my pregnancies; hormones are a wacky thing. Wishing you and your family a healthy happy Labor day. Take care and keep us posted. = )   [End]
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Thanks ladies; I needed to hear that. =) One baby step at a time, I know I’ll get there.   [End]
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Ok, so earlier last week we had scheduled to have the girl’s pictures taken on Saturday at 4:30pm. Of course all week I was a bit tense about whether or not I would be able to go. Read my last post and you’ll understand. So Saturday rolls along and I am feeling pretty good. We get everyone ready and head out. I had some anxiety riding in the car on the way, but I was able to keep it in check and maintain perspective. We got to the portrait studio and got through the joy of trying to get a 3 year old and a 1 year old to pose for pictures. Then of course we had to wait while the photographer ...
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Lisa, I have been feeling the same way. I searched through old posts and printed a few recovery stories. When I am feeling really discouraged I read through them and they make me feel a little better. Knowing that these ladies were where we are and now are 100% better gives me hope. I think I searched ”Mirena Recovery” or ”1 Year Post”. Wishing you wellness...=)   [End]
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Someone at Bayer or maybe many at Bayer will suffer some very bad karma in the future; I am sure of it. Good luck with the horse pills. Let me know if they work as well for you as they have for mamaj; maybe I’ll have to switch.   [End]
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Amen sister...I am so down. =)   [End]
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mamaj; you have been a great help to me. I agree that shutting myself in definitely perpetuates the problem. I just need to kick myself in the backside to get over it and get out of the house. Thanks again, and I love your puppy’s name. I hope we will all be baking and singing badly and enjoying every moment of it come Christmas. =)   [End]
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Thank you all so much. It is really comforting to talk to those who have been there and understand. You have all given great advice. I am feeling much better today and hope it lasts. If I could just get some decent sleep I know it would help. I am taking a good multi that’s high in B Vit, Omega-3’s, Calcium and Magnesium and an herbal supplement called Herbal Equilibrium that’s supposed to help balance hormones. I try to exercise as much as possible (not as often as I should) and eat healthy. I have a glucose meter from when I was pregnant with my 1st and started checking my sugars. My fas ...
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So sorry to hear your not feeling well. We are in the same boat though. This recovery is rough and slow. Are you still taking the Lexpro? Could that be effecting your period? Just an idea, and I’m sure something you have already thought of. I hope by the time you read this you are feeling better. I have been going through old posts and have printed out some from ladies who have recovered. I read them when I am feeling discouraged. There are some great and inspiring recovery stories. I think I searched ”Mirena recovery” or ”Mirena update” or ”1 year post” and then I tried to only read the g ...
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Congratulations...that is so exciting. My husband and I were thinking of having a third child before all of this Mirena mess began, and lately I have been wondering if I would ever feel well enough again. You give me hope. Please keep us updated. Wishing you and your family wellness and joy. =)   [End]
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I haven’t posted in quite awhile; mostly because I didn’t have anything positive to say and didn’t want to add to the negative. So last time I posted I was in a very bad place; all my symptoms seemed to come flooding back. I searched old posts here and read about a 4 month crash, but I was only at 2 1/2 months. I thought what the heck is going on. It was awful. I was so bad off that I finally relented and asked my doctor for the Zoloft. I took one dose and became so ill that I couldn’t will myself to take the second dose. It took me a few days to a week to recover from the effects of that ...
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I have been thinking about you. You were one of the first people to reach out to me when I first came here. How are you? If you read my last post, then you know I am having a really tough time. I thought I was getting better and then WHAM...back to square one (anxiety, panic attack, ugh). I am picking up a rx for Zoloft today and am extremely nervous about it. Did you have any issues when starting the Lexapro; side effects etc.? How soon after starting it did you begin to feel better? Any info or advice you could give me would be greatly appreciated. I hope you are well and continue to imp ...
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I don’t know what is going on. I had been feeling so much better. I just finished my 3rd flow post, or second ”real” one (I bled heavy after removal for about a week but was that just removal or an actual flow?) The worst symptoms for me were the anxiety and digestive issues; but I was managing and they were getting less intense. The last couple of days I felt a little more off, but just thought it was due to period funkiness. Then yesterday on my way to my acupuncture apt. I had a full blown panic attack while driving. It was terrifying. I made it to the apt. and had to literally force my ...
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Thank you so much for posting this; you give me hope. congrats’ on your health and may you enjoy continued wellness.   [End]
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Great tips. Thanks for sharing; positive info is always so appreciated. =)   [End]
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Our removal was around the same time. I was glad to read that you were feeling better. How has it been going and what have you done to help your recovery? I too am much better than right after removal, but I certainly still have my bad days (though not as severe). I think exercise (when I can), rest (when I can) and trying to eat healthy and regularly to maintain blood sugar levels have helped. Oh, and reading this forum =). I still haven’t ruled out going on the Zoloft yet; because some days I just feel so tired of struggling with the anxiety. Though I know there is no guarantee it would ...
