Re: New EC research website

Hi I'm French and i've discovered that i was touched by this kind of illness one year ago although the problem began approximately two years ago! It's very unbearable and extremely disabling, that's why I called it a silent killer disease!
Anyway, I appreciate to have found more information on a english-speaking forum than on a french one.
I'm now consulting a dermatologist who is the first among three i've consulted in the past who had diagnosed it's a cheilitis (i've found later it's an EC).
I hope your website will help us even more that this one, the best, according to me, up to now.