Fecal Body Odour - Please save me
Hi,
After a year of seeing absolutely anyone I could and no answers, I've decided to give it one more hard push to try and solve this mystery that has completely torn apart and irreversibly damaged my life. If you have the time to read my journey and offer any assistance, then god bless you. I have lost everything I cared about in my life and have given up trying to maintain relationships with anyone, considering I am humiliated every single time I leave the house.
About a year ago I started smelling like ****. At the time, I had slight liquid (probably fecal) leakage, which only very recently subsided. At the same time, a very annoying and persistent pain in my pelvic floor (rectum I think) developed, which has stuck with me. I also have trouble evacuating, as my bowel motions seem to just stop halfway through going normally (sometimes I can feel **** stuck at the very end but no matter what I do cannot get it out - resulting in a little bit of it seeping out over the course of the day occaisonally). I have also lost about 15% of my bodyweight over this period (but that may be due to pure stress)
Everywhere I go people react weirdly to me and I now have a reputation amongst a very large group of people as the kid that smells like ****. Whilst I can never smell anything, believe me, this is not in my head. Most doctors think this (understandably) and don't even try to help me. People comment on it with disgust all the time and I'm not stupid enough to not realise when every person in a room is laughing at me (especially when they can't even speak to me without cracking up). Please note that I apparently smell when I have had a normal bowel motion and have no leakage whatsoever.
I think it is necessary to tell you of the previous tests I have had and doctors I have seen to rule out any suspicions you may have at this point:
Lumbo-Sacral MRI (to check if any nerves are being pressed on)
Colonoscopy/ Gastroscopy
Sigmoidoscopy
Anal Manometry
Pudendal Nerve Testing
Defecating Proctogram
Multiple Stool Tests
Multiple Blood Tests
Stool Microbial Analysis
So from all these, all that was found was that my pelvic floor muscles were slightly tight (but still in the normal range), for which I received botox into my pelvic floor and was referred to a pelvic floor physiotherapist (neither of which provided pain/odour relief).
About 3 months ago I went to see a naturopath who found I had a shigella infection that he thought may have been with me for over a year (which I believe is wrong as shigella apparently only lasts for under a week, is commonly picked up and he said he wasn't familiar with the bug). I also had been tested for shigella 6 months earlier with a negative reading. He also ruled out candida from the microbial analysis but found that I had high levels of Streptococcus in my bowel. After clearing the shigella and strep I felt marginally less fatigued, but all other symptoms remained the same.
If anyone has bothered to read this, I could not be more desperate to get my life back. Thinking about this 24/7 has consumed my life and I have lost all the confidence that I once had. All I want is to be able to live my life like a normal person and to be able to socialise without the fear of being humiliated and laughed at.
I have run out of ideas as to what could be happening or who to see/ what tests to do. This has forever damaged me as a person and I cannot even begin to describe how mentally worn out from suffering in silence during what are meant to be the best years of my life. I am completely depressed and there is simply no way to change that without getting rid of this problem. Any assistance you can provide could save my life, although I know the chances of anyone being able to decipher how this is happening is very slim.
Thank you if you took the time to read my story, as depressing/strange it may be