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Welcome. You are not alone; there are a great number of us who suffered/suffer the same symptoms. For me the anxiety has been the worst. This is a great place to find support and info. I am almost 3-months post removal and can attest that recovery is a roller coaster ride, but it does get better. I am soo much better than I was, but still healing. This forum has been a godsend. Take care and feel free to ask any questions you may have; the ladies on this forum are a wealth of info. =)   [End]
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Thanks again mamaj; I always find your posts insightful and uplifting. I do have my husband at home who helps a lot; but when the kids are sick, most of the time they only want mom. I will definitely try to get more rest, as I do notice that everything is worse if I haven’t slept well. As for exercise; I try, but with the two little ones it is hard to find time. We have started to go for an after dinner walk most nights and I find that helps. I will look into the other remedies you mentioned; trial and error sounds like the only way to go. Thanks again for your help, and it makes me feel a ...
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Thanks so much for responding. I think for me the anxiety is the worst. I do sometimes feel depressed; but I think it is directly related to the anxiety. I feel low because I just want so badly to feel like my normal happy self; so I don’t know if that is really depression. I haven’t been sleeping great lately; but that is because both of my children (1yr & 3yrs) have been sick and waking multiple times a night. I feel like this whole Mirena experience has really shaken my foundation, and I just generally feel unstable. My brain starts this horrible cycle of ”what if” thoughts, and then I ...
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Has anyone tried these, or other all natural treatments, and what has your experience been? As you can see from one of my earlier posts my doctor recommended Zoloft; but I would like to try to overcome this without using anti’s that have so many side effects. I am feeling pretty bad right now; but I think that is because I should have started my period and haven’t. I am 40-days post removal and starting to stress about not having a period. UGH.   [End]
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I was just curious; those of you who have tried antidepressants or alt./natural meds.(St.Johns Wort etc.); at what point (month 1,2,3,etc.)did you decide ”enough is enough, I need help”. What was your experience? How long did you take them and did/do they help? If you are no longer taking them; how was your withdrawal and do you feel well now? I know some of you have shared your Zoloft experience with me; I think I am just feeling low right now and looking for hope. I find myself teetering between ”I can do this, I am getting better”(good days), and ”I don’t know if I am going to make it”( ...
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Thank you for responding. How has your recovery been? Have you felt considerably better each cycle? I am much better than I was a month ago. The worst is the lingering anxiety; but even that is not as intense; but still awfull. I am just hoping that after my period that will lessen as well. Thanks.   [End]
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Ok, so I know no one can really answer this question. I had Mirena removed on 5/4, and oh my, what an emotional & physical roller coaster I have been on since. I bled heavily w/large black clots after removal. I have been feeling like I am going to start my period for about three weeks (cramps, back ache, nausea etc.)but still nothing. I have read that others have gone through delayed menstruation after removal. What are your stories? I am contemplating buying a preg. test; but I keep thinking ”no way, just wait it out and you will start”. Any suggestions or words of wisdom would be apprec ...
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I was just looking for some encouragement. For those of you who are feeling better; what/when was your lowest point, and when did you start to improve? How were you at 1,2,3 etc. months post removal? I know we are all different and no ones experience will be exactly the same, but knowing that someone was where I am now, and then got better makes me feel hopeful. Thanks ladies.   [End]
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I spoke with an Lcsw yesterday regarding the anxiety and depression I have been experiencing. She suggested that some of my symptoms could be indications of early menopause. She also suggested that I have my hormones tested and explained that it is just a simple blood test. Would you please order this test and any ohters you think would be helpful in determining hormonal imbalance? Thank you, ----------------------------------------------------------- Her response. The only hormones I can check are the hormones related to ovarian function. If you are having regular periods every 3 ...
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Ok, so I know this is a small success; but a success for me none the less. Last night I decided to have a glass of wine while preparing dinner. I have not had a glass in many weeks because I have not felt well enough. Last night I wasn’t feeling super, but I thought what the hey, nothing else has worked; lets see what happens. I actually felt a lot better and was pretty relaxed the rest of the evening. I slept better. My daughter woke many times during the night(second double ear infection in a month)yet I was able to fall back asleep easier and more quickly than I have for a while. Perhap ...
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Thanks for responding. It sounds as if we are in the same boat. I have two daughters 1yr and 3yrs; so this has been even more difficult because I feel like I am not being the mom I was, before this started. The guilt is awful. I had tingling in my hands and feet at first, but I think it was related to the anxiety which has been the worst and most persistent of my symptoms. Before I even realized it was the Mirena I was experiencing swelling and stiffness in my hands and feet, acne on my back, bloating and lower abdominal pressure. At the time I attributed the swelling/stiffness to maybe ea ...
