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Hepatitis C and me
hepatitis
Date: 12/8/2005 11:14:37 AM ( 19 y ) ... viewed 4256 times May 2005 I was diagnosed as having hepatitis-c related kidney disease. I was literally bed-ridden, full of fluid with vasculitis causing the excess to leak out of my infected legs. I had gone from 160 pounds to 220 from the fluid build-up. They drained 14 litres from me when I finally went into emergency. I had tried chinese medicine for 8 weeks, after my diagnosis. The herbalist became frightened by my kidney's complications and called in his wife, also a chinese herbalist and MD. She suggested I needed a new, special herbal concoction/pill that her uncle in the states was developing. It would only cost me one thousand per month and i would need three months of it. Snake oil salesmen flourish on all sides, it seems. I went into emergency with severly infected legs, laid there for 8 hours, waiting for attention, and thought about how Bob Marley died- (from gangrene, stupid Rasta!) while listening to trauma cases sceaming and dying on the other side of the curtains...
After three weeks in hospital, intraveneous antibiotics, twice-daily changing of the dressings on my legs, and a tube in my gut to drain the fluid, I was ready for a kidney and liver biopsy. Having had those done, now able to walk, with less than 50 percent of my muscle mass left, osteoporosis developing, I am now home, feeling somewhat better but with a long way to go, I know. I can walk, do qigong and taiji and can play my drum at the beach!! (All with great care and moderation, of course.)
The specialists are soon to give me the treatment they say will very likely help to knock down the hep-c virus enough to allow my kidneys to recover so my liver can re-generate.
(A 'new' formulation of interferon.) In the meantime I am on steroids, perscription vitamins, dieuretics and a high-protien diet.
There is hope, and I am grateful for so much. I have learned more in the past 6 months than I ever thought possible to learn, for me. About myself, who and what I really am. What life is for we humans. And yes, what is 'beyond' too.
They say I acquired this demon when I was two years old. 54 years ago. I had developed pernicious anemia and required a complete blood transfusion to save my life.
One of the donors was carrying the virus, it seems. Of course, there was no screening for anything in blood back then, certainly not for hep-c. I've had a 54 year reprieve, at least, so even if I don't last much longer, I certainly don't feel that i've lost out in this life. With such friends and loved ones around me, how could I have lost? I feel that I will have plenty of time left to do what I must and I am truly happy.
So, no matter what your problem is, know that it is not too big for you. It is a gift, that once opened, will reveal to you a Greater Reality and the Truth of Who You Are.
~LightLizard~
feb 9/06
After the hoops were all put away, for the time being, I finally got the funding for the interferon program started. I had my first shot at 5 PM, Feb 8, and will be taking weekly injections for the next 48 weeks. Well, 47 weeks, now. 47 more pokes to go...
I also must take five capsules of Ribavirin daily, as well. This is the new 'Pegatron' treatment that seems to work more effectively then the older treatments, because of the 'pegalated' interferon - combined with the Ribavirin, I'm told.
They say the side effects of this treatment can be real nasty. It's a good 16 hours past my first shot, and actually, I don't feel 'bad' at all.
the fun begins....
later...
love
LL
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