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Re: Mirena has ruined our life! severe leg pain, numbness, tingling, hair loss, back pain, migraines, weakness, dizziness.
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Published: 10 years ago
This is a reply to # 1,875,631

Re: Mirena has ruined our life! severe leg pain, numbness, tingling, hair loss, back pain, migraines, weakness, dizziness.

Oh Heather. I'm so sorry.

Yes, I definitely agree with your doctor that it is the Mirena that has caused all of these terrible symptoms with your daughter. If you look around this forum alone, you will see that so many of us had the same type of symptoms. I was actually two weeks away from my spinal tap (because they also thought I had MS or Lupus) when I tested positive for silicone poisoning. At that point, I had figured out that it was the Mirena, but there is still just so far to go even after we find that out.

Let me start by saying that YES....your daughter is going to get much, much better. But, let me also tell you that--most of the time--is is a long and frustrating road back to recovery. For some, they rebound back right away. For many others, it takes quite some time with many ups and downs (relapses....see "Mirena Crash") along the way. I had my Mirena removed 14 months ago (after having it in for 17 months), and I am still dealing with some lingering issues. That being said, I am SOOOOO much better than I once was.

I continue to write in my Mirena awareness blog. It tells my story, and I what I have done to find relief and recovery. The address is

You will be doing the first ultimate step towards healing by having the Mirena removed. In my opinion, the next thing that you need to do for her is a detox. I detoxed twice, but I can tell you, I felt much better after the first one....and I have medical documentation that shows that I had elevated silicone levels in my blood, I did this three week detox, and I came back to take the same blood test--where the results showed that it was completely removed from my blood. It worked well for me. If you would like to speak with my doctor (the detox info is in my blog), please feel free to message me, and I will send you his contact information. He has sent it to many women in other states via mail if they can't find someone where they live.

Just to prepare you, your daughter may not get better immediately after her Mirena removal. There is so much poison in her system that needs to be filtered out, and so many systems in her body that need time to repair. I know that some of my symptoms, such as the anxiety, turn a worse turn right after removal because of the hormonal shock to my system. After time, it got better and better.

The only reason that I am telling you this is because I don't want you to, if she doesn't get better right away, ever think that you were wrong and it wasn't the Mirena. It is. Taking it out is the best thing for her. Then, detox out those toxins that are destroying her systems...and the most frustrating part: let time pass. It takes a long time to bounce back from this. However, PLEASE (both you and your daughter), keep remembering that she WILL. This nightmare will pass for you. She WILL start healing. And know that we are all here for you as she does.

I'm so sorry that we "meet" in this way, but know that we are walking this with you, and we are praying for your daughter. You are right, it is a huge injustice what has been done to so many of us, but we are fighting back for our health and our lives. She will, too....and she will slowly heal.

Please let me know if there is anything that I can do for you, and please continue to check in with us regarding her progress. This is a wonderful forum of ladies who know, all too well, what your family is enduring.

Big hugs to you, Heather. And no matter what, keep reminding yourself that she will get better as time goes on. Hold on to that.



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