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Well it’s been a while since I posted. I have been busy trying to feel better. I have had acupuncture and herbal meds; started vitamins and supplements etc. I do feel that I am improving but it is slow and sometimes there are backslides. The good days I feel so hopeful that this is coming to an end; but the bad days are so bad that I feel like I am going to lose my mind and that I will never feel normal again. Having said that; I saw a counselor yesterday and tried to explain what was going on, but her apt. was only 30 min. and she didn’t even look at all the info I had brought about the M ...
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Thank you for reaffirming what I was thinking. It HAS to be hormonally related. What a jerk my obgyn is not to even consider it. = ( I have made an appointment with an acupuncturist for this Sat. I hope it helps. I am also considering counseling/therapy (which seems crazy in and of itself, since I have never been a person who EVER thought I would need therapy, until recently, I have been extremely blessed to live a happy and relatively problem free life), but I figure what can it hurt and if it helps even a little I will be grateful. I will keep you all posted on my progress. Thanks again ...
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I emailed my OBGYN today. Check out my email and her response below. What do you guys think? (My question) Subject: Hormonally related? I have been suffering anxiety almost daily and am having trouble controlling my negative thinking. I fear that I may be suffering depression; I have lost 8lbs in two weeks due to constant nausea/digestive issues. I haven’t slept well either. I feel that this may be hormonally related; I have no previous history of anxiety/depression and I had the IUD out approx. 9 days ago. I ordered some vitamin/supplement for hormonal balance and plan to start tak ...
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Thank you all for your kind words. I was doing ok this morning; and then all of a sudden my heart started pounding and the irrational thoughts started. I feel like I am losing control. I am trying very hard to maintain a grasp on reality, but it is tough. When will this go away? This is NOT me; I have never been like this. I feel like I am losing myself, and that I do not have control over my mind. What an awful feeling this is. I just keep reading posts here and trying to remind myself that this is just the ”crash” and that it will get better. Sorry I sound so desperate, but that is how I ...
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I am 9 days post removal. I had a decent day yesterday and then last night, while trying to watch a movie with my husband, I started to spiral downward. I started to feel so hopeless and like there is no point to life at all. I felt boxed in like the walls were closing in on me and I just didn’t want to be here anymore. This is a terrifying feeling. I did not sleep well again partially due to this feeling. Today I feel hopeless again. I did notice increasing breast tenderness. Is this the ”crash”? I am feeling so bad that I started to think maybe I needed to be on antidepressants. I have b ...
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Thank you Melanie. It is so great to read a positive story. I am 1 week post removal and having a tough time. Positive recovery stories make me feel that there is a light at the end of the tunnel, even if I can’t quite see it yet.   [End]
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I found this website called womentowomen.com; they specialize in women’s health issues particularly hormonal balance. (I am in no way affiliated) but their info on adrenal fatigue I found very interesting. I am going to try their personal program. If any of you check it out; let me know what you think. I hope this helps, because I am desperate to start feeling better.   [End]
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Thank you for your support. I am feeling a little better this afternoon. It is exactly as you describe it a ”rollercoaster”. I can tell you this; I am ready to get off this ride. Thanks again.   [End]
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Yes, I am replying to my own message...I just wanted to add that I have no previous history of anxiety, depression, anything. One month ago I was a healthy, happy, outgoing, fun, confident, well adjusted, 32yr old mother of two. I have a strong and fulfilling relationship with my wonderful husband. I have a great relationship with my parents, extended family, in laws and friends. This hit me out of nowhere and I am struggling to understand how I could go from happy and well adjusted to miserable and crazy in one month.   [End]
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Ok, so I had the device removed on 5/4. 5/5 I had some slight bleeding; but felt better mentally. I actually had a good night; enjoyed my kids and husband; wasn’t consumed by thoughts of how bad I feel. I thought, well maybe this is going to get better. Then 5/6 I started bleeding heavily, cramps clots the whole deal, anxiety came back a little, headache, not feeling well. Slept ok. Then yesterday 5/7 more of the heavy bleeding, cramping, clots, increased anxiety to the point that I wasn’t sure I was going to make it through the day. I felt miserable all day, dizzy, shaky, like I was going ...
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Thanks for sharing your story. I am glad to hear that it does get better. I started bleeding and cramping yesterday. I am fearing a ”crash”. I feel so awful already I don’t know how I will handle anything worse. I have two young children ages 2 and 1. It is so hard to take care of their needs when I feel like this. Thank goodness I have a wonderful husband who helps a ton. I feel so guilty though, putting everything on him and knowing my children are looking at me like whats wrong with mommy. Last night I felt better than I have in a while. Then today I had to take my 1yr old to a doctors ...
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Approx. 10 months after having the Mirena inserted I started to experience anxiety, panic attacks, night sweats, hot flashes, heart palpitations, digestive issues, memory lapses and a generally foggy feeling. I have no previous history of any of these conditions. I feel as though my ”normal” life has come to a screeching halt. I had my Mirena removed two days ago and am hoping my symptoms improve.   [End]
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